October 31th
2009
10:56 AM
My 10 yr old son has been on this medication for 3 months - it helped his symptoms right away. Just in the past week we had a couple days without it when we ran out. He started back up again and has had bad nightmares twice this week and told me that he doesn't sleep well at night. My question is - are their other drugs out there that work as well as this one that do NOT have these side affects? Zyrtec just made him tired.
-- By meghanrae | Reply | (1) replies | Private Message me
October 13th
2009
7:27 AM
for about a week I can not read the replays to people's posts. Can it be fixed please? My son is on week four being off singular. There are good days and bad. Hopefully we are heading toward more good. I think what I have noticed is he does better with extra sleep and vitamins.
-- By numberonemattieman | Reply | (1) replies | Private Message me
September 22th
2009
7:03 AM
I am 30 years old and have bad allergies. My doctor gave me a week worth of singulair as a sample. I took it last night. I woke up at 5 am thinking and worrying about the smallest things. I couldn't fall back to sleep. At the same time, my stomach is killing me... I feel like throwing up and have bad diarrhea... I will not take it anymore.
-- By manee2822 | Reply | (1) replies | Private Message me
September 17th
2009
11:25 AM
I took my daughter (14yrs old) off of Singulair 2 nights ago after being in the ER. She's been taking this drug for 3 years off and on. We were told she had asthma 3yrs ago and now yesterday after taking the Methacholine challenge test, she doesn't have asthma. Talk about being confused and angry. Over the last three years my daughter changed into a very anxious person, couldn't sleep at nights, very vivid dreams that made her surround herself with pillows thinking her dreams were real, sadness, chest pains, tingling in hands, arms & legs, knee pain (could be sport related?) and a very short fuse. I came across another website and then this one about the side effects of this drug and immediately took her off. She has slept better the last two nights but still has a little chest pain (indigestion), which I hope subsides soon. This has been a terrible stress for her and the whole family and I'm praying being off this drug will help my daughter restore her self confidence and happiness in her life.
A.
September 11th
2009
2:17 PM
I went to my doctor last tues 'coz of shortness of breath. She found nothing & told me maybe i have anxiety. Told me to continue taking Singulair however since taking it last Saturday until now I still have the shortness of breath plus i couldn't sleep at night, i felt that I'm going to cry. After reading some of the experiences in this site I will stop using Singulair tonight & see what happens.
-- By anne0303 | Reply | (2) replies | Private Message me
September 6th
2009
12:36 PM
I started taking singulair about one week ago and I started not sleeping well , waking up at 4 or 5 am focusing on stupid things like what I had forgotten to buy at the grocery store. I first thought I was pregnant since I suffered major insomnia during my first pregnancy, took a pregnancy test and after seeing the negative results started asking myself what could cause that, that is when I realized I started Singulair about a week ago. I will stop it today and see if I sleep better. I am allergic to dust mites and dust, it is pretty bad sometimes and it will give me asthma. I was using an inhaler before (Alvesco a couple times a week) and did not experience any insomnia. The doctor told me Singulair was very similar but it would also take care of my sinuses. It works really well for the sinuses and the asthma, but I rather have a stuffy nose, no asthma and sleep well. I am very surprised to see that some of you have been using that drug for so long after having so many side effects... and with children too...it is really scary
-- By choup35 | Reply | Private Message me
August 18th
2009
9:06 PM
Our 2 yr old son was prescribed Singulair for allergies by his ENT. He did great for a month. then started waking up more often at night, talking in his sleep. Never a fussy child unless he was sick- suddenly whining, protesting, acting out of character. Screaming when he didn't get his way. I threw away the pills the night he woke with a blood-curdling scream climbing the walls in his room- hallucinating that there were bugs crawling in his room. His pupils were dilated, heart was pounding and he was scared to death. A friend warned me early on, told me of her daughters behavior problems from the drug and told me of this website. She is doing great on Allegra. My son was to go off the Singulair in a couple weeks of our stopping the drug anyway, hoping he wont need any further treatment.
-- By cgwaltney | Reply | (1) replies | Private Message me
August 17th
2009
10:49 AM
My eldest son was diagnosed as a Severe Asthmatic at the age of 3. He was put on Flovent 110, 5mg of Zyrtec and Singulair. I cried thinking about my little guy having to be on daily meds for who knows how long. I decided that I would just try the Zyrtec and Flovent 110, it worked wonderfully. When my eldest was 4, my other son, 2, was put on Flovent 44. Never gave them to my youngest because I knew it was not asthma. I ended up lowering my eldest's dose to the 44 and giving him 1 puff a day with the Zyrtec, he is now 7 and is still under control. As for my younger son, he was not asthmatic, he had sleep apnea, had his tonsils and adenoids removed and is now perfect. Just be careful with these doctors, they seem to diagnose these little ones too quickly......most of the time they are not even right. My eldest went through many many doctors before he was finally diagnosed in the ER and sent to peds for 2 weeks. My youngest went through many doctors too, none would do anything, I had so many excuses as to why my son was such a heavy breather and why he had difficulty swallowing and sleeping. Sorry guys, I ran off here, just want you guys to know that all that are diagnosed with asthma do not necessarily have asthma and I believe way too many drugs are prescribed for these little ones.
