June 13th
2008
11:23 AM
Who administers this site? I posted a side effect last night after I registered and then this morning I got an email saying there was a reply to my posting and when I tried to log in, my account was inactive and my posting had been removed, as had the reply to my posting. I don't know if it is because I put a link the an online reporting tool where the FDA is compiling feedback from people/or their children who have experienced terrible side-effects. Here is the link again and I urge you all to report your cases: http://www.fda.gov/cder/drug/early_comm/montelukast.htm
My son is 3.5 and has been on Singular for 2 months and just like all of the other stories about the other young children posted here, he is a different kid after being on Singular. Last night was the first night I took him off of it. All of the side-effects that are mentioned here are the same ones my son is experiencing, nightmares (screaming in the night), hyper, aggressive, reliving injuries from days past, the day care telling me that they now have concerns about how different he has been lately and the even used the term "bad behavior". They said he is hyper, he screams, not listening, aggressive. He is a favorite at day care since he is so loving, polite and kind. I know all parents say that, but pretty much anyone who has met him compliments me on how well behaved he is. I am even nervous to have people over since he seems out of control and I have found myself ensuring people that he isn't normally like this. I have taken him off as of last night and I am hoping he will get back to his old happy-go-lucky self soon. Does anyone know how long it can take to get this poison out of their system? I pray that there are no permanent side-effects.
-- By ryager11 | Reply | (6) replies | Send Private Mail
April 27th
2008
6:47 AM
I am a 56 year old man who has been suffering of asthma for several years. This spring my doctor put me on Singulair as an additional medicine to my cortisone-inhalator. After one month I have the same experience as many here has told about - depression and periods of "swinging mood", ups and drastical downs.
AND - a growing problem with feeling in my fingertips, seem that with accelerating speed i am loosing feeling in fingertips and now even the hold fingers and parts of my hand, which feels "cold".
Anyone here who recognize these symptoms?
March 31th
2008
9:30 AM
i have been taking singulair for the last 9 years. i started taking it when i was in the 6th grade and i am now in my second year of college. i have had suicidal thoughts since the 6th grade and have gone through some periods of severe depression. i was hospitalized this past fall for an attempted overdose. I've never been able to figure out what causes all of these horrible thoughts, but i keep trying to fight them back. in the fall, i just couldn't battle anymore. i never ever would have linked any of this to the singulair though until my sister just told me about the stories being published in the news right now. if it's true, the timing of the onset of my suicidal thoughts would make a lot of sense. that bad thing if it's true, is that it really does work extremely well for asthma so now I'm going to have to find another medicine because i don't want to continue taking Singulair if that has been affecting my mood.
-- By haley123 | Reply | Send Private Mail
March 30th
2008
7:12 PM
I have been on Singulair since I was in the 5th grade and no one could figure out my strange behavior, and now it all makes sense. When I was younger every time I took Singulair I had reactions similar to ADHD, but my mother just thought of it as a normal thing for a child to have extra energy. After these ADHD episodes I would be completely wiped out. I kept to myself in middle school and became obsessed with death. Many would say I was anti-social. The ADHD episodes lasted well into my early high school years until my dosage was doubled to 10MG from 5MG. then it seemed as though everything fell apart I became extremely anti-social, isolating myself from everyone including my family. There were many days where I simply did not speak a word, until the point where my voice was so weak it croaked. I wanted to run away from everyone, I wanted to be alone. I would cry myself to sleep many times, I even started to cut myself, and developed an eating disorder. I hid everything because I didn't know why I felt the way I did. I was afraid that because I didn't know people would think I was crazy. In my junior year I started having suicidal thoughts, planning how I would commit such an act. Luckily for me I started to rebel to what my mother desired for my life. To continue my rebellion there were periods when I stopped taking Singulair. The suicide thoughts slowly diminished but were still present. I started to take Singulair again during my senior year and close to graduation I was about to commit suicide. I felt like I was about to explode. I started to skip dosages until my mother realized I stopped taking my medication again, and she monitored my intake of the medication. Starting college was hard for me not academically but socially and emotionally. I hated going to school. There were times where I would sit in class and wanted to burst out crying. It got so bad that I started to hand papers in late and not hand in any at all, to skipping classes and walking around town until it was time to go home. No one really paid attention to how I felt because they just said that I felt that way because I was a freshmen in college. But I felt that it wasn't so that what I was feeling was getting worst. I couldn't concentrate in class and I was not sleeping well, often only sleeping 2 hours before going to school and starting my day. This semester I have rarely taken Singulair and my emotional well being has increased. I don't know if this is all just some kind of coincidence or if Singulair really does have those effects on people. I hope that the FDA is able to figure it out, but at the same time we should ask ourselves if they would really remove something from the market that is bringing in over 4 billion dollars a year???
-- By aiincounter | Reply | (1) replies | Send Private Mail
March 30th
2008
5:52 PM
I have been taking Singulair for at least 10 years, most of which on a daily basis. I had severe stomach pains and nausea for a period of time, went through a lot of testing and other medications all of which did not help and was at times limited to eating saltines. I also experienced anxiety attacks and depression. The depression would be on and off for periods of time. I attempted suicide several times. Only within the past 3 years, 3 years in which I was not taking my Singulair regularly (limited the Singulair to a few days at a time when I had asthma attacks or respiratory colds), was I no longer suicidal. I am not blaming these symptoms on Singulair but it is no surprise to me if it was the cause, as it was the only medication I took daily in that time period.
