July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me
June 30th
2009
3:42 AM
My 4y/o son has asthma that was not well under control, so the doctor put him on Singulair and Flovent about 2 months ago. In the first few weeks, he started having severe leg pain. He would be up at night crying. I would massage his legs till he went to sleep. He also started soiling his underwear with small thick amounts of stool multiple times a day; despite the fact that he has large soft bowel movements at least twice a day. His asthma has been well controlled since the start of the medicine. We stopped the Flovent 1month ago to see if the Singulair would continue to control his asthma, which it has. We adjusted his diet, since the doctor attributes his stooling to constipation, which has not helped. He is now frequently peeing his pants and frequently complains of arm and leg pain which comes on suddenly and seems to last for 5 to 15 minutes. I am going to take him back to the doctor for a full check up to rule out anything more serious, such as a spinal tumor, but till then I am going to stop the Singulair and see how things go. I wanted to stop it as soon as the incontinence started, but was afraid of his asthma flaring back up. Is flovent causing anyone's kids any issues. My son also seems to be having trouble getting his words out.
-- By tara77 | Reply | (1) replies | Private Message me
January 16th
2009
4:49 PM
I am 34 years old. I am a pharmacy tech. I have asthma and allergies. I have taken singulair pretty much every day since it came out on the market. I've had asthma since i was about 10 years old. I took theophylline as a kid. Steriods on and off especially during times when my allergies are bad. I still use Advair during the fall and spring. Every drug has a side effect. However breathing is pretty good damn thing. Do I have days when I feel low? Yeah. Do I sometimes have nightmares? Yup. Are "natural" products the answer. Not always. The fish oil that some of the posters are touting can also cause GI problems. Some of the natural products contain herbs and other plant derivatives that can be harmful for a child that suffers from allergies. Not proactively treating asthma can be deadly. Some of the parents are suggesting steriods as the answer - those can cause weight gain, growth suppression and can lead to a worsening of asthma.
Singulair has never made me feel like I've wanted to kill myself. I was more depressed and angry as kid when my asthma did not allow me to partipate in normal childhood things. I was sad and hated life when I couldn't keep up with friends at recces because I was having trouble breathing. You have to outweigh the costs with the benefits. I am more irritable when I have asthma flareup then I am on a normal day. For me, I choose to breathe. And singulair has been helping me for almost a decade.
I'm not saying the medication isn't causing these symptoms but maybe there is an underlying cause to your child's depression.
Any drug has a side effect. But without medical research and the medications that come with them - people would still be dying of simple diseases and we wouldn't have vaccinations. As a society, as a whole, we are a culture that looks to someone else to fix things and then blames the people who try to fix it. We need to stop being the "hot McDonald's coffee'" society.
-- By vabenavidez | Reply | (23) replies | Private Message me
December 9th
2008
8:52 AM
I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?
-- By chevpa1 | Reply | (5) replies | Private Message me
December 7th
2008
7:55 AM
I had been taking singulair for over two years. I am 70 yrs old and in good health except for light asthma, allergy problems. My doctor took me off it. It did some good in the beginning but the last four mts I was continuing to get wheezing and bronchitis infections. I also had a lot of leg pain and was tested for all kinds of blockage, etc. I experienced very painful leg cramping, toes twitching, etc. The only way I could stop it was to pull my toes forward as the worst happened at night and woke me up. I finally found Leg Cramps with Quinine an all natural homeopathic med. It worked like a charm. I didn't know that this was a side effect of Singulair. Since I am off singulair just two weeks. It was replaced with Flovent an inhaler ( 2 puffs 2 x a day to begin and then later it will be 1 puff as the inflammation gets better. It also comes in granules. I am feeling much better and now I am ready to stop Leg Cramps as I feel the singulair may have been causing the problem. While taking Singulair I also had stomach cramps with diarrhea. I will not go back on Singulair. If the cramping returns, I will definitely go back on Leg Cramps with Quinine (available in any pharmacy over the counter and very inexpensive.
-- By talcott38 | Reply | (2) replies | Private Message me
December 2th
2008
5:10 PM
I found this web site while searching side effect of Singulair. My Son - 7 years old is experiencing same issue - Severe random leg pain in both legs or 1 leg as mentioned by few others. He can not walk when it happened and I have to carry him. The pain disappear in 2-3 days or sometimes it takes 5-6 days.
We did X-Ray and doc could not find anything wrong.
Others..who are facing same issue...I would appreciate if u can send me an email to ****** so that we can talk in detail.
-- By pjainusa | Reply | (4) replies | Private Message me
November 16th
2008
9:23 AM
I'm wondering if some of you could explain how the leg pain was. My 20 month old has been on Singulair for 2 months for ?asthma (he's has bronchiolitis once and pneumonia 2x since he was 6 months old and a chronic cough). His medication "regime" in working great-absolutely no cough in 2 months from a child who I started to think coughing was normal for this age. 3 weeks ago we were driving in the car and he started grabbing his right leg say "ooww, boo boo". and now in the last 2 weeks we have had 3 times where he holds his right leg crying in pain and will not walk, will not stand on his leg. One time lasted for about 2+ hours-he went to bed like that and woke up fine, jumping in his crib. 2nd and 3rd time it lasted about 1 hour and then he was fine completely back to himself. We had him seen but decline xrays and to just watch it for now. The MD said it could be a virus in his knee. I asked about side effects to med and she doubted it. But I started reading and now I'm suspicious. The weird thing is that it comes on strong and goes away just as easily. Wondering if anyone else could describe their leg pain in more detail. Thanks!
-- By bridgetjack | Reply | (1) replies | Private Message me
November 13th
2008
8:17 PM
my 6yr old daughter was put on singulair at the age of 4 she had a reaction to nuts and had the allergy testing she was put on singulair and claritin and nasacort .(so she has been on the medication now for 14 months) about 3and 1/2 weeks ago she quit eating we had her to the dr several times they said it was all in her head that she could eat if she wanted to.she was then put in the hospital for 4 days they did the scope down the stomach found nothing i took her off all her meds because i didn't want her taking them with no food in her. she came home from the hospital and i put her back on the meds as the doctor requested and within 2 days she was crying non stop hitting me and telling me that she wanted to kill herself and everyone around her.she was putting her fists in everyines face and was very angry.she would cry and tell us that she didn't know why she was so angry.we took her back off of the meds because we were treating her for the stomach acid from not eating and within 4 days she was like a new kid.she is now eating ..happy ..and doing good in school..this is the 3rd time this yr on this med that she has quit eating we were told that it was all in her head .after reading everyones comments on here i called her doctor today and he said it could be the medication but they would have to put her back on it to check and i refused.no more singulair or clairitin for my children
-- By jodyehlers | Reply | (3) replies | Private Message me
September 30th
2008
1:50 PM
Wow- this floors me. My daughter is 20 now- we had her on Singulair for years for her asthma. She suffered from horrible leg pain, but she was a 4-sport varsity athlete and we attributed the pain to over training.
