September 19th
2009
3:32 PM
my son has all the symptoms that people have discussed and i would not have found it if he had not hit his head and started to have weird symptoms and after ruling everything out realized that he had been off singular for a month this summer and had started back up. He has had a lot of symptoms but I always thought it was something else. Like everyone said everyone felt that singulair wasn't a problem. I remember when he was little he was having night terrors and the doctor switched it to the day time which made it better but he has always had a hard time sleeping since he started. he has been off it for four days how long does it take before the thoughts come back to normal. If someone could answer it would be great. i am so upset right now as I am sure the other parents are that our children had to go through this.
-- By numberonemattieman | Reply | (1) replies | Private Message me
September 11th
2009
2:50 PM
My allergies caused nearly constant painful sinus pressure, drippy nose (I should have bought stock in Kleenex to profit from my box-a-day use), asthma, getting gradually worse all the time--it was as though I'd had the flu for 10 years (I'm 54). I was taking Claritin in the morning and Zyrtec at night, which only toned down the most severe symptoms. I was on Prilosec as well, as one doctor though acid-reflux might exacerbate the asthma. My family and I are avid hikers, but I haven't been able to breathe well enough to join them for years, even with daily Ventolin and Flovent. I've only been taking Singulair for two weeks, but it has made all the difference. I feel "normal" instead of sick for the first time in a long time. So, for me, it does work. But my stomach's been killing me--like a bleeding ulcer (which I had 25 years ago). I'm hoping that will subside or going back on Prilosec (expensive!) will counteract it. I've also had the weirdest dreams--very vivid and disturbing. Because I did research online before taking Singulair (Doctor uttered not one syllable about side effects), I recognize the dreams are from the Singulair. Because I understand what is causing them, I can easily set them aside when I wake up. I think anyone who's had mental or emotion problems could be sent over the edge by the dreams unless they had a clear understanding and acceptance that the allergy drug caused them. I would be easy to think something was wrong with you to dream such bizarre, violent stuff. (I'd give examples, but I've truly trained myself to forget all about the dreams as soon as I wake us, so I don't remember the dream events now.) I'm quite concerned about children taking this drug. Maybe not everyone has this disturbing-dream side effect, but how could you explain them away to a four-year old? How would you even know if a younger child was having them? Even children old enough to comprehend shouldn't be subjected to horrific mental images, like the 16 year old above. A tip for people who Singulair helps, but they have the weird dreams--try Melatonin (over-the-counter supplement) at bedtime. I've used it to help me sleep in the past when life events kept my mind too active to sleep for several days at a time. Unlike sleeping pills, it doesn't make your tired the next day, you can wake up easily, and it's not habit-forming--it just lets you drift off on days you otherwise can't. Since I'm concerned about the long-term effects of anything taken frequently, I don't take Melatonin very often, but I did try it after the fourth day of Singulair dreams. I had no memory of weird dreams when I woke up, so it seemed to work, and I didn't remember dreaming the next night either. I only tried it that one day because, as I said, I've trained myself to not be bothered by the dreams.
-- By singulair_helped | Reply | (1) replies | Private Message me
September 8th
2009
10:44 PM
hi my name is T.im 17 and i have had severe asthma and allergies since i was 2. i was put on the singulair drug when i was 10 i started having nightmares about my percents dying and severe depression and anxiety.my parents thought it was just a phase kids go through.i realized all this didn't start happening until i started taking the drug, so i refused to take it anymore. well now im 7 years later my parents EMT,and pulmonologist.think its a wonderful idea to start taking it again so my parents give it to me and make sure i take it each night,bc my allergies are so bad. ive warned them once,but i guess they will all see what happens
-- By tabby | Reply | (1) replies | Private Message me
August 16th
2009
2:24 AM
Hi, my name is M. I just got up with my son Jo Jo as usual about 2:00 pm. Nightmares--severe. Leg and foot pain. In fact I thought he was having restless leg syndrome and the doctors had him tested for seizures. His moods are horrible. Tantrums have been out of this world. After two years of sleep deprivation for both of us, something said look at side effects of Singulair. Actually, I believe that something was God because as I massaged my son's legs I prayed. I came to the computer, found his website and saw my son's symptoms written out clear as day. We are done with Singulair. Forever. I just walked back to the room and apologized to my sleeping son. I can not tell how horrible I feel as a parent for my child to have suffered so. I also can not begin to describe the relief I feel right now. My son has enough problems without medication causing him to suffer. I have suffered as well. As a single parent I have to work but I am often sleepwalking through my days. Thank God for all of you who posted. You have saved my son's health and quality of life. And mine. Thank God!
-- By michellethemother | Reply | (1) replies | Private Message me
July 16th
2009
2:00 PM
My 11 year old son started singular in March of 2009 for exercise induced asthma. Within weeks he started having symptoms of heartburn - which he had never had before. I brought him back into the dr. mid June- they said wasn't related to singulair and actually increased his does from 5 mg to 10 mg. Since increasing his does, he started experiencing, daily headaches, stomach pain, leg cramps, night sweats w/ shaking & overall FEAR. Last night he was in tears - he kept saying there is something seriously wrong with me - I can't stand feeling this way he was afraid he was going to die and didn't want to go to sleep.
Last night I did my own research and found this board. THANK GOD!
He didn't take his singulair last night & he never will again.
I called his dr. this morning to tell them I think he is having negative side effects from singulair. They actually told he it was "HIGHLY UNLIKELY" his symptoms were related to singulair and NOT TO STOP USING IT. They instead said I should start giving him pepcid. I told them he had stopped it - for good and that we need a plan B for is exercise induced asthma. Looks like my plan B is finding a new Dr. that isn't in bed with Merck.
Has anyone had any experience with a NATURAL approch to controlling exercise induced asthma?
-- By kearney4 | Reply | (4) replies | Private Message me
July 16th
2009
12:44 PM
Our 11 yr. old daughter was prescribed with Singulair. She started taking it today with much hesitation from her parents. She was on this medication years ago for her mild asthma, but her mood swings/depression were terrible. We have a new ENT now and he promises that the mood swings/depressions are NONSENSE and that these rumors were put to rest years ago. We will be watching her side effects closely, but my question is if Singulair helps so much, what other medication can someone take that does not have these side effects? What is the alternative? She is also going to see a pediatric pulmonologist in August.
