Simvastatin and statins

Recently, to please my doctor who insisted, I went back on Simvastatin (40 mg). Both of the other times I had a bad reaction. I have fibro myelgia but is usually managed with non narcotic pain medicine except in the winter.

This third time I went on it, just after five days I had the most violent reaction I have ever had. At first, I thought I had the flu, but no. I had severe neck, leg and arm pains. I had nausea, stomach pains, and depression.

After four days off the pill, taking all my OTHER medicine as usual, I had experience less pain. But still more than I usually have. I have not eaten anything in the past week, except for a piece of butterless brea.

I have gone through Cancer, and many other illness - but none brought me the pain this medication caused. I was crippled for three days and needed asisstance in doing all things.

After reading other person's experiences and knowing my own, I stronglly feel THIS PILL SHOULD BE TAKEN OFF THE MARKET.

I've been on Simvistatin for several years. I have inherited a very low 'good cholesterol' (HDL) of 28 - 30 no matter what I do. I was on 20 mg for a few years, and my doctor decided to increase it to 40 mg... soon after the increase, I noticed that my ankles couldn't 'bend' and my heels hurt. I'm only 58 but I felt like I was 102! Also, I have put on weight through my middle...particularly in the stomach area. I questioned my doctor about it, especially since my Dad, who has had 2 heart attacks is only on 10 mg of simvistatin. She didn't really listen to me, so I switched doctors. My current Dr. immediately took me off simvistatin and started me on pravasatin along with 200 mg of CoQ10. So far, so good. My ankles feel better, too!

I have been taking 20mg of Simvastatin every night for about 4 years now and after coming across this site I have decided to stop taking it. I have been feeling particularly unwell for a couple of days, decided to do some research and can't believe what I am reading on this site! For the last year I have suffered terrible pain and loss of movement in my neck shoulders and arms and shooting pains in my legs along with muscle tics. More recently dizzy spells and quite severe tinnitus and headpain and fatigue. I have also found that my muscles tire very quickly when doing the smallest of tasks i.e: changing a duvet cover! The night sweats are particularly bad which I have been putting down to my age but may be to do with the statins. I am praying that these symptoms will reverse once I stop taking them but remain skeptical after reading other peoples comments on here!

I'm only on 10mg Simvastatin and 10mg Lisinopril. I have type 1 diabetes and a minor TBI from a heat stroke. If I stop taking these then after a day or two I will start feeling barely controllable fits of rage. Sometimes I still get angry but for some reason the lisinopril and Simvastatin seem to ease it. I also have hypogonadism. I like my combo of simvastatin and lisinopril in the morning with my 20mg adderall. Little bit of redness on face but the benefits seem to outweigh.

4 years ago i was given simvastatin 20mg for high cholesterol when i was diagnosed with type 2 diabetes....last year (November) i stopped taking it after someone commented after hearing me complain about aches and pains and asked if i was taking statins....i checked and found i could relate to several reported side effects...over the last 10 months my aches and pains had slowly disappeared and my cholesterol was recorded at 4.9 in July ....however 4 weeks ago i suffered an optic nerve stroke and my doctor immediately put me back on simvastatin at 40mg despite my complaints is there an alternative i can take as i don't want to risk loosing any more off my vision and as the aches and pains are returning ...i will reluctantly take it but carefully monitor myself....

Dizzy, like getting sucker punched in the head; dizzy while LYING DOWN? This also happened with other statin. While bending over to pick something up or tie a shoe, almost fell on my head. Yet, cardiologist thinks it's "all in my head." It sure IS!

I took myself off it after 3 months of taking it. I simply told my doctor that I will take no more statins. I had liver enzymes checked, but I had come off the drug 3 weeks before that. My enzymes were through the roof!
Needless to say, this drug is poison. Guess I'll eat avocados instead....
and they're a lot cheaper. My cholesterol is coming down without that poison. Exercise and diet...and if I can lose weight my numbers will be perfect. Hope you will all be blessed.

I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.

I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.

I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.

August 12, 2009. I have been on Zocor/Simvastatin (40mgs) off and on over 5 years. I do not have any muscle mass left. I am an avid walker and exercise as much as possible in addition to still working in a high pressure position at the age of 72 (thankful for the job). My entire body hurts constantly, hands, fingers, legs, knees, neck, back, head and other parts to numerous to mention. My sex life is the pits. My doctor tells me I have high cholesterol that must be controlled by medication. I had a quad bypass in 1999, a cardiac defibrillator installed in 2003 (Actually 3 of them, first one was defective and went off, got a severe infection on reinstall #2, and 3rd one still is in and working hopefully). I never had a heart attack, no high blood pressure, just clogged up. I take enough medication to kill an elephant. At 72 I am going to trash the Simvastatin because I know it is the basis for my muscle loss and severe pain constantly. Doctor also had me on Lipitor for a long time (5 years). Statins really suck!