-- By youngasthmatic88 | Reply | Send Private Mail
March 28th
2008
6:06 PM
I had been on singular for 10 months and have gained 40 lbs. and retention of water in my calves and ankles. I spoke to my doctor but that fell on deaf ears. He told me that they are not side effects of singular. My eating habits are the same, if anything I have never eat better due to the weight. I had been thin all my life - maybe too skinny. I am 49 years old. Also, due to the weight and water retention I have started a health club with no weight loss. I went off the singular 3 weeks ago, my calves are back to normal, but still have the 40 lbs. Anyone have any advised. MK
-- By mod1227 | Reply | (2) replies | Send Private Mail
March 28th
2008
12:56 PM
I have a 12 year old son who has been on Singulair off and on since he was 10 years old. It wasn't until he started taking Singulair on a daily basis in 2007 that I saw a change in his personality. I thought it was due to him starting Junior High. He has always been a loving and mild manner kid.
He started having strong mood swings. Yelling, crying, back talking and being very rude and hateful. Then he would go through periods of depression. He wanted to sleep all the time. Wouldn't come out of his room for days.
He complained of Headaches and Stomachaches all the time. He said he had bad dreams and he couldn't sleep.
He even told his dad at Halloween he wish he could be like his costume (which was a skelton) DEAD!! Hearing those words come from my child's mouth broke my heart. Knowing that he could feel such sorrow and pain.
It wasn't until I read the Singulair article that things started making sense to me. I can't believe as a parent that I was giving my child a medication that could have caused him to take his own life. You could imagine how I feel right now. I stopped giving the Singulair. I'm hoping that he will go back to the loving and happy kid he was before this medication took over his body and mind.
And it's not only my son...My nephew who is 6 has been on Singulair for 2 years and he has become very emotional. He has outburst of anger and he is very short tempered. He has bad dreams and cries for no reason. I shared the information with my Sister-In-Law and she stopped the Singulair as well.
I hope my story helps all you parents that haven't heard the truth about Singulair yet. Be Safe!
-- By melfittro | Reply | (2) replies | Send Private Mail
January 29th
2008
11:09 AM
Hi. My eight year old daughter has been on singular for 6 months. She has had chronic stomach pains that she says feel like pressure. Her appetite is terrible. She always says she isn't hungry. I have to search for anything I think she will eat. She is very tall and very thin for her age. She grew an inch in the last year but gained no weight. First time her growth just stopped. No surprise as she doesn't want to eat. I took her to the doc several times and they think she has acid reflux and have given her 2 different acid eliminators ( which freak me out as well) Said she should see a gastroenterologist. We have appointment in March . I started reading this site and thought well maybe it's the singular. So I called her allergist and told them I was taking her off to see if that's why she has the stomach problems. They said I could since it wasn't a big trigger time(seasonal) and she wasn't sick with any cold or flu) She gets mild asthma when sick. Her allergist asthma doc thinks her stomach aches are related to the mucus dripping into her stomach. I have taken her off all meds to try to see if it could be the Singular. She also has been very tired and can't keep up in her dance classes. Her school teacher had to put her in the front of the class because she said she wasn't paying attention. She seems to lose it over anything that requires focus or attention.She also seems kind of depressed. She is worried that something is really wrong with her. This child used to eat normally and is gifted academically .Her tests results(taken while on the Singulair) went way down from last year. She was put in gifted pull out program from last year results but would have barley made it in this year based on her much lower scores. That does not make sense to me. Never has had attention or focus problems before. I will keep everyone posted. Does anyone know how long it might take to get this drug out of her system? Has anyone else had this kind of reaction to this drug? I also wonder whether she had reflux before but this made it worse? I had her blood tested for Celiac and general stuff and nothing showed up.I wanted to get the Singular out of her system before we see the G.I. doctor. anyway thanks, Elizabeth
-- By liznjayne | Reply | (5) replies | Send Private Mail
This registry is a place to share positive or negative side effects of using Singulair. If you directly experienced a side effect while using Singulair, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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August 1th
2008
12:31 PM
it is so good to see this! I can't believe I am not the only one suffering with Singulair. I developed what I thought was just bronchitis, and my new doctor put me on a cocktail of respiratory meds... 2 inhalers, antibiotics, steriods, and singulair. Well, I finished the course of antibiotics, and am feeling better. I stopped using one inhaler, because it made my hands shake uncontrollably (I was assured by my doc this was normal). I stopped using the other, because I thought it was making my head feel foggy and making me moody. The only medications I am currently taking are Cymbalta for my panic disorder, and Singulair.
I have been on the Cymbalta for long enough to know that I do not suffer side effects from that (unless I miss a dose). But lately I have been more moody, emotional, snippy, and having almost daily panic attacks! I can't concentrate on a thing, my mind almost feels detached. I also suffer periods of numbness in the left side of my face.
After reading this site and everyone else's stories, I am not taking Singulair any longer! Hopefully some of these effects subside. And now I know to never let my son take it, either. I am so angry with my doctor for not warning me about these effects, not taking into consideration that I already have an anxiety disorder, and just brushing off my concerns!
-- By kristen1983 | Reply | (2) replies | Send Private Mail