August 6th
2009
9:47 PM
My son was on singulair for most of his infancy (11 mos- 22 mos old) we took him off of it when I started staying home with him. He was in daycare and was having breathing issues. We would give him the singulair and Zyrtec every morning. He became a very despondent baby. He would spend the ENTIRE day in the rocking chair at the daycare. After months and months of the teachers telling me this we decided it was best I stay home with him. He came off of the singulair and things got so much better for a while, he began to interact with us and others, not fearful anymore, and slept through the night. However other things have grown to be worse, as he has been developing...every day he seems more difficult to deal with. Now, 5, he is angry, fits of tantrums and rage, can't cope with his emotions, he actually kicked me today during one of these fits. He has been peeing in his room when he is sent there because he has been punished for one of these outbursts. What are the long term after effects of Singlair? Has anyone had this experience? Could the singulair have been given to him too early and now caused some sort of permanent nero or psychiatric condition? PLEASE ADVISE!!!! This Mom is really frightened.
-- By nhplaydates | Reply | (6) replies | Private Message me
August 5th
2009
4:19 PM
i have been suffering from nightmares, irritability, moodiness, anger, hopelessness, agitation, hallucinations, fatigue, behavioral problems, withdrawal from my spouse, loss of interest in my everyday life.
i never put anything together about the weight gain until i read some of the responses on the web. I attributed to being 40 , loss of activity etc.
June 20th
2009
12:05 PM
My husband has been on Singulair for ten years now. It was a miracle drug for us as his asthma and allergies were ruining his quality of life. Little did I know that the Singulair would have such drastic effects as well. He is a police officer who has been through some traumatic events in his career. I attributed his irritability, depression, anger, severe nightmares, heartburn, weight gain, and puffy swollen eyes to post traumatic stress disorder. He stopped taking the medication about two weeks ago after his prescription ran out and he saw the FDA report. He is once again the man I fell in love with. Now I know what has been causing all of the changes in him, and we have decided he will never take Singulair again.
-- By skelswick | Reply | (2) replies | Private Message me
June 18th
2009
8:59 PM
Extreme aggression and anger in my 2 year old. He has been on singulair for six months now and has been kicked out of two schools for biting and hitting for no reason(sometimes when the victim was asleep). Our allergist told us to take him off the drug three days ago and we can already see much improvement.
-- By cbake00 | Reply | (1) replies | Private Message me
May 2th
2009
4:39 AM
i posted on April 27th, on April 23rd, i stopped taking singulair, so i am here to UPDATE. after i stopped taking this death trap of a medicine, i already am seeing changes. i actually am breathing better then i have the whole time i was taking singulair, i can sleep through the night, and no HORRIBLE nightmares. jsut some normal ones, if any. but i feel like all the problems it has cause on my mental stability are still there, im guessing its going to get worse before it gets better with that. its really hard. now, me and my mom are starting to wonder if i ever had asthma in the first place, or if my dr. some how diagnosed me while i had a slight case of pneumonia. because the first time i was tested i was only breathing 60% of air, and even the nurses said i should be dead, or in an emergency room and she never not once, checked to see how my asthma was for 2 years. i honestly feel like i have been robbed of my life. its so hard to know something so little and simple, can have such a evil effect on you. because if i didn't have asthma i have been taking singulair for 2 years without needing it at all. imagine what that could have done. now im just so scared to sleep, because im scared i wont wake up. everything in my life is suffering and i don't feel like i have the strength to keep living the way ive been, im so scared every second, i am constantly checking my pulse, and now its even worse because i stopped the singulair. i already sent something to the FDA, and all that, but i doubt they'll listen. someone asked me a couple days ago "aren't you glad you at least found out your not alone" and i said "no, no one should ever have to go through what im going through, especially little kids". i feel like no one understands truly how hard this is, because its just an asthma medicine. this killed my mind, my spirit. and i don't know if ill ever be the same care-free person i once was. im constantly scared of everything, i always feel like no one wants to be around me, i just don't know. but not he positive side, im also not as weak, or tired during the day. i can actually bend down or reach up without feeling like a 98 year old women. my body is doing a lot better. its just my mind i really want back. i repost in a couple days, and hopefully everything will be a little better. PLEASE DO NOT TAKE SINGULAIR. i honestly think that, if it doesn't effect you at first it will in the long run. even if its 10 years later, you will start to slowly see something happening. just don't take it. i don't want anyone to feel, the way i do.
J.
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 9th
2009
12:59 PM
My son used a nebulizer 2 to 4 times a day every day from the time he was one and a half years old. When he had just turned three his doctor prescribed Singulair. It was like a wonder drug for us! It took care of his asthma and we didn't have to use the nebulizer any more. He's been on it ever since -- he's 10 now -- he also takes zyrtec and has a rescue inhaler that he uses maybe once a week. About every other year he requires a course of steroids and a week of regular nebulizer use. Also, for the past year he has also required a daily inhaled steroid.
Now, about his mood issues. My son has always been sensitive and intense, moody. The first time I became alarmed was when he was 7, and he told me he wanted to burn his hands on the stove to punish himself for forgetting his homework. I consulted a psychologist who evaluated him and said he was not clinically depressed. Since then he has had periodic "dark" episodes -- especially in the winter. He has said he wants to die. He has had crying jags over things that are upsetting (loss of a pet was the worst) but it seems excessive for him to be saying he "just wants it all to end." He has told me that he is always unhappy and that he hates himself. He has also had problems with moody acting-out with friends. He will brood about hurt feelings until he loses his temper and screams at the friend. I have worked very hard with him on learning to manage his emotions. He hit a friend at school who was teasing him. He accepted his consequences willingly and willingly wrote letters of apology -- he told me he thinks he has anger problems and doesn't want to be this way. And his character is that he is a sweet, caring boy who can't stand to see anyone hurt, but also can't stand to be hurt.
A couple of years ago I asked his allergist if any of the meds he's on are linked with depression. He said no. We have a family history of depression, and I thought my son had gotten the worst combo of all the genes.
Recently, this all got to the point that I decided he needed to see a psychiatrist and quite possibly take medication for depression. Before I made the appointment he had a check-up with his allergist. Going down his list of meds the dr. said, recently Singulair has been linked with depression, have you noticed any moodiness or sadness? My first thought was that I have, but that he's always been like this. My 2nd thought was that he has been on Singulair for most of his life. I said yes and that I'd like to try him off of it.
My son resisted going off of it. He has had enough negative experiences with asthma that he didn't want to risk it, but I insisted. I didn't expect to see any change, but I thought it was important, as I was going to take him to a psychiatrist to consider depression meds, to see how he did off of it for a couple of months.
Less than a week later, he had been in a wonderful mood -- to the point of being silly and giddy all evening -- for 3 days in a row. The kind of mood that I don't see him in often, and when I do I think to myself, "he should be like this more often." One evening he even realized he had forgotten to bring home a homework assignment. I thought, "oh no, here we go, his evening is ruined." But he talked through his options with me, looked a little uncertain, and said, well, okay, I guess I'll have to tell my teacher I don't have it. I'll tell her I'll make it up at lunch if she wants me to. That was it! He didn't mention it again. I didn't say anything about his mood, because I really don't think I can know anything after just a few days -- it could be coincidental. The next day, he said to me that he thinks being off the Singulair is "working." He has now told me that a couple of more times.
