Simvastatin and doctors

I started taking 20mg of Simvastatin on 10/17 due to high cholesterol. Five days later I came home from work feeling very tired and fell asleep. I woke up feeling severe flu like aches and pains in places I didn't know could hurt and then got the chills. I stayed home from work the next day and it's a good thing I did. I awoke with a severe cramp in my upper right thigh. I have always been prone to calf cramps so wasn't too concerned. However I stopped the meds on 10/22. This continued on a daily basis and I went to the doctor on 10/27. I had an x-ray done which showed a bulging disc and some uncushioned discs. She put me back on the meds BUT with a COq10 am and pm and cut the pill in half. Do you think she knew it could be from the med? I foolishly restarted and by 11/4 took myself back off, had an MRI and such severe nerve pain in my right leg that I thought I would die. It was a bolt of lightening starting at my upper thigh and coming out the bottom of my foot. It felt like a hot poker running down my leg. The episodes were on a daily basis, would come every two hours, and could last as long as 45 minutes with no relief. I am now going for pain management and had an epidural a week ago which got rid of the nerve pain but I am still numb down my right leg to my right ankle. I have been healthy for years and feel that this was all brought on by Simvastatin. Any idiot can figure out that your nerves are running through your muscles. I am angry to think that this could have caused me permanent damage.

I have been taking 20mg of Simvastatin every night for about 4 years now and after coming across this site I have decided to stop taking it. I have been feeling particularly unwell for a couple of days, decided to do some research and can't believe what I am reading on this site! For the last year I have suffered terrible pain and loss of movement in my neck shoulders and arms and shooting pains in my legs along with muscle tics. More recently dizzy spells and quite severe tinnitus and headpain and fatigue. I have also found that my muscles tire very quickly when doing the smallest of tasks i.e: changing a duvet cover! The night sweats are particularly bad which I have been putting down to my age but may be to do with the statins. I am praying that these symptoms will reverse once I stop taking them but remain skeptical after reading other peoples comments on here!

My total cholesterol was 220 and LDL was 157; I started taking 40mg last week and within 2 days I just felt horrible. I felt weird and yuck in my stomach. There was a fog in my head and 2 days ago I was so dizzy I was almost falling over; I had to catch myself with the walls and doors. The next day, yesterday, I started having higher blood pressure and racing pulse with heart palpitations every 45 seconds or so, which makes me breathe deep often. I have felt pain in the back, arms, neck, and hips. I have also had weight gain and stomach irritability. Last night was the first night I did not take my medicine and even though I don't feel all that better I will see how it goes. I fought taking this medicine for over a year now and since my cholesterol went up I figured I'd try it in hopes my level would drop, but I can't handle this, I'm only 38!

I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.

I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.

I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.

I have been on simvastatin for 2 yrs . The past six months have had foot pain my doctor described as neuroma.By the time I started physical therapy the pain was in my arch + tendons. I went to physical therapy for two months, the therapist became concerned when improvement peaked. Still have burning nerve pain. I think its time for natural supplements . I hear "red Rice Yeast" is effective.
S. M.

I've been on 80mg of Simvastatin for probably about a year. I'm a 59 yo male 188 lbs in good health but with high cholesterol. Lately I've experienced severe head and neck pain, shoulder pain, hand and joint pain, and foot pain. I'm normally very active, hike and walk a lot but lately, and it's getting worse, so I don't feel like doing anything. I'm thinking it's the Simvastatin causing all these problems. I don't feel like paying $1000s to have med professionals hit or miss with ideas and more tests so I'm going to quit the statin on my own and see if I feel better. I've also noticed memory loss, tiredness, dizziness, temporary vision issues at times. These are not good as I like to rock climb and participate in stressful and demanding activities.

33 year old, 125lb female with cholesterol of 234. I was put on Simvastatin 40mg, which I took fot 3 night only. All hell broke loose, insomnia, hands are numb, severe joint/back pain, extreme weakness... The thing is, I took it for 3 nights & realized it wasn't for me. I've been off of it for 3 weeks, but the symptoms still persist, rendering me pretty much dead.... I was told by a few that putting me on 40 mg to start off probably did the job... Three week of living hell & my primary physician don't have answers for me!