I am a 46 y.o male who started taking Simvastatin almost 8 months. At first I had no problems. I am an avid swimmer who swims laps at least 3x a week and had a weight lifting program (light wghts./ numerous repetitions. About 2 months ago I got severe pains in my neck and shoulder. I thought maybe I was overdoing it so I ceased workouts and went to the chiropractor. After two months of misery and missing swimming I decided to look into the statins. I am going off it tomorrow and will see if that does the trick. If I cannot exercise and be fit the Statin is not going to be useful anyway. I have a feeling stopping will help because rest and treatment sure didn't. I will try and report back

I was prescribed Simva 30mg to replace Lipex which is no longer government funded 6 weeks ago. Since taking this medication I am waking up with tingling in my elbows and fingers blurry eyesight and what really worries me and no one seems to have mentioned is low body temp 34.2 and then a reading of 34.8 now averaging around 35.2

Please is anyone out there suffering from low body temp

I m Asian 5ft 5, started on simvastatin 3 wks ago cause doctor advice. Feeling cramp and numbness in my right leg 3-4 times a week and my hands and legs felt so tired and weak when i get up in the morning. Told my doc about this but she said its normal! How am i suppose to go through the rest of my life like this? I m only 37 years old!

I have been on simvastatin for 2 yrs . The past six months have had foot pain my doctor described as neuroma.By the time I started physical therapy the pain was in my arch + tendons. I went to physical therapy for two months, the therapist became concerned when improvement peaked. Still have burning nerve pain. I think its time for natural supplements . I hear "red Rice Yeast" is effective.
S. M.

My husband has been on Simvastatin for a few years, six months ago his dose was increased to 40mg, since then he has become someone I don't recognize, we have been married over twenty years and he used to be a very placid and wonderful man. He is now both verbally and physically abusive, he threatens me with divorce on a regular basis. He lies about me to others telling them he does all the housework (never) there is never any food in the house ( Totally untrue) He disappears for hours on end, and sleeps much of the time. He can be quite plausible with other people but turns into a monster when he returns home. Doctor told me I don't think it can be the statin, don't believe everything you read on the internet! She said to be sure for him to come off it for a few weeks - he refused! His aggression is escalating and I now dread him coming home. he has odd moments of being nice but within hours he is back to being nasty. He had been impotent for 7 years but now during his "nice moments" becomes amorous! I am at my wits end, has anyone else experienced this!

After reading all of this - I take Simvastatin 40mg - then had to go off of it, cause I got layed off & couldn't afford to get my med's filled. Went off the med - felt better (unknowingly). Then, I got a new job, got it refilled & started taking it again - my knees are killing me & fatigue is overwhelming me. I am emailing my doctor today - this is not right after all of what we are going through. M. J.

I am in shock and so glad that I came to this website. I have been taking simvastatin for about 5 months now and this morning I decided to do a web search with the words simvastatin and headaches. Everyday I for the last two months I have been asking myself why am I having these terrible headache. My Doctor did a CT scan, I had my eyes tested, I had my hearing tested, my blood tested and everything comes back good. I realized that I have to do something about this problem myself because my doctor prescribed another pill for the headache and that's that. Today I did not take the medication and I will not be taking it again. The symptoms that everyone described are so real to me but the headaches were the worst. I have to thank you all for posting this information. I now feel that I will get my life back.
Thanks verdul1

Great Drug! Not...
Two months on the drug. Light Headedness, Dizziness, Lethargy, and a General Fog. Slight loss of balance sometimes.
Doc, said go off for 2 weeks and see how you feel. If better, we will try another statin.
Went off 2 days now. Feeling much more myself!!

This drug is scary. Who would want to go thru life taking this drug with it's side effects. Not me!

I was recently prescribed Simvastatin 40 mg by my GP as I have high blood pressure and Cholesterol. After the first nigh of taking Simvastatin, I am suffering from severe dizziness and feel weak. Can Simvastatins cause these symptoms after one dose and has anyone else had this problem?