-- By tweety111982 | Reply | (1) replies | Private Message me
August 17th
2009
9:22 AM
My son has been on singulair for 4 months now to control his asthma. It has done wonders in doing what it was intended to do, however, he's experiencing all of the side effects that the other parents are listing on this site. I threw his singulair in the trash a few nights ago after my son had a complete emotional melt down; which I could easily see he had absolutely no control over. I knew the drugs were changing his personality a bit, but I thought it was just the price we had to pay to keep him out of the hospital. My gut told me never to give him the meds because I had heard about the suicidal tendencies associated with the drug, I just knew I had to watch my son closely (plus he's only 3). I have 3 boys, and the one with asthma is my mild mannered, never gets in trouble, as close to perfect as a child can be. He's been saying "poop" and "pee" uncontrollably along with aggressive behavior toward his brothers and he would cry for no reason at all. His sleep patterns had changed as well, which I now know are due to nightmares - I even found him hiding under his bed a couple of times. I do not know why this drug is approved for children, but after reading the other stories I realize this seems to be the standard instead of the exception. I hope they pull this drug off the market before any more kids get hurt. I feel like I have poisoned my child - I will definitely be spreading the word on this. Anxiously awaiting for this medicine to leave my sons body so I can have my sweet little boy back.
-- By jab135s | Reply | (4) replies | Private Message me
August 16th
2009
2:24 AM
Hi, my name is M. I just got up with my son Jo Jo as usual about 2:00 pm. Nightmares--severe. Leg and foot pain. In fact I thought he was having restless leg syndrome and the doctors had him tested for seizures. His moods are horrible. Tantrums have been out of this world. After two years of sleep deprivation for both of us, something said look at side effects of Singulair. Actually, I believe that something was God because as I massaged my son's legs I prayed. I came to the computer, found his website and saw my son's symptoms written out clear as day. We are done with Singulair. Forever. I just walked back to the room and apologized to my sleeping son. I can not tell how horrible I feel as a parent for my child to have suffered so. I also can not begin to describe the relief I feel right now. My son has enough problems without medication causing him to suffer. I have suffered as well. As a single parent I have to work but I am often sleepwalking through my days. Thank God for all of you who posted. You have saved my son's health and quality of life. And mine. Thank God!
-- By michellethemother | Reply | (1) replies | Private Message me
July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me
July 27th
2009
10:41 AM
Just finished reading the posts and I feel like it was written about my 8 year old. I never connected the two issues of anxiety, frustration doing schoolwork, quick to tears and leg pains. I kept telling them they were growing pains. Last night he called me from his father's and said he has suicidal thoughts... not that he wanted to kill himself, just couldn't stop thinking about it... good lord. After months of dealing with him not wanting to go to bed and not feeling safe we have an answer. I told my ex husband to stop the medication today, I will post back after a few weeks to update the progress. I usually never post randomly on the internet, but this site might have just saved my son from emotional turmoil!
-- By seg874 | Reply | (3) replies | Private Message me
July 16th
2009
2:00 PM
My 11 year old son started singular in March of 2009 for exercise induced asthma. Within weeks he started having symptoms of heartburn - which he had never had before. I brought him back into the dr. mid June- they said wasn't related to singulair and actually increased his does from 5 mg to 10 mg. Since increasing his does, he started experiencing, daily headaches, stomach pain, leg cramps, night sweats w/ shaking & overall FEAR. Last night he was in tears - he kept saying there is something seriously wrong with me - I can't stand feeling this way he was afraid he was going to die and didn't want to go to sleep.
Last night I did my own research and found this board. THANK GOD!
He didn't take his singulair last night & he never will again.
I called his dr. this morning to tell them I think he is having negative side effects from singulair. They actually told he it was "HIGHLY UNLIKELY" his symptoms were related to singulair and NOT TO STOP USING IT. They instead said I should start giving him pepcid. I told them he had stopped it - for good and that we need a plan B for is exercise induced asthma. Looks like my plan B is finding a new Dr. that isn't in bed with Merck.
Has anyone had any experience with a NATURAL approch to controlling exercise induced asthma?
-- By kearney4 | Reply | (4) replies | Private Message me
July 14th
2009
10:38 AM
We put our 3 year old son on Singulair 2 weeks ago for allergies. It seemed to be helping him. He is a very mild mannered kid that has never been an aggressive child and never bites or hits. In the last 4 days his mood has changed, and he has bitten 2 kids at school, hit one kid, bit and hit his grandpa, has been waking up with nightmares and has been very clingy to me (his mom). After reading the side effects of Singulair last night we contacted the pharmacist and told him what has happened and he told us to take him off the Singulair immediately and contact our Pediatrician. I am waiting for a phone call back now. I am saddened that a medication for Allergies can cause such a personality change.
-- By k9guru | Reply | (2) replies | Private Message me
July 9th
2009
9:42 AM
I am so grateful for this website. I found it in early of 2008. At the age of 11 my son went on Singular for mild asthma. He started taking it in November of 2007. Slowly we noticed different complaints he was having. The first was that he couldn't sleep. He was having nightmares. This had never been a problem. He started losing weight. He was complaining about leg pains and headaches every day. By February 2008 he had lost 15 pounds. This is drastic for an average weight 11 year old. They did blood work and everything came back normal. He started bruising very easily and all the other complaints were still there. His mood was very irritable and he is the most quiet gentle child you will ever meet. With new aches, bruising and the weight loss we were getting very frightened. They did a cat scan and more blood work in early April. Still, thankfully, they found nothing. No terrible disease or cancer was found.