Her first year at college she started suffering from severe depression and lost a lot- I mean a LOT of weight. She went about a year and a half with no period due to low body weight. We wanted to check her into an inpatient treatment center for eating disorders but couldn't because she was over 18 and didn't want to go.
In June we sent her to a new allergy doc who retested her and switched her from Singulair to Symbicort as the Singulair was not managing the asthma well. It was like we flipped a switch- she stopped having vision problems, stomach pain, and insomnia almost overnight. She has gained back at least 10 pounds and is looking like her old self again.
I'm so glad we stopped the Singulair, even though it was accidental. A year ago, we thought we might lose our bright and beautiful daughter. We had no idea it could be as simple as the asthma med. I'm telling everyone I know about possible side effects of Singulair.
-- By deeceedub | Reply | (2) replies | Private Message me
August 30th
2008
5:27 AM
My 6 y/o daughter has been taking Singular for approx. 2 years. She began to have regular stomach pains shortly there after. She was sent to Children's hospital where they put her on a laxitive which made things worse. Then we began testing for food allergies only to find out that she tested positive for a 3 page list of foods. We eliminated those food and had her tested again. She was subsequently allergic to the foods we eliminated. She was recently down to rice, a few meats and some vegetables. Guess what, she is now allergic to those foods.
All this time she has been complaining of severe leg pain, eye pain, throat pain, numbness and tingling in her hands a feet, all of which come an go. I have reported this to all the doctors and specialists we have seen. She had undergone countless blood tests to rule out autoimmune disorders and all come up negative.
She began to develop severe anxiety and just had the blues most of the time. She would be crying and saying off the wall things like, "I don't think my fish is happy". She couldn't stand to be away from me and would stress out about even weather or not she would sit by me at a restaurant. I mentioned this to all of the doctors. They said to not make too much of it. One suggested she see a psychologist. NOT ONE DOCTOR EVER LOOKED AT THE SINGULAR.
Finally about 4 weeks ago my neighbor who is a scientist at a pharmaceutical company called me and told me about the "black box" warning that had just come out on Singular. I took both of my children off of it immediately. My daughter went through about a 10 day period where her anxiety got worse and then it was just gone. We are adding foods back into her diet and at this point she has not had any severe allergic reactions.
The last 2 years have been a complete nightmare for her and for us. I am a medical professional and I have had doctors treat me like a hypocondriac, hypersensitive, attention seeking mother. I feel so justified and saddened by the recent findings all at the same time. Most of all I am so grateful that we figured this out before things go even worse.
Please let me know if anyone else is suffering food related reactions as a side effect.
-- By gayelea | Reply | (4) replies | Private Message me
August 19th
2008
11:56 PM
My 6 year old was prescribed singular for allergy relief. After 1 night of taking it he woke up with leg pain. Not too severe, just sore so I thought they were just growing pains. After the 2nd night of the medicine he woke up and his legs hurt so badly that he has a very difficult time walking. We took him off the medice. After the 3rd night with no medication he woke up with a little leg pain, but not anything like the previous day. After the 4th night he was fine and has been fine every since. It had to be the singular. My pediatrician did not have any other children that had had this type of reaction, but said that we should not give it to him again. He said that we should listen to our bodies, and if we don't feel right after medication then we should stop taking it. It was scary for my little boy
-- By bluebunnylala | Reply | Private Message me
August 11th
2008
5:19 PM
I am so thankful to have found this information!!!!! We have an appt tomorrow afternoon because of my 3 1/2 yr old daughters chronic leg pain. It hasn't fit the growing pains symptoms and I have to give her Tylenol or ibuprofen every day - she is inconsolable with pain at times. (She has been on Singulair for 2 years!!!) After reading these situations, I checked singulair's side effects which include 2 other symptoms that my daughter has all the time without explanation - nose bleeds and stomach pain!!! I am taking all this to the doctor appt tomorrow. We missed a nightly dose of Singulair once before and she had to start breathing treatments the next day, every 2 hrs for a few days until we got her breathing under control again. I am anxious as to what our alternatives are and what they're side effects may be....
Thank y'all for sharing your experiences !!!!
May 28th
2008
3:15 AM
I was put on Singulair about 2 years ago because of my COPD. No allergies were ever mentioned by my Doctor. This site has been a god send for me.
Since starting Singulair I have been put on Digoxin for an irregular heart beat that I never had before. I have been put on Gabapentin for leg pain and cramping in my feet whenever I put my feet up or laid down to TRY and get to sleep. I have been put on so many pain killers for back pain, leg pain, neck pain I can't even count them all. I won't take them, they make me so sick. Now I find that I wake up with a headache every morning, feeling sick..oh yes, I was given medication for nausea also. And I don't want to forget the six months of experiencing never ending dizzy spells. That was another medication to ad to the list of ALL THE MEDICATIONS I HAVE TAKEN OVER THE PAST 2 YEARS for the side effects of Singulair. I stopped taking it a couple of days ago and I woke up this morning feeling so good. Oh, lets not forget the Xanax, Prozac and Cymbalta for depression.......OMG! I'm looking forward to see how many of these medications I can toss now that I've stopped taking Singulair. I just wish I had found this site two years ago, oh yeah, I am on Advair also. I've been, lets say "in a chronic bad mood" too. Some would say a "B". I've already noticed a difference there too.
