May 20th
2008
4:05 PM
Hi. I was diagnosed yesterday with Bells Palsy, (the entire right side of my face is completely paralyzed) and given prednisone, a tapering dosage. I started my first dose of only 20 mgs last night and went to 60 mgs today, will keep on that dose tomorrow as well as one more day, taper down to 40 mg for two days, then 20 mgs for two days. My heart feels like it's going to beat out of my chest! I can feel it it's beating so hard and I can also hear it when lying down .Very freaky. My blood pressure today was 164/107. My normal bp is 110/70. I take medication for high blood pressure but it's not doing much good. I am also a diabetic and my sugar is whack! Had to increase my Metformin. I'm assuming since no one has died from taking this HORRIFIC medicine, we'll all live through it but at times, I feel like I am going to have a frigging massive panic attack! I have to calm myself down, listen to music, meditate. That does help some but not enough .I will be sooooooooo glad when I'm done taking this SH*T! Another thing I've noticed is I am bone weary weak, like I've run the Boston Marathon, competed in the 1000 meter butterfly medley and then played 3 sets of tennis on top of that! GOOD GRIEF, HE INVENTED THIS CRAPOLA?
-- By tatyanna | Reply | (2) replies | Private Message me
July 22th
2008
1:21 PM
Hi all. I would just like to agree that PredniSone sucks but it is the best out there for these diseases especially the auto-immune diseases. Drug companies do not make any money on prednisone because it is generic and there is no patent. I know I picked up 98 10mg prednisones yesterday for $5.00. Believe me when there is a better steroid that works as well and has less side effects it will be available to us all. It will cost tons but it will be sold. Researchers have been working for so many years trying to find an alternative, some have been found but do not work well enough. As bad as the prednisone makes us feel it does work on the diseases. You always have the choice to say no - that is why we should all have a health care power of attorney - just remember that when you decide not to take the prednisone you are agreeing that the disease may worsen and may be life threatening. I hate to sound so morbid but patients must be informed. When you are at the physician ask about the side effects, ask if they can give you something to counteract any mood swings, ask what lotion is best for the itchy skin (AmLactin works well for me and is over the counter). Also, my physician advised me yesterday that the side effects are worse on women due to our precarious hormones. I have told my husband to just stay out of the way and don't piss me off because I am not sure how this next 7-8 weeks is going to fare for him. I am 4ft 10in 110lbs and he is 6ft 1in 200lbs and believe me he is scared for his life. I am using prednisone for my ulcerative colitis so now that I am feeling better physicially I can return to exercise and that has definitely helped. So has turning up the music really loud and dancing and singing poorly. Yelling at the tv helps me whether it be politicians, soap operas or idiots on game shows who get the wrong answers. I also have been keeping a journal of all the rage I have and what kinds of things I could do to people who keep getting in my way at the store, on the road, in line at the pharmacy - I guess I need to put that in a safe place so it can't be used for evidence :}
-- By maryrn | Reply | (7) replies | Private Message me