June 28th
2009
8:57 PM
I have been on Prednisone, off and on, for many years as I'm a severe asthmatic. Lately though, I've been dizzy - I mean the sometimes can't stand up, room spinning when your eyes are closed, dizzy - tomorrow will start the 5th week of being "off kilter." I have been anxious, don't sleep well, bruise like crazy, my stomach hurts all the time, and a dozen other symptoms. But, I have to say, I'm used to "not" breathing well, but being dizzy - that is starting to take its toll. This occurred, I believe, because of 60mg a day for over 3 weeks, and then I started tapering. Every time I have a terrible reaction to this drug, I think I will "never take it again." But, whenever I'm at death's door, I change my mind because with all its horror, Prednisone can be a lifesaver for people like me. I just don't remember ever feeling like this before. I feel as though I'm about to come out of my own skin, and fly off into space.
-- By jeneal | Reply | Private Message me
December 23th
2009
8:57 AM
I'm just finishing up with a 60mg month long taper of Prednisone, starting at 1000mg infused through an IV while I was hospitalized. This drug saved my life (I had post-heart transplant rejection) yet again, it's the third time I've been through a burst of the stuff. This is the hardest I have ever reacted and the worst my side effects have ever been. I'm afraid because I think my mind has been damaged. I have always considered myself a strong stable person but after a month long stay cooped up in a little hospital room on doses of this stuff, I have experienced the full extent of insanity! At the worst moments I would be up at 5:00 in the morning after not sleeping for DAYS literally jogging in place and bawling my eyes out feeling like a demon trapped in my own skin, buzzing my nurses and telling them to go ahead and kill me. My pupils felt like they were rocking in my skull, Whenever I would try to sit still for even a second the worst restlessness would shoot through me until I would have to convulse just to feel comfortable. Just as disturbing, there would be some nights where I would be entirely euphoric, believing I had reached enlightenment and delving deep into philisophical thinking for hours and hours and hours... my poor family- if they were there I was screaming for them to leave then I'd make them feel bad as they were walking out and when they weren't there I would call, hysterical, asking where they were. Anyway I'm fresh out of the hospital and thankful to be alive, trying to learn from this whole experience, but I can tell I've been traumatized... I just keep wanting to talk about the things I felt and how utterly inhumane it all was- really. My voice is shaky, on edge and being out and about in the world is more harrowing and intense than I feel I can stand and this is nothing like my usual laughing loving dancing self. Is this whole thing all still the steroids? I'm on 10 mg. I need some sort of hope that things are gonna be okay.
-- By alyssalove | Reply | (2) replies | Private Message me