I am tentative, but amazed. Even if my son does have a predisposition to be depressed, maybe the Singulair was making everything worse, and things really can improve for him. I am afraid to be to hopeful. At the same time, I feel guilty for giving this medicine to him for 7 years without a second thought.
As an aside, my son has periodically complained of leg pains, that I always told him were growing pains.
I would love any feedback that anyone can give me. So far (these two weeks), his asthma has been controlled with pulmacort, zyrtec and albuterol, so that aspect is okay.
March 21th
2009
8:17 PM
My 3 year old has been on Singulair off and on since he was 1. This last time he started in November of 2008 and began getting agitated, extremely moody, and having fits of anger by Christmas. I thought it was a phase until about 2 weeks ago when my son's doctor told me he thought it sounded like side effects of the Singulair. I took my son off the Singulair and it has been absolute anger fits every time he gets upset or does not get his way. These anger fits have lasted anywhere from 30 minutes to 3 hours (including one that was an hour and half at the doctor's office). The fits consist of screaming at the top of his lungs, biting, kicking, hitting, and yelling rude and crude statements. Once they start he does not know how to get out of the fit. Now that he is off Singulair, I just want to know how long the withdraws will last....Any suggestions of help with the fits or details on how long the withdraw will last would be appreciated.
-- By hallsa | Reply | (3) replies | Private Message me
March 12th
2009
1:35 PM
My son has had asthma and allergies since he was a newborn, thanks to and undiagnosed RSV infection that led to him being in an oxygen tent for 5 days. Since that time we have had him on several different medications to control it. Mostly, just albuteral through a nebulizer. Controlloing it this way worked for a while but eventually we put him on singulair. My son who was always the smallest boy in class went to being the heaviest. He also had terrible nightmares about his teacher and really bad cramps and pins and needles in his legs and feet upon waking EVERY DAY. He even began walking funny because of it. He had stomach cramps and diarrhea. His grades were awful all of a sudden and nothing could keep his attention. He went from being an easygoing easy to please child to being aggravated by the slightest thing. He was always getting in fights with other kids. He thought noone liked him and he began not liking himself. I took hm to a hypnotherapist to try to ontrol his anger but that did not help. NEVER in a million years did I ever think it was Singulair until I heard about someone else having the same experiences. Needless to say I have stopped giving him his singulair and in only three days have already seen my easygoing son coming back. Hopefully his side effects will completely go away.
-- By sma0502 | Reply | (1) replies | Private Message me
March 11th
2009
12:03 AM
My doctor is a good doctor she is a great listener. Medicine is a hit and miss process for one to undergo. Singular worked great to keep the asthma at bay. Yet, there was a down fall that my doctor did not expect. I was having major mood swings. Such as anger, sadness, depression. Once I added Singular, it didn't come until the second month. I know myself quite well I am funny and very loving. This change came like a thief in the night. I woke up one day not standing the sound of my family voices and felt angry. I was crying and feeling sad to the point I was just waiting for the next mood to come. I do know the difference us women have with moods. This was a different degree of a mood swing. I been threw ups and downs so life was not the problem. I notice this change and immediately told my doctor. But, also I was on my rescue inhaler and a steroid inhaler. I believe it became like a combine cocktail of drugs. This combination cause me to feel this way. I got off the steroid that I was taking and Singular. I notice in just two days I am more patient, happy and so is my family. My doctor has me on new meds now and hopefully this well work. Please, as soon as you feel different don't wait seek your doctor's advice immediately. Good luck to all who suffer from Asthma. May there be a cure one day. Thank You, S.
-- By mustangsally | Reply | Private Message me
January 16th
2009
10:32 AM
the pediatrician prescribed singular for my dd when she was 12yrs old for her asthma. she described it as being safe. that same year dd started having problems in school and seemed depressed. I talked to the doctor about it thinking maybe it had something to do with her adhd medication. the doctor thought maybe it was just normal teen behavior and dd trying to adjust. eventually we took dd to a therapist and things seemed to get a little better. then dd started complaining about stomach pains, she talked about strange dreams at night and would wake up in the middle of the night. Then the tantrums started, wild out of control tantrums. she would scream, throw things, destroy things, she talked about wanting to die, how she hated her life. again I went back to the doctor her adhd medication was adjusted and I also got her back into therapy. therapy was helpful but we continued to deal with the wild tantrums. we kept trying to seek help and answers but to no avail. we were beginning to think dd was suffering from a mental illness. the doctor told us to keep an eye on it and the next step would be maybe putting her on more medication. In the meantime dd became anxious, she had an anxiety attack at school, she would get in arguments with her friends and become very irrational, she continued to be angry at home, she destroyed things in her room and punched a hole in the wall. When I would look in her eye she had the look of a wild animal. my doctor began to think it was merely teen rebellion and we needed to get tougher with her. Never did it ever cross my mind that it could be something with singular till I heard about the study on the news then it all clicked. before singular my dd was an above average student who was liked by teachers and students alike. teachers talked about how well behaved she was and she was a leader. she was very active in various activities at school. Now she has become nervous and suffers from anxiety attacks, she has out of control tantrums and anger. her friends frequently avoid her or her calls because she has become so moody and angry. she frequently complains that her stomach hurts and feels like she's going to be sick. she screams and talks about wanting to die and that we don't love her. till today I had considered this drug to be safe and very useful in controlling her asthma but after doing more research i'm beginning to wonder if it's worth the risk.
-- By dnnmom3girls | Reply | (3) replies | Private Message me
January 10th
2009
1:45 PM
My 6 year old son was on Singulair for 2 months for viral induced asthma. After about 2 weeks we started noticing that angry tears were pouring out of him about minor problems - his brother didn't want to want to watch the same TV show as him, etc. By 2 weeks later he had started having daily major meltdowns, yelling that he didn't love us and never had, refusing all physical affection and calling himself a loser. This was behavior we had never seen from him before. After a month of this, we were really beginning to think that he either had a mental illness or was having a nervous breakdown. There was a wild look in his eye, and it was obvious that his behavior was confusing him, too, but he was powerless to stop it. My husband had the insight to check the Singulair side-effects the evening of a particularly bad day and we pulled him off immediately. The next day I talked to an acquaintance whose normally laid back and happy 7 year old had started saying he wished he were dead after 3 months on Singulair!
The "edge" my son had to him while on Singulair that made us think of mental illness went away almost immediately after taking him off Singulair. He was still quite irritable and quick to tears for two more weeks, but right now he's been off 3 weeks and I think we have our son back.
-- By barnswallow98 | Reply | (2) replies | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me
November 17th
2008
4:55 PM
OK MY DOC JUST GAVE MY 14 MONTH OLD SINGULAIR THE YOUNGEST IVE SEEN IN HERE WAS 2O MONTHS. WHAT WAS SOME OF THE FIRST SIDE EFFECT THAT YOU ALL SOW THAT I NEED TO KEEP AN EYE ON
-- By texasdaddy2099 | Reply | (5) replies | Private Message me
October 23th
2008
11:12 AM
My 12 year old was on Singulair from age 4 to 10. We too thought it was a life saving drug. The doctor then put my youngest son on it for allergy cough etc. That is when all hell broke loose. He immediately had signs of depression, anxiety, anger, nightmares, ocd and facial ticks. We took both boys of this drug and I will never use it again.