-- By cdifonzo | Reply | (3) replies | Private Message me
July 4th
2009
10:26 AM
I have no idea what most of you are saying. My son has cronic severe asthma and there have been times where he has been close to dying. He is 8 yrs old and been through a lot more than most people have been their entire lives. He has been on singulair for about 6 or 7 yrs now and he hasn't any problems with side effects that any of you are talking about. Before he was put on singulair controlling his asthma was almost impossible. For the parents who have not given ao have just stop giving their children their medication just like that. You should talk to you doctors because I know first hand how dangerous asthma can be. If any parent has ever had to rush their child to the ER and then you child was put into the icu for weeks at a time. You will think you lucky stars there is a medicine like singulair out there. Thank You for letting me share my story.
-- By bam83 | Reply | (2) replies | Private Message me
June 27th
2009
9:02 PM
My daughter is a 4 year old child started on Singulair after she was unable to tolerate Zyrtec. For the first few days her allergies seemed better and we were encouraged by her improved allergy symptoms (allergies to poplar trees, grass, and lambs weed manifest as headaches, itching (usually of the extremities), and stomach aches). However, after 2 days her behavior became increasingly erratic. She was emotional, tantrum prone, irritable, anxious, and had difficulty sleeping although she appeared and said she was exhausted/tired. After several weeks on Singulair, we stopped the medication to determine if it was causing the behavioral and sleep problems. The symptoms stopped after discontinuing Singulair and she went back to her usual happy, well behaved self. After being off of it for several weeks we decided to try it again due to her allergies flaring up and wanting to be sure it was the Singulair causing the behavioral problems (because for all of its negatives, the greatest positive about Singulair is that it definitely helps her allergy symptoms). Unfortunately, the irritability, anxiousness, tiredness, tantrums and insomnia returned. We tried giving it to her at different times during the day but the symptoms were still present (although she slept a little better when we gave it to her in the morning). We also tried cutting the dose in half and giving it to her around noon. Decreasing the dose did help with the symptoms to some degree, but they were still bad enough to outweigh the benefits of taking the drug. As a nurse, I love Singulair for the relief it provides allergy sufferers...unfortunately for my daughter, the side effects outweigh the benefits. Given the rates of ADD, ADHD, and other behavioral problems diagnosed in children nowadays, I thought it pertinent to report these symptoms present in my daughter that are solely caused taking this medication.
-- By wittynursentn | Reply | (5) replies | Private Message me
June 10th
2009
7:29 PM
Took it for a week. During the time I developed a sinus headache that would not go away. Sinus pressure, pain, congestion. Today had rapid heart palpitations and anxiety. I called my doctor and he said to stop taking it. I haven't felt like this since before I started taking Wellbutrin. I wonder if it interferes with it. I've read others who take Wellbutrin and after taking Singulair started having depression and anxiety. My boyfriend told me to stop taking it. I'm glad he did! He said when he took it, all his friends noticed major personality changes. It took it 2x/day for 3 months!
Doctors can be quacks and will throw any script your way. Be conscious of whats being given to you and if your Doctor really listened to your symptoms.
-- By jezibel | Reply | (4) replies | Private Message me
June 4th
2009
12:03 PM
My son was on singular about 4 years ago and i thought i noticed irratability, lack of interest and depression, but he was only 4 1/2 at that time and i couldn't tell. It did relieve his allergy symptoms. We took him off at that time. Now, again put him back on it this past year (he is now 9 years old) and i see again a lack of interest, depression, mood swings, irritability and his teacher just told us that as this year has increased he has changed in his school work as well. As of last night we will be taking him off of this medication for good and will continue to manage his seasonal allergies with an emergency inhaler and zyrtec/claritin type meds. He is sluggish on the baseball field and not as alert (he unusually a natural athlete!) and he seems depressed and withdrawn - which is not his personality. I thought maybe because he was getting older he was changing but now I realize it is again the medication. It is okay for a week or two to get through a cold or high allergy week, but long term I will not have him on this any longer and wish that Merck would make the long term effects clearer to the doctors, patients and public in general. We are fortunate that his allergy symptoms are not as severe as other children and we can go lightly on medications.
-- By family23 | Reply | (1) replies | Private Message me
June 3th
2009
2:02 AM
My 4 year old Son has had diarrhea from about the last 4 weeks... we have started some tests for Celiac disease but today it only occurred to me today that he has been on Singulair for about that time frame... after all the worry and reading these other storied Im even more convinced that it maybe the Singulair..
Im just hoping that someone might read this sometime today or the next couple of days to tell me if when they come off the singulair how long did it take for the diarrhea to pass. My son had is last tablet 2 nights ago ( so he has only been off it so far for one night. But he still has the diarrhea.. should it have started to come out of his system already.
May 19th
2009
11:27 AM
I took Singulair for about two years. I had developed these now known to be side effects but at the time nobody including the FDA was either aware or honest about the aggression, agitation and other side effects. I assumed this was all due to stress in my life and since it came on so gradually I did not put 2 and 2 together that it was the medication. I lived for two years being an irritable stressed out pain in the you know what struggling with these major aggressive compulsions. Then I saw a story on the news that the FDA was issuing this new warning on Singulair about the aggressive, anxiety and suicidal side effects of this drug. I stopped taking it that day. Luckily my asthma had been fairly well under control, I noticed no increase in asthma symptoms. What I did notice was I stopped being irritable and constantly annoyed and angry within a few days. I am back to being a mellow person, no problems since I quit this drug. I am horrified they are giving this to children. Both doctors and pharmacists should be warning people UP FRONT of this risk.
-- By lucillefarh | Reply | (2) replies | Private Message me
May 18th
2009
7:41 AM
I've been on Singulair 10mg tablets for only 4 days to alleviate seasonal allergies and have been suffering from very bad cramping in my feet, legs, hands, arms and upper body. Additionally I have experienced what feels like bloating and a hardening of the stomach area. On top of all this I've had the craziest dreams!