May 1th
2008
2:31 AM
After visiting this web site everyday for the past four weeks, I feel the need to share my daughter's (and my families') experience with singulair. My 8 year old daughter was put on singulair aprx. 2 years ago in addition to zyrtec to treat her allergies. Shortly after starting the drug, she developed stomach pain. After a few weeks of chronic pain, I pursued help from our pediatrician. After visits to two different pediatric GI doctors, an allergist (to test for food allergies), and an orthopedic surgeon ( because of sudden leg pain), the results were inconclusive. During this time my daughter also became very sad, angry and fatigued. She also completely lost her appetite and refused to eat much of the time. I attributed all of these symptoms to her stomach pain . In addition, she developed difficult sleep patterns and would often wake-up exhausted in the morning. Over time she also began to have more and more "melt-downs", breaking into crying spells over the smallest provocation or challenge. I recently contacted my daughters pediatrician to discuss what other testing or direction we could take to help my daughter. In the interim of making that contact, a friend told me about this web site. As I read page after page of other parent's experiences, I was in tears. I felt as if I was reading about my own family for the past two years. I say "family" because when one child is living through this kind trauma, everyone in the family is negatively affected in some way. My husband and I felt completely frustrated and unable to help our daughter. Our older children began to resent the great amount of time and energy I spent on behalf of our daughter. My younger daughter who had always looked up to and loved her older sister was sad and confused by her sister's anger and impatience.On March 29th I took my daughter off singulair. Unbelievable. Within 2 days, my daughter's appetite returned. On the second day, she came home from school and requested a corn dog and then some ice cream. She suddenly wanted to eat breakfast again. She started smiling and laughing again. She has suddenly become capable and responsible for doing her homework and chores. She is going to sleep more quickly and waking up happy. The best part is having our daughter back...the sweet, wonderful, happy six year old who I feel like I lost for two years of her life! As a side note-the return call I got from my pediatrician was that he wanted my daughter to see a psychiatrist. That's how close we were to taking another (completely unnecessary) path to helping my daughter. I also recently spoke with my daughter's allergist about our experience. At first he was somewhat dismissive. I asked him to listen to me parent, to parent for just a moment. He seemed to soften and said he would take a second look at singulair and its side effects. I encourage every parent who's child has been so adversely affected by this drug to be proactive. First, please contact the FDA to report your experience. Second, talk to your children's physicians and share, with confidence your experience. Third, share this web site or a similar one with everyone you know. I have been astounded how many children are on singulair just within my own small circle (school, church and play group). I really believe one voice can make a difference. I have to believe that for the sake of all the children still suffering.
-- By concernedmomof4 | Reply | (2) replies | Private Message me
April 17th
2008
3:52 PM
I've never written on a blog in my life, and now that I've just read this, my stomach is doing flip flops and my blood is runnung cold. I have an 11 year old son and a 9 year old daughter. They have both been on singulair for quite a few years. My son has been on ADHD meds now since about a year and a half after starting Singulair because we tried to avoid them. Every few weeks he tells me he has this empty feeling inside him that makes him really sad and he doesn't know what it is. It just feels empty. I'll usually read with him or play a game or walk our dog with him to help him feel better.
As for my daughter, she exhibits all of the symptoms I have read about. She talks about life being terrible( trust me, she has it pretty good), she has been diagnosed with an anxiety disorder, OCD and Tourette Syndrome. Every psychiatric medication we have tried has made her worse. She was always a confident, outgoing little girl, and then she just changed. She's had stomach aches, which the docs always thought were in her head. She gets headaches. She is extremely sensitive, won't let me even brush her hair or touch her. She has extreme mood swings and gets upset over the most miniscule things, then writes about them, even saying she realizes her anger was too much for what the situation was! I will stop Singulair immediately and see what happens. What a miracle it would be if all of their symptoms disappeared.
April 15th
2008
11:55 PM
It has been 18 days since my 9 year old daughter has taken Singulair. Our daughter had been taking Singulair for approximately 2 years. It was in the last year that we started to notice some behavior changes and mood swings that were so often unprovoked. We were somewhat concerned and thought like so many other parents that it was a phase. Then in December 2007 she came home from school with a tummy ache and had several episodes of vomiting. She seemed better the following day, but we took her to the pediatrician to be sure that this was a virus. The stomach pains continued, and then anxiety attacks began. Over the next month she began to wake up each day with stomach aches and we began more visits to doctors and more testing. She had abdominal X-rays, CT scan, mekel scan, GI consult and endoscopy. All were ok except she did have some small amounts of acid in her stomach. She was treated with Prevacid with really no significant changes. As weeks passed she missed more and more school, she just could not make it through the day. She had intense separation anxiety, and developed OCD about being sick again and vomiting, fears that she may stop breathing; fear of dying and the list goes on. She was refusing to ride the bus to school, and was having more and more panic attacks that would last for hours. We finally took her to a psychiatrist after we had done every test we could possibly do and all were normal. She woke up with the fear and anxiety, and fell asleep each night the same way. The doctor said she had "OCD" which she believes was triggered by the fear from vomiting. "This was the first time she had vomited since she was an infant.” She was treated with Lexapro, and Klonopin. The symptoms worsened over the next few days even with the new medications. After many calls to the doctor we were finally advised to have her admitted to a children’s psychiatric hospital for closer evaluation where higher doses of medications could be administered. She was there for 4 horrible days with slight improvements. Over the next few weeks the medication did begin to help some and she was able to make it through school each day as long as she was able to call me a few times a day for re-assurance. I thank God each day for her wonderful teacher and staff that have helped us through this. They all have known her for 3 years and knew this was just not her character at all and she was truly struggling. She was always known as "Smiley" to everyone because she always wears a grin. We began therapy with a psychologist as well and she has good and bad days. Then we heard the news about Singulair and I began to trace back other issues she had with focusing in 2nd grade and how things just seemed to progress from there. It all happened so gradually that I would never have put two & two together. She is showing improvements every day with personality, mood, attitude, fears, and the "OCD". She told me today that this was the best day ever!! I have made all the Doctor's involved aware of this information and the progress she has made in the last 2 1/2 weeks. Her doctor did cut her meds in half this week as well. Thanks to everyone that has posted their nightmares as well, and we will pray for you and for full recovery for all those that have suffered.
-- By benitez91 | Reply | (2) replies | Private Message me
April 15th
2008
1:22 AM
My 9 year old daughter has been on singulair for about 5 months now and she is moody and not a very nice person sometimes. Now she in complaining of headaches and even cry's with the pain I want to take her off but I am a bit scared that if I take her off to quick this might be harmful can anyone let me know if they had any problems when they stopped their childs singulair.
Worried Mum
Australia
April 10th
2008
5:40 PM
Follow up to my post earlier today...
I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.
I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.
I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.
Last night was the last time my son will take the drug, and I don't care what the doctors think of me.
-- By adschimek | Reply | (10) replies | Private Message me
April 7th
2008
11:49 PM
I am one of many that has decided to stop giving my child Singulair. And like many others, I have noticed a great improvement in her behavior.
My question is for those who have done the same. What medication have you replaced the Singulair with and have you noticed any of the same side effects that Singulair was causing? What are your thoughts on Flovent inhaler?
Any feedback would be greatly appreciated. Thanks!
-- By kaysmom | Reply | (7) replies | Private Message me
April 4th
2008
10:01 AM
My 6 year old daughter has been off the Singulair for 5 days, after being on it for like 4 years. I have noticed some big changes for the positive... but she is still yelling at me when I have to get her up for school...and ight before bed. She is falling asleep a little better, and waking up less. But this screaming is so bad. I need to videotape it so people will believe me..as to how bad it is! Anyone else have some side effects still left, or did the all go away right away?