I've told every doctor that we visit about this and they have basically said they haven't heard this as a symptom. When I told his immunologist this was a symptom he said that if I'm telling him it's a symptom then they aren't going to dispute it. His lack of surprise led me to believe that this wasn't the first time he heard this. This is the same doctor that put my 12 year old on this drug as part of a study through U of M. (At the time, the drug wasn't available for 4 year old)
I would strongly caution anyone about the use of this drug and I wish I had done more research. My son has been off it for 2 years and still has
lingering effects.
October 13th
2008
4:57 PM
I have a daughter who is almost 3 yrs. old. Her pediatrician prescribed her Singulair when she was 18 months so she's been on it for a little over a year. She has suffered from allergies since she was an infant although we've lived in Atlanta and Cincinnati since her birth - two of the worst cities in the US for allergies and air quality!! I cannot tell you how disturbing yet reassuring it is to read all of your posted side effects..I can relate to so many of your experiences! Its so ironic though b/c the initial reason our last pediatrician put her on Singulair was b/c she was feeling so badly from her allergies...but since she began taking it, she has had SO many more issues with not only her health but mental state. She has had serious aggression issues - taking it out physically on other children, her peers and our poor dogs and cat. She has tons of trouble falling asleep at night, is a very picky eater and has unexplained bouts of anger. When it started, we thought it was b/c like so many toddlers, she couldn't express herself. But she began talking at 18 months and could also sign and always seemed to communicate to us in her own way prior to that so that didn't add up. We've had a lot of external changes in our lives in the past year so everyone I've talked to about her issues has assured me that it was due to these and to keep on trying everything we could; that it was only a "phase". But the one thing I keep thinking about is how different she was prior to taking Singulair and how her mental well being changed so drastically from that point on. She was such a sweet, lovable child who was sleeping throughout the night (since she was 8 months old). She had a great appetite and loved trying new foods. She never had any aggression issues AT ALL before that. I even asked her previous caregiver abt. any aggression issues she had while watching her (which was up until 2 months before she started taking Singulair) and she said she never had ANY issues. In all, like so many of you posted abt. your children, she was a completely different child!! After going to her doctor this morning to have her checked for what I suspected was a sinus infection, he told me to absolutely continue giving her Singulair year-round in addition to 10 mg of Claritin (which is twice as much as children ages 4 to 6 are supposed to take!) and Nosenex spray for the next few weeks. It seemed like an awful lot to give a 2 yr. old so I started researching and came across this site. I am going to stop giving her Singulair today and look into some non-prescription alternatives. I take Oil of Oregano for my allergies since I can't handle the side effects of over-the-counter drugs so maybe my daughter can take this as well? I am so scared of how this drug has affected my child and hope that there hasn't been any permanent damage. I feel terrible that I trusted both of her doctors before researching this drug. I am SO thankful for finding this site and for reading your stories and will report back in a few weeks to update you on my little one's condition.
-- By rseidel | Reply | (2) replies | Private Message me
October 10th
2008
9:11 AM
My daughter is 5 years old and has been on Singulair for about 2 years now. I was at a loss concerning her behavior for the past 2 years. The anger, aggression, tics in her eyes and legs feeling tingling, unable to express herself, and truly not liking herself and thinking we don't like or love her. All this brought us to take her to therapy. And then all this information regarding side effects of Singulair come out. I brought this to her allergist and he like many others brushed it off. I think it is time the medical community looks very close at this drug concerning side effects with children. How many more parents have to come forward with all the same side effects for these educated doctors to realize there is a hugh psychological and neurological connection with this drug for some children. It has been two days now that my daughter stopped Singulair. Her nose is already starting to drip and her cough is back, but I would much rather deal with these side effects of allergies than watching her go though this mental anguish any longer. I have not seen any changes yet, but it had only been two days.
-- By jen1234 | Reply | (3) replies | Private Message me
October 6th
2008
11:28 PM
My son is now 31/2 years old and has been on Singulair since he was about 1 Yr. old. His pediatrician recommended this due to his allergies and runny nose. He has had fluid on his ears since age 1, at least that we had confirmed, and she thought that the Singulair combined with another type of antihistamine could dry up the dripping nose and clear up the ears. It did not clear up the ears, but it does stop the drip. He had tubes placed in his ears a year ago in May of 2007 and is looking now at his second set coming up in Mid-October of 2008. He has been taking this medication all but one summer of his short life. My husband and I have both had children, he a boy and I a girl, both 14 years old now. In comparison to the other two, our little one has been so completely different to raise. I've always seen children of "other parents" that have discipline problems with their children and wondered what might cause that type of action in such a small child. Now we have this beautiful little boy, but all we've ever known is how difficult he is to handle and how is anger, temper tantrums and stubborness have always put a damper on outings and even casual days at home. Due to the fluid on his ears, his speach was delayed and he has now really began to speak like a normal 3 year old. I have noticed within the last 2 weeks how he has really started saying things that I have not approved of, but have fluffed it off thinking that he has heard other children in his pre-school say these things, or heard it on a superhero show. Something happened today that really made me stop and think. I picked him up at pre-school like normal after work and he would not come to me. He looked slightly glazed in the eyes, totally not like himself at all. He talked very little on our 30 minute commute home, which was not like him. He said, "I hate you and you don't like me". I told him I do love him and he said, "NO". He said, "I'm bad for you and I have a dangerous heart". He then told me, "I kill you". This was so disturbing that I told my mother what he had said. She told me that it sounds so much like what she had heard on the news that I should check it out. This is how I've come to find this site. We have stopped giving this medication to our son and I am curious to see if there will be any change in his personality. Tubes will probably be placed in his ears again despite whether his nose drips again, so that is a mute issue at this point. When we voiced our concerns to his pediatrician when the information first surfaced several months ago regarding adult behavior and side effects of Singulair, she fluffed it off and told us she has many young patients on this medication with no adverse side effects. He is taking Pediox every 12 hours. I am worried that we may need a substitute med, but we have tried so many that haven't worked. He has Albuterol Inhaler and Xopenex Inhaler when his Asthma symptoms kick in, when his allergies are at his worst. He has had pnumonia 2 times, or one like run of it I should say. It's important to keep his allergies under control so he doesn't get something like this again, but his overall mental health and stability cannot be jeopardized. Since his brain has been developing on this medication for 2 and a half years, does anyone know if this has lasting effects? He is very active and has a very short attention span. He can however sit through an entire movie if it is something that he likes and he has nothing better he wants to do at home. I do not believe he is hyperactive or ADHD in the sense that he needs medication for that symptom. He can be a very loving child and he is very polite and knows his manners. He comes from a very loving home with loving siblings. We have wondered for so long how he could possibly have turned out this way, and I am truly scared to think that this medication could be the cause of so much turmoil in our lives. I will be monitoring his results.
-- By jcrispy | Reply | (5) replies | Private Message me
October 3th
2008
10:36 AM
Today is 4years exactly that Matt had his one and only asthma episode,that sent us done the road of singulair disaster,7 months of the drug now thanks to Kate who went public with her story.Each new day brings more hope for a full recovery,although the road is long and strewn with guilt and anger.First i was angry with my doctor,then Merck now the FDA,but the guilt always stayed with me.Ive spent hours on wouldas couldas and shouldas but none the less it is what it is.I have had an education in things i really didn't want to know,the medical system,the justice system,and our government.I have written hundreds of letters reported 3 times to the FDA,never a response other than your email was received,called and reported to Merck twice,they were always ready and willing to take my info,so today i wrote to the FBI asking if they could investigate corruption at the FDA,proberly they will laugh and trow it out,or maybe even put me on a list of some kind,but i will leave no stone unturned until some one explains to me how this happened in America
-- By flindy | Reply | Private Message me
September 26th
2008
9:55 PM
POLL: If you or your child have been adversely affected by Singulair could you please reply to this and let me know what ethnicity you are and skin tone. (fair, med., dark, etc.) I'm interested in the demographics of this drugs effects.
