Remicade and joint pain

Reading all this horrifies me since I have been on Remicade for almost 4 years for Crohn's and a still unidentified Inflammatory arthritis of some kind. I will pray for you all. But, on another note and by no means an attempt to diminish the severity of each account in this blog, I have had no such side effects and for the most part have had great success until recently. My Crohn's is and has been in complete remission since the beginning of the infusions. However, I have had increasing inflammatory issues in joints between infusions. I get 5 vials and they give me Solumedrol in the IV. I ended up in the ER last night because my joints were all frozen up and it was just unbearable. They gave me Solumedrol and Morphine, and I am 75% better today. The frequency and severity of the arthritis issues has gotten increasingly worse over the last 6-8 months. I get infusions every 8 weeks, and start to have severe joint pain after about 4 weeks. All that being said, it is appearing like Remicade is still working brilliantly for Crohn's but is having little to no effect on the inflammatory arthritis. The steroid they give during the infusion is what I think is doing the job for the joint pain since I was a 10 last night in the ER, and I am 3 this morning pain wise after getting the steroid. My case is unique and frustrating to the Rheumy b/c my sed rates and RA factures and C-Reactives are all relatively normal when I am in tremendous pain. So, they just ran alternate tests the other day to look into things like Myeloma and so on. I don't believe that Remicade has done any of this. I believe that Remicade's benefits for MOST people greatly outweigh the risks, especially when you are incapacitated with Crohn's etc. But in my case, it just does not seem to be working for my joint inflammation.

After 2 years on Remicade I slowly developed SEVERE JOINT PAIN all over my body, including my jaw. It's so bad I can't walk and do simple tasks. I have not been on any other meds.

The only thing that cures the pain and allows me to go back to work is another infusion. It's like CRACK.

Now the DR. has scheduled my infusions closer together and the pain just comes on sooner, like the medicine doesn't last as long.

I want to stop treatment in the worst way but I have been reading that the side effects do not go away - even after treatment has stopped.

Has anybody here discontinued their infusions???? Please help!

I have been on remicade for 3 1/2 years or so and it worked great for a while I have severe crohns disease . but recently I am having severe joint pain and don't feel like it working anymore? has anyone else have this problem? the pain causes me to miss work and now seem to be having stomach pain just feel bad ?????

I'm on my third infusion. Up till recently? It was a wonder drug. I got all my energy back, no more random joint pain and everything was going great. Then my third infusion happened. And I get jimmy arm. It's like jimmy leg, where you can't stop it from bouncing. Only worse. It's like my arm just won't rest. The next night? Both arms. The night after? Chest pains, racing heart, breathing shortness, all kicked off at 3AM with a lack of sleep. This is all very new to me and I'm waiting to hear from my Rheumatologist if I should go to the hospital or not.

My experience with Remicade has not been good. On one hand it did help with the crohns. On the other I developed weakness and tingling in my arms and legs, joint pain, ankle swelling, I have difficulty walking now. I also have numbness on the side of my face and occasional sharp chest pain. I find I am very depressed. I'm at my wits end. It is horrible bing in constant pain. I'm thinking of just going it alone without any medical help. I was better off as a 117 pound, 5-'9" lady with only crohns to worry about. Sure swallowing anything felt like glass but it beats this.

Remicade did wonders for me, my Crohn's disease went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.

I have had four uniary-track infections from Jan. 07 until Aug. 07. I have runny nose, allegery type sympons. lost taste/smell senses, burning/numbnes/tingling hands feet,muscle/joint pain feet,knees,hips, back, shoulders,upper arms, hands,dry mouth, dry eyes, vision problems/blurred/double vision and times cannot read news print,increased heart pallpation,insomina,headache. had to cancel last infusion due to unary-track infection and while on antibotic. In the past two weeks, i have noticed decrease in most of the above sympons, except burning/numbnes/tingling in feet, and swelling in feed and hands has disappeared. I was due for infusion today, I told Dr. of disappearing sympons, he delayed another two weeks. I also have been diagnoised with chrons disease. I want to continue to see how I feel in next two weeks, before scheduled infusion, other headache,nausea,stomach abd. pains.

I've had 4 remicade treatments on my 2 treatment they had to stop it after bumping it up to 20 cc cause it started respitory problems and made my blood pressure go up. now when I go for treatments I have to take 75 mg of benedril and 30 mg of prednisone, now i'm noticing leg cramps, muscle pain, joint pain, my hair is falling out more than it ever did before. I'm not sure if this is related. Now i'm having bruises that don't heel up and, i'm getting sick with a respitory infection and i get frequuent migrains I also noticed tooth aches , i try to stay away from sick kids but for my crohns and ulcerates colitis i'm eather bound up or running for the restroom.