I started 40 mg Simvastatin in Sept 2007 and stopped it March 08. I developed severe carpal tunnel Sept 07 and it went away March 08.....gone. The illness simvastatin caused has taken a year to get better. At times, I was too weak to feed myself. Drenching sweats, 24 hour a day headache, vomiting, light headed, blurry vision, and swollen neck glands. On a scale of 1-10, fatigue was a 10. I developed Rheumatoid Arthritis. I had very few arthritis episodes but it showed on blood work. It went into "remission" Dec 08. I was still sick. They said RA was reason I was so ill. I honestly felt I was dying. They tried to fix me, cost me a lot of money. I started CoQ10 a month ago. Made changes with other meds too. I am just now seeing an improvement. The large swollen gland on my neck has started to go away. The headache and fatigue are getting better. It's been a long road. I think it effects so many people in so many different ways that doctors are not clicking. My father, my aunt, my cousin, my brother and I all had different aches and pains. The one thing we had in common was extreme fatigue. We all stopped statins and some recovered quickly. Dad and I are still suffering. No more statins for me.

I've been on Simvastatin 40 mg for about eight months now. Cholesterol levels dropped significantly. But man have I been hating life! Joint pain mainly in the legs. Beginning to walk like an old man and I'm only 62. Also more pain in my back than ever before! I talked to my doctor, who suggested I get off them for 6 weeks. I did, and I feel like a million bucks. I've got to get back hold of him to find out what he recommends? Probably some other pill!!! Just today I was talking with my pharmacist, and I told him my symptoms. He said the muscle deterioration could actually lead to death. I don't think I'll ever go back on them. I'm going to try and watch the old diet and get more exercise. Hope this helped someone? Good Luck!!

I am 59 and switched to Simvastatin from Lipitor. Much lower in price. My cholesterol is 200 and the doctor was very pleased with the number. So far no side effects but it has been only 5 days. The dose is 20mgs. Now after reading all the BAD side effects I am very scared!
Is there any positive statements about Simvastatin?
S.

Have been on simvastatin on and off for 15 months now. First of all 10mg came off for a while - cholesterol level up to 7.6 again so was put on 40mg. Very nauseous and came off the 40mg. Went back on to 10mg in Nov. and since then no nausea at all. At present I am getting terrible pain when laying down in my right leg from my hip into my buttock right down to my foot. It is similar to cramp in leg but it lasts sometimes for a couple of hours. Cramp usually disappears in a few minutes but it is the same sort of sensation. Also needle-like pains in my hand and foot. Above symptoms only since going onto Simvastatin. Would be interested in any others have these symptoms too. Trouble is damned if you take them and damned if you dont. Current research does show however that there is no benefit to women over 60 taking these wretched pills - everybody reading this should try and get or borrow the book by Dr Malcolm Kendrick entitled The Great Cholesterol Con (Dundee UK GP) written in 2008 who also is of this opinion. I am not advising not to take Simvastatin but please do research and read this book and reach your own decisions.

After many months on Zocor, I began to experience sore knees, stiff legs and sore lower back. All at once, in about a one week period, I could no longer walk. My leg muscles were completely gone. I have been for xrays, MRI and more. I am convinced it is the zocor and have quit taking it, however after almost a month without, I still cannot walk without support. My upper body is fine..Right leg better than left leg, left leg almost useless. No more statins for this 71 year old and used to be VERY active male. I hope I can get it all back.

After one dose of Simvastation, on 2/28/09, eight hours later I woke to extreme vertigo, vomiting, cold sweats, muscle aches. I called my cardiologist at 1:30 a.m. and was told that I had the flu. Ya right! My vertigo has not left yet, and I have seen my primary care doctor who has ordered blood tests, and CAT scan. Just waiting for results. Still dizzy though. Anyone else have these symptoms?

I started taking simvastin (the lowest dose) about 6 months ago with amazing results when it came to my cholesterol. After about 2 months I started getting headaches. I went off the drug for about a week and the headaches went away. I went back on the drug and 3 weeks later the headaches came back. This went on for a few cycles. This last time I went off the drug was February 7. I have not taken it since and I have had a headache since then. This time it has not gone away. I HAVE NEVER had headaches before taking this drug. And all I know now is that for the last month my life as I knew it completely changed. Of course the Dr. put me on some pain meds for the headaches that made me sick, sick, sick after 3 days. I just can't take the pain meds as they are worse than the headaches themselves. HAS ANYONE HAD THIS and if so how long did these headaches take to go away.

omg, im 32 years old been on zocor for 3 months now and am experiencing dizziness and disassociation with myself. I know now that it is from the drug. It seems like i want to sleep all the time. I was pretty convinced it was from stress but i have been in war in Iraq and under stress-post war depression and its nothing like statin side effects!! I went on statins because of a genetic disorder that runs in my family, the cause, well high cholesterol. Now my levels are fine but i feel like im a zombie most days? i know in the long run its healthier for my heart and veins to have low levels but at what extent? i think im going to go off for a few weeks and then back on it.