-- By 4keaps | Reply | (6) replies | Private Message me
April 3th
2008
6:31 PM
Wow. I can't even express how blown away I am by all of this.My son is 7 and has been on singulair since he was 2. He was moved to the 5 mg last year in March. The only difference between my son and all of your stories is that when he was in kindergarten we discovered a rather large arachnoid cyst in his brain that had to be drained. It was easy to blame some if not all of his behavioral problems on the location of the cyst. It is in the left temperol lobe. Having something in that region of the brain can cause behavior problems. His cyst was also big enough to push on his pituitary gland making him think he needed to use the bathroom all the time. He had a slight case of diabetes insipidus. During all of this he was complaining of headaches, fatigue, leg pain, the boy could not walk from one end of the mall to the other, he would melt down at the slightest provocation and turn into an angry little monster at around diner time. We attributed it to low sodium levels messing with his head, but his blood work never reflected someone who was THAT bad. After his surgery he had some normal depression, but in March, four months after, he became a different person. He was full of rage and anger and almost got kicked out of school. He broke things at home and lashed out at people, he said awful things. He was put on Tegretol, (that made him very sick) and Wellbutrin. Since he couldn't tolerate the tegretol they switched him to abilify. He still takes this. The one time we tried to take him off he went completely nuts again. Same kind of aggressive behavior, lashing out, no self control, crying all the time, very moody, saying things like "nobody loves me." My son is the sweetest person you will ever know. Before all of this, he would melt your heart with his kind words. Now he has been diagnosed with ADD, Aspergers, and has all of one friend at school. I go every day to eat lunch with him so he doesn't have to sit alone. I completely understand that my son will continue to have problems once this medicine is out of his system, because he does have other issues, but this morning the first thing he said to me was, "Mom it's weird, I don't know why but I feel so happy."
He has been off the Singulair for 6 days now. I called his allergist and he was VERY interested in all of this and wants to meet with me. He has always been so heartbroken by how my son has struggled. Don't think all doctors are bad. This one isn't. He is going to help me report all of this. He is really upset too. Of course he is older, been around for ever. I don't know. He cares about his patients. His receptionist said she thought they would be getting a ton of calls about this and I was the only one. Hang in there everyone. Alone we are quite together we are LOUD.
April 3th
2008
3:33 PM
Both my son and I were on Singulair. As of Sat March 31st we both stopped taking it. My 6 yr boy has been on it for apprx 3 1/2 years for allergies along with nasonex and claritin when needed. He started pre k after being off the singulair for the summer. His first 3 weeks of school had no complaints. 3 weeks into school he started singulair and teacher immediately noticed the difference and brought it up to dr's who said it had nothing to do with his behavior. Over the years he has experienced, problems with excess urination after taking dose at night causing exploding pullups.. changed to day time and that helped somewhat. nightmares/ hyper /moody, irritable, leg pain, stomach pain,angry outburst (he says his brain made him do it), headaches, stuttering,sinus infections that he finally had his adnenoids removed in Feb.. He started kindergarten last Sept and it has been a nightmare..I tried to take him off Singulair in Oct but due to his enlarged adenoids his allergy symptons became so much worse I put him back on. The last few days where up and down as the Singulair was coming out of his system but I was seeing improvements.. Well I decided today to remove him also off the nasonex as I have read similar side effects about the nasonex. He had a pretty good morning today and went to school and came home for the FIRST time all year with smileys for the entire day!! I am overwhelmed with emotion! So happy that he is coming out of the fog and guilt that I have been giving him this medication and didn't follow my Mommy instinct to stop it years ago! I had side effects as well to the point people were telling me my personality had changed. I was irritable, short of patience and having alot of headaches. The last few weeks I was having days of depression and crying over little things especially with the stress of what my son was going through.... I am also coming out of the fog and happy to be back!
-- By sp2008 | Reply | (1) replies | Private Message me
April 3th
2008
1:18 PM
I have been following this forum ever since the news broke and I feel compelled to post my 4 yr old's experience with Singulair. He has been on it since before he was 2 yrs. I called my child's asthma dr on 3/28/08 with my concerns and his staff had already had a meeting about the news and he advised me to go ahead and take him off of it.
We always wrote off his overly-sensitive behavior to normal toddler tantrums, but when the behavior continued past toddler age, we began to wonder. He also would sob, talking about death a lot and how "God was going to miss him" People said, "Oh, he's just trying to get your attention!" But I knew that 4 year olds should not have such things weighing on their minds. He also frequently complained about leg pain, which I brushed off as growing pains.
We have noticed a TREMENDOUS and immediate difference in our son since stopping this medication. It brought me to tears, realizing the drastic change and wondering how I could not have put two and two together before. Some examples of the changes: He no longer "freaks out" over small problems (he dropped something the other morning and I braced myself for the usual screaming, but instead he calmly picked it up) He is able to sit down and concentrate on an activity (like coloring) He can express his emotions w/o screaming. No more night terrors. The list of changes I've noticed actually goes on and on, but the point is, it is very clear that his mind was in an altered state on that medication and that is entirely unacceptable to me.
As a side note, I told my child's peditrician that his asthma dr had taken him off Singulair and she acted very surprised saying "Oh, it's been on the market so long, and these couple reports in the media probably don't mean anything." My question is, how long has it been on the market for children and how many drs have been lead to believe that these side effects couldn't possibly happen and therefore ignored their patients concerns? I'm convinced that had I brought my concerns about my child's behavior to his dr before, she would have probably prescribed an anti-depressant or ADD medication and never once considered the Singulair to be the problem.
My heart goes out to other families that have been affected and pray that the medical community will respond according in warning people about the potential effects of this medication.
April 2th
2008
8:13 PM
I just wanted to post an update on my son. I posted his story on Sunday since hearing about this investigation. He took his last Singulair on Saturday night and every day I see my happy boy coming back! He tells me that he has had a great day at school for the past two days, and that he has decided he isn't as "stupid" as he used to be! He also comes to me for hugs and kisses now and for the last two nights at bedtime he has said he just loves me so much that he feels like he can't stand it and he likes to fall asleep hugging my arm! This has not happened before. He was a loving toddler before he was put on this medication for asthma at three years old. Not long after that he became very hard to please, very sad, at times violent, even throwing metal tonka trucks at his big brother and laughing when he cut him! He has had leg pain, constant stomach pain , night terrors and was convinced that every where we went people just would not stop staring at him...I could go on and on. We went out to eat last night and he did not even notice anyone "looking at him" and was even making cute funny faces at a little toddler at the next table to make him laugh. I am so glad to find this website to see that I am not alone in all this. As for the people who are saying that we are making these claims up, I am not pursuing any action toward anyone on this, I am so happy that my son is returning to normal and no amount of money could replace this feeling! If any other parents would like to email me for support and a shoulder to lean on, feel free to email me. Laura jtolto@aol.com
-- By momof3jboys | Reply | Private Message me
April 1th
2008
10:10 AM
Our 7 year old son has been old singulair since he was about 3. I can't even describe in words how I feel as a parent knowing now what my son has been going through. He (just like the others) has been very emotional and become very timid and has had a couple of panic attacks. I really began noticing it when his doctor bumped up his dose several months ago. He began talking about death and morbid things quite frequently. His doctor also has diagnosed him with ADHD. Over the past several months I took him to the doctor for extreme leg pain and once to the emergency room for crippling abdominal pain. They couldn't find anything wrong with him. We've taken him OFF of singulair forever and few days ago and him bright and positive personality seems like is beginning to come back. I just hope that he has suffered long-term damage from taking this medicine. At this point, we can only hope and pray that everything will be fine.