I started 40 mg Simvastatin in Sept 2007 and stopped it March 08. I developed severe carpal tunnel Sept 07 and it went away March 08.....gone. The illness simvastatin caused has taken a year to get better. At times, I was too weak to feed myself. Drenching sweats, 24 hour a day headache, vomiting, light headed, blurry vision, and swollen neck glands. On a scale of 1-10, fatigue was a 10. I developed Rheumatoid Arthritis. I had very few arthritis episodes but it showed on blood work. It went into "remission" Dec 08. I was still sick. They said RA was reason I was so ill. I honestly felt I was dying. They tried to fix me, cost me a lot of money. I started CoQ10 a month ago. Made changes with other meds too. I am just now seeing an improvement. The large swollen gland on my neck has started to go away. The headache and fatigue are getting better. It's been a long road. I think it effects so many people in so many different ways that doctors are not clicking. My father, my aunt, my cousin, my brother and I all had different aches and pains. The one thing we had in common was extreme fatigue. We all stopped statins and some recovered quickly. Dad and I are still suffering. No more statins for me.

hi
I was on a stain for 1 1/2 years on a 80 mg didn't effect me at all, me and the doctor decide to bring me down to an 40mg my chol was at 119 now
on the 40mg for 3 weeks and all hell breaks lose.my joints and mucluse and my feet just hurt,i was walking like an old 100 year man,I took myself off now 8 days much better maybe at feel 80/90 percent better,lease im walking better joints still hurt a little,still cant sleep used to sleep like a rock now its like 2 maybe 3 hours a night and wicked night sweats,lets hope I sleep better in a few
im so glad I found this site,THANK YOU EVERYONE for letting read your letters

28 year old 6 ft 4 in 200 pound male. cholesterol approaching 300 on 80mgs a day of simvastatin. Legs and arms immediately sore after a round of horseshoes. How ridiculous. trouble concentrating, can't sleep, have sour stomach. have the trots daily. Great way to live. This sucks!

After one dose of Simvastation, on 2/28/09, eight hours later I woke to extreme vertigo, vomiting, cold sweats, muscle aches. I called my cardiologist at 1:30 a.m. and was told that I had the flu. Ya right! My vertigo has not left yet, and I have seen my primary care doctor who has ordered blood tests, and CAT scan. Just waiting for results. Still dizzy though. Anyone else have these symptoms?

Im a 32 year old male that was put on simvastatin 40 mg and cardizem 240 mg. I am now having severe headaches, so bad i cant go too work anymore, dizziness, fatigue, legs feel shaky all the time, cant stand up for long periods of times. Doctors claim its not the medications but its funny i never had these problems until i started taking these medications, after reading what people have too say about the simvastatin on here i am done with that, i cant live my life like this anymore. I have also heard my other medication can cause these problems so im going too talk too my cardiologist about a different one too control my heart. Im glad i have found other people having problems like me, i don't feel so crazy now.

WOW! My jaw is on the floor. I have been taking Simvastatin for 4 years! At around that time I started feeling ill. I ended up in the infection clinic. There they did 6 spinal taps since they could not understand why I had this major headache, and stablike pains.
I was hospitalized for 2 weeks and during the last 4 years I have been in and out of hospitals and doctors.
After they found 'nothing' they told me that I might have LUPUS/RA. So they started me on drugs to treat reumatism. I was on 2000mg per day! Complained and said that the meds where not working and I needed help and someone to listen to what I was saying. Then one of the many doctors I had was telling me to shut up and go see a psychiatrist. That got to me and so I started writing letters. I got a 'new' doctor and he said odd. Told me he was only interested in my joints. After the second time w him he passed away and so I met a fresh doctor, on that was right out of med school.
She looked at me and said...*You cant go on living like this, this is no life.* she sent me to the hospital for 2 weeks so that I could get the right treatment. There they realized that I have no sings of reumatisum but rather a connection w Simvastatin.
They right away told me to stop taking all the reumatisum medication and they will now focus on removing Simvastatin.
I am blown away.... I was so sick, so may hours lost from work, family and friends. I almost left my husband because I felt like I was just 'there' not ever being able to do things. I was so sick all the time.
Wow is the only word I have in my head right now- I am in a shock.