When I saw this website and the posts with similar side effects we took him off Singulair. The symptoms went away. He gained back the weight he had lost and each day the symptoms starting going away. Things have been great every since. I can't believe a medicine did all these terrible things to my child.
-- By healthy123 | Reply | Private Message me
June 30th
2009
3:42 AM
My 4y/o son has asthma that was not well under control, so the doctor put him on Singulair and Flovent about 2 months ago. In the first few weeks, he started having severe leg pain. He would be up at night crying. I would massage his legs till he went to sleep. He also started soiling his underwear with small thick amounts of stool multiple times a day; despite the fact that he has large soft bowel movements at least twice a day. His asthma has been well controlled since the start of the medicine. We stopped the Flovent 1month ago to see if the Singulair would continue to control his asthma, which it has. We adjusted his diet, since the doctor attributes his stooling to constipation, which has not helped. He is now frequently peeing his pants and frequently complains of arm and leg pain which comes on suddenly and seems to last for 5 to 15 minutes. I am going to take him back to the doctor for a full check up to rule out anything more serious, such as a spinal tumor, but till then I am going to stop the Singulair and see how things go. I wanted to stop it as soon as the incontinence started, but was afraid of his asthma flaring back up. Is flovent causing anyone's kids any issues. My son also seems to be having trouble getting his words out.
-- By tara77 | Reply | (1) replies | Private Message me
June 25th
2009
5:25 PM
hi i am 39 year old male from uk just stopped taking singular 10mg
been on this drug for about 3 years now side effects have been bad circulation in my legs can only sleep about 2 hour at night then get up
again find it very difficult to get off to sleep feel tired alot of the time my eczema never seem to heal like it use to i cant see no difference with my asthma since being on this drug.
my side effects are tiredness ,rash,irritable,weird dreams and bad circulation in my legs
June 21th
2009
6:26 PM
My 4 yr old son was recently put on singulair for his asthma.
He went from being a little boy who settled straight down to sleep at night to a boy who was running around his bedroom very hyper and not being able to sleep at night. After a week of this we started to give him the singulair tablet in the morning and this resulted in him getting in to trouble at school and becoming very aggressive. After 2 weeks he is now completely off singulair and I have my happy little boy back!
May 5th
2009
9:30 AM
A GP have me 8 Singulair tablets to trial for my 4 year old daughter to see if her night time cough would improve....(to determine if she may be asthmatic like me.) A month back I gave her a tablet at bedtime over 4 nights or so. She had a virus at the time, so I didn't think too much about her waking in the middle of the night very distressed, inconsolable etc. Tonight I gave her a tablet before bed, as her cough was quite persistent & I thought it may help her sleep. Well, she's woken up twice in the last 2 hours crying in her sleep and very distressed. Exactly the same way she did a month ago. I've just done a search of side effects and found this web page. Very interesting....I think the drug has definitely caused her to have night terrors and definitely won't be giving it to her again!!!
-- By hoops119 | Reply | (1) replies | Private Message me
May 4th
2009
12:35 AM
I started taking Singulair 6 months ago. My allergies even with medication and immunotherapy were becoming unmanageable. My larynx would swell up and close my throat and make breathing difficult. I had trouble breathing at night laying down to sleep, my voice was hoarse most of the time. Within 2 days after starting Singulair, those symptoms totally disappeared. I thought it was the answer I had been looking for. I've had a lot real problems in the past few months with crying and sadness, but with my Mom in hospice with Alzheimer for 14 years, and my father breaking both hips last year, my mother-in-law with vascular dementia, and an insulin defendant diabetic, and losing my job due to outsourcing, and other stressors in my life, but II thought my sadness was all of this stress. Counseling wasn't really helping and I've got a new counselor now. In the past couple of months, my mental state has become more and more fragile; I have times that I wish I could go to sleep and wake up in a couple of months or just go somewhere and be left alone. I am angered easily; I have always been happy and easy-going. I cry daily and don't get out much, and I'm afraid of the unknown now. I feel like my self-esteem is in the toilet.
Tonight I have stopped the Singulair. I'm afraid because I know the allergy problems will return, but I'm hoping that I'll be able to manage them somehow. I have 'a lot on my plate' right now, but at least if I stop the Singulair and I feel better mentally I'll know it was the drug and not my life.
-- By apharmlady | Reply | Private Message me
May 2th
2009
4:39 AM
i posted on April 27th, on April 23rd, i stopped taking singulair, so i am here to UPDATE. after i stopped taking this death trap of a medicine, i already am seeing changes. i actually am breathing better then i have the whole time i was taking singulair, i can sleep through the night, and no HORRIBLE nightmares. jsut some normal ones, if any. but i feel like all the problems it has cause on my mental stability are still there, im guessing its going to get worse before it gets better with that. its really hard. now, me and my mom are starting to wonder if i ever had asthma in the first place, or if my dr. some how diagnosed me while i had a slight case of pneumonia. because the first time i was tested i was only breathing 60% of air, and even the nurses said i should be dead, or in an emergency room and she never not once, checked to see how my asthma was for 2 years. i honestly feel like i have been robbed of my life. its so hard to know something so little and simple, can have such a evil effect on you. because if i didn't have asthma i have been taking singulair for 2 years without needing it at all. imagine what that could have done. now im just so scared to sleep, because im scared i wont wake up. everything in my life is suffering and i don't feel like i have the strength to keep living the way ive been, im so scared every second, i am constantly checking my pulse, and now its even worse because i stopped the singulair. i already sent something to the FDA, and all that, but i doubt they'll listen. someone asked me a couple days ago "aren't you glad you at least found out your not alone" and i said "no, no one should ever have to go through what im going through, especially little kids". i feel like no one understands truly how hard this is, because its just an asthma medicine. this killed my mind, my spirit. and i don't know if ill ever be the same care-free person i once was. im constantly scared of everything, i always feel like no one wants to be around me, i just don't know. but not he positive side, im also not as weak, or tired during the day. i can actually bend down or reach up without feeling like a 98 year old women. my body is doing a lot better. its just my mind i really want back. i repost in a couple days, and hopefully everything will be a little better. PLEASE DO NOT TAKE SINGULAIR. i honestly think that, if it doesn't effect you at first it will in the long run. even if its 10 years later, you will start to slowly see something happening. just don't take it. i don't want anyone to feel, the way i do.