Thank you!
September 16th
2008
1:57 PM
My wife and I recently took my daughter to an asthma specialist and she was prescribed Flovent and Singulair as everyday suppressive treatment. Our daughter is only 4 and the first evening of taking SIngulair she was exhibiting exaggerated emotional behaviors such as sadness and excessive crying (sad/moping). The following day the same emotional state was there without anger, but with abnormal crying (for my daughter). She went to preschool and her teacher said she was saying things such as, "I don't care", "I don't need anyone", "I hate this", etc. These are not normal behaviors for our typically happy child. Her doctor said suicidal thoughts and depression were possible side effects in adults, but I am beginning to think they apply to children as well. After only 4 days of Singulair we have decided to stop the treatment. I hope these comments help some of you other parents experiencing the same thing. -Rob
-- By robp | Reply | (4) replies | Private Message me
September 11th
2008
3:05 PM
Thank you for sharing your experiences with this medication. My 4 (almost 5) yo has been on Singulair for almost 2 years now for allergies. I've noticed over the past few months a slow change in his behavior/attitude, not positive changes. He's become an aggressive, angry child that can be set off in a split second over nothing. He's also getting worse with not wanting to go into other parts of our home alone. He won't even walk down a short hall to go to the bathroom alone - is afraid of I don't know what. Lately, he's also been obviously having bad dreams because he kicks and yells in his sleep. I've just chalked all of this up to his age. While taking a walk yesterday I ran into a neighbor that was telling me the doctors want to put her son on Singulair but because of the possible hyperactivity and other side effects she won't do it. I came home and found this site along with others describing similar side effects as my sons. As of last night, we took him off of Singulair. I'm curious to see if this is the problem. I'll keep you posted.
-- By dominla | Reply | (7) replies | Private Message me
September 8th
2008
7:47 AM
What a night,6 months off singulair life was so good,until last night,a complete set back,insomnia night terrors, panic and anxiety all over again,could it be this drug causes flash backs,i am so frustrated and once again seething in anger at the suffering my son has endured ,and to think it may not be completely over devastes me.Any one else had reacurrances
-- By flindy | Reply | (3) replies | Private Message me
September 6th
2008
8:38 AM
Hey to All.
I know that the ALA study got everyone upset and I am happy we all emailed her.We all pretty much got the same response from Heather,defending the study and the integrity of the results.If only this investigation would conclude!
The Merck company contacted our Senator and indicated there was a conclusion and then ,they never got back to her before the weekend.I will have news early in the week.Please everyone just keep on voicing your concerns by reaching out any way you can.Sometimes it seems unbearable and I have to take a break with the communications on this website but,I continue my communication with my local contacts and the FDA.
I would love quick results and everyone would love this to get the publicity this story deserves but,if you look at how far we have come getting attention focused on this drug it is amazing.
This website has been here for years and people have complained and nothing has been accomplished until now.Our system is so broken it will take time to fix it.Drugs get approved everyday and when they are put out for multi use,the population benefit -risk ratio changes and there is little oversight on this matter.
The problem is much bigger than just notification of updated side effects,which indeed is why our son died from this drug.It is reporting adverse events to the FDA and the drug company and following up on your report.We can only fight within the system of the government that is in place at the moment and push for change to take place in there programs.
This is what has take place as of this year,The FDA's new 'Safe Use "iniative(which when it gets further developed will increase our partnerships with physicians as well as patients) and the July 2008 AAM report" Education in Safe and Effective Prescribing Practices" which aims to address the education of the next generation of physicians on how to best use medicines.This may help in notification practices and over prescribing but, we want the drug companies to lose the unprecedented control over the clinical research and and evaluation of there own drugs.What other company in the USA, gets to self regulate.Change will come ,we have asked for accountability by having a signature exchange when new and updated side effects are found.Full disclosure of all reported adverse events to doctors from the company representatives,with signature required upon full understanding of the benefit -risk ratio change. A prescriber should know all the good and the bad about a medicine they have chosen to dispense,if not then they should not be able to dispense it.If we were not knowledgeable about selling mushrooms and we sold the poisonous ones ,because we did not take the time it would take to educate ourselves about them,would we not be legally responsible for our actions.
Accountability is what we are asking for and maybe the candyland doctor prescribing practices would stop.They seem to ,not have a responsibility to their patients and the company has no responsibility to the prescribers,so who is responsible for our safety?
I will keep fighting for real change and all you people must do the same ,make an appointment with your representatives and have them contact our Congress representative of NY,maybe with enough onboard we can get the legislation we need to put a law in place for proper notification practices.Kirsten E. Gillibrand Member of the US House of Representatives 120 Cannon House Office Builing Washington, D.C. 20515
This is how change is made ,if you want to help please go forward and do this and don't stop until they listen.I am always willing to do whatever I can,it is physically exhausting and sometimes I just have to step away but, my daily review of this site has not stopped and my fight will continue.Dave and I sit here and our hearts just break for all but, we need people to push their Representatives they do work for the people just remind them of that.Any one with questions or that wants to communicate via private email just ask for my email address or phone number or leave me yours and a time and I will be sure to contact you,Kate M.
August 30th
2008
5:27 AM
My 6 y/o daughter has been taking Singular for approx. 2 years. She began to have regular stomach pains shortly there after. She was sent to Children's hospital where they put her on a laxitive which made things worse. Then we began testing for food allergies only to find out that she tested positive for a 3 page list of foods. We eliminated those food and had her tested again. She was subsequently allergic to the foods we eliminated. She was recently down to rice, a few meats and some vegetables. Guess what, she is now allergic to those foods.
All this time she has been complaining of severe leg pain, eye pain, throat pain, numbness and tingling in her hands a feet, all of which come an go. I have reported this to all the doctors and specialists we have seen. She had undergone countless blood tests to rule out autoimmune disorders and all come up negative.
She began to develop severe anxiety and just had the blues most of the time. She would be crying and saying off the wall things like, "I don't think my fish is happy". She couldn't stand to be away from me and would stress out about even weather or not she would sit by me at a restaurant. I mentioned this to all of the doctors. They said to not make too much of it. One suggested she see a psychologist. NOT ONE DOCTOR EVER LOOKED AT THE SINGULAR.
Finally about 4 weeks ago my neighbor who is a scientist at a pharmaceutical company called me and told me about the "black box" warning that had just come out on Singular. I took both of my children off of it immediately. My daughter went through about a 10 day period where her anxiety got worse and then it was just gone. We are adding foods back into her diet and at this point she has not had any severe allergic reactions.
The last 2 years have been a complete nightmare for her and for us. I am a medical professional and I have had doctors treat me like a hypocondriac, hypersensitive, attention seeking mother. I feel so justified and saddened by the recent findings all at the same time. Most of all I am so grateful that we figured this out before things go even worse.
Please let me know if anyone else is suffering food related reactions as a side effect.
