June 6th
2009
9:34 AM
After reading all of this - I take Simvastatin 40mg - then had to go off of it, cause I got layed off & couldn't afford to get my med's filled. Went off the med - felt better (unknowingly). Then, I got a new job, got it refilled & started taking it again - my knees are killing me & fatigue is overwhelming me. I am emailing my doctor today - this is not right after all of what we are going through. M. J.
-- By joharely19 | Reply | (2) replies | Private Message me
May 28th
2009
12:41 PM
I am in shock and so glad that I came to this website. I have been taking simvastatin for about 5 months now and this morning I decided to do a web search with the words simvastatin and headaches. Everyday I for the last two months I have been asking myself why am I having these terrible headache. My Doctor did a CT scan, I had my eyes tested, I had my hearing tested, my blood tested and everything comes back good. I realized that I have to do something about this problem myself because my doctor prescribed another pill for the headache and that's that. Today I did not take the medication and I will not be taking it again. The symptoms that everyone described are so real to me but the headaches were the worst. I have to thank you all for posting this information. I now feel that I will get my life back.
Thanks verdul1
May 26th
2009
3:23 PM
my mom has been on simvastatin
40 mg for 3 months & she has had
back pain leg pain & know kidney
failure she is a diabetic but never had any problems before but taking tthis medication it has ruined her life plus she gets lots of night mares & night sweats she
feels & looks like she is drunk
but she has never drank in her life
May 8th
2009
7:02 PM
simvastatin causes nightmares that's why your sweating so bad. I have never had nightmares since I was a kid. I started taking simvastatin (zocor) and the first night I sweated and woke up with a racing heart. I didn't know why. The 2nd night I woke up and thought someone was in my room I saw someone in the dark run across the room. I jumped up jammed my hand into my draw pulling my hand gun out. Now that Im fully awake I don't see anything. I'm so wound up I can't sleep the rest of the night. The next day today I do a google search about nightmares and boom found a new study that Statin's cause nightmares because it penitrates into the brain. Its made out of a fungus. Anyway i'm done with statin's My ratio is 3.63 so not too bad but I think diet and exercise with fish oil will do it. If you have to be on this stuff there are 2 that don't get into the brain. Check it out Pravachol and Crestor.
-- By kell490 | Reply | (2) replies | Private Message me
April 14th
2009
1:19 AM
I have been on Simvastatin for 2 weeks and i have notice have head headaches daily thought it was the new job and being on the computer a day and then thought perhaps its the new drug I am taking so I typed this drug in and headaches on Google and found this website .Going to go off it tomorrow and see if the headaches go away. headaches seem to start in neck and shoulders massaging seems to relive the headaches some what and I take tramadol when it is so bad it makes me feel nauseated.
-- By ggboop | Reply | Private Message me
April 10th
2009
1:42 AM
I've been on Simvastatin 40 mg for about eight months now. Cholesterol levels dropped significantly. But man have I been hating life! Joint pain mainly in the legs. Beginning to walk like an old man and I'm only 62. Also more pain in my back than ever before! I talked to my doctor, who suggested I get off them for 6 weeks. I did, and I feel like a million bucks. I've got to get back hold of him to find out what he recommends? Probably some other pill!!! Just today I was talking with my pharmacist, and I told him my symptoms. He said the muscle deterioration could actually lead to death. I don't think I'll ever go back on them. I'm going to try and watch the old diet and get more exercise. Hope this helped someone? Good Luck!!
-- By mobo4 | Reply | (1) replies | Private Message me
March 22th
2009
12:12 PM
I was on 40 mg of simvastatin for 4 months with seemingly no side effects when my doctor said my cholesterol wasn't coming down quickly enough to suit him, so he added lovaza - had me taking both at the same time. Within 2 months I was noticing sore muscles but didn't relate it to the meds. After about another 2 months I was so bad I could hardly walk - extreme muscle and joint pain over my entire body, severe weakness, shortness of breath. Then I found out that both of those drugs can cause these side effects. I wish I had tied it together sooner. I have been completely off of them both for about 3 months and still have some pain in my feet, shoulders and elbows, along with severe pain in my hands, and I am still weak and short of breath. I don't know how long this is going to hang on, but I certainly hope it isn't permanent. I can't stand to think that I might have to live with this pain for the rest of my life. My hands are so close to useless, and I am so weak, that it's about all I can do to take care of my job and make a living. I haven't been able to work around the house for months. I want to work on my cars (my hobby). I have 2 antique cars that I enjoy working on and driving, but I don't think I'm going to be able to do very much with them this summer. My hands just won't let me. And the beauty of it all? My cholesterol numbers did not come down any great amount. Since I stopped taking the meds I have brought the numbers down by changing my diet - eggbeaters instead of whole eggs, less beef (venison is very low in cholesterol) more chicken & fish, oatmeal, plus I'm taking vitamin C, D3, garlic and cinammon for cholesterol and B complex for muscles, msm and glucosamine for joints. I also bought a hot tub, which helps with the pain and stiffness. This has definitely not been a fun thing. I just hope it goes away some time soon.