J.
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 28th
2009
1:47 PM
I was prescribed singular on Friday for my asthma and allergies - I took the first dose on Saturday night - slept like a baby and felt really great Sunday (the best I'd felt for a long time!) but that changed Sunday night - after taking my tablet I went to bed - it took me until 4 am to finally fall asleep because of the noise in my ears and this overwhelming feeling of unrest in my mind and body. Around 4.30 am I apparently woke my daughter by leaving my bedroom sleepwalking - I even managed to change the top I was wearing before loudly opening and shutting my bedroom door then walked half-way down stairs turned then went back to bed - I'm 44 and never, in the whole of my life, walked in my sleep! All day Monday I just didn't feel myself like the world was an overwhelming place to be! I didn't take the next dose but feel absolutely drained and on edge - I'm told it'll take a few days to completely leave my system - wish I'd never even tried it!!!!!
-- By lighter123 | Reply | (1) replies | Private Message me
April 27th
2009
12:43 AM
i am really glad i found this site, and got to really understand what may be my problem. its the SINGULAIR, i really believe. i will share my story so no one has to go through what i have been going through. (i just stopped my medicine a day or two ago, so i will repost and see if i start seeing changes in my behavior) well first off i am 19, and i started taking singulair when i was a senior in high school, so about 2 years ago. i didn't see any noticeable changes for awhile, except for probably a year now, a little more or a little less. for this whole time, i have not been sleeping, i wake up 3-4 times a night, fully awake and can never fall back asleep for hours. its almost like my body tries shutting down, but my brain never does, i have the craziest dreams, most of them are me suffocating or not getting enough air, which are really scary. I have been having really bad anxiety, panic attacks, basically i have been just feeling like i am going to die every second of the day. the feeling of being trapt inside my own body. it seems like every month it just gets worse and worse. i cant focus, i don't go to school, i don't work, and i believe its from the side effects of this medicine. i also always feel so tired, and so weak, i cant even look through a clothes rack without my arm aching. i have been having a hard time breathing, which is odd seeing its supposed to help me breathe, i have been sick at least once a month, through this whole time i have been going to my Dr. at least twice a month or more, telling her my symptoms, i even went in their one day crying i was so scared. and she just kept telling me, its probably all in your head, this, that and the other. she even put me on probably 10 different medicines trying to see which one would help. and of course none of them helped anything. I started thinking, and feeling like i was going crazy, what was wrong with me? i wondered constantly. For a couple months now, i figured i had to take it into my own hands to figure out what was wrong, seeing this Dr. doesn't seem to understand me. I looked up every disease or problem imaginable, and had blood tests done, but every thing came back normal. i didn't understand what was going on, every month i just feel worse and worse, lately i have been telling my mom i just want to die, that i cant keep living my life this way, of course i would not do this for the fact that i couldn't do that to my mom or my little sister, or anyone, but it feels like it would be easier then dealing with everything i have been. along with everything else i was/am feeling, i also feel a lot of hate toward myself, i feel like i am not good at anything, and i feel very ugly, sometime i don't even want to leave my house, because i just feel disgusting. Finally, a couple days ago, my little sister which is 10 and really smart i may add, was watching TV and they happened to have a commercial for SINGULAIR. she told me that everything i have been saying that was wrong with me (she hears me complaining a lot about all my problems to my mom) were all the side effects from SINGULAIR. of course i wanted to know more about this even though i have taken this medicine for awhile without any of these problems, i started researching and realized that all of my symptoms happened to be the side effects from singulair. and then i started reading other peoples stories about it, and about linking it to suicides and everything. i told my mom and i told her i wanted to stop the medicine right away, at least just to see if this is what it was all along. i haven't taken it for 3 days now i believe, and i already see a difference, i actually get tired now instead of staying up reading till 5 in the morning, and i haven't been waking up at all during the night. i am pretty angry that my dr. couldn't figure this out, or at least maybe even think about it. for awhile i thought i was honestly going crazy, i lived in fear for so long that something was extremely wrong with me, that i haven't lived my life the way i should of, or wanted to. i never thought that it was just the EXTREME side effects of this medicine. i am so thankful for my little sister listening to all my complaints and all my anger toward myself, and actually putting it together that it would be my medicine that was supposed to make my asthma better. as i said its only been a couple days and i already feel better, i will repost to tell you if im back to my "normal" self after being off this medicine for a longer period of time. i feel so grateful for my little sister, who would have guessed she would tell me what a Dr. couldn't even think about. i really feel that if i get back to my normal self, i really have her to thank for saving my life. <3
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 10th
2009
12:18 PM
i posted here in march 2008. i'd been taking singulair for about 8 years. at the time of my post i'd quit that and allegra and some other allergy/asthma meds. within weeks i noticed huge changes. one year later i can say i am far less depressed, i have been sleeping much better. i'd only been sleeping one or two hours at a time for all those years. my cholesterol went from 243 to 192 within months. i'm trying more natural ways of dealing with my asthma, and i'm willing to suffer with the allergies to some degree rather than use any more meds. i'd have to say that the best thing that's happened from quitting singulair has been sleep. i used to say sleep was overrated. now i'm thinking i love that i often sleep 4-6 hours at a time and if i wake up, i go right back to sleep. my sleepwalking has been so much less. i used to do it 4 to 6 times a week. now only maybe a dozen times in the past year.