The upside is my allergies have been relieved somewhat, but these side effects are certainly not worth this additional pain and anxiety I've been suffering. Further reading on Singulair, including this forum, Wikipedia, and other places has left me convinced that this is not a safe medication to be taking (look up churg-strauss syndrome for example) and I will be discontinuing it immediately.
I'm quite angry that doctors are prescribing such a thing when a simple antihistamine would suffice. This also cost me €60 for a 28 day supply.
-- By bradshaw | Reply | (1) replies | Private Message me
May 10th
2009
10:12 PM
Hi,
My 5 year old son has been having similar problems. He was on Singulair on and off since 2006, throughout winter for his asthma and sporadically in the summer. His new pediatrician finally said to keep him on it everyday the beginning of 2009. The only reason I am here today is because I just filled a new prescription of Singulair and low and behold it had a new warning label none of the other bottles had, "Call Dr. if you experience mood changes, sadness, depression or fear." I quickly went online to read some reviews, to my horror I see hundreds of posts from other parents detailing my sons exact aggression/fear issues.
I have been having so many many problems at his school. I had to take him out of first Kindergarten because he hit the teacher a few times. In the new school he was doing ok but then it got worse, then better, then worse, then better again and so on. Maybe it was the breaks of singulair he would get. I had him meet with THREE different therapists for ADHD and they refused to conduct any further evaluations on him because they couldn't find what the problem was. The school even ordered an educational evaluation for him to see if there was a learning disability.
The teacher is always complaining that he's too distracted, doesn't sit still and is so aggressive. He is meeting all his benchmarks and is very bright but his social behavior is causing mayhem. At home his fear of things got out of control. He was scared of his lamp and would wake up screaming at the top of his lungs full of panic and fear because of the stupid lamp. He won't go to the restroom by himself because he's scared a monster would attack him etc. Since I started giving him the medication consistently everyday everything just got worse. He flips out at home, pushes hits and is snotty as all hell.
It makes me sad because I swear he tells me the same thing, "But mom I was trying so hard to be good and I couldn't. I was telling my brain to stop but it wouldn't listen. I don't know what happened." He would come home so sad, frustrated and upset. He had a few bouts of crying in the classroom too, lots of problems with aggression.
I've done the same thing, time outs, reward system, even made up "Jacob days" which were days we did whatever he wanted at home if he had a good week at school. NOTHING works..... I was at a loss until I read these reviews.
I am taking him off tonight and hope this is the end of all the aggression or at least helps a bit. I'm not going to say my son is 100%angel but he used to be much sweeter, calmer understanding and so on. I would just be happy if it helped a little. It's a shame because this medicine was helping with his asthma but at what cost. I will post an update and let you all know how it's going.
Oh I forgot to mention he has been in and out of the school nurses office this past month for stomach aches... he had a lot of stomach problems at home too. So I will see if that clears up too.
-- By babylp315 | Reply | (1) replies | Private Message me
May 7th
2009
9:24 PM
My son and daughter have taken Singulair off and on several times now. My son is on it again because his allergies are acting up because of volcanic fog (vog). Neither of my children have experienced any noticeable side effects from this drug. My daughter, in fact, had no reaction since Singulair doesn't work on all people. I think the fact their pediatrician only placed them on this drug when they needed it and monitored it closely (1 month at a time) may be why they never had any side effects. My son has never been on it for longer than 3 months at a time. My son has done well on this drug and it has amazed me how well it works on his allergies and wheezing.
Just because some people have bad reactions doesn't mean the drug needs to be pulled from the market. I certainly don't doubt that people have had bad side effects from this medication though. I am very sensitive to all kinds of medications, even natural herbs and medications that have been around for longer than I have been alive. By just giving me a higher dose of something, I can get numerous side effects like dizziness, mood swings, nausea, stomach problems, and one drug, Ambien, even damaged my sense of smell. My doctors are always giving me the lowest possible doses of medications, and sometimes I am given half of the lowest possible dose. Why? Because I have a sensitive system, and this may be the case with your children or with your own experience. As with any medication, you have to weigh the risks and benefits. Singulair has made a positive difference in my son's life and as long as he is only on it for short periods of times (usually during allergy and/or cold season), I will continue to let him take it.
-- By songrose | Reply | Private Message me
May 6th
2009
10:41 AM
Has anyone been in contact with any doctors, hospitals, or researchers who are willing to recognize that Singulair targets a receptor CysLT1, with known genetic variations? As you know, I have been posting that I know of researchers who are doing work about how the genetic variations can determine the efficacy of Singulair. If genetic variations cause differences in efficacy, then, of course, these variations can also cause unpleasant to very serious side effects. These seems to be some kind of disconnect. How can the genetic component be recognized in the area of efficacy and ignored in the area of adverse drug reactions?
-- By concernedcitizen | Reply | (2) replies | Private Message me
May 5th
2009
6:22 PM
My daughter is 6 and has been on singulair for 2 years. Anytime we miss a pill she ends up with a fever of about 100 and is exhausted. Within a couple of days of her medicine it's gone again. The doctors think it's a complete coincidence but I don't agree.
-- By jbennett25 | Reply | (3) replies | Private Message me
May 2th
2009
4:39 AM
i posted on April 27th, on April 23rd, i stopped taking singulair, so i am here to UPDATE. after i stopped taking this death trap of a medicine, i already am seeing changes. i actually am breathing better then i have the whole time i was taking singulair, i can sleep through the night, and no HORRIBLE nightmares. jsut some normal ones, if any. but i feel like all the problems it has cause on my mental stability are still there, im guessing its going to get worse before it gets better with that. its really hard. now, me and my mom are starting to wonder if i ever had asthma in the first place, or if my dr. some how diagnosed me while i had a slight case of pneumonia. because the first time i was tested i was only breathing 60% of air, and even the nurses said i should be dead, or in an emergency room and she never not once, checked to see how my asthma was for 2 years. i honestly feel like i have been robbed of my life. its so hard to know something so little and simple, can have such a evil effect on you. because if i didn't have asthma i have been taking singulair for 2 years without needing it at all. imagine what that could have done. now im just so scared to sleep, because im scared i wont wake up. everything in my life is suffering and i don't feel like i have the strength to keep living the way ive been, im so scared every second, i am constantly checking my pulse, and now its even worse because i stopped the singulair. i already sent something to the FDA, and all that, but i doubt they'll listen. someone asked me a couple days ago "aren't you glad you at least found out your not alone" and i said "no, no one should ever have to go through what im going through, especially little kids". i feel like no one understands truly how hard this is, because its just an asthma medicine. this killed my mind, my spirit. and i don't know if ill ever be the same care-free person i once was. im constantly scared of everything, i always feel like no one wants to be around me, i just don't know. but not he positive side, im also not as weak, or tired during the day. i can actually bend down or reach up without feeling like a 98 year old women. my body is doing a lot better. its just my mind i really want back. i repost in a couple days, and hopefully everything will be a little better. PLEASE DO NOT TAKE SINGULAIR. i honestly think that, if it doesn't effect you at first it will in the long run. even if its 10 years later, you will start to slowly see something happening. just don't take it. i don't want anyone to feel, the way i do.