-- By gayelea | Reply | (4) replies | Private Message me
August 23th
2008
8:57 PM
I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom
-- By danap | Reply | (12) replies | Private Message me
August 14th
2008
2:40 PM
I'm a 44 yr old female with asthma and since I stopped smoking 6 months ago my asthma got worse and doctor put me on Singulair about 6 weeks ago and have noticed many things.I have a lump on the base of my neck about the size of a baseball it wasn't there before i started taking Singulair. Also I have had several melt downs over stupid stuff and will cry over the smallest thing. My anger is very explosive. My body hurts and my heart races. I feel weak and sometimes like i'm going to pass out. It really scares me to the point I think I'm going crazy. My family has said my attitude has really changed since I started taking this drug. I'm not taking anymore of his drug. Singulair needs to come with more warnings than what they have now or take it off the market.
-- By missbhven1 | Reply | Private Message me
August 11th
2008
9:55 PM
I am a parent of a 14 year old son. He has been on many meds due to having migraines, adhd, seizures, and asthma. For 3 years his ADHD meds have been switched. Now Thanks to a friend she told me about singular side effects. OH MY GOD. it blows my mind reading this stuff. He has been on singular for 3 years and never once did I think all these problems were caused by that drug. Flipping out over the smallest things, arguing with us his parents, his friends, being mean to us and a real smartass, depression, and MAJOR attitude. Getting upset over nothing at all then crying for no reason What was his Dr. thinking? Needless to say, I took the singular while she was telling me this stuff about her own son, and threw them away, I will never allow my son to take that shit again. I hope in three days like all of you say, that my son will be that loving, caring, friendly person he use to be ! Singular free is how he will be!!
-- By te12 | Reply | (3) replies | Private Message me
August 11th
2008
7:25 PM
I am a grandma to a 41/2 year old boy named Trevor. He has been on Singulair since he was 18mos. old. I am here to tell I am furious and heartsick to think that he has been subjected to a medication that can do the things it has done to him. I have NO DOUBT that Singulair is the problem. Our daughter and son-in-law have been at their wits end with
him and was one phone call away from taking him to a therapist (they needed one too!) The phone call to me on Monday, July 28th, was out of
sheer desperation. My daughter wanted me to look up the side effects for Zirtec. After looking that up and not finding anything I happened to remember that Trevor was also on Singulair. The actual side effects listed
didn't ring any warning bells with me. Somehow I happened onto this website and OH MY GOSH I flipped out and cried through every letter written by parents with the same side effects Trevor has. The compulsion, anxiety, anger and (heaven forbid) the threats of wanting himself, or someone he loves very much to die.This is absolutely unheard of for someone his age. I'm ever so thankful I found this website. Trevor was taken off Singulair that very day and within 3 days we had the sweetest,
most normal 4yr. old, on this earth. When I think what could have happened
had he stayed on it any longer...I can't!!!
July 31th
2008
1:25 AM
negative -aches all over, joint pain, lack of energy and motivation, positive -nil asthma, greatly improved sinuses, less head congestion, was told this was the best drug for asthma, polyps-sinus, aspirin allergy. Have been taking singulair for two months, concerned have also noticed feelings of anger/mild depression. Am female 50yrs, breast ca 3 years ago taking femera for 8 months. Am worried whether to continue singulair aches are killing me but could be side effects of femera to scared to go off it. Want to live and have quality of live, have 13 year old, I need to be fit for parental duties/work.
-- By cupcakeabroad | Reply | (1) replies | Private Message me
June 27th
2008
2:13 PM
My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.
-- By cindy48 | Reply | (5) replies | Private Message me
June 25th
2008
7:07 PM
My son, now 10...has been on singular off and on, since I don't' know how long...today was the second time he was intentionally hurting his cat. He has told me time and time again about visions while he was awake, violent ones, he argues with anyone and everyone. He has no friends at school. Last year I took him off all his medications to see why his behavior was so drastic, he got so calm, it was like a new boy, but then when he started back to public school...he had to be put back on them again, and again with the singular...
If it was not for this site..I would think my son was sick mentally. But after this...he will see his doctor tomorrow and no more singular...
When I took him off all the meds I told his doctor I was really worried about his behavior and they said it will be okay...he went right back to just out of control. Could not sleep, concentrate at school or at home. He is so smart and he is failing school..not because he is slow, but they kept saying he was add...but when I home schooled him and took him off his meds...he was so great, obdient..not perfect by no means, but just a normal boy...
I hear him right now, in the other room, fighting imaginary people...he seems to go go go..and with no sleep...the dreams in the day time I just thought were his imagination...but now that i hear about other children like him...they are to him real..just like he tells me..he also always tells me how mad he stays..he says all the time I am just angry mom, and I would say at what..he just says everything...
Thank God for this site....now i know..it is not in his head, it is just like I told his doctor...it is his medication..now I know just the one it is..
THank you all..
God Bless all the others here suffering with the same problems...it is just shocking that we as parents and patients, even after telling the doctors, are right...I feel vindicated...I will be printing this off and taking it with us to the doctors...
June 22th
2008
12:19 PM
Here is an example of the fact that the medical community recognizes that there are gene based drugs. Because Singulair is modeled to be a receptor antagonist to the cysLT1 receptor and the cysLT1 receptor is a gene, I'd say that Singulair should be described as a gene based drug. I don't really care how anybody wants to play with the definition. CysLT1 is a gene with known variations. Why isn't there just an "across the board" warning for all gene based drugs that unexpected side effects are possible???? And, that doctors should watch out for individual reactions.
WMJ. 2005 Aug;104(6):61-6.Links
Gene-based drug prescribing: clinical implications of the cytochrome P450 genes.Musana AK, Wilke RA.
Department of General Internal Medicine, Marshfield Clinic, WI, USA.
The Institute of Medicine recently mandated an increased effort to improve patient safety and reduce medical error. With the description of genetic polymorphisms in the drug metabolizing enzymes, the field of pharmacogenetics may improve medical care through a reduction in both therapeutic failure and adverse drug reaction. Investigators at the Marshfield Clinic in central Wisconsin are piloting the process of gene-based drug prescribing in a variety of contexts. This paper reviews the field of cytochrome P450 (CYP) genetics and explores factors that impact the utility of this information in clinical practice.
PMID: 16218319
-- By concernedcitizen | Reply | (1) replies | Private Message me
June 22th
2008
11:43 AM
I am finally writing after reading these posts since the end of April. That is when I took my 11 year old son off singulair, in an act of desperation. He has been on singulair on and off for about five years for seasonal allergies. He started again in mid-March so it could get into his system, before the allergies started. Immediately thereafter his behavior changed. He was arguing on a daily basis. He would hit, kick or trip me when he was angry. He was starting to destroy things in anger. He seemed to be fueled by anger. It was affecting the whole family. He was starting fights with his younger brother, my husband's heart was palpitating and I was crying every day. I heard about Singulair side effects and looked it up. I saw that it caused behavioral changes and out of desperation, took him off, not knowing what to expect. We had three days of total peace, then on the fourth day another outburst. Then my son told me he had taken a singulair the night before. That was it. I threw every pill in the garbage. He no longers acts like that. It's been almost two months so I am convinced it was the Singulair. By the way, he always complained of headaches, stomach aches and would scream in his sleep. Who knew - it was the singulair all along.