-- By lovingparent | Reply | (1) replies | Private Message me
March 31th
2008
7:07 PM
My 8 yr old daughter has severe asthma & allergies. She has been on
Singulair for a few years now. I thought that this was the answer for her.
She's been so much better and hasn't been to the hospital in about 2 yrs.
I am devastated to hear this news but also relieved because now I know why my once confident child has turned into this anxious person with no
self esteem at all. She constantly complains of headaches,stomachaches
and leg pain. She suddenly is afraid of everything, from going in elevators
to going to school. She gets dizzy around a lot of people. She basically does not leave my side. She is missing out on so much fun because of fear. She was never like this. She always says that she is not good enough, pretty enough and hates herself most of the time. She is the middle child so we always passed it off on her not getting enough attention.
I want my confident child back so I took her off Singulair three days ago.
Her doctor recommended giving her Zyrtec if her allergy symptoms flare up.
March 31th
2008
1:13 AM
My six year old son has been taking Singulair for almost three years for asthma and allergies. We have had such a hard time with him and it all started around the time he was prescribed this drug. He became very irritable, angry, hard to satisfy and generally unhappy. Now that he is six, the last two years have been the absolute worst with him saying he hates himself and just wants to die. He has stomach pain all the time and has had alternating daily diarrhea for over a year. Our pediatrician has done all sorts of tests and has referred us to a specialist. He has bad dreams every night and also complains of leg pain. He has been so depressed lately that he does not even want to go out and play after school and on weekends (not like him at all) and the teacher calls me several times a week to pick him up early because of stomach pain. I am so upset to think all this has been caused by this drug and he has suffered because of it! He also takes Zyrtec, as do all three of my sons, but the older two do not have asthma, just allergies. I gave him his last dose night before last because I just found out about the Singulair investigation. If anyone has any advice it would be greatly appreciated.
-- By momof3jboys | Reply | (3) replies | Private Message me
March 30th
2008
5:06 PM
my daughter is 7 and has been taking Singulair for the past year. she has exhibited many of the symptoms described in these blogs.....she constantly complains of stomach aches and headaches. wakes up at night saying mommy i had a bad dream....(has not done this prior)....her closet door must be closed at all times (new to her)....she cannot have the bathroom door fully closed,again new to her.......she wakes up and does not want to go to school, new to her!!!!!! she also complains of itching, she itches herself to the points of opening her skin.......i had stopped the Singulair this past February and could not believe what a change in her behavior. she had to go back on it after asthma episode and once again i notice her change in behavior. i recently stopped it after she began crying saying, mommy i am a bad person, i did not brush my teeth tonight....the next day i heard the news of the mood side affects and threw the Singulair out!
-- By shaderosco | Reply | (1) replies | Private Message me
March 29th
2008
3:28 PM
Praise the Lord! It is about time. When I read this in the paper yesterday I could believe it. I have been waiting for this to happen for two years now when i decided to take my daughter off this junk. I have told every single person i know what this stuff did to my sweet little baby whom is now 9. She too experienced nightmares, mood swings, anxiety, night sweats, stomach aches, headaches, constipation, urinary problems, leg pains, aggression. She has always been a normal kid for her age. She had always been in dance classes since she was 3 and loved it. Never ever had she been into trouble at school or dance but when she got on this stuff her teacher was calling me at least once a week about her being rude and very forgetful about everything. Her dance teacher told me she looked like she was spaced out all the time. And not listening. I noticed she was having panic attacks in the stores when we would be shopping. She cried and told me"MOMMY I DO NOT KNOW WHY I AM ACTING SO MEAN? I HATE MYSELF. I DO NOT WANT TO BE ME." i cried too and we started praying about it. I posted on this site 2 yrs. ago when i decided to take her off against her ped. advice. She actually got mad at me when she tried to put my younger daughter on it when she was 3. I told her no i was not going to give it to her nor was i giving it to my older daughter any more. She looked at me like i was crazy. And said my girls needed it. I told her i did not like what it did to my older daughter. We do not go to her any longer. It took a couple weeks and my daughter started acting like her old self. I do think it messed her mind up though. Singular is evil and should be off the market. It makes me sick to think back on what it did to my daughter. It was a complete nightmare!
-- By jenniferbombardiere | Reply | (2) replies | Private Message me
March 28th
2008
10:31 PM
I am 30 years old and have suffered with severe allergies all my life. My allergy doctor suggested Singulair in Sept. 03 and I have been taking it ever since. A couple of months later I had my first panic attack and have suffered from these ever since. I also suffer from frequent headaches, stomach pain, dizziness, tingling feelings in my arms and feet and leg pain. I am anxious all the time constantly worrying about things and paranoid. I have been to numerous doctors and had many tests run and they can never find anything. Before taking this medication I had never experienced any of these feelings. I feel like I have lost 5 years of my life and and wasted a lot of money. I wish I had known about these side effects. I am stopping this medication immediately and only hope these feeling will subside.
-- By lilbit7729 | Reply | Private Message me
March 28th
2008
12:10 PM
MY finance is 34 years old and has been on singular for several years. At first we thought she was going through PMS. However there was no relation to her cycle and her severe mood swings. She has had sinus infection after sinus infection and her leg pain is so bad she can't walk at times. All over joint pain she doesn't have arthritis, headaches and severe stomach problems. In her case the cure is worse than the asthma.
-- By bluto | Reply | Private Message me
March 28th
2008
8:57 AM
Wow, i just happened to see on the news that singuilar has these side effects. As i write this i can't stop from crying. My 8 year old son has been on sigular for a year and a half now. He has had fits if rage, feelings of wanting to die, leg pain, stomacher pain, almost every symptom others have had. I would stay up crying at night trying to figure out what was wrong with him or me as a parent. Shame on the doctors who should of known better. I went to his doctors and told them about his behavior and outburst and physical complaints. I was told it;s a phase he going through. My son would tell me his legs hurt when he walked, well i thought it was gowning pains like the doctors said. I am so glad i found this web page. I now know for sure it is the medication. I will now search for a better way to treat his asthma and allergy's. I hope and pray that others will find this web page and know there isn't anything wrong with us or our children, however there is certainly something wrong with our doctors who should of seen the symptoms and told us what it could of been.