J.
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 28th
2009
10:15 AM
I just wanted to post an update.
I took my son off singulair over a year ago. He was on since he was 2 yrs old and had started with chronic headaches at about 10 yrs old. He also had tantrums(I don't know how else to describe it), was upset and sad and basically disliked himself. He cried all the time. I had always thought it was just him. These symptom had come on slowly over the years.
The first week off this med, it was like he was freaking out and everything was 100x worse. But the headaches almost immediately disappeared.
Other parents were wondering how long it took for his personality to change.or if the kids would remain that way.
It took quite a long time. It was worse for weeks after we took him off. Then it slowly started to improve.
In the last 6-8 months, it's like living with a different child. There's no crying, he's happy, there's no tantrums anymore. Gets a headache maybe once a month instead of daily.
He still has allergies, he still has asthma. But for the first time in years he seems normal. I love that word, normal.
-- By lisa4 | Reply | (2) replies | Private Message me
April 27th
2009
12:43 AM
i am really glad i found this site, and got to really understand what may be my problem. its the SINGULAIR, i really believe. i will share my story so no one has to go through what i have been going through. (i just stopped my medicine a day or two ago, so i will repost and see if i start seeing changes in my behavior) well first off i am 19, and i started taking singulair when i was a senior in high school, so about 2 years ago. i didn't see any noticeable changes for awhile, except for probably a year now, a little more or a little less. for this whole time, i have not been sleeping, i wake up 3-4 times a night, fully awake and can never fall back asleep for hours. its almost like my body tries shutting down, but my brain never does, i have the craziest dreams, most of them are me suffocating or not getting enough air, which are really scary. I have been having really bad anxiety, panic attacks, basically i have been just feeling like i am going to die every second of the day. the feeling of being trapt inside my own body. it seems like every month it just gets worse and worse. i cant focus, i don't go to school, i don't work, and i believe its from the side effects of this medicine. i also always feel so tired, and so weak, i cant even look through a clothes rack without my arm aching. i have been having a hard time breathing, which is odd seeing its supposed to help me breathe, i have been sick at least once a month, through this whole time i have been going to my Dr. at least twice a month or more, telling her my symptoms, i even went in their one day crying i was so scared. and she just kept telling me, its probably all in your head, this, that and the other. she even put me on probably 10 different medicines trying to see which one would help. and of course none of them helped anything. I started thinking, and feeling like i was going crazy, what was wrong with me? i wondered constantly. For a couple months now, i figured i had to take it into my own hands to figure out what was wrong, seeing this Dr. doesn't seem to understand me. I looked up every disease or problem imaginable, and had blood tests done, but every thing came back normal. i didn't understand what was going on, every month i just feel worse and worse, lately i have been telling my mom i just want to die, that i cant keep living my life this way, of course i would not do this for the fact that i couldn't do that to my mom or my little sister, or anyone, but it feels like it would be easier then dealing with everything i have been. along with everything else i was/am feeling, i also feel a lot of hate toward myself, i feel like i am not good at anything, and i feel very ugly, sometime i don't even want to leave my house, because i just feel disgusting. Finally, a couple days ago, my little sister which is 10 and really smart i may add, was watching TV and they happened to have a commercial for SINGULAIR. she told me that everything i have been saying that was wrong with me (she hears me complaining a lot about all my problems to my mom) were all the side effects from SINGULAIR. of course i wanted to know more about this even though i have taken this medicine for awhile without any of these problems, i started researching and realized that all of my symptoms happened to be the side effects from singulair. and then i started reading other peoples stories about it, and about linking it to suicides and everything. i told my mom and i told her i wanted to stop the medicine right away, at least just to see if this is what it was all along. i haven't taken it for 3 days now i believe, and i already see a difference, i actually get tired now instead of staying up reading till 5 in the morning, and i haven't been waking up at all during the night. i am pretty angry that my dr. couldn't figure this out, or at least maybe even think about it. for awhile i thought i was honestly going crazy, i lived in fear for so long that something was extremely wrong with me, that i haven't lived my life the way i should of, or wanted to. i never thought that it was just the EXTREME side effects of this medicine. i am so thankful for my little sister listening to all my complaints and all my anger toward myself, and actually putting it together that it would be my medicine that was supposed to make my asthma better. as i said its only been a couple days and i already feel better, i will repost to tell you if im back to my "normal" self after being off this medicine for a longer period of time. i feel so grateful for my little sister, who would have guessed she would tell me what a Dr. couldn't even think about. i really feel that if i get back to my normal self, i really have her to thank for saving my life. <3
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 13th
2009
9:38 PM
I have been on Singulair longer than I can recall... at least 10 years, maybe longer. My 7 year old son has been on it since he was probably 12 months old. Neither one of us have had any problem reported here. No depression, no sleeplessness (until I weaned him from naps, he slept up to 13 hours a day), no leg cramps, nothing. We are two of the happiest, most well adjusted people you could know. And, best of all, we haven't had any asthma attacks. Bottom line, different drugs react differently in different people. Don't let the post here stop you from trying a medication that for some could mean the difference between life and death depending on how asthmatic they are. As with any drug recommended by your doctor, try it. If you experience adverse reactions, stop it ASAP. It's that simple.
