PredniSONE and steroid use

I am on prednisone frequently for respiratory infections as I have a chronic lung condition. I was just hospitalized for a week and on 80 mg per day IV. I have tapered by 5 mg every 3rd day. I have a rash in my hairline and actually in my hair. I have blurry vision, insomnia, cravings for food, weight gain, puffy face, swollen stomach, and pain so bad in my left hip joint that I can hardly bear weight.
In Aug, 2008, I had my right hip replaced from avascular necrosis caused by steroid use for my lung condition. I am worried that AVN is now also in my left hip. The steroids take the swelling down in my lungs so I can breathe, however they are destroying my bones. I am so scared of another hip surgery. I realize that I need to be thankful that my joints can be replaced, but it is a horrible side effect of this drug.

I received radiation for breast cancer in 2001 and a month after the radiation treatments I was hospitilized with radiation penumonitis. I was given 120mg prednisone. I had horrible mood swings, kissing ulcers, and lost 15 pounds - the doctor's couldn't belive it. I lost muscle mass in my right leg and had to have physical therapy to be able to walk again. It took 6 months to work my way down to 2.5mg at which time I was hospitalized again with cryptogenic organizing pneumonia aka BOOP in my other lung. I was put back on 60mg prednisone. I have been on various drugs to combat the side effects. I finally got off prednisone in May 2005 but the end of June I got pneumonia and another inflamed lung. I went back on 10mg prednisone which I am trying to get off of now. I have been experiencing depression since going back on my latest dose, but am not currently medicated for it. I have returned to my normal weight and continue to do weight training to combat osteoporosis due to the prednisone as well as strengthen my leg. I worry about the long term effects of long term steroid use.

My husband takes prednisone for bronchiolitis obliterans residual from two bone marrow transplants for leukemia. On and off this steroid for nearly a decade now. The emotional roller coaster; the poor management by some of his previous doctors; the easy bruising; the effect on his sleep and his mood stability. This is a horrible medication that saved his life. Damned if he does and damned if he doesn't. Before his last crisis where he had to go back on it, he actually told me that he'd rather die than start it all over again. He changed his mind, but what a toll it takes! Weight gain and the devastating effect on his body, his self image and his self esteem is the absolute worst. Before the leukemia hit, my husband lived in the gym lifting weights and staying trim effortlessly. He missed the exercise as a coping mechanism during his treatments. When he was physically able to exercise again after two hip replacements, two shoulder replacements and leukemia in remission - he developed the lung problems and started thsi prednisone cycle of submission. He is still trim but lives with this globe of abdominal fluid and weight that seems to have migrated from the rest of his body to his navel. Years ago all of this abdominal girth seemed to resorb back into his body leaving just stretch marks when his steroid use decreased. Now despite a decrease, it remains stubbornly in place and seems to be growing. It profoundly affects his breathing as well. If he eats too much at all, he can't breathe well. He has tried calorie reduction, Atkins, glycemic index diets and nothing seems to work. He can't get aerobic enough to tackle the weight. I have searched for a personal trainer or a nutritionist or anyone who might help my husband with an indvidiualized plan. Any ideas how best to xupport him?