-- By laurieaflming | Reply | (5) replies | Private Message me
March 28th
2008
8:50 AM
I have recently brought my 9 year old son to a therapist. His emotional problems have seemed to come out of nowhere the past year. He was always a happy, loving boy who loved to talk to me and his dad but the past year we've seen a big change in him. He's very distant and very sad a lot but he can't tell us why, he seems to not know. He's up a lot at night with nightmares and has a lot of leg pain. We had no idea what to do with him and our concern has grown since he feels he wants to disappear. He actually gets sad enough to want to disappear - how can this be? He's only 9 years old! We saw the report on Singular last night and are mortified, our son started Singular last year and this is when we started seeing the change. I sat and cried last night after finding this website and reading what other parents have went through. We stopped the Singular and are hopeful that we'll get our son back. I will post again in a couple weeks to let you know if he gets better.
-- By confusedmom7 | Reply | Private Message me
March 27th
2008
9:41 PM
I'm in the same boat with so many of you parents. After MY parents sent me a link to the news story, I broke down in tears. My 8 1/2 yo daughter has been taking Singulair (5mg) daily for 5 years.
She is the oldest of 3 and has some emotional issues we've always attributed to her personality: mood swings, rage that will last anywhere from 2 minutes to an hour, over-emotional, and yes, even at age 5 she said she wished she was dead. We were shocked, wondering where in the world that idea had come from. I can't say it was caused by Singulair, but it very well could be a factor. Our other two children just don't have the same issues she has with emotions. As a side note, over the years (and just yesterday as a matter of fact, she has complained of severe leg pain. Again, I never thought that would be a side effect of this medication.)
Lately, her allergy/asthma doc has been prescribing more and more meds for her and we have chosen to not give them to her. We will certainly remove Singulair from her regimen. As a parent, who can we trust? My child can't breathe if she's not on some sort of medication.
I would like to know, as another parent asked, if these side affects will subside once Singulair is discontinued.
I must say that Singulair works to control her allergy-induced asthma, but after seeing the story, reading comments here, and seeing my own daughter's behavior, I don't believe it's worth the risk. She's off this medication as of today!
I'm praying for each of you and your kids!
-- By vegasmom | Reply | (3) replies | Private Message me
February 28th
2008
10:09 AM
My 5 year old son was having problems constantly with his seasonal asthma. His Dr. put him on Singulair and after about a week he made significant improvement and could even run and jump on the trampoline again and then on the 2 week mark, every morning he would get out of bed crying with severe leg pain in both legs and then he went from my sweet spirited, always sharing his things, wanting to play with everyone and make new friends, to cranky, moody, whiney, selfish and sleepy all of the time. He then started complaining of dizzy spells with vision changes such as not being able to see at all when he gets dizzy. His doctor said he needs to see a neurologist but I think it is all caused by Singulair and the doctor made me feel like a bad mother for wanting to take him off of it. he said the side effects would pass. This morning I watched a couple on the news who's son committed suicide after starting Singulair and they were talking about the mood changes, etc. I took all of my sons Singulair and threw it out. Now, I feel like a bad mother for letting the doctor talk me into keeping him on it. I am hoping that he gets back to normal within the next couple of days and I can cancel the appt. with the neurologist.
-- By mommyof31975 | Reply | (1) replies | Private Message me
February 15th
2008
5:06 PM
I have a 8 year old daughter that has been on Singulair since she was 2 years old. When she first started Singulair, she was also put on Flovent (an inhaled steroid), along with Albuterol for what the doctors call reactive airway disease (similar to asthma). Her triggers were allergies and having a cold. Her first flare up of mood swings alerted me to take my daughter off the Flovent. She seemed to improve a little, but still had behavior/moody issues. I had chalked them up to the "terrible twos", and not really thought much of it. As time went on, I became accustomed to the behavior that my daughter was showing. When the few complaints of stomach pains, headaches, and leg pain came along, I managed to explain them away with reasonable explanations (example: growing pains, eating too much, not enough sleep, etc.). As my daughter went off to school, I heard numerous complaints from her teachers that she lacks focus, cannot complete a task in a timely manner, easily gets distracted, and at times (more than not) is a disruption to the class. At home, I noticed a strange "tick" going on with her blinking, the constant need to repeat herself, and the battles with bursts of crying to get her to do ANYTHING. SOMETHING IS REALLY WRONG!!! I was on the edge of having a full work-up of mental tests. I have her see the school social worker weekly and I keep a constant communication with her teacher regarding her behavior. I decided to look up side effects regarding this medication. I first looked at the website for the manufacturer and saw nothing alarming, nothing about behavior affected side effects. I looked into mental disabilities (autism, aspergers, ADD, ADHD, etc.) and saw no common link to her behavior. Then I came to this site and MY JAW DROPPED!! Everything that my daughter has experienced, TO THE LETTER, has been experienced by other children. The weight gain, the occasional pains, the strange behavior. I decided that NOW is the time to act. I have seen my daughter's doctor and discussed my concerns. We are going to wean her off this stuff starting TODAY! Fear of a serious relapse of breathing problems is making us very cautious. I am kicking myself for not making the connection sooner. Wish us luck that this drug has not destroyed her chances of getting better and that this "asthma" can be controlled another way without such serious side effects.
-- By nancy305 | Reply | (4) replies | Private Message me
February 10th
2008
4:49 PM
I was diagnosed with asthma on December 31st, 2007. I'm 29 and have rarely been sick. My asthma came with a terrible cough and I thought I had bronchitis for two months; turns out it was an asthmatic cough. I've been taking Albuterol, Aerobid, an antihistamine, and Singulair to get the asthma under control. I've had tremors and dizziness that I thought were due to the corticosteroid, but when I skip the Singulair for only a day, the symptoms stop, only to continue a couple days after I resume taking the medication. I've also had leg pain that I thought was cramping due to being active, but now I also believe it may be the Singulair. When I was prescribed my asthma meds, I was told to experiment and see which meds work the best for controlling the asthma, and Singulair is not on my list.