-- By srsdww | Reply | (9) replies | Private Message me
April 9th
2009
12:59 PM
My son used a nebulizer 2 to 4 times a day every day from the time he was one and a half years old. When he had just turned three his doctor prescribed Singulair. It was like a wonder drug for us! It took care of his asthma and we didn't have to use the nebulizer any more. He's been on it ever since -- he's 10 now -- he also takes zyrtec and has a rescue inhaler that he uses maybe once a week. About every other year he requires a course of steroids and a week of regular nebulizer use. Also, for the past year he has also required a daily inhaled steroid.
Now, about his mood issues. My son has always been sensitive and intense, moody. The first time I became alarmed was when he was 7, and he told me he wanted to burn his hands on the stove to punish himself for forgetting his homework. I consulted a psychologist who evaluated him and said he was not clinically depressed. Since then he has had periodic "dark" episodes -- especially in the winter. He has said he wants to die. He has had crying jags over things that are upsetting (loss of a pet was the worst) but it seems excessive for him to be saying he "just wants it all to end." He has told me that he is always unhappy and that he hates himself. He has also had problems with moody acting-out with friends. He will brood about hurt feelings until he loses his temper and screams at the friend. I have worked very hard with him on learning to manage his emotions. He hit a friend at school who was teasing him. He accepted his consequences willingly and willingly wrote letters of apology -- he told me he thinks he has anger problems and doesn't want to be this way. And his character is that he is a sweet, caring boy who can't stand to see anyone hurt, but also can't stand to be hurt.
A couple of years ago I asked his allergist if any of the meds he's on are linked with depression. He said no. We have a family history of depression, and I thought my son had gotten the worst combo of all the genes.
Recently, this all got to the point that I decided he needed to see a psychiatrist and quite possibly take medication for depression. Before I made the appointment he had a check-up with his allergist. Going down his list of meds the dr. said, recently Singulair has been linked with depression, have you noticed any moodiness or sadness? My first thought was that I have, but that he's always been like this. My 2nd thought was that he has been on Singulair for most of his life. I said yes and that I'd like to try him off of it.
My son resisted going off of it. He has had enough negative experiences with asthma that he didn't want to risk it, but I insisted. I didn't expect to see any change, but I thought it was important, as I was going to take him to a psychiatrist to consider depression meds, to see how he did off of it for a couple of months.
Less than a week later, he had been in a wonderful mood -- to the point of being silly and giddy all evening -- for 3 days in a row. The kind of mood that I don't see him in often, and when I do I think to myself, "he should be like this more often." One evening he even realized he had forgotten to bring home a homework assignment. I thought, "oh no, here we go, his evening is ruined." But he talked through his options with me, looked a little uncertain, and said, well, okay, I guess I'll have to tell my teacher I don't have it. I'll tell her I'll make it up at lunch if she wants me to. That was it! He didn't mention it again. I didn't say anything about his mood, because I really don't think I can know anything after just a few days -- it could be coincidental. The next day, he said to me that he thinks being off the Singulair is "working." He has now told me that a couple of more times.
I am tentative, but amazed. Even if my son does have a predisposition to be depressed, maybe the Singulair was making everything worse, and things really can improve for him. I am afraid to be to hopeful. At the same time, I feel guilty for giving this medicine to him for 7 years without a second thought.
As an aside, my son has periodically complained of leg pains, that I always told him were growing pains.
I would love any feedback that anyone can give me. So far (these two weeks), his asthma has been controlled with pulmacort, zyrtec and albuterol, so that aspect is okay.
April 7th
2009
9:04 PM
I just came from my Dr. and he prescribed Singular for my allergies. He really convinced me to take it. So it's day 2 and I haven't taken it yet. I told my Dr. that the commercial on T.V. said a list of side effects that out weighed the symptoms of my allergies. This website has totally convinced me that I just threw away $135.00, cause I refuse to take a medication that has so many awful side effects. thanks for everyones input on this medication. and I hope for the best of luck with the people that are having such a difficult time with their medical problems.
-- By randum | Reply | (2) replies | Private Message me
March 10th
2009
10:29 PM
On the flip side i was on Singulair for about a year and i felt nothing different i never sneezed, never had a cold, or a runny nose. My mom found out that some kids had signs of suicide from Singulair so she instantly took me off of it and since then i have been miserable ever since. My doctors have put me on other allergy medicines, but none of them work with my runny nose and only take away the sneezing... even nose sprays don't work. I actually wish that i was still on singulair it never gave me any side effects and it's the only thing that works with my asthma.
-- By ktb326 | Reply | (2) replies | Private Message me
March 9th
2009
1:26 PM
I have had two sons on Singular. My three-year old had drastic behavioral changes about a month after starting to take Singulair. He suddenly had severe separation anxiety, was crying and whining all the time, did not want to be alone at all. Normally he is very happy go lucky and we did not see his bright cheerful smile for weeks. I took him to his pediatric doctor and described the behavior and she immediately said to take him off the Singulair. After two weeks, he was back to his normal, happy self. My older son is 5 and has been on Singulair for over a year. I consulted with his allergist right away after my 3-year-old was having trouble. I wanted to take him off the Singulair and he advised against it, because my 5 year old has more serious asthma and allergies. When he first started he had nightmares, and when I mentioned it to a friend whose son is also on Singulair, she said, oh, give it to him in the morning instead of night and that will help with the nightmares. That did help. Yesterday, I decided to take him off of it. It seems like he's always coughing and congested, he complains often of growing pains in his legs that will make him scream and cry and beg for medicine to make the pain go away. He becomes emotionally uncontrollable - i.e. he will have crying jags and when I try to console him or ask him to stop crying he'll say he can't help it and he'll say, "You don't understand, I can't control it." He has also complained of headaches and I wondered how would a 5-year-old even know what a headache is? I feel very naive and am thankful for sites like this because you will not always get this information from your health care providers and also the drug companies. If you are like me, and you've ended up in the emergency room and also calling 911 because your child is having and asthma attack, you be be so afraid you'll give your kids whatever the doctor prescribes and you'll look at it as the lesser of two evils - do you want to be in the emergency room or can you live with the side effects. It has taken me a while to get smart about this. There has to be a better solution out there.