-- By mhjslu | Reply | (2) replies | Private Message me
May 29th
2008
6:33 AM
hi, im not sure what to do. my 3 1/2 year old daughter was today given the prescription for singulair. i voiced my concerns to the doctor after my friend telling me its no good due to the side effects.she said that there are risks and side effects with any drug you take but for some reason i don't feel right about this. don't doctors know better than this. anyway Would like to know if all the people who take singulair suffer some sort of side affects or is it minimal? or going by this side it looks like its probably best not to give it to her at all.
-- By ramata | Reply | (12) replies | Private Message me
May 13th
2008
10:32 AM
My daughter has been off of Singulair for about 6 weeks now and is still having "explosive" reactions to minor issues. My daughter's personality is better - no more dark thoughts, etc, but the anxiety/aggressiveness is still hanging on. Anyone having similar issues? We are also still dealing with the OCD behaviors as well. She is 4 and I really think her brain chemistry is still altered. At what point should I recognize that this new child may be my new reality? I would really appreciate any thoughts from those of you that have been off for more than 6 weeks. Are you back to 100%?
-- By freakedoutmom | Reply | (5) replies | Private Message me
April 21th
2008
8:53 AM
Hi, I am a mother of 6. They are 11,9,7,4,and twins 2 1/2. So nothing surprises me as far as kids. I have been through it all. My 7 year old had been taking singulair for allergies and ear pain, for over a year. Did my doctor once ask me about any of the side effect, NO!! This is not ok. My son suffered, decrease appetite, weakness, fatigue, mood swings, irritability, fears of being alone, scary dreams, anger, bone and joint pains. Before he was a loving kid (who had his moments)!!! I had no idea the singulair was causing all these destructive side effects. I just thought this is a phase he is going through, he will soon get over it. Finally I took him to his ped. and we did blood work and x rays. I told her something was wrong with him, he has not been himself over the past 6-8 months. This is one reason why I never suspected his singulair, it did not show up immediately. All of his test came back fine. I just happened to look at the side effects of this medicine. I almost died!!! Every single thing that this poor child has suffered from was on this list. Then more, I found this page and other mothers have had the same experience. I was just amazed that this has happened to so many. I was relieved that my son was normal. He has been off singulair for 6 days now (he doesn't know why I took him off it) . But you would not believe the change. It is AMAZING!!! In only 3 days, I started to see change in his anger. You would not ever in a life time believe that a medication can do this. I have been poisoning my son for a year. I think that Merck should take some of that 4.3 BILLION dollars and do some better research!!!! Concerned citizen you are right on. I have read many pages of this forum and I think you are doing a good job researching this. Maybe Merck should hire you as one of there "experienced personal". It just makes me seriously sick to see that the medical field is not seeing this problem!!!
-- By dawniesue80 | Reply | (5) replies | Private Message me
April 17th
2008
3:52 PM
I've never written on a blog in my life, and now that I've just read this, my stomach is doing flip flops and my blood is runnung cold. I have an 11 year old son and a 9 year old daughter. They have both been on singulair for quite a few years. My son has been on ADHD meds now since about a year and a half after starting Singulair because we tried to avoid them. Every few weeks he tells me he has this empty feeling inside him that makes him really sad and he doesn't know what it is. It just feels empty. I'll usually read with him or play a game or walk our dog with him to help him feel better.
As for my daughter, she exhibits all of the symptoms I have read about. She talks about life being terrible( trust me, she has it pretty good), she has been diagnosed with an anxiety disorder, OCD and Tourette Syndrome. Every psychiatric medication we have tried has made her worse. She was always a confident, outgoing little girl, and then she just changed. She's had stomach aches, which the docs always thought were in her head. She gets headaches. She is extremely sensitive, won't let me even brush her hair or touch her. She has extreme mood swings and gets upset over the most miniscule things, then writes about them, even saying she realizes her anger was too much for what the situation was! I will stop Singulair immediately and see what happens. What a miracle it would be if all of their symptoms disappeared.
April 16th
2008
12:10 AM
My 4 year old daughter has been on Singulair daily for approximately 2 months. We started noticing some minor changes in her behavior early on (shyness, separation anxiety, anger, moodiness) but chalked it up to starting a new pre-school and arguing with her older sister. Then about two weeks ago, she started having an obsessive-compulsive type behavior about wiping herself. My first inclination was that she had some type of infection (yeast, UTI, bladder, etc) but all of the tests came back negative. My doctor told us to stop the Singulair, so we have been off for about a week now, but the OCD symptoms haven't lessened. I would say that some of the other behaviors are improving somewhat, but I am not seeing a "whole new kid" effect after being off for one week. Has anyone had a similar experience with OCD type behaviors? I am beside myself with concern! Thanks for any help.
-- By freakedoutmom | Reply | (8) replies | Private Message me
April 15th
2008
12:27 PM
My husband and I have been increasingly worried about our 11 year old son lately. He had been becoming increasingly unhappy and difficult. He was in the school play, one of the things he loves most, but had no enthusiasm or energy for it. He seemed apathetic about many activities he had always been eager to participate in. I kept thinking maybe he was just tired and too stressed out. It seemed like almost nightly he was sinking into anger and depression. We were walking around on eggshells trying to prevent him from spiraling into one of his angry moods where he would just shut down and say he didn't care about anything. The happy, cooperative, well-adjusted kid we had always known was gone.
Three weeks ago we began to talk about the fact that maybe there was more going on than just adolescent angst. We were beginning to believe some kind of professional intervention might be required.
Two and a half weeks ago our local paper ran the story about the Miller family whose son committed suicide while on Singulair. My son had been taking Singulair for three months.
The same day the newspaper story ran, my son had another tough morning When I went to bed that same night, I found two “suicide” notes from my 11 year old on my pillow. (He had not seen the article.) In one he asked for a gun or knife for his birthday so he could kill himself. In the other, he told me he had been thinking about killing himself since February.
My life for the past month has been filled with conversations and appointments with the suicide hotline, the pediatrician, a psychotherapist, the school social worker, the mother of the boy who committed suicide, the FDA, etc. etc., filling out forms and writing notes and observations.
My son had just recently finished his last bottle of Singulair. I had not yet refilled the prescription, and we have no intention of doing that. The turn around in my son has been extraordinary. My incredibly exuberant and joyful son is back. I did not realize until the past few days how much light he brings to this house and how far away he had faded. But everyday, as the drug leaves his body, his beautiful, loving, affectionate, helpful happy self returns. We just kept thinking for so long… I guess this is normal for a 6th grader. It must be adolescence. It is an incredible gift to see the cloud lifting.
I worry a great deal about the children who are not as severly affected - whose parents are thinking, as we did, maybe this is just typical for kids this age. I am incredibly grateful that my son was finally able to articulate some of the horrible feelings he had inside, and that the article appeared when it did to give us some clue as to what we were really dealing with.