I was diagnosed with type 2 diabetes in 2001 and have been taking 10mg simvastatin ever since. Over the last six months have had severe increasing pain in right shoulder neck and arm. Out of the blue the doctor has since automatically changed dose from 10mg to 40mg. I have not taken the 40 yet as I am too scared and am using up the 10mg. Sometimes have diarrhea and nausea. I had to wait 2 weeks for xray and another 2 weeks for the result. Am to see the doctor in 2 days because I cannot stand the pain any longer. A month ago he told me to come off the simvastin as I would not have to wait long, but after 2 weeks thought I had better go back on it again. Have now stopped again because the pains are worse. wondering about taking herbal medicine instead.

I am so glad I found this site. I have been having hideous headaches and just today thought perhaps it's the Simvastatin that I started this summer. I had an occasion this summer where I lost the vision in one eye (half way up). The doctor said that is called "window blind" vision loss. So after doppler and MRI he said I had to absolutely take 81 mg of aspirin a day (baby aspirin) and started me on cholesterol lowering meds. I didn't want to take the cholesterol lowering meds so at first I resisted completely. However, in the past month I have started to take them. Every night I would wake up with a headache and my neck and shoulders were hurting also. I kept thinking that I was going to have a stroke. The pain was so bad I would vomit but the area of the headache was not where I would get migraines. The pain was more in the back of my head and my neck and shoulders. I decided to do some reading on the internet and found that headaches is a major symptom of simvastatin. I will do my own experiment now and stay off of it for 10 days. I will then start it again and see if the symptoms return. My doppler said I had mild build up of plaque...at 57 I would imagine most people of mild build up of plaque. I don't want a stroke or heart attack but I can't live with these headaches and the lack of sleep.

I'm 55 year old female and was put on Simvastatin 3 months ago with a cholesterol reading of 6.8. I've been experiencing severe lower back pain, a burning pain in the right side of the groin and severe pain in my right hip and leg. It has become so bad that I'm finding walking difficult. I also have severe itching all over, especially on one part of my arm. I can't take anti-histimes because I am alreading taking beta-histine for vertigo. After reading the postings here I am seeing my doctor this week to have my medication changed. Since I live in the Uk cost is not a problem

I have been taking Simvastatin for 2 mos & I have been experiencing horrible insomnia,fatigue, and frequent nocturia with urgency. I would particularly like to know if any one else has experience the urinary urgency?

Despite having a brush with the big C last year (I finished chemotherapy in January) I have been very fit and healthy during my 61 years! A few weeks ago I started having palpitations, hence a visit to the doctor revealed high blood pressure and cholesterol reading of 9.9!!! Shock, horror. He informed me that it was genetic and prescribed Simvastatin 400mg and Bendroflumethiazide 2.5 mg daily.
Not being satisfied with the enclosed leaflets I have looked up more info. on the net. Should I have done this!!! After reading some of the posting on the site I am feeling a bit apprehensive. Last night I had a terrible night couldn't sleep for the pains in my legs and a bit nausea this morning.
But I need to be sensible, I really don't have any choice but to take these drugs just hoping that I won't have to stay on them for the rest of my life and I don't get any of the side effects that some of you have suffered. I also wonder if the chemotherapy could have caused by raised cholesterol?
Hope to keep you posted and would welcome any comments!

This site may have saved my life! My blood pressure & cholesterol meds were changed last Sept., and like Virge, 3 months later I had a severe vertigo attack (while driving). Long story short, I have been a wreck ever since...feeling dizzy & faint, anxiety attacks, spiking BP, acute insomnia, soreness in the back of my neck, overly sensitive to bright lights and loud sounds, and several reactions to anti-anxiety meds & vitamin B pills (some of which placed me in ER!).

I've seen over 20 different doctors & specialists, and NOT ONE has ever questioned the Simvastatin. A couple weeks ago, I Googled Simvastatin & vertigo and saw that vertigo was listed as a side-effect...then I saw the notes on this site. This prompted another visit to my doctor.

I've been off it ever since, and have noticed a substantial change for the better (I can sleep well again!) - although I'm still always dizzy and my BP has risen. I'm hoping that by taking it for so long, I haven't incurred any substantial long-term side-effects! I'm also wondering why some of us react so negatively to the drug - if there is another underlying medical condition that would cause such an adverse reaction?