I am 38 years old and had my second child 7 months ago. My family history for heart disease is very poor and my cholesterol was 6.2 so my doctor prescribed 10 mgs of simvastatins in November. Before taking them I felt fine in myself, since taking them I have felt exhausted, not just tired, I have insomnia, very bad nightmares when I do manage to sleep. On top of this I have started to feel depressed and anxious, short of breath and my hair is falling out! I had myself convinced that i had post natal depression but decided to stop taking statins a few days ago, feeling slightly better. My doctor prescribed me an anti depressant today, should I take them? Does anyone know how long statins stay in our system?

Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.

Wow, i cannot believe what i'm reading. I have been taking Simvastatin for almost three years. My Doctor never mentioned any side effects. It has gotten bad enough for me to seek information on the internet. What medicine cause all my symptoms; Tingling in the hand and feet, weakness of muscles, dropping things, dizziness, memory problems, sore muscles, sinus problems sore knees, arms, shoulders, stomach,numbness, sensitivity to light. I'm sure glad i have found this web site. I think i am going to take myself off of it for a week and see if things improve. Drug companies must be making a killing on this medicine since they refuse to warn potential patients.

WOW! My jaw is on the floor. I have been taking Simvastatin for 4 years! At around that time I started feeling ill. I ended up in the infection clinic. There they did 6 spinal taps since they could not understand why I had this major headache, and stablike pains.
I was hospitalized for 2 weeks and during the last 4 years I have been in and out of hospitals and doctors.
After they found 'nothing' they told me that I might have LUPUS/RA. So they started me on drugs to treat reumatism. I was on 2000mg per day! Complained and said that the meds where not working and I needed help and someone to listen to what I was saying. Then one of the many doctors I had was telling me to shut up and go see a psychiatrist. That got to me and so I started writing letters. I got a 'new' doctor and he said odd. Told me he was only interested in my joints. After the second time w him he passed away and so I met a fresh doctor, on that was right out of med school.
She looked at me and said...*You cant go on living like this, this is no life.* she sent me to the hospital for 2 weeks so that I could get the right treatment. There they realized that I have no sings of reumatisum but rather a connection w Simvastatin.
They right away told me to stop taking all the reumatisum medication and they will now focus on removing Simvastatin.
I am blown away.... I was so sick, so may hours lost from work, family and friends. I almost left my husband because I felt like I was just 'there' not ever being able to do things. I was so sick all the time.
Wow is the only word I have in my head right now- I am in a shock.

My hair kept coming out by the handfuls. I've lost at least 8 inches since I started simvastatin! I mentioned this to the endocrinologist and he said he didn't know, but he prescribed it. I am furious, hair is a woman's crowning glory.

I was diagnosed with type 2 diabetes in 2001 and have been taking 10mg simvastatin ever since. Over the last six months have had severe increasing pain in right shoulder neck and arm. Out of the blue the doctor has since automatically changed dose from 10mg to 40mg. I have not taken the 40 yet as I am too scared and am using up the 10mg. Sometimes have diarrhea and nausea. I had to wait 2 weeks for xray and another 2 weeks for the result. Am to see the doctor in 2 days because I cannot stand the pain any longer. A month ago he told me to come off the simvastin as I would not have to wait long, but after 2 weeks thought I had better go back on it again. Have now stopped again because the pains are worse. wondering about taking herbal medicine instead.

Some good news re: my concerns in my Drs. note (posted the other day) "some buildup" and why such a high dose 40mg. of this poison?. I actually received something from the cardiologist on Fri. which made me feel much happier. 'NO SIGNIFICANT ABNORMALITIES - MILD CHOL. PLACQUE BUT NO SIGNIFICANT BLOCKAGE SEEN' so you can imagine how much better I felt - I had already made the decision to not take the Statins, but that report absolutely convinced me. If you haven't already had a doppler on your carotids, do so, it can ease your mind, since we're always being told we're clogging up our arteries with just about anything and everything, we're gonna have a stroke, etc. all these scare tactics. It's not an expensive test (about $80, not sure what will be added to that, as to cardio. reading the results), but worth it. Read up on the Red Yeast Rice - I've read several articles from several well known medical websites - it seems it actually can work better than Statins! Get off this stuff people, more risk than having a stroke!

In people close to me I have seen the following side effects:

All statins have similar side effects. They can come at once or after many years.

Pain in neck, shoulders, elbows, hands, hips, legs, feet

Pains that keep moving to different parts of the body and could be unbearable -like nerve pains.

