September 12th
2008
12:35 AM
To anyone new to this site whose child is on Singulair and having problems consistent with the adverse reactions to Singulair documented on this site: take your child to the doctor as soon as possible and tell them you believe that your child is having an adverse reaction to the drug. Do not let yourself be talked into believing that Singulair does not have these side effects. Too many of us right here can confirm that it does. Even though the prescribing information for this drug has been updated to include a warning about these adverse effects, and the FDA is conducting an investigation into the safety of this drug, not all doctors are aware and some are simply unwilling to believe. If you hear "anecdotal evidence", "highly unlikely," or "I've never seen it happen" uttered during your visit, know that your doctor is making excuses for not knowing accurate information about this drug.
Doctors may attribute your child's behavior to their personality or developmental stages. But any child on Singulair should be removed from the drug if a consistent pattern of different or abnormal behavior is present. Most children do not fly off the handle for no reason, have night terrors, prolonged, violent temper tantrums, and act anxious, angry, sad, hateful, disconnected, or withdrawn most of the time. Most children do not have behavior problems that consistently leave you feeling like the worst parent in the world and completely mentally exhausted at the end of each and every day.
Tell your doctor that you want them to prescribe another asthma maintanence medication with a documented low risk of side effects. If your doctor trivializes your concerns or refuses to honor your request, FIND A NEW DOCTOR! YOU are the expert on your child, not someone who sees them a few times a year for a few minutes at a time.
After Singulair has been stopped, watch for a positive change in behavior over the course of several weeks. Make sure you have rescue medications on hand in case needed.
Most importantly, GO WITH YOUR GUT. "If something doesn't feel right, then something ain't right!"
-- By zsmom | Reply | (4) replies | Send Private Mail
August 1th
2008
12:31 PM
it is so good to see this! I can't believe I am not the only one suffering with Singulair. I developed what I thought was just bronchitis, and my new doctor put me on a cocktail of respiratory meds... 2 inhalers, antibiotics, steriods, and singulair. Well, I finished the course of antibiotics, and am feeling better. I stopped using one inhaler, because it made my hands shake uncontrollably (I was assured by my doc this was normal). I stopped using the other, because I thought it was making my head feel foggy and making me moody. The only medications I am currently taking are Cymbalta for my panic disorder, and Singulair.
I have been on the Cymbalta for long enough to know that I do not suffer side effects from that (unless I miss a dose). But lately I have been more moody, emotional, snippy, and having almost daily panic attacks! I can't concentrate on a thing, my mind almost feels detached. I also suffer periods of numbness in the left side of my face.
After reading this site and everyone else's stories, I am not taking Singulair any longer! Hopefully some of these effects subside. And now I know to never let my son take it, either. I am so angry with my doctor for not warning me about these effects, not taking into consideration that I already have an anxiety disorder, and just brushing off my concerns!
-- By kristen1983 | Reply | (2) replies | Send Private Mail
June 22th
2008
11:10 PM
I started full body internal itching after taking 10 days of Singulair. The physician that prescribed it said it couldn't cause itching. My new doctor tested for Lupus, I have an autoimmune disorder called Churg Strauss. After undergoing several steroid treatments and 3 days of IV Prednisone I got some relief. This has been going on for 6 months now. The itching becomes severe enough to make me want to commit suicide. Luckily it is pretty controlled by taking nightly doses of Atarax along with Periactin. Thank God I found a doctor who cared enough to search out the symptoms and help me get thru day by day.
-- By debp | Reply | (2) replies | Send Private Mail
June 4th
2008
5:28 PM
st got back from docs,it is clear he is still drinking big pharm koolaid,if someone takes a drug and the terrible side effects dia appear when you discontinue it,it is still not proof it was the drug,oh my the koolaid is potent,if you read a side effect you will properly get it, oh my oh my,Have i ever seen the paper work involved with reporting a side effect,no but i have seen what happens to a child when you don't report.Needless to say i am looking for a new doctor,one not under the influence
-- By flindy | Reply | (2) replies | Send Private Mail
April 2th
2008
9:33 AM
Here is some perspective for you all. I take Singulair and do well on it and in ACTUAL studies it has one of the safest safety records. Understand that post marketing reporting does not mean there is a correlation between the event and the product. Throughout the life of a drug the companies must disclose any report of side effects reported to them REGARDLESS of causality. A popular antihistamine that is OVER THE COUNTER also has suicidal thinking/behavior listed in its post marketing section. However, just because patients who had reported having these thoughts while taking the product doesn't mean it was a result of the product! Maybe they had a depressive personality and were also on multiple other medicines to treat that. You must look at the "Adverse Reactions, Warnings and Precautions" sections of package inserts to see the side effects that were actually seen in studies. You can die from ulcers derived from over use of aspirin or ibuprofen. Decongestants can throw off your blood pressure and these events are documented in actual studies! Listen to your bodies when taking any med. If you feel differently report it to your doctor.
These are all drugs people, there are potential side effects. There are also side effects to those "natural" over the counter remedies that are not nearly as regulated by the FDA or studies by the drug companies.
To anyone out there who has experienced side effects to singulair timed to when you started it, talk to your doctor, stop taking it and see if it goes away. Same advice for any product prescription or over the counter medicine. Side effects can be a combination of many factors (what other meds are you taking?) But understand for many people this product is the safest and most effective treatment for them. The FDA and Merck are reviewing all information to see if there is any correlation to the reporting. But singulair been around for about 10 years and prescibed to billions of people and is known to be one of the safer medicines out there overall.