-- By skye1289 | Reply | (1) replies | Private Message me
April 14th
2008
8:03 PM
My son is 10 ½, and had been on Singulair for almost 6years to treat his well controlled asthma and allergies. We have had behavior problems with him for years, but it seems to have gotten worse this school year, when his grades (he is in the gifted program at school) went down the tubes. Our family has been to counseling, where it was suggested we put him on ADHD meds. We resisted, but things had reached the point that I was ready to give the NEW meds a try. ARGH!!!!! Then my sister sent me a link for a story about the teenage boy who committed suicide. This was several weeks before the Singulair/suicide stories were in the news. I did some research, and I started reading these posts. It was like I was reading descriptions of my son!! I talked to several pharmacists and none of them knew of any behavior problems attributed to taking Singulair. Talked to his pediatric pulmonary doc, he knew of no connection, but said to try taking him off. He thought the allergy/asthma would be OK since he also uses an inhaled steroid every day. Well........... I thought I could see a difference in 4 or 5 days, my husband thought I was wishful thinking! But, since then everyone in his life agrees, he is a different kid! No moodiness, no unexplained anger, more on task, sleeping better. I could go on and on. There is no doubt in my mind, the differences started when he stopped taking the Singulair.
-- By tallmom2two | Reply | (4) replies | Private Message me
April 11th
2008
12:42 AM
My 6 year old son has been on Singulair for 2 years and I have noticed a big change in his behavior but it all started with leg cramps and falling down alot..I told my dr about what was going on but she told me that it was nothing to worry about that it is growing pains..Before he started the on the singulair he was always a happy go lucky kid never had problems with him back talking or ever really getting angry. Now that I read all these reports these are the problems I have with him now:
My child has never offered to hit, kick or slap me but in the past year he has gotten more aggressive not only toward me but others as well..
He is fearful of people now thinking that they are being mean to him or picking him out to pick on or make fun of.
He has problems of headaches on a regular basis but just thought it was due to his sinus infections...
I have also noticed that my child has started hurting himself like punching even slapping himself in the face when he gets really angery or fustrated about things..
Sometimes he has problems with nightmares but not that much..
He also has problems with stomach pain as well...
My concern is taking my son off Singulair with his asthma being under control right now and he just recently had sinus surgery but I think it will be the best thing for him just because I want my sweet child back not the aggressive and abusive child he is now.... That is why first thing in the morning he will be taking him to his dr to find another medication to put him on and take him off the Singulair....
April 7th
2008
9:46 PM
Well, it has been 11 days since my 8 year old daughter has been off Singulair and what a difference! The tantrums and anger are gone. She is sleeping peacefully through the night. She says her stomach no longer hurts. She also said (like a previous poster) that she feels "lighter". I didn't know what she meant by that until I saw someone else say the same thing. She completes her homework quickly and without errors. She just seems "clearer" in her brain and so HAPPY! It saddens me to think what I did to her for so many years.
-- By megsmom | Reply | Private Message me
April 7th
2008
2:49 PM
My son and daughter are both on singular. My son is extremely emotional and prone to "anger fits". He is ADHD and was diagnosed before starting the singular. In December we put him on Lexapro at the age of 8 bc he stated to his class and his brother "What do you want me to do? Just Kill myself?" He has been off the singular for 3 days now and I already have my son back. My daughter was in the hospital last week with a severe ashtma attack and the doctor does not want to take her off the medicine until May, she is not our happy girl while she is on this medicine. I am torn on not following the drs orders.
-- By charris | Reply | Private Message me
April 3th
2008
10:00 AM
What a range of emotions since the news broke,found this sight so helpful, so happy i wasnt alone,Had hope ellation anger and today i am sick to my stomach what have i done to my son,why didnt i see
-- By flindy | Reply | (1) replies | Private Message me
April 3th
2008
1:17 AM
I have 3 children on singulair they are 11,8 and 4. My 4 yr old started it when he was almost 1 when we found out he had asthma and the other two were put on it for allergies for about a year now. I have heard from my 4 yr old that his stomach hurts, he says it all the time, everyday I keep getting on to my 11 yr old telling her if she wouldnt say things like that he wouldnt hear it and repeat it. My 11 yr old has ADD and is on Ritlin.My 8 yr old is ADHD and has been on different Meds to figure out which is the best for him. He has been really depressed and so has my 11 yr old. I put both of them on anti-depressents. My 11 yr old had to be hospitalized in October of 07 for taking medications, anything she could get her hands on. I would find baby tylenol missing knowing I hadnt used it all.Then it was pain pills and muscle relaxers that I had put up from when I hurt my back. When I first found out what she was doing I locked everything up took her to see her Psychiatrist and her Psycologist and I was told by one of them not to worry It was her age that it was normal and basicaly blamed it on tv. I spent more time taking her to her doctors. I asked question with so many people on what to do I got nowhere. I finally found a hospital they took her for a week, her answer to taking the pills was if she took them then she would die and everything bad in her life would all go away. She was released before she could finish treatment because insurance wouldnt cover her stay inless it was outpatient. I couldnt find a place that would was close to do out patient so we stopped going. I finally found a doctor that treated everything her eatting disorder,nightmares,ithching,depression,moodiness,anger,stomach aches,crying and leg cramps, We have been going to these doctors and it has never helped. My 8 yr old has been mean, screaming at everyone crying all the time for no reason you ask him why he cries and all he can say is he doesnt know why. The crying is different than any other crying its not the same as when he gets into trouble or when he gets hurt, its just a very sad cry.He has OCD, seavere depression, ticks, anger, night mares and is very moody.He is never happy, he never smiles. Its really sad to see him like this and to not know why and what to do. My 4 yr old He has asthma that is why he was put on it. He used to get ear infections all the time, no sooner than he got over one, another one started. He is always saying his stomach hurts. I took him to the doctor she said nothing was wrong. He has been really mean I just always thought he see's his brother and sister acting this way so he learned it from them. He has been in Speech therapy since he was 2 and is finally doing better, I always thought because of the ear infections thats why his speech has been so bad, the school thought the same thing, he has been tested and and everything is normal so the infections have been to blame. He wont sleep in his own bed he is afraid we are going to leave him. I took them off of it and it has been about 7 days now and my 8 yr old has stopped crying, he is happy I dont have to get onto him for being mean, My 4 yr old has not complained about his stomach hurting. He has been nicer to his brother and sister. Its amazing at how there is such a big difference in them and I can only hope it will get better since it has only been a few days. I have pulled them off of there anti-depressents and they havent needed them. Its amazing at how there is such a big difference in them and I can only hope it will get better since it has only been a few days.
-- By mcanjbg08 | Reply | (1) replies | Private Message me
April 2th
2008
11:59 AM
My six year old daughter has been on Singulair since she was one. She has bad stomach pains, headaches, mood swings, not being able to do school work and anger. I had thought about taking her to see a therapist. I didn't know what to do about her anger and mood swings. After reading everyone else's post, I feel like that it really could be the Singulair. I have taken her off of Singulair. I will not put her back on it. I pray that she will feel better soon.
-- By misbri200041 | Reply | (1) replies | Private Message me
April 1th
2008
1:37 PM
My daughter who is ten has been taking singular for two years. My uncle and my mom had both told me about the recent report. I was outraged. Since I didn't see it myself, I got online to check it out. I am so pissed off. My daughter has at times seemed to be depressed, my husband and I just thought it was a phase. She was never consistently depressed, more of an up and down thing. And she was fatigued from time to time. I never made the connection to Singular. I mean seriously it's an allergy medicine. And I always read the label. Never once have I ever seen a label say " may cause depression, or suicidal thoughts." I immediately took her off of it. Her last dose was 3/27/08. I noticed a difference almost right away. With in a day or so she seemed to be happier. I am so pissed off at myself and the doctors. of course I would have no way of knowing singular could cause this. I guess as a mom I feel like I should have know. I feel horrible!! Never once have they ever said anything of these reports. The FDA will be hearing from me. They hand out the medications like candy and have no idea what it really does to people. I just PRAY that my daughter, my nephew ( who was also on it for quite some time) and all these other kids out there have no lasting side effects from this medication. God Bless you all I will be praying!