-- By d_b | Reply | (1) replies | Private Message me
March 2th
2009
6:23 PM
My seven year old son has been on Singulair for a year and half. He would get angry but he's a kid...and I didn't think anything of it. Then the headaches and bad dreams....and then he's always talking about death. One day, I wasn't home when he arrived from school and he met me at the door crying....he thought I was dead. But the muscles cramps really got me. He's to young for cramps and waking up with a charley horse. I took him to the clinic and to the ER twice.. and still the doctors don't know why he's getting muscle cramps. So I said...let me go online to find some answers. Well... you know I'm going to his doctor and I threw his bottle of Singulair away. I'm going to start a journal and chart his progress and I'll get back to y'all.
-- By mssolo | Reply | (2) replies | Private Message me
February 22th
2009
9:36 AM
I have restless legs, nightmares and weight gain. Trouble concentrating, numbness and tingling of the hands and feet, falling. I have been evaluated by a neurologist and no one has made the connection of weight gain to singulair.
Also, have high blood pressure that came on suddenly.
I have followed the South Beach diet and continued to gain. I am going off this drug and really appreciate this website.
-- By suzyq52 | Reply | (1) replies | Private Message me
February 18th
2009
11:37 AM
I was on it for 2 weeks for an upper respiratory infection and I have mild asthma. I got to the point after the 2nd week I could not feel my legs, they felt detached. I cried. I thought I was water in car when I drove to a doctor appointment. I felt like I had the flu 24 hours a day. No headaches but it never touched my asthma. Two weeks of that junk then I went to a doctor who put me on my medication I took as a kid. One pill and it was over.
Sudafed in my opinion is a dangerous drug. Those side effects they list on tv are a joke. They are the tip of the ice berg.
February 16th
2009
10:35 AM
I have been on Singular for 2 months. I have noticed dizziness and almost passing out. I thought it was my other herbal supplements, but now I am still having the feelings and I will discontinue the Singular! Today I have a headache and just don't feel right in my head, almost like double vision feeling. I'm glad I found this website. I went on Singular for dog allergies, but it is not worth feeling this way!
-- By 712dawnh | Reply | (1) replies | Private Message me
February 14th
2009
7:01 AM
My son is 8 and for the past 3 years has been on Singular for seasonal allergies. He has since been diagnose with asthma and he takes Singular daily. After being on it for 3 weeks he is now getting into trouble in school. The teachers say it was like a light switch being turned on. Completely out of character behavior. My question is this......has anyone experienced hyperactivity behavior on Singular?
-- By kiwiyard | Reply | (7) replies | Private Message me
February 12th
2009
12:23 AM
I have not heard what the FDA's findings were regarding their recent investigation. I think it is an outrage that so many people have suffered from this drug. My 4 year old child too was a victim of this nasty drug. No child especially young children should have to suffer. My doctor had no clue as with the pharmacist that singulair changed their pamphlets. It just inferiorates me. Merck stated that they were committed to safety and had communicated that information of changing the pamplets. Funny how so many doctors missed that!
-- By emtjen | Reply | (2) replies | Private Message me
February 2th
2009
7:34 AM
I have a grandson who is on singulair since he would walk. He is now 5 years old. He has trouble in school, heat racing, out of control tantrums, biting and hiting in daycare. When he is not taking this medicine he is a different child. Parents are doing what ever the physicians order. Please stop prescribing medicines just for a runny nose, it is not worth the side effects.
-- By wibboac | Reply | (1) replies | Private Message me
January 30th
2009
12:37 AM
My son (now 6) was put on Singulair at 8 months old for asthma and has been o it since. He has never had an appetite and is quite underweight. He complains of stomach pains and headaches daily. At age 4 he was sent to a pediatric GI and neurologist and any brain or gastro issues were ruled out. No one could figure out what was wrong. He has sensory issues and just recently was referred to a psychiatrist for occupational therapy. It was at this appointment that it was suggested that the Singulair is responsible and since he has been on it for the majority of his life we were unable to make the connection. He has been off of it for 2 weeks now and has not complained of headaches or stomach pain at all. His eating habits are slightly better, but not great. Hopefully his appetite will improve over time. I wish we had only known sooner. I feel like such a terrible mother!
-- By jilla | Reply | (4) replies | Private Message me
January 29th
2009
5:14 PM
My 3 year old son was just prescribed Singulair today. After reading the pamphlet that came with the trial pack, I decided to do more research. All of the side effects that most people have mentioned on this post are listed in the pamphlet. I don't know if I will put my son on this medicine but thought I should mention the importance of actually reading the pamphlets that come with your medicine.
-- By harrisars | Reply | (5) replies | Private Message me
January 27th
2009
5:42 PM
My son is 7 years old and was put on singulair for his asthma and allergies, my daughter who is 10, had been on it for over 2 years.
My son started experiencing, night terrors, out burst of crying, difficult to make decisions.
Anxiety attacks, panic attacks, did not want to go to school. After seeing his Doctor it was suggested that we pull him off the medicine. We started noticing changes within a few weeks. Please watch your child closely if on this drug. My daughter did not have side effects however we have taken her off this medicine also.
I would really be careful with this drug. Our family was in complete terror, watching your child struggling like this. USE CAUTION, IF YOU DECIDE TO TAKE THIS MEDICINE....
January 23th
2009
8:54 PM
I'm 43. Started taking Singular about 10 years ago. I think that's when it came out. Over time, I've developed panic attacks, mild depression, mood swings, panic disorder, muscle twitches and cramps, and agoraphobia. I finally slowly took myself off of all medications after doing The Allergy and Asthma Cure - a great book and it helps tremendously!
After being off of the Singular, my symptoms listed started going away. i stay have agoraphobia because that's a learned issue from fear of having a panic attack. All doctors and pharmacists say there's no link. I know lots of adults who have gone through this only to get put on Xanax and antidepressants. Try to go as natural as you can. All of these meds have fried my body. Diet is huge to! I've substituted goat's milk for cow, Try it!