In between the legitimate posts on this site I get the sense there is a lot of ambulance chasing going on. People looking to cash in on this big drug companies. We want drugs, we want them cheap and with no side effects which is not a reality. Keep stepping up the regulation and make the companies hire more lawers to protect themselves and jump through even more hoops and see what happens to the price and access to new meds. Even better, see how regulation has impacted the development of new medicines around the world (here's a tip, it will dramatically decrease). Drug companies certainly aren't perfect but which industry is?
Please, when taking any medicine over the counter, prescription or herbal supplement listen to your bodies to see if the potential benefits of the product outway the risks or side effects. Report any changes to your doctor.
-- By bachaman | Reply | (15) replies | Send Private Mail
March 28th
2008
9:14 AM
I have been experiencing the same disturbing symptoms that were described in the report...depression, laziness, unmotivated, extreme moodiness, etc. I have been on an antidepressant for the last year and have tried to stop taking it several different times without success because the symptoms return within days.
I tell all of you this so that you know I know what you're going through. But I have to admit, the thought of blaming my doctor never crossed my mind. Let's be honest, here. Is it really their fault? If the drug companies didn't realize it was a side effect, how can you expect your doctor to know it? Personally, I trust my doctor and believe that he has my best interests in mind. If your first instinct is to blame your doctor for not knowing the drug was a problem, then perhaps you should find a new doctor because you obviously don't believe he is trying to help you.
-- By dockit | Reply | (1) replies | Send Private Mail
March 19th
2008
10:22 PM
I have severe allergies. They are so bad, my ears hurt and I have massive headaches. I thought I had sinus problems as well. My new doctor said it wasn't sinus problems, but my allergies got worse. She put me on Singulair. It took a week for it to get in my system. It "worked" for about three. But I noticed I had an excessive amount of mucus. I was a mucus making factory. I was not sleeping through the night. I kept getting up, coughing, and spitting up clear, thin mucus. It was horrible. I started taking Mucinex and Pseudoephidrine HCI - but with no luck! My coughing was so bad, my eyes would hurt. I had terrible headaches. All this in a month. I was so dejected, I stopped taking everything but the Singulair. I was still going into fits of coughing! All day, all night - it was affecting my work (I'm a teacher - so I was constantly scaring the kids by erupting into a coughing fit that ended with me spitting up mucus and my eyes watering). My sister had been on Singulair and she told me one of the side effects was weight loss. I guess my coughing and spitting up mucus worried her; she looked at the side effects again. She told me two of the side effects were headaches and coughing. Needless to say, I've stopped taking it. I can't wait until it's out of my system and i can get a good nights sleep
-- By victoriama | Reply | (1) replies | Send Private Mail
March 3th
2008
10:09 PM
I have only been on Singulair for allergies for 4 days. This was added to my Symbicort inhaler (for maintenance) along with a Proventil inhaler (rescue inhaler). About the same time I changed my make-up and facial cleanser. Day 2 of the new meds...Singulair and Proventil I have developed a breakout of hives all around my mouth, jawline, chin, and upper neck under my jawline. I seriously thought it was the makeup and soap until I read some of the posts here.
As for other side effects, only a headache but that seems to be after the Proventil puffs.
I am 30 y/o and only recently found out that I have asthma and severe allergies and probably have my whole life. The last 7 years have been hell, with one "upper respiratory infection" after another.
Thank goodness I found a new doctor who took the time to find out what was really wrong with me, but I am upset that he prescribed the Singulair, as he should be aware of the side effects.
As of tomorrow I am done with this drug and we will see if the hives go away. I do not want to get to the point that some other patients have gotten to, with the stomach pains, moodiness, etc.
I only the last year got the depression and irritable bowel syndrome under control and do not need a relapse.
Thank you to all who post and God bless.
-- By kpage97 | Reply | Send Private Mail
This registry is a place to share positive or negative side effects of using Singulair. If you directly experienced a side effect while using Singulair, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
September 16th
2008
12:20 AM
IS THIS SITE AN ANSWER TO OUR PRAYERS?
A little while ago less than two hours, after a very emotional, difficult battle with my daughter, we had yet another heart to heart to try to do better. At the end of our talk WE PRAYED for guidance to know how to help the situation. So I'm here looking for a link to her behavior fron the ADHD medication and I see someone had posted about Singulair side effects. I was floored! I have never thought that Singulair was not a safe drug. No doctor has ever mentioned any negative side effects to me regarding it. The more I'm reading about it the more in shock I am. Have I and her doctors been doing this to my daughter? My 12 1/2 yo daughter has been on Singulair for probably 10 years. She was a 28 week preemie and had severe lung issues so it was a needed medication. Her behavior has worsened the older she has gotten. Because of mostly anger issues and problems in school about a year ago she was started on ADHD medications. We are currently trying to find "the right one" . I feel so awful. Could all her misery have been caused by this little pill that was suppose to help her? Why has her pulmonoligist continued to give it to her although she has not had any serious asthma problems in years? I think I will stop all medications and see what happens. My daughter has also been on amytriptylin for about six months also for severe migraines. What do you think? Should I stop all of them cold turkey or gradually decrease one at a time? I would GREATLY appreciate any advise.
-- By bamvanfam | Reply | (6) replies | Send Private MailThank you