Head ache

Burning, tingling sensations in the different body parts mentiond above and numbness

Weakness in hands which caused the person to drop things

Hair loss, difficulties to swallow, ringing noise in the ears, loss of taste, memory problems - particularly with short term memory, difficulties to find words and to remember what just had been read, impotens, extreme sensitivity in the skin (abdomen).

Please "educate" yourself.

Read books and look for information in many different places. Remember to find out who is behind a certain webb-adress. Could it be a pharmaceutical company.

Unfortunately I am not allowed to write webb-adresses here - but Google the titles of the books/writers below and you will find some webb-adresses.

The Great Cholesterol Con (Anthony Colpo)

--------------------"--------------- (Malcolm McKendrick) - this is another book

The Cholesterol Myths (Uffe Ravnskov)

Malignant Medical Myths (Joel F. Kauffman)

Overdosed America (John Abramson)

Lipitor - thief of memory (Duane Graveline)
Duane G. has an interesting site

The Truth About The Drug Companies (Marcia Angell)

Google "Stopped our statins" and you will find this webb-site.

Under print articles to the left you will find an interesting article from Weston Price Foundation.

It takes time to look for information and then read it, but often it`s quite essential to do that and to make up your own mind.

It`s your body and you know best how you feel.

Remember it`s a lot of money involved and that`s why news about serious side effects quite often are delayed.

The cholesterol issue - that high cholesterol should cause heart attacks etc - is very controversial. But it`s only the pharmaceutical companies who have the money to "brainwash" by advertisements, ghostwriters etc.

I hope my suggestions can make you more interested in the medications that you are taking.

Finally - a very interesting book about a certain kind of antibiotics - Bitter Pills by Stephen Fried.

English is not my native language but I was forced to read a lot of English books because of the suffering of my relatives, but without the Internet I would not have found them.

Remember new drugs are not necessarily better than old, but always more unsafe. They are also more expensive and that`s why they are so highly promoted.

Unable to focus eyes on any target while moving. Later extreme muscle soreness and weakness. Unable to do some simple chores. Lower back and upper legs ached mostly first thing in the morning, got a little better later in the day. Have stopped taking Simvastatin. Will wait and see. Have taking statins since an angioplasty 11-12 years ago. T.

Thought I would come online to check up about another possible side effect and caught a posting about male libido. I off Statins on 9th July this year after suffering all the pain related side effects mentioned on the site and in my previous posting in August. Last week my normal monthly cycle started up again after 8 months. I thought that I had gone through the change but with no side effects. Seems to me that Statins might also effect hormones, but as we all seem to be of a similar age groups, we blame the way our lives are effected on our age. I know that I thought that everyone who hit 50 experienced exactly the same fatigue, pain (arthritis - gout), weight gain, loss of drive etc. I have been off them for 13 weeks now and I haven't looked back. I really can't remember now just how bad I was feeling towards the end, but I know that I was very close to giving up I just didn't think that I could live feeling the way I did at the time and knowing that I was getting progressively worse. Now I am just very angry that people are having to go through what we have. I just wondered if any other women had their monthly cycle altered/ stopped whilst on this drug, only for it to return after coming off?

I have corrected my typing error I am not on 400mg it should have read 40mg. Thanks to the reader of my experience who very kindly pointed out my error!!!!
Despite having a brush with the big C last year (I finished chemotherapy in January) I have been very fit and healthy during my 61 years! A few weeks ago I started having palpitations, hence a visit to the doctor revealed high blood pressure and cholesterol reading of 9.9!!! Shock, horror. He informed me that it was genetic and prescribed Simvastatin 40mg and Bendroflumethiazide 2.5 mg daily. Not being satisfied with the enclosed leaflets I have looked up more info. on the net. Should I have done this!!! After reading some of the posting on the site I am feeling a bit apprehensive. Last night I had a terrible night couldn't sleep for the pains in my legs and a bit nausea this morning. But I need to be sensible, I really don't have any choice but to take these drugs just hoping that I won't have to stay on them for the rest of my life and I don't get any of the side effects that some of you have suffered. I also wonder if the chemotherapy could have caused by raised cholesterol? Hope to keep you posted and would welcome any comments!

This site may have saved my life! My blood pressure & cholesterol meds were changed last Sept., and like Virge, 3 months later I had a severe vertigo attack (while driving). Long story short, I have been a wreck ever since...feeling dizzy & faint, anxiety attacks, spiking BP, acute insomnia, soreness in the back of my neck, overly sensitive to bright lights and loud sounds, and several reactions to anti-anxiety meds & vitamin B pills (some of which placed me in ER!).

