March 31th
2003
10:45 AM
i have hade 6 treatments of remicade i am recieving it for AS. So for around 7 months so far i know about the chemical feeling headache you get but there is something new that i do not understand today is the 31 Mar 2003 so since 27 Mar 2003 i have continual muscle pain in my legs cannot bend, cannot sit,and no relief with any medication i have even muscle relaxers i do suffer from almost nightly leg cramps but this has been 27/7 going on 4 days now im not sure if this is related but i really cannot survive with this pain i feel like it is killing me. If anyone knows what i am talking about please let me know . ty my name is di
-- By mxvet338 | Reply | Send Private Mail
April 21th
2003
2:53 PM
I had my fourth Remicade treatment last week. It still hasn't helped very much. Today I have leg cramps and very sore muscles in my legs - I don't know why. On several occasions I have awakened in the middle of the night with a pounding headache that I could not get releif from. My neighbor had Remicade treatments for about a year and she died in January. Her husband thinks it was from the Remicade. I am afraid to continue. Is anyone else experiencing anything like this?
-- By drios | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using Remicade. If you directly experienced a side effect while using Remicade, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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I've had Fibromyalgia for a long time. The #1 thing, is to have a positive attitude. Get info. about this disease. Get moving. Start out slowly. Do what you are able to do, nothing more and nothing less. I know its hard to keep moving. But if u dont, ur stuck with no life. I've been down this road too. Get some physical therapy. I have found, for me, that pool therapy is the best. I dont have as much gravity to deal with in a swimming pool. The water seems to hold u up. Get involved in som...
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October 23th
2006
9:04 AM
I've had 4 remicade treatments on my 2 treatment they had to stop it after bumping it up to 20 cc cause it started respitory problems and made my blood pressure go up. now when I go for treatments I have to take 75 mg of benedril and 30 mg of prednisone, now i'm noticing leg cramps, muscle pain, joint pain, my hair is falling out more than it ever did before. I'm not sure if this is related. Now i'm having bruises that don't heel up and, i'm getting sick with a respitory infection and i get frequuent migrains I also noticed tooth aches , i try to stay away from sick kids but for my crohns and ulcerates colitis i'm eather bound up or running for the restroom.
-- By tamara452 | Reply | Send Private Mail