-- By magt | Reply | Private Message me
January 29th
2008
11:09 AM
Hi. My eight year old daughter has been on singular for 6 months. She has had chronic stomach pains that she says feel like pressure. Her appetite is terrible. She always says she isn't hungry. I have to search for anything I think she will eat. She is very tall and very thin for her age. She grew an inch in the last year but gained no weight. First time her growth just stopped. No surprise as she doesn't want to eat. I took her to the doc several times and they think she has acid reflux and have given her 2 different acid eliminators ( which freak me out as well) Said she should see a gastroenterologist. We have appointment in March . I started reading this site and thought well maybe it's the singular. So I called her allergist and told them I was taking her off to see if that's why she has the stomach problems. They said I could since it wasn't a big trigger time(seasonal) and she wasn't sick with any cold or flu) She gets mild asthma when sick. Her allergist asthma doc thinks her stomach aches are related to the mucus dripping into her stomach. I have taken her off all meds to try to see if it could be the Singular. She also has been very tired and can't keep up in her dance classes. Her school teacher had to put her in the front of the class because she said she wasn't paying attention. She seems to lose it over anything that requires focus or attention.She also seems kind of depressed. She is worried that something is really wrong with her. This child used to eat normally and is gifted academically .Her tests results(taken while on the Singulair) went way down from last year. She was put in gifted pull out program from last year results but would have barley made it in this year based on her much lower scores. That does not make sense to me. Never has had attention or focus problems before. I will keep everyone posted. Does anyone know how long it might take to get this drug out of her system? Has anyone else had this kind of reaction to this drug? I also wonder whether she had reflux before but this made it worse? I had her blood tested for Celiac and general stuff and nothing showed up.I wanted to get the Singular out of her system before we see the G.I. doctor. anyway thanks, Elizabeth
-- By liznjayne | Reply | (5) replies | Private Message me
January 25th
2008
2:34 PM
My 6 1/2 year old son has been taking Singulair for 6 weeks, and while it has helped with his asthma, the side affects with this medication are too much to handle. He isn't able to sleep through the night, getting up 4-5 times, sometimes more. He's complained of severe stomach pain and leg pain. He's experienced loss of appetite, and has no concentration. Often we get nothing more than a blank stare from him. His teacher has expressed concern over the drastic change in him since going on Singulair. He is not able to pay attention, cannot complete his work and has become disruptive and aggressive. He's fatigued, and has been more emotional than ever. I stopped this medication 2 days ago and he is already sleeping better,and is more relaxed. I am researching alternative treatments for his asthma, and would warn against using Singulair for children.
-- By worried11 | Reply | (1) replies | Private Message me
January 24th
2008
5:39 PM
My son will be 4 next month he was only on Singulair for a month and a half to control his asthma and it has been such a stressful and sad nightmare for me as his mom. He was always been a smart and sweet kid, really calm and had a great attention span now after Singulair I feel like someone took my son and I can't get him back. His behavior is sporadic he has no attention span he can't sit still he has had leg pain, no appetite, not even for his favorite foods. He is about to be kicked out from his preschool because he has shown heightened levels of aggression for no reason and I don't know what to do. The pediatrician tells me that he has been off it for 9 days and it should be out of his system I don't believe it and I'm wondering when my son will be normal again. I feel terrible disciplining him because I feel like its not his fault its this medication that I didn't want to give him in the first place and I regret trusting her because of what its done to my son. There has to be a way to issue some kind of warning or lawsuit against this company this medication is NOT FOR CHILDREN! Please don't give it to your children.
-- By josiahz_mommy | Reply | (1) replies | Private Message me
January 7th
2008
7:16 AM
This is the 1st time I have ever posted anything. My 2 1/2 year old son was prescribed Singulair in conjunction with Zyrtec to help treat allergies and eczema. He has been an absolute nightmare....moody, cranky, tired all the time. He complains of leg pain and belly pain often. I never thought it could be the medication but after reading all of these posts, I think I will take him off the medication for a while and see what happens. I just assumed it was the "terrible two's". It's so hard to judge what is best for your child when their pediatrician and other well-educated doctors are telling you that these medications are safe for your child. You trust them....especially since a young child can't really express how the medication makes him feel other than by acting out, etc. I thank all of you for these postings. It helps to have information from others who are either taking the drug themselves or are going through the same experiences with their children.
-- By cgaffny1 | Reply | Private Message me
January 4th
2008
1:22 PM
I don't typically write on message boards, but wanted to share my story. I wish I knew about the affects of singular before I gave it to our son.
My 3 year old son was put on Singular and 2 puffers at age 2 1/2. He had chronic coughing and croup and seemed to always have throat infections. Our Family Doctor thought it was seasonal allergies, (and because he was under the age of 6 - no allergy testing can truly be done) so she prescribed Singular. As tired parents of a little boy who didn't seem to sleep through the night any longer, we did as the doctor advised and gave him the medication every night.
Almost immediately, his behavior changed from a happy 2 1/2 year old to a child with severe tantrums (we never experienced this behavior before), terrible night terrors to the point we were having trouble with him going to bed at night and him telling us every day he had leg pain. He would cry and hold his little leg - limping. Our son could speak at a very young age, so he was able to articulate his feelings/reactions to us. We thought we were entering the terrible "2's" late, but through our experience and ours alone I am certain it was the singular. After this I decided to check online only to be overwhelmed with similar reactions to this drug. We immediately stopped giving the drug to him. We had noticed that his tonsils were getting larger and larger and they would often have infected white soars over them. Off we would go to the Doctor who told us it may or may not be strep and prescribe antibiotics, he would complete a cycle of antibiotics and within 10 days the symptoms would return. We demanded we see a throat specialist to see if the coughing/sleep apnea and terrible drooling could be caused by his huge tonsils. He progressively stopped eating his favorite foods and would wince every time we served him meat.
We finally saw a specialist and at first look at our little boys’ throat, the specialist said 2 things: 1) "Let me guess, he will only eat pasta?" - which was the case, apparently it was the only thing he was able to eat without pain; and 2) "I do not know how this little boy isn't acting out more, he has to be in so much pain". The specialist explained that every time he coughed or ate, the infected soars on his tonsils would burst causing nausea and pain. Because it hurt to swallow, saliva would pool in his throat causing his terrible coughing fits. He had his tonsils/adenoids removed 3 weeks after our visit (which isn't done as often as it used to be) and he has been PERFECT ever since. He hasn't had 1 cold, he hasn't coughed one night and he is eating/laughing/playing like the child he was before singular. DO NOT TAKE SINGULAR unless they can conduct the proper asthma/allergy testing appropriate for the child's age. They were medicating my child with the assumption that he MAY have it. The reason for his coughing and wheezing was his enormous tonsils. A procedure which was hard to go through with a 3 year old, but he is truly a different child today.
I trust this information will be helpful to parents in the same situation.
