PredniSONE and yahoo

hi all. thanks for writing your comments here. it has helped me today, another HORRIBLE day of prednisone hell. i have been seriously ill for 8 months been told ever other week I'm likely going to die from lung disease (i'm 35) and after a painful lung biopsy have been told my lung problems are almost all reversible... after a year on high dose prednisone. i was on 40mg a day for a month a while back and was so out of control from rage and crying and insomnia and panic/suicidality, ravenous appetite, that they lowered me to 30. then after biopsy they said i should be on 100mg to cure me, we settled at 60mg. it's been 24 days. The moon face started about one week in. i've gained 8 lbs. i am an emotional wreck. i have at least one rage filled attack per day where i am screaming and want to kill somebody or destroy something. some days i am so filled with hopelessness and worry i just want to die. my body changes (after just losing 30 lbs and being a work out fanatic my shortness of breath makes it impossible to walk up 2 flights of stairs without resting) face changes, acne, excess body hair (oh my god please make it stop i'm like a chia pet and i'm so afraid it is going to get worse) double chin, puffy eyes and cheeks, absolutely uncontrollable emotions and mood swings, inability to be logical or reasonable. i don't want to leave the house, i'm panicked and scared all the time. i never sleep. ambian gives me minimal relief (just started taking it) i feel like i'm losing everything, except my lung functioning is returning and i'm not going to die from this illness (they assure me THIS week) i understand light at the end of the tunnel, but living like this is unbearable most days, almost impossible the rest of the time. am i alone with the severity of this? or are all the others like me too busy hiding the sharps and crying in a corner to write on this board? thanks for listening :)

figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.

I was given this for bee stings. I wish I had more stings and no prednisone!! I shoke, Sweated from feet and hands, thought i was on the virge of a heart attack, insomnia for 9 days, quit my job of 7 years, drove my truck 2,000 miles over the coarse of a week, almost beat up my finance and my dad, (I'm never a violent person!), went to E.R. twice and given sleeping pills that didn't work, CRAZY STUFF TO SAY THE LEAST!! I lost my job, got a battery charge that my public defender thinks we cant beat, and almost lost the love of my life. Now over the past couple months I have had sever depression and have had to put my whole life back together. I'm grateful I didn't die though! THIS SHOULD NOT HAPPEN TO ANYONE, BUT IT DOES TO A LOT OF PEOPLE!! Please call me or email If there is a lawyer who could help stop this! ******
God bless America!

ALS, does anyone know if Prednisone can cause ALS, I have been on and off Pred. for years for my asthma and COPD, mostly the asthma attacks. I am on Oxygen 24/7. In the past 3 months I have been in the hosptial twice, for low oxygen levels, and severe asthma attacks, the first 2 night stay they had me on 160 mg every six hours. When I first went to the ER, I was unable to say more them 1 word at a time. That improved, but when I went home, I had slurred speech, it has gotten worse, due to my G.E.RD., I have always had a little trouble swallowing, but now it is much worse. Due to my 2 hospital stays, I was on Prednisone 24 days. Now they say I may have ALS, that is almost a death sentence. I had a MRI, no major strokes just tiny TIA,s
Brenda warner
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Wow, i am so glad i found this site. now i know im not the only one going through this. i have Cronh's and it is terrible! the drug makes the pain go away, which i am so greatful for, but the moon face and weight gain is so hard to deal with. im 18 and im college and let me tell you, no guy looks at me anymore. it's so hard on the self esteem and i really hope since im tapering off it that the moon face will go away. Does anyone know if my body will look how it used to? please email me at ****** if you have any insights or just want to talk. im currently at 20mg/day...when do the side-effects go away?

I was put on Prednisone to reduce an Orbital Tumor. I was on it for 3 months with varying doses. I was hopitalized and they had given it to me through an IV. Currently I've been off of it for 2 months. It worked, but not without lasting side effects. At first I had SEVERE night sweats, I'd wake up in the middle of the night to change my PJs, pillow & sheets. I gained about 15 lbs, I was mean & short-tempered, I had a short attention span, I lost muscle mass, I felt shakey and jittery, I used to sleep well at night and still to this day I have a hard time sleeping. My current problem is SEVERE hair loss due to this medicine. I'm going to see a Dermatologist tomorrow to see if there is any meds that can reverse this. Although I don't like these side effects, I think it helped me when ALL my doctors said I should have surgery, the Prednisone worked enough that I didn't have to. However, there is no guaruntee that it wont come back....then I'll be back on this life altering medicine.
Good Luck to everyone out there!!

I'm a 25 year old guy who was diagnosed with IBD- Ulcerative Colitis right before Christmas. Started out on 40mg prednisone and now im down to 20mg (get to drop to 17.5 tomorrow!). At first the side effects were anxiousness, sleeplessness, and an insane hunger. Now those have died down for the most part, but I have gained 20 pounds (which isn't a huge deal as I lost about that in the hospital), my face is much fuller, my stomach is always bloated, increased acne, and increased facial hair growth. I will be on prednisone at some dosage through april...so im really hopeful the weight gain/bloating will decrease as i lower the dosage. I would be interested in talking to others who have lived through this or are currently in a similar situation...******