-- By hoosier_daddy | Reply | (3) replies | Private Message me
March 3th
2009
7:55 PM
I started taking simvastin (the lowest dose) about 6 months ago with amazing results when it came to my cholesterol. After about 2 months I started getting headaches. I went off the drug for about a week and the headaches went away. I went back on the drug and 3 weeks later the headaches came back. This went on for a few cycles. This last time I went off the drug was February 7. I have not taken it since and I have had a headache since then. This time it has not gone away. I HAVE NEVER had headaches before taking this drug. And all I know now is that for the last month my life as I knew it completely changed. Of course the Dr. put me on some pain meds for the headaches that made me sick, sick, sick after 3 days. I just can't take the pain meds as they are worse than the headaches themselves. HAS ANYONE HAD THIS and if so how long did these headaches take to go away.
-- By lynnk | Reply | (1) replies | Private Message me
February 17th
2009
2:07 PM
omg, im 32 years old been on zocor for 3 months now and am experiencing dizziness and disassociation with myself. I know now that it is from the drug. It seems like i want to sleep all the time. I was pretty convinced it was from stress but i have been in war in Iraq and under stress-post war depression and its nothing like statin side effects!! I went on statins because of a genetic disorder that runs in my family, the cause, well high cholesterol. Now my levels are fine but i feel like im a zombie most days? i know in the long run its healthier for my heart and veins to have low levels but at what extent? i think im going to go off for a few weeks and then back on it.
-- By mike61704 | Reply | (1) replies | Private Message me
February 15th
2009
11:57 AM
I am so happy to have found information concerning Zocor on the internet and this particular website. My husband and I started on Zocor about 3 months ago when our insurance company, Caremark would not pay for Lipitor which we were on for about 10 years prior with little side affects. I started to notice that my hair was falling out and I started to have insomnia, something I never suffered from. Also started to notice heart palpitations.
My husband, meanwhile had started to notice extreme joint pain in his thumbs and seemed to be spreading to his fingers. Since I'm fairly new to the internet and google, I goggled Zocor and I can only say that I was shocked to read about all the side affects that we were experiencing appear on the many websites. I feel sorry for all the men and women going thru the trauma of hair loss and pain and a lot of other side affects from this drug, who may not have access to this kind of information. I plan on emailing the FDA so at least Zocor should disclose these side affects.
January 30th
2009
3:56 PM
I am 38 years old and had my second child 7 months ago. My family history for heart disease is very poor and my cholesterol was 6.2 so my doctor prescribed 10 mgs of simvastatins in November. Before taking them I felt fine in myself, since taking them I have felt exhausted, not just tired, I have insomnia, very bad nightmares when I do manage to sleep. On top of this I have started to feel depressed and anxious, short of breath and my hair is falling out! I had myself convinced that i had post natal depression but decided to stop taking statins a few days ago, feeling slightly better. My doctor prescribed me an anti depressant today, should I take them? Does anyone know how long statins stay in our system?
-- By smartie80 | Reply | (2) replies | Private Message me
January 20th
2009
10:03 AM
Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.
-- By 1dmm | Reply | (1) replies | Private Message me
November 20th
2008
3:35 AM
My hair kept coming out by the handfuls. I've lost at least 8 inches since I started simvastatin! I mentioned this to the endocrinologist and he said he didn't know, but he prescribed it. I am furious, hair is a woman's crowning glory.
-- By tiredoffeelingsick | Reply | (1) replies | Private Message me
November 2th
2008
7:59 AM
In people close to me I have seen the following side effects:
All statins have similar side effects. They can come at once or after many years.
Pain in neck, shoulders, elbows, hands, hips, legs, feet
Pains that keep moving to different parts of the body and could be unbearable -like nerve pains.
Head ache
Burning, tingling sensations in the different body parts mentiond above and numbness
Weakness in hands which caused the person to drop things
Hair loss, difficulties to swallow, ringing noise in the ears, loss of taste, memory problems - particularly with short term memory, difficulties to find words and to remember what just had been read, impotens, extreme sensitivity in the skin (abdomen).
Please "educate" yourself.
Read books and look for information in many different places. Remember to find out who is behind a certain webb-adress. Could it be a pharmaceutical company.
Unfortunately I am not allowed to write webb-adresses here - but Google the titles of the books/writers below and you will find some webb-adresses.