I have muscle pain, weakness, and chronic lower back pain. Started statin drug, Simvastatin, on 11/21/07. I take no other drugs. Within two weeks, I could not sit without severe lower back pain. Reported problem to family medical doctor on 1/11/08. M.D. sent me to physical therapy for 8 sessions. No relief from physical therapy so I requested an X-ray on 3/20/08. X-ray shows very mild degeneration at one lower vertebrae. M.D. sent me to an orthopaedics doctor who recommended continued physical therapy. Went to a Chiropractor instead. After six chiropractic sessions with little relief, I made an appointment with an Osteopathic doctor. My M.D. sent me to a rheumatologist who prescribed high dose naproxen for two weeks. The rheumatologist ordered and X-ray of my lower back area. The lower back X-ray produced no negatives. The rheumatologist's next step will be to order and MRI of my lower back area. The D.O. suspects statin induced myopathy and because of hyper reflexes he ordered an MRI of my brain and cervical spine. I am now recommended to a neurologist who specializes in the diagnosis of multiple sclerosis. Am I getting the run around? Only one doctor said I might have statin induced myopathy. The rest will not even mention the statin drug theory. I just pray for ache and pain relief. I have some improvement after four months off of the statin which I believe is quite a strong point that it was the statin drug and not some unknown condition. I don't think arthritis or MS conditions improve. All I know is that I had no health issues before taking the simvastatin. Good luck to everyone who has or is taking a statin drug. BEWARE!!!

i am 55 and have been taking simvastatin for about 2 years although my cholestrol was under 5. over the last few months have had pain in my knees which i thought may be arthritis and then about 2 months ago the pain started in my left foot and became so severe that i had to change to an automatic car, still believing up until today that arthritis must be getting worse although my foot xray came back normal, i found this website today as my finger and thumb joints are hurting so much i cant hold anything and every muscle aching so much i just wanted to cry.after reading these letters i realize that even the choking feeling im sometimes getting isn't a menopausal panic attack and now i have checked my simvastatin leaflet an d box and realize that although my last cholesterol reading was only 3.5 one of my doctors has put my tablets up from 10 mg to 20 mg so big question is this an overdose ? im not taking another one of these pills an see what progress my health makes. i am slightly worried about heart disease and will look into herbal type as my parents use these,have never taken statins and are 90 and 87 so i think this speaks for itself,thanks everyone who has helped me diagnose my own illness!!!

I was prescribed Simvastatin four days ago, against my wishes, as I had heard about the side effects of muscle pain and numbness in the joints and feet. However, what I had not expected were the terrible nightmarish dreams that followed. On the fourth night I stopped taking Simvastin as I was literally too afraid to go to sleep.
I then slept fitfully but did not experience the vivid and disturbing dreams of the previous three nights.
I shall ask my doctor for alternative medication. If she cannot offer me anything other than statins, I shall stick to Benecol and research further!

Jacqui M.

I have been taking Simvastatin 20 mg. for about two and 1/2 months now. It really lowered my Cholesterol but I have been extremely fatigued and now I am getting really dizzy when standing up and having some nausea.

I was taking Lovastatin until the VA told me that it was not on their formulary any longer and I had to take Simvastatin. Within a couple months my feet started burning and a numbness began creeping up my legs. I began falling, staggering and lost the ability to walk without two canes. I thought I was in the early stages of MS or ALS and feared I was dying. My fiance' did research on the internet (Spacedoc.com) and discovered that the symptoms I was suffering from were the result of Statin Poisoning (don't take my word...look it up) I took myself off the Simvastatin at the doctors request and began taking 4 1000mg of Omega 3 Fish Oil, 2 50mg CoQ10, 1 50mg L Carnitine, a multi vitamin, and 1 81mg coated aspirin per day. I still have numbness in my legs and some burning in my feet one and one half years later. My Neurologist has told me (and written a letter to the effect) that I am permanently disabled...that this will never go away. Statins (all Statins) are poison...don't take them....the pharmacutical companies only push them to make MONEY they don't care about you or your health. If you need more information contact me anytime and I'll be happy to share any research I have. ******

I just want to post my experience as it correlates with others. I was on a very low dose of Simvastatin - 5mg - and would have never thought this would have been the issue.

I have been suffering with knee pain for over 18 months. I had to have surgery for cartilage removal and I believe had I not been on Simvastatin my knees cartilage would not have been so brittle and torn. The doctors seemed kind of surprised I was not recovering so quickly after surgery. I never seemed to recover as much as I thought I would have.