-- By thecocoapod | Reply | (3) replies | Private Message me
January 23th
2009
3:07 PM
My wife (66) was using salbutamol inhaler for the last 10 years being a bronchial asthmatic. Even prior to that, she was being treated with a combination of theophylline, cortisones . In 2001 she was diagnosed to be suffering from OCD and citalopram 20 mg was prescribed. With significant improvement, the dosage was reduced to citalopram 10 mg, though we lowered the dosage only in December 2007. However, during the last month, when she had to be admitted in the hospital for a stomach virus the doctors prescribed MONTELUKAST SODIUM 10 MG combined with lEVOCETIRIZINE 5 MG. .
Dramatically,montelukast had a dramatic effect in that my wife never used the salbutalmol inhaler for well over 2 months, about which we were very happy.
But the worst was yet to come.
During the last few days, she again showed symptoms of the dreaded OCD once again, and she suffered like anything. On contacting a well known doctor, we were advised to stop MONTELUKAST and asked to continue citalopram (though escitalopram instead of citalopram ) along with clonozepam 5 mg to be tapered down every week for about a month.
I would like to be advised from a doctor whether (a) discontinuance of Montelukast will be able to bring back normalcy from OCD of course with citalopram or escitalopram. and (b) whether montelukast can be abruptly stopped. For the time being, we have reduced the dosage of montelukast from 10 mg to 5 mg.
PLEASE ADVISE US.
January 17th
2009
1:37 AM
This drug has not been properly examined in clinical trials. I will gladly suffer with allergies rather than suffer from anxiety and panic attacks caused by Singulair. It may be beneficial to some people, but not to me. Never again, Singulair.
-- By juanlw564 | Reply | (3) replies | Private Message me
January 16th
2009
4:49 PM
I am 34 years old. I am a pharmacy tech. I have asthma and allergies. I have taken singulair pretty much every day since it came out on the market. I've had asthma since i was about 10 years old. I took theophylline as a kid. Steriods on and off especially during times when my allergies are bad. I still use Advair during the fall and spring. Every drug has a side effect. However breathing is pretty good damn thing. Do I have days when I feel low? Yeah. Do I sometimes have nightmares? Yup. Are "natural" products the answer. Not always. The fish oil that some of the posters are touting can also cause GI problems. Some of the natural products contain herbs and other plant derivatives that can be harmful for a child that suffers from allergies. Not proactively treating asthma can be deadly. Some of the parents are suggesting steriods as the answer - those can cause weight gain, growth suppression and can lead to a worsening of asthma.
Singulair has never made me feel like I've wanted to kill myself. I was more depressed and angry as kid when my asthma did not allow me to partipate in normal childhood things. I was sad and hated life when I couldn't keep up with friends at recces because I was having trouble breathing. You have to outweigh the costs with the benefits. I am more irritable when I have asthma flareup then I am on a normal day. For me, I choose to breathe. And singulair has been helping me for almost a decade.
I'm not saying the medication isn't causing these symptoms but maybe there is an underlying cause to your child's depression.
Any drug has a side effect. But without medical research and the medications that come with them - people would still be dying of simple diseases and we wouldn't have vaccinations. As a society, as a whole, we are a culture that looks to someone else to fix things and then blames the people who try to fix it. We need to stop being the "hot McDonald's coffee'" society.
-- By vabenavidez | Reply | (23) replies | Private Message me
January 16th
2009
10:32 AM
the pediatrician prescribed singular for my dd when she was 12yrs old for her asthma. she described it as being safe. that same year dd started having problems in school and seemed depressed. I talked to the doctor about it thinking maybe it had something to do with her adhd medication. the doctor thought maybe it was just normal teen behavior and dd trying to adjust. eventually we took dd to a therapist and things seemed to get a little better. then dd started complaining about stomach pains, she talked about strange dreams at night and would wake up in the middle of the night. Then the tantrums started, wild out of control tantrums. she would scream, throw things, destroy things, she talked about wanting to die, how she hated her life. again I went back to the doctor her adhd medication was adjusted and I also got her back into therapy. therapy was helpful but we continued to deal with the wild tantrums. we kept trying to seek help and answers but to no avail. we were beginning to think dd was suffering from a mental illness. the doctor told us to keep an eye on it and the next step would be maybe putting her on more medication. In the meantime dd became anxious, she had an anxiety attack at school, she would get in arguments with her friends and become very irrational, she continued to be angry at home, she destroyed things in her room and punched a hole in the wall. When I would look in her eye she had the look of a wild animal. my doctor began to think it was merely teen rebellion and we needed to get tougher with her. Never did it ever cross my mind that it could be something with singular till I heard about the study on the news then it all clicked. before singular my dd was an above average student who was liked by teachers and students alike. teachers talked about how well behaved she was and she was a leader. she was very active in various activities at school. Now she has become nervous and suffers from anxiety attacks, she has out of control tantrums and anger. her friends frequently avoid her or her calls because she has become so moody and angry. she frequently complains that her stomach hurts and feels like she's going to be sick. she screams and talks about wanting to die and that we don't love her. till today I had considered this drug to be safe and very useful in controlling her asthma but after doing more research i'm beginning to wonder if it's worth the risk.
-- By dnnmom3girls | Reply | (3) replies | Private Message me
January 15th
2009
3:11 PM
My 6 1/2 year old daughter has been on Singulair for 3 1/2 to 4 years now and we have had horrible experiences! She was having night terrors, mood swings, angry issues, self control issues, crying over small things, etc. We have been to psychiatrists and psychologists who have diagnosed her with mood disorder, sensory processing disorder and anxiety disorder! Well she has recently been having stomach problems so we have been going to a GI to figure that out. I got online to research and found numerous sites that told how Singulair causes all these things in children. We took my daughter off the meds and within 3 or 4 days seen a tremendous difference! She is a totally different child! It just really frustrates me and saddens me that all these children and their families are going through all this and the doctors do not seem to care. The allergist or psychiatrist didn't believe me. They say no study has ever proven such things. I don't care what they say we as parents know our children and we are the experts when it comes to seeing how they change when on this medicine, we are the ones that live with them and are with them everyday not the doctors! I think they just don't want to lose out on their money from prescribing this drug 90% of children with allergies and asthma!