anyway..just wanted to say i'm really glad i found this website and woke up to the dangers of singulair.
March 30th
2009
3:12 PM
I already had experienced some bad side effects due to singulair with my daughter. She had become moody, emotional, having nightmares and those are just a few to mention. However, my son had no side effects. When I went to my children's pediatrician, she agreed some children do experience some side effects like my daughter was having. But somehow she didn't see it as quite a concern. I vowed then and there to take both my children off it. Then my son continued having his allergies and over the counter zyrtec didn't seem to help him. I went back to the dr. and because I trust her and have known her for many years....she convinced my to put him back on singulair since he had never had any previous side effects. Well, its been maybe 2 months and now I see my son acting strange. He is not himself. The normal activities he used to enjoy don't interest him anymore. For the last few days, he has been wanting to lay down and he says he's sleepy. To me, he is acting like someone who is depressed and he's only 5!!!!!! I am taking him back to the dr. and taking him off this horrible drug! For all you parents out there...I think we should all go with our "motherly" instincts and do what we think is best for our children. We are the ones that know our children on a day to day basis..not the doctor's. So I am kicking myself for not sticking to my original instincts. My daughter improved drastically! Even her teacher noticed a difference. Please if you notice something, take action before the drug does more damage.
-- By sgarcia91 | Reply | Private Message me
March 26th
2009
7:08 AM
I have been doing a trial and error thing w/ all my meds and I suspect that Singulair may be the culprit in my insomnia. Since I went down on Cymbalta, it has helped but last night I did not sleep a wink. I took xanax even and was up all night. Finally got up at 4.
Singulair has some ingredients that are the same as anti-histamines which have always affected my sleep but I have copd and am afraid to not take it.It is supposed to open your airways and I use Advair which has a steroid in it and I have no appetite. I still gain weight even though I'm not eating much.Dont know what to do. jo
-- By johannas56 | Reply | (1) replies | Private Message me
February 14th
2009
7:01 AM
My son is 8 and for the past 3 years has been on Singular for seasonal allergies. He has since been diagnose with asthma and he takes Singular daily. After being on it for 3 weeks he is now getting into trouble in school. The teachers say it was like a light switch being turned on. Completely out of character behavior. My question is this......has anyone experienced hyperactivity behavior on Singular?
-- By kiwiyard | Reply | (7) replies | Private Message me
February 12th
2009
3:59 PM
Daughter just turned 2, started Singulair on her birthday, so it has only been 9 days. Already it has had such a positive effect on her reactive airway disease (a.k.a. asthma). In January, she had maybe a one-week break from constant runny nose, bad coughing, and 2 a.m. Albuterol treatments. Right after starting Singulair, she got a sniffle--which has always led to bad coughs, etc. But this time she dodged it.
About the same time, she has become more resistant to naptime. She used to just lie down and go to sleep, but lately she stalls and complains--like a typical 2-year-old. Of course, she was probably exhausted from coughing all night! Lately she'd been sleeping 7 pm to 8 am and then napping noon to five!
If it makes her only slightly more intense, I'll take that over worrying whether she's going to suffocate in her sleep. But, having read these comments, I will definitely keep a close eye on her! Pediatrician suggested we try taking her off it for the summer, and back on for the fall/winter.
-- By julesbo | Reply | (1) replies | Private Message me
February 12th
2009
11:59 AM
It seems most people on here are blaming their "side effects" on the medicine. Could you quite possibly have health issues anyway? what about those people that don't take Singulair and have the exact same symptoms? Is it because they are THINKING about it?
It's one thing to be informed about medication. It's another to go overboard.
January 30th
2009
12:37 AM
My son (now 6) was put on Singulair at 8 months old for asthma and has been o it since. He has never had an appetite and is quite underweight. He complains of stomach pains and headaches daily. At age 4 he was sent to a pediatric GI and neurologist and any brain or gastro issues were ruled out. No one could figure out what was wrong. He has sensory issues and just recently was referred to a psychiatrist for occupational therapy. It was at this appointment that it was suggested that the Singulair is responsible and since he has been on it for the majority of his life we were unable to make the connection. He has been off of it for 2 weeks now and has not complained of headaches or stomach pain at all. His eating habits are slightly better, but not great. Hopefully his appetite will improve over time. I wish we had only known sooner. I feel like such a terrible mother!
