May 16th
2008
9:23 PM
This is a follow-up. I have posted about our experience before, but to summarize: 6 year old boy on Singulair for over three years for Asthma. Drug worked wonders, but side effects developed so slowly that we thought those were "phases" that would go away. Side effects were just as everyone else reported: nightmares, fears, depression/sadness (we even went to a child psychologist since we thought this behavior was all due to father's deployment), aggressiveness, crying at the drop off a hat (like a 2 year old, not age appropriate), attention deficit, school performance dropped, and also, at the very end, obsessive compulsive behavior.
We stopped Singulair as soon as we heard about the FDA investigation (on NPR, about 6 to 7 weeks ago). Asthma has not worsened, thank goodness, so we make due with the Flovent for now. Most of the side effects were less prominent after some time, however the obsessive compulsive behavior stopped only a few days ago. We have better days, we have worse days, but slowly the better days outnumber the bad, aggressive, and negative ways.
What I read again and again in the postings is that we all assumed our children entered a bad "phase." A phase that just got worse and never ended!
Reading about the very same side effects in our children, over and over again, alarmed me. Taking my son off the Singulair and seeing the improvements, some faster some slower, totally convinced me. I will never ever have Singulair in my house again.
May 13th
2008
10:32 AM
My daughter has been off of Singulair for about 6 weeks now and is still having "explosive" reactions to minor issues. My daughter's personality is better - no more dark thoughts, etc, but the anxiety/aggressiveness is still hanging on. Anyone having similar issues? We are also still dealing with the OCD behaviors as well. She is 4 and I really think her brain chemistry is still altered. At what point should I recognize that this new child may be my new reality? I would really appreciate any thoughts from those of you that have been off for more than 6 weeks. Are you back to 100%?
-- By freakedoutmom | Reply | (5) replies | Private Message me
April 16th
2008
12:10 AM
My 4 year old daughter has been on Singulair daily for approximately 2 months. We started noticing some minor changes in her behavior early on (shyness, separation anxiety, anger, moodiness) but chalked it up to starting a new pre-school and arguing with her older sister. Then about two weeks ago, she started having an obsessive-compulsive type behavior about wiping herself. My first inclination was that she had some type of infection (yeast, UTI, bladder, etc) but all of the tests came back negative. My doctor told us to stop the Singulair, so we have been off for about a week now, but the OCD symptoms haven't lessened. I would say that some of the other behaviors are improving somewhat, but I am not seeing a "whole new kid" effect after being off for one week. Has anyone had a similar experience with OCD type behaviors? I am beside myself with concern! Thanks for any help.
-- By freakedoutmom | Reply | (8) replies | Private Message me
April 14th
2008
10:40 PM
Hi, I have written on this forum before. Our son (6) was on Singulair for over 3 years for Asthma. Over those years, his whole personality changed; it happened so slowly, however, that we assumed that those changes were "phases". We stopped Singulair 16 days ago, and we have seen big changes in our son. Thus, I want to summarize our side effects by describing the changes in my son:
Suddenly no more fears (nightly waking up scared to death, and fear of being alone in any room in the house during the day), sleeping through the night, less agitated and less aggressive, better listening skills (again!) and more interest in learning (this was a child that once loved science and did math at age 3. He lost interest in anything that had to do with learning). He draws happy faces again. He is also less nervous. He lets us hug him again, and tells us how much he loves us.
Some days are better, some days are worse. There are times he still tells me that he wants to "throw himself in the trash" and other negative things about himself and his life. We also still see obsessive compulsive behavior (a tic where he touches his head and then his legs from his feet up, driving me crazy), but it is slowly getting less severe. But overall the changes are very clear.
As for the Asthma: we still use Flovent once a day: so far we had no setbacks. Our doctor noted the side effects, but was rather surprised about them. Obviously, I will NOT EVER give my children Singulair again, no matter what the doctor will tell us.
April 8th
2008
10:12 PM
This is an update. We took our son off Singulair 10 days ago. We continue with Flovent once a day, and the asthma has not deteriorated. My son's overall mood has gotten better, he is less aggressive and became very verbal about how much he loves us. He is still emotional but not as much as before: while he still wants to cry at the drop off a hat, he manages to stop himself after 15 seconds. That is a huge improvement. Things are by far not back to normal, but overall I see my old son shining through.
However, we still have an issue with obsessive compulsive behavior. We have an appointment with our pediatrician this Thursday.
March 1th
2008
8:20 AM
Okay- A friend just emailed this site to me, my son is 4 and has been taking Singulair for about 2 years. He has seasonal allergies which seem to be year round, asthma and food allergies. He is on Singulair and Allegra daily, this in it self freaks me out. What I have noticed for at least the past year is that when he is running around or moving a lot he hold his right side and says he has a pain in it, we now call it a "stitch". it happens not from strenuous activity, our doctor just says its growing pains, that doesn't make sense. something is bothering him it happens with somewhat frequency. I am really thinking about his behavior, it seems to me he can change on a dime. from happy to very angry, outbursts and then right back to sweet, yes this could describe any 4 year old, but not any 4 year old is on Singulair. I remember saying to him where is my sweet boy? I feel like that might have been when we started the meds, i am so used to his behavior now that it seems almost normal but there was a time he acted differently. and i do remember saying that.... was it when he went on Singulair???
-- By stevensmom | Reply | (4) replies | Private Message me
September 2th
2008
12:49 PM
My eight year old son, who has asthma and has been taking Singulair since he was three, has been off Singulair for four days and is becoming a completely different little boy! He has always been a "difficult child" with intense emotional reactions to things, anxiety, oppositional behavior, a short fuse and bad temper. He has also displayed obsessive/compulsive behavior. His father and I never thought that his behaviors and symptoms were caused by Singulair. His pediatrician never suggested it. With a family history of anxiety, we just assumed it was the way he was. At four, his preschool requested he be tested for ADHD. The testing revealed a short attention span but not a diagnosis of ADHD. As he got older his symptoms grew more intense. Last year we considered taking him to a psychiatrist but decided to "wait it out" one more year to see if maturity would bring an end to some of the behaviors. It didn't and in fact they grew worse. He became aggressive, explosive and depressed.
I recently began taking Singulair for another medical condition and had noticed that it made me a little moody. Last week, on the verge of making an appointment for my son with a psychiatrist, I started to wonder if maybe he was reacting in a similar, yet more intense way to the Singulair. I reviewed the patient information on line (I had read the patient info for Singulair when my son started taking it, but had not done so in years. I learned a tough lesson: check the information that accompanies prescriptions each and every time I get a refill.) When I read what the "less common side effects" were I was convinced that my son was reacting to his medicine. Then I found this website. We stopped his Singulair immediately and within two days began seeing a dramatic change in our son. He was less high strung, defiant, and explosive. Yesterday we had a cookout with some friends and he played with other kids all day without fighting for the first time in his life! He even cooperated when we asked him to help us get ready for company.
I strongly believe that this medicine should not be given to children and teens. I am so upset that when I asked my son's pediatricians about his behavior TWICE last year, they never mentioned that Singulair could be the problem. I called today to tell them he wasn't taking it anymore and the nurse said that she would note that he is "allergic" to it in his chart!
We are exploring alternate and natural ways to treat our son's asthma. I will NEVER give him Singulair again!
FYI: the labeling for his albuterol inhaler states that "safety and efficacy have not been established in patients under 12 years old". His pediatrician has been prescribing albuterol inhalers since he was three!
Does anyone have information about herbal inhalers and naturopathic treatment of asthma? If so I would like to hear.
-- By zsmom | Reply | (2) replies | Private Message me