PredniSONE and patience

I am writing on behalf of my elderly parent, Carmela, who has been diagnosed with Lupus since 1991. She has been on a small dose of prednisone since her diagnosis in 1991. In the last several months she has developed very many odd hazey type grey spots all over her body. Dermatologists and doctors are not giving her any answers. They took her off predisone because they THINK this may be the cause. She is on an inhaler and does not like it. She wants to go back on the prednisone as she is feeling chest congestion and lethargy. I read an article on the internet that describes prednisone may cause unusual bruising. I'm not sure if this is what her spots are. They are only the color grey and appear to be beneath the skins surface. They are soft or hazy looking. They are small, about the size of a dime. Has anyone heard of this before in Lupus (prednisone) patience. Any info you have is sure appreciated. S. ******

After reading previous postings, my experience seems so minor. I was on prednisone for about 2 weeks, starting at 50mg per day for 5 days, then 40mg for 2 days, 30 mg for 2 days, 20 mg for 2 days, then 10 mg for 2 days. I was put on it for severe poison ivy. I experienced sleeplessness, irritability, very quick to be irrationally angry and also had drastic changes in my triglyceride levels. I was hungry all the time, and extremely restless. 3 weeks before starting treatment my triglyceride level was 108, and cholesterol was 205. 5 days after treatment ended, my triglyceride level was 216, and cholesterol 214, all after being on a completely Vegan diet the whole time. It's my understanding that prednisone makes your body be in a state of alert while taking this drug, juicing you up to complete fight or flight status 24/7 while on it. Even 7 days later after being off of it, my patience is still limited. I will never take this stuff again.

I took prednisone for 6 days ( the pack). Six the first day and five the next till day six I had one pill left. I have never experienced hair loss like this. I have a patch of hair that fell out in a circle the size of a 50 cent piece. I didn't notice it really falling out but noticed a bald spot and I freak out. I came on line to get info about this medication. This drug was ordered for me because I have severe pain in my back due to osteoarthritis, sciatica and back surgery. I was told taking this would help with the inflammation and might relieve some of the pain symptoms. Well, I think the pain would be better then the side effects that I suffer. I had loss of appetite and acne on my face. I feel dizzy and bloated. I pee all the time and seems like i visit the bathroom much more often for other reasons too. I have felt like a crazy lady and have less patience than normal. I hope that this does not last for ever. This is a small amount of the medication. I am sorry for those of you that have experienced a long period of time on this medication. I pray for you that they will find another alternative with less effects to your bodys.

Hi All - I have been off prednisone for one week and I am not doing as well as I thought I would be at this stage. My symptoms are not flaring, which is a very good thing but I am so tired and feeling very depressed and low energy. I thought I'd feel great once I was off the evil prednisone but so far I am feeling almost as bad as when I was on it. My moon face has not started to go away, which sucks, but I guess I have to be patient. I am so tired of this situation as it feels never ending. Part of the problem is I have continued to work throughout my ordeal, and it's been very hard at times to carry on like a normal person who is not sick. I have been sick since last November (with an autoimmune disorder) and I had really hoped by this time that I'd be on my way to being better :( Prednisone saved my life but the side effects are horrendous, as are the after affects of it. Good luck to all who are taking it. I share your pain and frustration.