-- By jilla | Reply | (4) replies | Private Message me
January 15th
2009
3:11 PM
My 6 1/2 year old daughter has been on Singulair for 3 1/2 to 4 years now and we have had horrible experiences! She was having night terrors, mood swings, angry issues, self control issues, crying over small things, etc. We have been to psychiatrists and psychologists who have diagnosed her with mood disorder, sensory processing disorder and anxiety disorder! Well she has recently been having stomach problems so we have been going to a GI to figure that out. I got online to research and found numerous sites that told how Singulair causes all these things in children. We took my daughter off the meds and within 3 or 4 days seen a tremendous difference! She is a totally different child! It just really frustrates me and saddens me that all these children and their families are going through all this and the doctors do not seem to care. The allergist or psychiatrist didn't believe me. They say no study has ever proven such things. I don't care what they say we as parents know our children and we are the experts when it comes to seeing how they change when on this medicine, we are the ones that live with them and are with them everyday not the doctors! I think they just don't want to lose out on their money from prescribing this drug 90% of children with allergies and asthma!
-- By abuckler | Reply | (4) replies | Private Message me
January 10th
2009
10:50 AM
my three year old daughter has been coughing in her sleep for a few months now so her doc prescribed her singulair because he believes she has asthma. now she is grinding her teeth in her sleep as well. i was wondering if anyone else experienced these side effects. she has only been on singulair for 3 days now and it seemed to start that very first night.
e-mail me at ****** if u have any info
December 26th
2008
3:27 PM
When I was using Singulair I had trouble sleeping, then I had trouble waking, even after 10 hours of sleep! I had racing heart rates, headaches often, my blood pressure was high, which it never was before, gained weight, felt like I was often on the verge of tears, mean aggressive and plain old nasty which in unlike me. Would have the craziest dreams or nightmares I ever had. I've been off for several months (10) I've been like the old me for quite awhile now. I had surgery in 2006 and had the usual testing done everything was normal. I am getting ready to have some surgery so my dr. ordered some test, an ekg which came back abnormal, it was explained to me that it was like my heartbeats didn't have a strong beat, maybe a heart attack or something. I never felt or knew anything about this. I am wondering if the singulair did something to my heart. I was on singulair for about 18 months. If it weren't for the ekg I would have never known this problem exsisted. I have no symptoms of any heart problems. I am a 52 year old woman who eats great and exercises daily (since I was in my 20's) . Anybody else have any similar reactions?
-- By xjerseygirl55 | Reply | (1) replies | Private Message me
December 14th
2008
12:21 AM
My three year old daughter was on in as a baby and it was great for her asthma. I stopped it for a year and now she is 3 and has started it again about two weeks. She sleeps at least 12hrs a night and has a nap. This is someone who slept maybe 8hrs a night and never a nap. Actual the sleep is so much its kinda worrying me. I have a hard time even waking her up. What should I do?
-- By aajn4 | Reply | (4) replies | Private Message me
December 9th
2008
8:52 AM
I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?
-- By chevpa1 | Reply | (5) replies | Private Message me
December 4th
2008
7:00 PM
It seems that this subject has been extensively documented, but just wanted to confirm that I believe this drug is very dangerous. We JUST put our 5-1/2 year old daughter on it one week ago. She has NEVER had any issues sleeping, is most often in a great mood, and has been protected beyond belief by my wife from negative imagery, TV, etc. The last week was unbelievable. Night terrors every night, with the most vivid and negative imagery when asked to describe the content of her dreams. Things that I would have thought she must have gotten from watching a Stephen King movie. Given the lack of fitful sleep could have been a contribute, but her mood all week was very downtrodden. Hard to say a 5 year old can be depressed, but I would have to say she was, very sullen, moody, despondent to affection.
I can positively say this was a blind test. We didn't really read the label on the medicine until yesterday, so we were not looking into things that weren't there, nor were we focusing in on the sleep issues. We took her off yesterday, and hopefully I will be able to report that the night terrors that I am 95% positive must have come from this drug will abate.
I hear because the chewable format is new, this drug is really being pushed. I hope this drug is pulled instead of being promoted. Buyer beware, especially administering to kids. I can't imagine if our daughter had been a little younger and not able to express herself to the level she can at 5.
-- By concerned_parent2008 | Reply | (3) replies | Private Message me
December 4th
2008
4:42 PM
My 3 year old is on 5mg of singular daily for her constant allergy issues and has had NO trouble at all with it. Her personality has not changed.. she's happy, outgoing, friendly and MUCH better than she was before she started the medication. Prior to starting she was constantly dripping from her nose, she had both ears filled with fluid, had bags under her eyes and was tired and grumpy all the time, due to allergies we could not get under control with other over the counter or prescription meds. Since being on Singulair she's been 100% better than she was. I'm sad to hear that others are having so much trouble with it, but I can say that I am happy my little girl is feeling better.
-- By joshnabbey | Reply | (9) replies | Private Message me
November 19th
2008
10:16 PM
Oh my gosh. I am on this website because I googled "behavior issues with Singulair" Both of my children are on Singulair. One from as young as 5 months old. Both Pulmonologist, allergist and Internal med Ped. insisted that it was a safe drug. They aren't living with it. My 7 year old has taken it consistently for 5 years and recently upped is having behavior, aggression, insomnia and constant reports back from the teacher on his behavior. We had him psychologically evaluated and they found nothing uncommon to his age. All his issues are described in almost everyone of these side effect threads. I am just afraid to take him off and feel the blame if something serious happens. I am calling tomorrow for possible alternatives.