-- By proudmama | Reply | (1) replies | Private Message me
December 6th
2007
1:12 AM
Singulair is bad!! I have posted this before in October but just noticed the posting is no longer there??? My son is 4 and had horrible side effects. He has been medically cleared by 3 different physicians and everything leads back to the Singulair. We have a happy loving home, no stress than normal everyday stuff. He does great in his catholic school setting. He literally was as almost as a picture perfect kid as you could get. He was only on Singulair. About 2 months ago things started to happen. Unexplained fevers of always 102 or higher, severe headaches, seeing colors, joint and leg pain, stomach aches, sleep walking, night terrors, bad nail biting habit, depression, extremely emotional, chronic sinus infections, poor appetite, and weight loss. He just simply looked lethargic all the time. He missed school, fun activities and simply started to loose interest in things. I too knew something was wrong. The pediatrician thought I was too a hypochondriac. Then one night he had an emotional break down. He said things no 4 year old should ever think let alone say. Like he wanted to hurt us with knifes, he didn't love anyone, he hated Jesus. All along while crying because he did not understand why he felt this way. He wanted to die he said! I was so devastated. His teacher and our family could not believe the night and day difference in him. He was so happy and such a nurturing child to others. Now he simply had no emotion. You could look right through him. So after several doctors and psychiatrist they have concurred that the Singulair has thrown his Serotonin off. So he now has this chemical imbalance that we are working through with a psychiatrist who our insurance does not cover but is the best. All the other physical symptoms have subsided, he eats like a horse now, and no more nail biting, headaches or fevers. HMM coincidence... I think not!!! I have tried very hard to get the word out. I have had so much response just via private email that my friends have forwarded and so on. This is not isolated incidences. We are just the lucky ones to have discovered this website. Imagine those kids and adults that are still suffering. I work on an ambulance and i can tell you we had a 4 year old boy have a seizure out of the blue with no recent illness or history. Guess what med he was one??? Write every health official, contact the FDA, attorney general. Seriously this is the only way things will change!!
-- By emtjenny | Reply | (2) replies | Private Message me
November 23th
2007
1:53 AM
Hi,
I had a systemic allergic reaction to an allergy injection. I was treated at the hospital with Benadryl and Prednisone. I was told to continue to take both, but still was having problems with sinus inflammation related to the reaction a day later. I saw my Dr. who told me to up the Prednisone and start taking Singulair.
Well I started having side effects worse than the sinus inflammation I originally had within a few hours of taking the Singulair. I totally chalked them up to Prednisone side effects, since that drug has so many issues. But the side effects were different than those listed from Prednisone, and different from the last time I had to take Prednisone for an allergy attack. I had INTENSE head pressure (not just the sinuses, but everywhere), muscle tightness/pressure in my neck muscles and at the base of my skull. I don't know if this was a side effect or not, but I had freezing hands and feet, also VERY cold.. except my face was hot. I also got hot flushes occasionally in my body, like on the backs of my thighs. I also felt "out of it".. very dizzy and slow to respond. I was also very confused by why my sinus inflammation was not really responding to the Prednisone since it is such a strong anti-inflammatory. Well, I stopped taking the Singulair last night after reading this site, and I am feeling back to normal! Even my sinuses have unplugged. I suppose this could all be something besides the Singulair, but I am not chancing it again.
September 20th
2007
10:43 AM
I have been having problems with my heart pounding (much like when a person feels very scared or startled). My dr. referred me to a cardiologist where I underwent several tests and everything checked out fine. In the meantime I developed severe leg pain and hip pain. I was beginning to think that there was no help and I would always feel bad. Someone I know was experiencing the heart pounding and I realized our only commonality was Singulair. I decided to stop the Singulair (been on it for 2 months) to see what happened. The very next day the pounding had subsided. My leg pain is lessening. All of this has changed within three days. I'm beginning to feel more like my old self. This posting site was of great help to me.
-- By acalc1 | Reply | Private Message me
July 11th
2007
11:03 PM
My nine year old son was put on Singulair for asthma on June 20th. On the tenth day on it, he started complaining of pain in his upper thigh. Three days later, he woke up crying with the pain and said he felt like his leg was broken. I knew something was wrong; this was not normal for him. (We had tried Singulair three years ago with him, but it caused bad stomach pains within the first week, so we stopped. The doctor thought maybe he could tolerate it being a little older. Wrong. ) I stopped giving it to him that day and by the next day, the leg pain was gone.
I'm glad for the posts I read here. I feel bad that I gave him this medication a second time, never again!
April 23th
2007
8:34 PM
I started singulair in 2003. It seemed like a miracle drug! I had no asthma until feb. 2007.I had really bad asthma I had to start using my pulmo-aid again. Well since 2003 I,ve had very bad leg pain, neuropathy and RLS. I was a sales person. I walked miles and miles every day. I was in so much pain. I am on darvon. My head has a tremor. My hands are shakey.
I started taking cymbalta for depression And had to quit work.I've been off for 4 months. I lost my health Insurance, I couldn,t afford my singulair I started taking Quercitin. It works really well .It's been about 3 weeks since I stopped taking the singulair and guess what? I had my first pain free day sat.april 20 I've been having a lot less pain in my legs!
August 26th
2009
11:27 PM
I am a 36 year old woman, and I have taken Singulair for the past 8 months. I got a lung infection over the winter, and the clinic I went to put me on the 10mg Singulair. It helped my lungs and got me over the worst of the infection, but I never anticipated the side-effects. For several months, I attributed what I was feeling to hormones (like severe PMS) and the stress in my life. I started to have thoughts of death, especially at night. I also began to have a hard time leaving my house. I would have panic attacks, worrying that the window was left open, the stove was left on, and god forbid there was a dark cloud in the sky (I became convinced that a terrible storm would come). Several times, I nearly got in a car accident racing to get home after work. Then, I started to obsess over getting sick. I was convinced that I would get some terrible disease and die soon. The fears and anxiety got worse and worse until one day (a rainy day), I quit my job of twelve years. It was a good job. I was happy with my work, and I made more than enough money. I ended up moving across the country back in with my estranged husband, because here I would not have to work. I could stay home all the time, away from germs and storms and anything else bad. That was three months ago. Still on the Singulair, I began to obsess over death. The panic attacks were so severe that they triggered asthma attacks, and not being able to breathe triggered more anxiety. I stopped sleeping at night. In three months, I've slept four nights. I began to have nightmares that made me wake up screaming and violently lashing out. I had to urinate 5 or 6 times every night. I developed severe stomach pain and nausea. And I had leg pain (actually, I hurt everywhere, severe pain). I had headaches, dizziness, and fatigue. Slowly, I began to realize that it might be the medicine. I started to research, and yesterday, I took my last pill. Since then, I have not had one panic attack. I have not had one asthma attack. I slept last night with no bad dreams. I know what's happened now, and I'm so sad that I lost so much of my life because of this drug. I really had a good life...friends, a home, a great job... Now, I'm very tired. My body is very weak and still hurting. I'm shaky. But I believe in time, those effects, too, will go away. I feel like my body has been through a war. I'm grateful that I didn't kill myself. There were a couple of really bad days when the urge to be violent towards myself was overwhelming. One day, I punched a fence, making my knuckles bleed. I think I could've killed myself, and I know it was Singulair. It's going to be better now. Just as a note: what helped me withdraw without any major worsening of asthma was Advair 250/50 twice a day.
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