-- By melmel02 | Reply | (3) replies | Private Message me
March 31th
2008
10:07 PM
My son 10, has been on Singulair since he was 4 yrs old for Asthma and allergies. His last dose was 3/26/08. He has always been my emotional child, he is 2yrs older than this younger brother. Some of his side effects included headaches, stomaches, leg cramps, emotional breakdowns, major mood swings, crying outbursts over small situations, night sweats, lack of motivation, weight gain, ADHD, wishing he were dead and the list goes on. His younger brother has always been involved in sports but he was always too afraid he would get hurt. This medication has robbed my 10 yr old son from 6 yrs of his childhood. Since he has been off Singulair he feels motivated and looks forward to joining the football team his younger brother plays for. I look forward to meeting this new young man who for so long has been hiding behind this so called allergy medicine. I am so thankful to know that my son can look forward to a bright future without these side effects. God Bless you all who are going through this as well.
-- By jaimeerice1 | Reply | (9) replies | Private Message me
March 31th
2008
5:18 PM
My son is 10 years old and has severe allergies and asthma. He was hospitalized when he was 5 for asthma and at that time put on Flovent 110 mg twice in the morning and twice at night for awhile this seemed to work around the age of 7 he was put on Singular 5 mg to help with asthma and also his allergies. After a short period of time he began to complain of stomach pain he would get nauseated and sick with a 10 minute car ride, we took him in to the pediatrician and was told that there was no obvious cause and to basically deal with it. Around this same time he also began to have trouble in school he was not able to pay attention and was falling far behind we tried tutoring, extended day classes anything to keep him up with his other classmates. Needless to say all our efforts did not work and he got worse he was now moody and withdrawn. We thought it was his frustration with school that made him short tempered and emotional. At every parent-teacher conference it was the same report; being told how bright our child could be but his lack of focus and emotional state prevented this. My husband and I decided that we needed to be proactive and made an appointment with the pediatrician again we discussed all the issues and told the pediatrician that his mood has changed and he could not focus that homework was a battle each night usually resulting in a major meltdown. The pediatrician diagnosed my son with ADHD with ODD. Never would I have thought that my child with have behavioral or anger problems and I had a hard time coping with the idea at first but tried to make it okay for my son I did not want to make him feel like he did something wrong or that he was broken. The pediatrician prescribed Adderrall 5 mg at first and after three months we revisited and the dose was adjusted to 10 mg. School made a dramatic turn around and we were hopeful, however his mood was still all over the place he would get angry over small things, have a meltdown, and at some points would just wake up in a fowl mood and when asked what was wrong he could not explain it he just was not happy with anything. In the background of all of this was his asthma he was hospitalized again in when he was 8 after being discharged he was put on Zyrtec as well. So now his meds were Flovent 110 mg, Singular 5 mg, and now Zyrtec 10 mg. It was all overwhelming for all of us but we were trying to make it okay for him. He began to complain of restless nights, headaches and would get dizzy for no reason. Here we go again back to the doctor they attributed everything to the Adderrall. He passed out one day at daycare and we rushed him to the ER they did an EKG and found nothing and told us he was probably dehydrated. He constantly had a fowl smell coming from his mouth we asked his dentist they found nothing no cavities we asked the pediatrician no reason; no matter what we tried we could not get ride of it and he brushed, flossed and rinsed with mouthwash everyday three times a day. I was not making any connection on the side effects I guess you could say the left hand was not talking to the right. After we had wildfires that burned almost the entire city he had another asthma attack that lead us to the ER again after being treated we were assigned to a pediatric pulmonologist that added Nasonex to the regiment. Then in January we had him tested to learn what exactly his allergies were and was advised they wanted him to come in for allergy shots one in each arm once a week. In March 2008 we went in for his first set of allergy shots and right after had an appointment with his pulmonaligist he had a bad reaction to the shots and they changed his meds again. Now he is on Advair 250/50, Singular 5 mg, Zyrtec 10 mg, Nasonex, and Adderrall 10 mg. We decided to hold off on the allergy shots until he can better tolerate it. This entire time there has been little improvement on his attitude and he is withdrawn and seems disconnected now. When we try to talk to him he simply says he doesn't know what is wrong. It is all a roller coaster ride. Then on March 26, 2008 it all changed for me, I had put the kids in bed as normal and about an hours later heard someone up and in the bathroom I went to go check to make sure no one was sick and found my son in the bathroom and it appeared he was washing his hands and I asked if he was okay. He told me he was washing a cut, I looked at it and asked what happened he was hesitant and then pointed to his arms; he had bitten up and down both arms and on his hands to the point of bleeding I was shocked and did not really know what to say. We talked about it and he told me he could not control himself and even when he wanted to stop biting himself because it hurt could not resist the urge to to it over and over again. We talked calmly and after a long conversation he told me he needed to talk to someone about his problems. The next morning I called the pediatrician he said he could see him on March 30, 2008. On March 29th I heard about the side effects of Singular and was so shocked and angry how come no one told me what this could do to my baby; I wondered if he had never started this stupid drug if he would have been put on Adderrall. I would not let him take Singular that night or any night after. I will never let my son take this drug ever again. The following day I took him in for his appointment and after discussing everything the pediatrician agreed that it is best to leave him off Singular. I am taking my son to see a child physiologist as well. I am so upset that I did not make the connection myself.
-- By jimandjeni | Reply | (1) replies | Private Message me
September 8th
2009
3:36 PM
I was on Singulair while pregnant because my asthma got worse while pregnant. Postpartum I noticed my 2 month old breastfed baby was still sleeping way too much and very colicky. I tried cutting out dairy and other allergens but nothing made a difference. When I forgot to take my Singulair a couple days in a row, I noticed my mood was much improved and the anger/irritability went away. Finally, after noticing I was having vivid, bad dreams, I began to realize it might be all from the Singulair. I also had developed a stiff, tight neck and vision loss, which I now realize was also from being on Singulair.
-- By linnnda | Reply | (2) replies | Private Message meI went off of it and must say, that was the worst week of my life. I never felt so horrible or out of control. Although I noticed the first few days, I was happy and feeling again (it made me emotionally numb) by the fourth day, I began having heart palpitations and bad headaches. I quickly got my thyroid levels checked and those were fine. Then I suddenly had severe panic attacks! I thought I was going crazy! This was mistakenly misdiagnosed as PPD, although I was never even depressed. I was given a script for Zoloft and took Ativan but that didn't take away the panic and the Zoloft seemed to make the panic worse!
I began researching and realized all of my symptoms were from Singulair withdrawals! Even my family noticed I became a mean and hateful person with this last pregnancy. This drug is an awful poison! I am slowly recovering and feeling better everyday. I'm using my fast acting inhaler for the time being. Instead of the therapy I thought I needed for PPD (mis dx'd obviously) I'm also using herbs to treat this homeopathically with a natural doctor since conventional ones still want to pass it off as something it is not due to ignorance that an asthma medicine can wreck this kind of havoc on a person! They just want to use more drugs to treat the side effects of another drug!
I am so angry I took this while pregnant and breastfeeding being told it was okay. It was not okay and I hope and pray there are no long term side effects to my child from this drug!