I've seen over 20 different doctors & specialists, and NOT ONE has ever questioned the Simvastatin. A couple weeks ago, I Googled Simvastatin & vertigo and saw that vertigo was listed as a side-effect...then I saw the notes on this site. This prompted another visit to my doctor.

I've been off it ever since, and have noticed a substantial change for the better (I can sleep well again!) - although I'm still always dizzy and my BP has risen. I'm hoping that by taking it for so long, I haven't incurred any substantial long-term side-effects! I'm also wondering why some of us react so negatively to the drug - if there is another underlying medical condition that would cause such an adverse reaction?

I'm a 54 year old female prescribed 10 mg zocor(simvastatin) for slightly elevated cholesterol. Took it for 7 months before I clued in to the cause of my many symptoms. Muscle and joint pain, head fog, blurry vision, weight gain, stomach upset, fatigue, etc... The muscle and joint pain were excruciating at times --especially in my left hip...which had gotten so bad I needed a walking stick for support. I felt so darn old wondering if I would even feel normal again.
After reading many postings I decided to stop my zocor(simvastatin) 6 weeks ago and am very happy to report an improvement in many of my complaints...although far from where I want to be.
I am curious as to the withdrawal effects others may have experienced. The first week coming off I had stomach aches and I had awful headaches which thankfully did stop. The stomach aches and touchy digestive system still plague me though. Am I the only one experiencing this?....

I am 45 and have been taking statins for 5 years since having 3 heart attacks in a 4 day period.At first I was on Atorvastatin 10mg and didn't suffer any side affects,I was put on Simvastatin 40mg 2 years ago due to cost.Since then I suffer with very sore muscle pain down the length of my right arm.My GP keeps on prescribing painkillers and doesn't mention the fact it may be side affects of the Simvastatin.I find it sad that costs of drugs are the reason I am in pain.

I've been on simvastatins for about 2 years after TIAs. I'm 56. I had two small Strokes about year ago despite being on simvastatins. Had brain scan which showed two small areas of scarring and carotid artery scan- arteries fine. Started experiencing dizziness last year and GP diagnosed vertigo and gave me seasickness pills which didn't do much good. Since then I've experienced headaches which last for weeks, increasing fatigue (now struggle to get out of bed in morning) muscle pain which is getting really bad and sore feet (?). Increasing memory loss, confusion, lack of concentration, eye problems (when I first wake in morning my vision is blurred for ab out 30 minutes or so. I've been worried i mmay be developing Alzheimers. I've also piled on weight and the texture of my hair has changed - it has become very soft and silky and become thinner - normally my hair is very thick. Also I've had two perms in last 6 months which won't hold curl - been having perms for years and never had this problem. I've had several blood tests including for under-active thyroid and they have all been clear. I've been really worried about all these problems and did some research and came up with this site. I am beginning to think my problems stemm from taking 40mg Simvastatins so am going to stop them and book appointment with GP. Any comments/advice would be appreciated.

I started simvastin on Aug 11. Lately I got severe lower back ache every time I get up in the middle of the night and every morning but the lower back ache goes away as I starts my day after 1 hour. I am also experience short memory loss.
Pls advice if this is a serious side effect of the drug.
Thanks....hw

I have muscle pain, weakness, and chronic lower back pain. Started statin drug, Simvastatin, on 11/21/07. I take no other drugs. Within two weeks, I could not sit without severe lower back pain. Reported problem to family medical doctor on 1/11/08. M.D. sent me to physical therapy for 8 sessions. No relief from physical therapy so I requested an X-ray on 3/20/08. X-ray shows very mild degeneration at one lower vertebrae. M.D. sent me to an orthopaedics doctor who recommended continued physical therapy. Went to a Chiropractor instead. After six chiropractic sessions with little relief, I made an appointment with an Osteopathic doctor. My M.D. sent me to a rheumatologist who prescribed high dose naproxen for two weeks. The rheumatologist ordered and X-ray of my lower back area. The lower back X-ray produced no negatives. The rheumatologist's next step will be to order and MRI of my lower back area. The D.O. suspects statin induced myopathy and because of hyper reflexes he ordered an MRI of my brain and cervical spine. I am now recommended to a neurologist who specializes in the diagnosis of multiple sclerosis. Am I getting the run around? Only one doctor said I might have statin induced myopathy. The rest will not even mention the statin drug theory. I just pray for ache and pain relief. I have some improvement after four months off of the statin which I believe is quite a strong point that it was the statin drug and not some unknown condition. I don't think arthritis or MS conditions improve. All I know is that I had no health issues before taking the simvastatin. Good luck to everyone who has or is taking a statin drug. BEWARE!!!