-- By singulairfingulair | Reply | (2) replies | Private Message me
November 17th
2008
4:55 PM
OK MY DOC JUST GAVE MY 14 MONTH OLD SINGULAIR THE YOUNGEST IVE SEEN IN HERE WAS 2O MONTHS. WHAT WAS SOME OF THE FIRST SIDE EFFECT THAT YOU ALL SOW THAT I NEED TO KEEP AN EYE ON
-- By texasdaddy2099 | Reply | (5) replies | Private Message me
October 23th
2008
6:59 PM
I am a mom of twin boys who are 3 1/2. They were 9 weeks premature so we battled RSV for the first two years of their life. Allergies are also an issue therefore, they were put on Singulair at 10 months old. It really seemed to work for them and things seemed to be going okay but once they turned 1 1/2, their behavior started to change. They were constantly throwing toys at each other, sippy cups at people across the room, screaming for no reason, etc. Some may say it was normal behavior for little toddlers. Then the "terrible two's" set in. They started biting, pushing, screaming over anyone who talks to get attention, not listening and for two kids that slept through the night....all of a sudden that stopped too! My husband and I mentioned it to the pediatrician and also tried to going through the state (developmental clinic because of being premature) thinking that we would get some answers and everyone seemed to think it is a combination of their age and the fact there are two of them....sibling rivalry. We now deal with two kids that use to sleep through the night, now end up in our bed every night to fall asleep because they don't like their room and their erratic behavior is stressing my husband and myself out. When they are good, they are great but when it gets bad....it is a nightmare! I even find it hard to get people to watch the kids because they are too much to handle! After reading these postings I realize I am not the only one with kids going through this and that the common link is SINGULAIR! I am not giving this to my boys ever again and I already put a call into the pediatrician to discuss my findings. I have a sense of relief to know that it is not only my children who's behavior is like this but I am scared because I pray that there is not any long term effects that can not be corrected once this drug is out of their system. I just want my boys to be healthy and okay!
-- By jennchick | Reply | (1) replies | Private Message me
October 17th
2008
10:24 PM
Wow! I can't believe what I'm reading. My son just turned 5 years old. He was put on Singular when he was 2 years old because he constantly had sinus infections. For the past year, I've just used it off and on when he starts to get stuffy. He is very well behaved, but has has trouble with nightmares. He just told me a few weeks ago that he knows that monsters aren't real, but he can't get them out of his head. I know people think I'm a softie because I let him fall asleep with me every night (his dad puts him in his own bed after he's fast asleep), but he is petrified to go to sleep by himself. I didn't understand it, but I could see the terror in his eyes. It all makes sense, now. Sometimes he plays so well by himself in his room, but other times he doesn't even want to go to the bathroom by himself because he's scared. I'm betting he was taking Singulair during the times he was scared to go into the bathroom himself. Unbelievable. We have to get the word out about this drug. I feel like such a horrible parent for not searching for these side effects sooner.
I came to the website to see if Singular suppressed the immune system because he's been getting horrible cold sores in the fall for the past 3 years. It seems to correspond with the time he started taking Singular. I know that Singulair can't cause cold sores, but if his immune system was suppressed, his body can't fight off the virus. 80% of us have the virus that causes cold sores, but most of our immune systems are able to keep the virus in check. During a cold or other illness which compromises the immune system, cold sores can pop out.
In any case, I've already flushed the remainder of his pills. He's also complained of stomach and leg aches. In fact, the docs made him give-up milk thinking he was lactose intolerant but it didn't help the stomach aches. Hopefully giving-up Singulair will help his tummy aches, too.
-- By shawnatubbs | Reply | (2) replies | Private Message me
October 17th
2008
7:08 AM
I also have a child who has been on this drug for about a month and as I sit here and read these blogs the more I am remembering complaints made by my son. He has been getting into trouble at school lately, irritable, angry, sad, leg pains, stomach aches and also having trouble getting to sleep at night. I am an RN and it took me to glance at the pill bottle today to realize that I needed to do a little more research about this drug when I saw that it said "mood changes and depression". I feel horrible because after a great 2nd grade year I was disappointed that he was not behaving as well this year. I know know that the $60.00 wasted and tiring reprimanding was all a waste of my time! I owe my poor son an apology as I will be taking him off of this drug today! More information and advocacy needs to be available especially when core users are children who have little to no voice!!!
-- By kdizz9206 | Reply | (3) replies | Private Message me
October 14th
2008
5:54 PM
Singulair caused terrible nightmares, vivid, evil dreams and tremors. After a while change of personality and aggression, irritability and anxiety. As soon as it was stopped the nightmares stopped and back to being normal. Very dangerous medication. (Adult)
-- By pburneside | Reply | (2) replies | Private Message me
October 13th
2008
6:41 PM
Singular has been recommended to my 3 1/2 year old son. I didn't feel good about it, so I declined and decided to look up possible side effects. Wow! I will NOT be giving it to him!
I have always been cautious on giving him antihistamines because prior bad side effects (which I never heard anyone else complain about).
When he was a few months old, he had cold like symptoms (runny nose, congestion, etc.) and was really suffering. I gave him the over-counter Pediacare and he could breathe better but he became something out of a horror film. He screamed constantly for over 48 hours and did NOT sleep a wink! Like a "crack baby" or something. (I assure you I am not exaggerating). I too became sleep deprived and crazed by his constant screaming, it took me some time to realize it was the meds. When I quit giving it to him, he became normal again. I decided I had to deal with the symptoms and not give him meds.