-- By abuckler | Reply | (4) replies | Private Message me
January 9th
2009
11:21 PM
I'm so happy that I decided to research this drug. My son, who will be 2 on 1/22/09 was prescribed Singulair today. He has been coughing/wheezing, etc since we moved to a different state, 6 months ago. We have tried all kinds of OTC drugs and nothing would work. We finally brought him to the Dr. today and he says he has allergies (which we kinda knew already). I was happy that the Dr. prescribed something that we could not get OTC..to me, that meant that it was going to be better. I went to pick up the prescription and the pharmacist tried to talk me into a different kind of allergy med for my son. I told her that I wanted to stick with the Singulair, since that is what the Dr. prescribed. She told me, in no uncertain terms, to research this drug! She kept asking, "He's only 2, right?" He's only 2, right?" Her behavior was strange, I thought....it turns out that she was my angel today. I gave my son 1 dosage tonight before bed and he WILL NOT get another. Thank you! On Monday, my first order of business is to go back to the pharmacy and thank my angel....
-- By dsmomma | Reply | (4) replies | Private Message me
January 7th
2009
10:48 AM
my granddaughter has been on singulair since she was 5 months old she is now 6yrs old and it does control her asthma, but lately i have noticed a lot of the symptoms posted here. Headache, stomach pains, nightmares, sleepwalking, and the episodes are getting more frequent. When she does this mostly at night it is scary to me especially when she is crying for help and you don't know how to help her. I was searching for something else and was brought to this site, like i was meant to see it and it really scared me. I have already called her doctor and got an appointment for tomorrow. I want her off this medicine as soon as possible.
-- By ghost40 | Reply | (1) replies | Private Message me
January 7th
2009
5:06 AM
My son is 12 and has been taking Singulair for the last ten months...he has been getting moody and upset for no good reason over the last 3 months and I put it down to "hormones" starting to kick in. He has now gone to feeling very sad and has even told me last night that he has thought about killing himself several times and feels he can't go on, or cope and feels lost and lonely or unwanted and in the way. He is confused and does not understand what is happening to him. I have just realized it may be the Singulair and will be taking him off it immediately. I'm hoping it is this as if it isn't I feel totally helpless as to how to help my child. Please say a prayer for him. He used to be happy go lucky.
-- By cusack7 | Reply | (3) replies | Private Message me
January 2th
2009
10:11 AM
I would like to know who is NOT experiencing side effects from Singulair.
We are not.
My 7 years old started Singulair three months ago because of allergy issues. She had asthma attack every other week, running nose all the time, she was so miserable, she missed many days of school and she couldn't exercise .Since she started to take SIngulair her allergy improved, no more asthma, no more running nose. SIngulair did not change her way to be. She is doing very good in school (she is above the average..) she does piano, ice skating, she is purple belt Tae Know Doe, speak two languages, she is doing great in everything. Of course she has her "bad moments" but which child does not?
I tried homeopathy, but it did not work, she got worst and worst. I was supposed to give SIngulair to my daughter a year ago, I did not because I was afraid of the side effects. But I wished I had started before because I could have avoid so much steroids since she had asthma most of the time. The doctor convinced me to use this medicine when she said " You think SIngulair has side effects, yes sometime it does, but do you know the danger of using steroids so frequently in a little body?" Then I thought I had to give a try. I am glad I did. Of course I keep watching my daughter behavior closely and reading all the possible side effects of this medication. I forgot to say that beside singulair my daughter is also taking Pulmicort, two puffs once a day.
December 14th
2008
12:21 AM
My three year old daughter was on in as a baby and it was great for her asthma. I stopped it for a year and now she is 3 and has started it again about two weeks. She sleeps at least 12hrs a night and has a nap. This is someone who slept maybe 8hrs a night and never a nap. Actual the sleep is so much its kinda worrying me. I have a hard time even waking her up. What should I do?
-- By aajn4 | Reply | (4) replies | Private Message me
December 10th
2008
11:57 PM
i had posted back a few weeks about my daughters situation on singulair well she has been off of the medication now for 3 and 1/2 weeks now and just starting last night she seemed to be a different child she has been on the med for about 14 months she is doing better in school not wanting to fight me on everything. now she is eating great which is scary when your child goes 3 weeks not eating due to being afraid.she was sent to mental health and the doctor said he had never heard of a reaction to singulair and she could go back on it we said it was not going to happen they said it was her being bull headed which we knew different.we were almost to the point where the doctor wanted to admit her to a physic unit . we had her off the med and within 1 week she started eating little by little we just about have her back to where she was.we video taped her having her fits and showed the dr. he just stated she is a handful. we let her see the tapes the other night she started to cry and asked what was wrong with her and we explained nothing baby it was the medicine that was making you do that and now everything is going to be ok .this is the 3rd time she has quit eating in 1 yr and we could not pin point it well now we think we know it was the medicine.they put her on zyrtec we only give it to her as needed not on a daily basis.
-- By jodyehlers | Reply | (2) replies | Private Message me
December 10th
2008
6:51 AM
I was encourage when i read the post of the lady a few posts down,who picked up her prescription and it was covered in stickers telling her of post market side effects,a long time coming yes ,but it is happening none the less.Several articles on merck have noted flat Singulair sales,due to safety concerns,the word is getting out slowly but surely.I know we have been frustrated with how slow it is all happening,but it is happening.One of our hospitals here in cleveland now will list a doctors affiliation with a pharma company,important news for us that know what the implications of that could mean.We have had an education in the medical system,which quite frankly i found shocking,i don't think any of us will every fill a prescription again with out research,we have learned ,we are not the same,we must continue to change a system that is broken ,the dollar must be secondary to the health of all of us.I again urge all that still have issues to file a report with the fda,Keep on fighting
-- By flindy | Reply | Private Message me
December 9th
2008
8:52 AM
I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?
-- By chevpa1 | Reply | (5) replies | Private Message me
October 16th
2009
12:30 AM
My daughter was put on Singulair 2 weeks ago after discovering she is allergic to 4 kinds of trees that are pollinating in the fall and a certain mold that grows in corn and bean fields. Everything was going well until she got an ear infection and was put on the antibiotic amoxicillin which she has used off and on when she's had ear infections over the years. She then broke out in the hives. She has never had the hives before. I'm guessing it could be a combination of the two drugs. Why aren't doctors aware of this before prescribing this medication?
-- By ctri | Reply | (1) replies | Private Message me