I'am only 26 but I have been a insulin dependent diabetic since the age of three. Being a diabetic for so long has made it difficult for my body to maintain normal cholesterol and triglceride levels. (I'am not overweight and I am very active) At 19 I was put on lipitor but it gave me severe stomach pains when I called the doctor they told me "it was just a side effect" and should subside. I wasn't on it for very long when I found out I was expecting and had to stop taking it anyway (can't take statins while your pregnant it can cause severe birth defects) Anyways, after I had my daughter they said my cholesterol was fine and they weren't going to put me back on anything. Yes! Until just recently my doctor discovered that my triglceride and cholesterol levels were so high he had the lab re-draw my blood tests! Odd because I feel perfectly fine. Because of the stomach pains years ago with Lipitor he put me on Simvisatin and Antara. Every since I have been on the Simvastatin my cholesterol levels are perfect but I am soo tired all the time. When ever I tell my doctor he says it's because I am a young mother of three and work full time. But this is a different kind of tired. I seriously could drink a five shot extra strength espresso and fall asleep this isn't normal. All my blood work is fine. It has to be a side effect.

i am 55 and have been taking simvastatin for about 2 years although my cholestrol was under 5. over the last few months have had pain in my knees which i thought may be arthritis and then about 2 months ago the pain started in my left foot and became so severe that i had to change to an automatic car, still believing up until today that arthritis must be getting worse although my foot xray came back normal, i found this website today as my finger and thumb joints are hurting so much i cant hold anything and every muscle aching so much i just wanted to cry.after reading these letters i realize that even the choking feeling im sometimes getting isn't a menopausal panic attack and now i have checked my simvastatin leaflet an d box and realize that although my last cholesterol reading was only 3.5 one of my doctors has put my tablets up from 10 mg to 20 mg so big question is this an overdose ? im not taking another one of these pills an see what progress my health makes. i am slightly worried about heart disease and will look into herbal type as my parents use these,have never taken statins and are 90 and 87 so i think this speaks for itself,thanks everyone who has helped me diagnose my own illness!!!

I'm 58 years old and I've been on 10 mg Simvastatin for 14 months since I was diagnosed with Diabetes 2. Also Metformin and Glipiside as my bs got up to 499 at diagnosis with high cholesterol.

I had NO IDEA that my suffering the past year could possibly be tied to one of the drugs I've been prescribed. In the first three months after diagnosis, my Diabetes was controlled and I've even backed off some of the meds. My cholesterol also came down beautifully. However, the debilitating weakness and muscle aches (which has increased over the 14 mos.) has become so bad (especially this last week) that I came to the Internet looking for possible reasons for 'body ache'.

And get this: I take a packet of vitamins every day which includes a daily dose of Q10... BUT I haven't been able to take them for about a week and this last week I felt like I was ready for a wheel chair~!!! Worse than it's ever been, knees and feet in horrible condition, hands and wrists unable to open a water bottle. Total body aches so severe it made me want to research something, anything to see what might be the problem.... before seeing the doctor about it!

My shock at seeing my medication here listed with the horrible side effects I'm experiencing has been a revelation~!! I am going to stop the Simvastatinn and see what happens. BTW, I've been an active person all my life, was a 2nd Degree Black Belt and taught Tang Soo Do and know what muscle aches and pains are, know my body (at least I did) and pretty much thought my active life was over.....

Not now~!!! I'm FURIOUS!!

I was prescribed Simvastatin four days ago, against my wishes, as I had heard about the side effects of muscle pain and numbness in the joints and feet. However, what I had not expected were the terrible nightmarish dreams that followed. On the fourth night I stopped taking Simvastin as I was literally too afraid to go to sleep.
I then slept fitfully but did not experience the vivid and disturbing dreams of the previous three nights.
I shall ask my doctor for alternative medication. If she cannot offer me anything other than statins, I shall stick to Benecol and research further!

Jacqui M.

I have never experienced the side effects of statins myself. I have never taken any - nor would I if my numbers should be too high.

I have had the opportunity - or rather was forced to - to "educate" myself on the cholesterol issue as i had 3 relatives suffering from side effects.

They were all over 70 and had taken Simvastatin (Zocor) for years.

In 2003, when I had just got an Internet connection, I started to look for information and was surprised to find these sites:

******

I also found "Stopped our statins" (google for those words) where there is a lot of information.

Under print articles you will find a very informative article from The Weston Price Foundation about the different statin studies over the years and also about the side effects.

Are you sure that a high cholesterol will cause heart problems - or is it just propaganda from the pharmaceutical and health industry?

After having visited some of these webb sites and read some of the books you might have changed your mind - like I did.

Your cholesterol is very important for your body and essential for your brain among other things.