The Great Cholesterol Con (Anthony Colpo)
--------------------"--------------- (Malcolm McKendrick) - this is another book
The Cholesterol Myths (Uffe Ravnskov)
Malignant Medical Myths (Joel F. Kauffman)
Overdosed America (John Abramson)
Lipitor - thief of memory (Duane Graveline)
Duane G. has an interesting site
The Truth About The Drug Companies (Marcia Angell)
Google "Stopped our statins" and you will find this webb-site.
Under print articles to the left you will find an interesting article from Weston Price Foundation.
It takes time to look for information and then read it, but often it`s quite essential to do that and to make up your own mind.
It`s your body and you know best how you feel.
Remember it`s a lot of money involved and that`s why news about serious side effects quite often are delayed.
The cholesterol issue - that high cholesterol should cause heart attacks etc - is very controversial. But it`s only the pharmaceutical companies who have the money to "brainwash" by advertisements, ghostwriters etc.
I hope my suggestions can make you more interested in the medications that you are taking.
Finally - a very interesting book about a certain kind of antibiotics - Bitter Pills by Stephen Fried.
English is not my native language but I was forced to read a lot of English books because of the suffering of my relatives, but without the Internet I would not have found them.
Remember new drugs are not necessarily better than old, but always more unsafe. They are also more expensive and that`s why they are so highly promoted.
-- By swedish | Reply | (2) replies | Private Message me
September 27th
2008
9:06 PM
My doctor prescribed 40 MG Simvastatin to be taken 1 on Thursday and 1 on Sunday.That doesn't seem like much but I have only taken them 3 times and the pains in my knees are much worse also my feet hurt, my neck is a little sore, I have bad cramps a few minutes after I eat and even during the night....I also have had 2 nights of very strange dreaming.
Several years ago I was on Lipitor and after a year I could hardly walk with my knees so I told the doctor I was not taking that any more..he put me on Zetia and I did well on it and the pain in my knees lessened a lot ,until my insurance co. decided not to pay for Zetia anymore, I told the doctor and he put me on Simvastatin. I am not going to take any more of it and will discuss it with the doctor next week,.
September 22th
2008
2:04 PM
recently was prescribed simvastatin. Pharmacist advised that 50% of people will experience severe muscle & joint pain and burning in the muscles. I can see by reading the site that this is true. Must try since cholesteral and bp are high and dr thinks at 51 I had two mini strokes (tia's). If I experience the severe pain that is discussed i will stop taking. Thank you for all the info! This site is awesome.
-- By mll | Reply | (3) replies | Private Message me
September 13th
2008
7:52 PM
I've been on simvastatins for about 2 years after TIAs. I'm 56. I had two small Strokes about year ago despite being on simvastatins. Had brain scan which showed two small areas of scarring and carotid artery scan- arteries fine. Started experiencing dizziness last year and GP diagnosed vertigo and gave me seasickness pills which didn't do much good. Since then I've experienced headaches which last for weeks, increasing fatigue (now struggle to get out of bed in morning) muscle pain which is getting really bad and sore feet (?). Increasing memory loss, confusion, lack of concentration, eye problems (when I first wake in morning my vision is blurred for ab out 30 minutes or so. I've been worried i mmay be developing Alzheimers. I've also piled on weight and the texture of my hair has changed - it has become very soft and silky and become thinner - normally my hair is very thick. Also I've had two perms in last 6 months which won't hold curl - been having perms for years and never had this problem. I've had several blood tests including for under-active thyroid and they have all been clear. I've been really worried about all these problems and did some research and came up with this site. I am beginning to think my problems stemm from taking 40mg Simvastatins so am going to stop them and book appointment with GP. Any comments/advice would be appreciated.
-- By suecolquhoun1 | Reply | (4) replies | Private Message me
August 3th
2008
4:38 PM
I have never experienced the side effects of statins myself. I have never taken any - nor would I if my numbers should be too high.
I have had the opportunity - or rather was forced to - to "educate" myself on the cholesterol issue as i had 3 relatives suffering from side effects.
They were all over 70 and had taken Simvastatin (Zocor) for years.
In 2003, when I had just got an Internet connection, I started to look for information and was surprised to find these sites:
******
I also found "Stopped our statins" (google for those words) where there is a lot of information.
Under print articles you will find a very informative article from The Weston Price Foundation about the different statin studies over the years and also about the side effects.
Are you sure that a high cholesterol will cause heart problems - or is it just propaganda from the pharmaceutical and health industry?
After having visited some of these webb sites and read some of the books you might have changed your mind - like I did.
Your cholesterol is very important for your body and essential for your brain among other things.
Why should you live better and longer if you use medications to lower it?
It`s just to read all these patient stories - what quality of life is this?
I would suggest that you also read the messages for the other statins such as Lipitor, Zocor (=Simvastatin) etc.
All statins have similar side effects.
Here are some books that you might find interesting. Some about the cholesterol issue.