Then this June 08 I installed some window air conditioners in my home while I was still taking Simvastatin and I believe I have torn my other knee cartilage. This is what caused me to examine what has changed and why a 50 year old would be having all these issues. My ancestors did not have all these issues.

I started to research Simvastatin. I took myself on and off of Simvastatin twice because I was not certain if this was the culprit. When I started to take Simvastatin on the second pass I had agonizing pain in my knees. I knew. I could hardly walk.

I have discontinued the Simvastatin, my knees have quieted down but I know I must have some damage. I hope is it not permanent.

I am planning to contact my pharmacy to determine when I started with Simvastatin so I can try to time line when I began to have difficulties.

I hope this helps someone else. I do not like being a guinea pig…

I am 43 yr old woman and have been on simvastatin on and off for the past 3yrs, it's only since coming across this website that I have actually managed to find a connection between this awful drug and a whole heap of medical problems. The most recent course made me so ill that I thought I had an incurable illness that no one could diagnose, at times I have been in so much pain I thought I was going to die. It started with severe knee pain, I have a little arthritis in the knee but doctors were baffled at why it would hurt so much as x-rays on knees and hips were ok. I ended up having an operation to cut a ligament, that was over a year ago and had been in crippling pain ever-since. Also; foggy head, headaches everyday lasting all day, pain in jaw, shoulders, neck, swollen throat, incredible limb swelling, numbness all down right side, kidney problems, weakness in muscles, aching hips and legs, itching, insomnia, to name a few. I complained to my doctor when I was prescribed 50mg of this poison because as soon as I took it, I immediately felt ill and collapsed from terrible weakness, couldn't even lift a feather. They reduced it to 20mg, and I blindly kept taking it, in the meantime, my leg function was worsening, my back was killing me, I couldn't sleep because of the unbelievable burning in my shoulders, hip, neck and legs, everything hurt so much. I have been in tears from the pain and frustration of not knowing what was happening to me, painkillers, even high potency prescriptions just didn't work. I was a healthy gym-going person with a slightly high cholesterol reading, and suddenly, I was almost crippled, unable to function or look after my family, couldn't even handle simple chores that I had done a thousand times before, couldn't think, speak well, do crosswords, it was unbelievable. I have had ECG's, heart stress tests, been to and fro to doctors, hospitals, specialists, even seen an osteopath with these pains, they must have thought I was a hypochondriac! Finally, I insisted on an MRI on my thigh as it had changed shape as there was a lot of muscle wasting in both my right arm and thigh, and so much pain. A lump had also appeared and was really worrying me. The doctor tried to fob me off and said it was a fat lump, I argued that if it was fat it wouldn't hurt so damn much, so the result of the MRI is that I have a tumor which is getting bigger. If I find out that this is a result of the medication, the gates of hell will open.
I took myself off this lethal stuff immediately as soon as I realized there was a connection between it and my debilitating condition, though it's too late to save my 12 yr relationship, that went down the tubes because I just couldn't function well, oh, and my job. and any chance of working after being ill for so long.
I have been off it just a few days but already I feel almost human again. I know it'll be a while before I can see a marked difference and do some of the things I used to be able to do like walk the dog!! but I am furious with my doctor's and have written a letter of complaint, and have told them that I would rather take my chances with god and be a happy person than ever trust them again. I am in no doubt whatsoever that this drug has ruined the last 3 years of my life and probably caused irreversible damage to my leg muscles. Why take a pill because the doctor said so??NEVER AGAIN from now on everything will be checked via websites like this, I am so disgusted that instead of helping me, my own doctor just prescribed other medications I need not have had because of this pill when all he had to do was take me off it. I find it hard to believe that they don't know of these side effects, or pretend not to, how can they not make the connection?? Absolutely furious. I am in worse health now than I ever was, there should be a serious health warning before this is given to anyone, and the first port of call for any complaints should be the doctors who prescribe them instead of offering alternative solutions. This is a time bomb waiting to explode.

I started on it in June 2007, by December, I had gained 20 lbs, was out of breath most days and was weak all over. Had general sore muscles and felt out of strength. Been off now 5 days, strength is returning and am feeling much better. No weight loss yet but at least I feel much better. Sleeping was not affected one way or the other.

about three months after taking simvastatin I had a bad attack of vertigo and have been suffering with dizziness & feeling off balance, also panic attacks have ocurred, I did not experience this before taking this drug. This has now been going on for 4 months. has anybody else experienced this.