Why should you live better and longer if you use medications to lower it?

It`s just to read all these patient stories - what quality of life is this?

I would suggest that you also read the messages for the other statins such as Lipitor, Zocor (=Simvastatin) etc.

All statins have similar side effects.

Here are some books that you might find interesting. Some about the cholesterol issue.

The Great Cholesterol Con (Antony Colpo)

The Cholesterol Myths (Uffe Ravnskov)

Lipitor - thief of memory (Duane Graveline

Malignant Medical Myths (Joel F. Kauffman)

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Overdosed America (John Abramson)

The Truth about the Drug Companies (Marcia Angell)

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Bitter Pills (Stephen Fried)
about quinolone antibiotics such as Cipro, Ciprofloxacin, Levaquin etc.

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The Antidepressant Fact Book
Your Drug May Be Your Problem
Toxic Psychiatry
Medicine Madness
(Peter R. Breggin - all books about psychotropic drugs)
____

What if medicine disappeared?
(Gerald E. Markle and Francis B. McCrea)

How doctors think
(Jerome Groopman?)

Over 6 years ago, the following Petition was submitted to the FDA. I would encourage every patient being treated with statins to read it and bring it to the immediate attention of their physician:

CITIZEN PETITION TO CHANGE THE LABELING FOR
ALL STATIN DRUGS (MEVACOR, LESCOL, PRAVACHOL, ZOCOR,LIPITOR, AND ADVICOR) RECOMMENDING USE OF 100-200mg PER DAY OF SUPPLEMENTAL CO-ENZYME Q10 TO REDUCE THE RISK OF STATIN-INDUCED MYOPATHIES (INCLUDING
CARDIOMYOPATHY AND CONGESTIVE HEART FAILURE). http://www.fda.gov/OHRMS/DOCKETS/dailys/02/May02/052902/02p-0244-cp00001-01-vol1.pdf
May 24, 2002
Petitioner:
Dr. Julian M. Whitaker, M.D.

This Petition is based on the clinical findings of Dr Peter H. Langsjoen, MD, who also reported it to the FDA as follows:

Statins kill people - lots of people - and they wound many, many more. All patients taking statins become depleted in Coenzyme Q10 (CoQ10), eventually - those patients who start with a relatively low CoQ10 levels (the elderly and patients with heart failure) begin to manifest signs/symptoms of CoQ10 deficiency relatively rapidly - in 6 to 12 months. Younger, healthier people who's only "illness" is the non-illness "hypercholesterolemia" can tolerate statins for several years before getting into trouble with fatigue, muscle weakness and soreness (usually with normal muscle enzyme CPK tests) and most ominously - heart failure. In my practice of 17 years in Tyler, Texas, I have seen a frightening increase in heart failure secondary to statin usage, "statin cardiomyopathy". Over the past five years, statins have become more potent, are being prescribed in higher doses, and are being used with reckless abandon in the elderly and in patients with "normal" cholesterol levels. We are in the midst of a CHF epidemic in the US with a dramatic increase over the past decade. Are we causing this epidemic through our zealous use of statins? In large part I think the answer is yes. We are now in a position to witness the unfolding of the greatest medical tragedy of all time - never before in history has the medical establishment knowingly (Merck & Co., Inc. has two 1990 patents combining CoQ10 with statins to prevent CoQ10 depletion and attendant side effects) created a life threatening nutrient deficiency in millions of otherwise healthy people, only to then sit back with arrogance and horrific irresponsibility and watch to see what happens - as I see two to three new statin cardiomyopathies per week in my practice, I cannot help but view my once great profession with a mixture of sorrow and contempt.

I was taking Lovastatin until the VA told me that it was not on their formulary any longer and I had to take Simvastatin. Within a couple months my feet started burning and a numbness began creeping up my legs. I began falling, staggering and lost the ability to walk without two canes. I thought I was in the early stages of MS or ALS and feared I was dying. My fiance' did research on the internet (Spacedoc.com) and discovered that the symptoms I was suffering from were the result of Statin Poisoning (don't take my word...look it up) I took myself off the Simvastatin at the doctors request and began taking 4 1000mg of Omega 3 Fish Oil, 2 50mg CoQ10, 1 50mg L Carnitine, a multi vitamin, and 1 81mg coated aspirin per day. I still have numbness in my legs and some burning in my feet one and one half years later. My Neurologist has told me (and written a letter to the effect) that I am permanently disabled...that this will never go away. Statins (all Statins) are poison...don't take them....the pharmacutical companies only push them to make MONEY they don't care about you or your health. If you need more information contact me anytime and I'll be happy to share any research I have. ******