The Great Cholesterol Con (Antony Colpo)
The Cholesterol Myths (Uffe Ravnskov)
Lipitor - thief of memory (Duane Graveline
Malignant Medical Myths (Joel F. Kauffman)
--------
Overdosed America (John Abramson)
The Truth about the Drug Companies (Marcia Angell)
-------
Bitter Pills (Stephen Fried)
about quinolone antibiotics such as Cipro, Ciprofloxacin, Levaquin etc.
-------
The Antidepressant Fact Book
Your Drug May Be Your Problem
Toxic Psychiatry
Medicine Madness
(Peter R. Breggin - all books about psychotropic drugs)
____
What if medicine disappeared?
(Gerald E. Markle and Francis B. McCrea)
How doctors think
(Jerome Groopman?)
-- By swedish | Reply | (1) replies | Private Message me
May 7th
2008
1:36 AM
It`s very disturbing to read all these stories.
I really feel for you.
My experience comes from seeing what happened to people close to me. They all took statins.
I started to look for information on statins, and other medications, in 2004 and it continues to this day although two of my relatives are dead.
I have nothing to do with the health or pharmaceutical industry.
I saw the suffering and it made me very angry.
I am an ordinary lady in her sixties who live in Sweden.
The situation is almost the same here as in the U.S.
There is very little discussion about risks/benefits with this kind of medicatications - or others.
I think it`s a good idea to turn to the Internet and books to get other views about the cholesterol issue.
Is it really true that it`s the cholesterol that is causing heart disease?
Are you sure?
Please visit:
www.thincs.org, www.ravnskov.nu, www.spacedoc.net, www.statinalert.org
Also search for "stopped our statins" on Google. You will find some interesting articles under "print articles". I particularly like the one from The Weston Price Foundation. It deals with both side effects and the different statin studies.
Also search for information about the different authors below.
Here some interesting books:
The Cholesterol Myths (Uffe Ravnskov)
The Great Cholesterol Con (Antony Colpo)
Book with the same title (Malcolm Kendrick)
Overdosed America (John Abramson)
The Truth about the Drug Companies (Marcia Agnell)
Malignant Medical Myths (Joel M. Kauffman)
There are many more.
It´s good to have some other information than the one given by doctors because most of them have been "educated" by the pharmaceutical companies themselves - and why should they talk about risks, side effects etc. They are interested in profits.
Finally - here are some side effects that I have seen:
pains in legs, hands, elbows, shoulders, knees, hips, cracking noise in ribs, muscle weakness, loss of hair, head ache, burning, tingling sensations in hands and feet, numbness, difficulties to swallow, loss of taste, ringing noise in ears, cramps, insomnia, irritation, depression, difficulty with short-term memory and then advancing into more serious problems.
These side effects - for 3 different people - all over 65 - did not come at once.
All of them had taken statins for years (Zocor)
It doesn´t matter which product -all statins have similar side effects.
My relatives also had some other medications which made it even easier for doctors (and patients) to say that it was just old age.
I am happy for those who get problems right away because then there maybe a chance for the patient and the doctor to see that there is a connection.
You really have to look out for yourself and the people around you!
Good Luck.
-- By swedish | Reply | Private Message me
April 15th
2008
11:30 AM
Has anyone had hair loss? I have been on Simvastatin for 30 days adn I noticed hair loss.
-- By tjacobson | Reply | (8) replies | Private Message me
June 10th
2009
12:47 PM
WOW! I have been feeling so bad lately, I decided to put my medications in google and do some research. I have been reading these peoples post like it was something that I wrote.I am only 36, but I feel 86. I thought I was loosing my mind. I have been on 40mg/day for 11 months now. In that 11 months, I have had to stop working, I can barely walk around because the pain in my ankles and knee. My right shoulder hurts all the time. I had been working 50+ hours a week for over 7 years. I pretty much have withdrawn myself from most friends and family, I just feel so bad all the time, I feel more like a burden than anything. The latest thing I have had going on is, this terrible pain in my upper right abdomen. Ive had blood work, Ultrasound, MRI all came back ok, with the exception of a small spot on my liver.(normal they say) I didn't refill the last Rx for about 2 weeks($$ issues) I actually was able to get outside and mow the yard, take a walk with my daughter, then 4 days ago I get it refilled and start taking it again. Now im back in the house, it hurts to walk again, I feel like im here but not here most of the time. I have asked my doctor about this and told her several times that I am not feeling right. She just tries to give me antidepressants! Yea just what I want more pills (NOT). I have also had terrible boughts with constipation and diarrhea. It was nice to see that I'm not loosing my mind here. My mother also takes this, I sent her a link to this site and we are both stopping this medication. Doctor says my chol. should be under 100 mine is 115, and she thinks she is gonna up my dose to 80mg/day. NOT! This is no way to live.
-- By jsterner72 | Reply | (1) replies | Private Message me