A year later, different medicine, I tried again. Same results.
When he was 2 1/2 we took a road trip from KY to KS. I thought I would try Benedryl, he had 2 older syblings that it benefited. NOT for him. He became "crazy" and screamed to the top of his lungs for the entire 12 hour drive. I vowed never again (for him or his family).
I have had success with Claritin in less than normal dosing. With no side effects. I have been assured, however, that Singular would work better for the symptoms. No thanks.
I feel really bad everyone this has effected negatively. I understand the side effects first hand.
I too have heard of the "antihistamine blocker" but don't know if it works.
I plan on trying a "nettie pot" (natural alternative) and have heard great allergy success stories. You can get them for about $5 at Walmart.
Hang in there parents! Do what you have to do for your child. Trust your instinks even over the Peditrician. I love Docs but YOU know your child. :)
October 12th
2008
12:10 AM
My 8 yr old has been on singulair since May. I never put two and two together until reading these posts. He has been having anxiety at night..crying and looking terrified saying he can't stop the scary thoughts in his head. Tonight I felt so bad for him...because I can't make it go away. I am hoping with tonight being the last night on singulair he will not have such a hard time at night. He also says it's very hard to get to sleep at night. Poor kid. I also know he's a sensitive kid but it seems a bit overboard in the last few months....like getting upset and just not knowing how to handle his emotions so he just shuts down. Please message me if you've had similar experiences. I'm calling his dr. on Monday to figure out some other options if there is any. My son started with a cough in March and finally took him to see the dr. in May and she heard wheezing and started him on singulair and then added zyrtec. I know they control his coughing (wheezing...slight asthma) because if we miss a dose he coughs all day the next day. I'm a bit scared to go off it...but hope it stops the anxiety and moodiness. He had his first asthma attack last week too...and I wasn't prepared as we never have had to use the inhaler...so I didn't have it with us. Anyway, hoping he doesn't get too bad taking him off...and I hope he is able to control the scary thoughts by going off of it too.
-- By caredock | Reply | (7) replies | Private Message me
October 8th
2008
1:57 PM
My 3 year old son was having trouble with aggressive behavior in his daycare. The head teacher asked if he was on singulair. When he said he was, she said that that might be the cause of his aggressive behavior.
My wife went with my son to Chile for a month. The singulair prescription ran out while they were there, but because it had not been a month before the last refill before they left, they could not refill the prescription before leaving for Chile. The singulair ran out after their third day in Chile. So my son went a month without taking singulair.
And interestingly, his behavior did not change. He aggression was about the same as before. It is only recently, now that he has been developing more language skills and has also been potty training, that his aggressive behavior is for the most part under control. So in our case, it does not seem that there has been a cause-effect relationship between taking singulair and our child's aggressive behavior. He still takes singulair every day and is doing fine. Also, he never experienced any of the problems sleeping that others reported.
-- By jakeweed | Reply | (4) replies | Private Message me
September 28th
2008
6:05 PM
Our boy is 3 1/2 years he has been taking Singulair for several months, but just in the last few weeks he has had a total mood change, obsession on many items, cleaning, separation anxiety, not eating, angry, cant not sleep, Dr. has taken him off, it has been only a week and he is still having some bad effects.
-- By carolynjustin | Reply | (3) replies | Private Message me
September 25th
2008
9:02 AM
This past winter we found out that my son had developed asthma. His allergist /asthma doctor put him on Singulair as his preventative. Not two days later a report came across the news that Singulair has depression as a side effect. I immediately called my son's allergist / asthma doctors and was told that these symptoms have been found ONLY in children in their teens. That they are linking something in the med with hormones and it spawns depression.
Even though this is terrible for the parents of teenagers, my son is 6 years old... the chance of this happening to us was slim. Or so I thought.
One morning, to my horror, two weeks later my 6 year old son whom never really watched anything on television without his parents (with the exception of Noggin programs) is talking about how he wished he was never born. That no one would care if he was to die or disappear. That maybe he should just go to sleep one night an just die..... he was getting so angry for no apparent reason, throwing things and yelling all the time... telling me, his mother (we have always been so close) that he wished I were dead and that he hated me...
Needless to say I immediately called his doctors and they told me to stop the Singulair right away. The doctors were shocked that this has happened to a 6 year old and had filled out reports for the FDA that I had to give detailed descriptions of what happened to my son so they could start warning other parents.
Now, four months later and we have our happy go luck son back. No preventative, but the inhaler is doing the job.
Good luck out there if you agree to put your child on this medication. I understand it does not happen to everyone, I just cannot tell or describe to you how horrifying and traumatizing it was to go through seeing my happy go lucky son become this extremely depressed angry aggressive child within two weeks. We are still battling the aggressive behavior, but hey, he is 6 and that could be normal... right?
September 11th
2008
3:05 PM
Thank you for sharing your experiences with this medication. My 4 (almost 5) yo has been on Singulair for almost 2 years now for allergies. I've noticed over the past few months a slow change in his behavior/attitude, not positive changes. He's become an aggressive, angry child that can be set off in a split second over nothing. He's also getting worse with not wanting to go into other parts of our home alone. He won't even walk down a short hall to go to the bathroom alone - is afraid of I don't know what. Lately, he's also been obviously having bad dreams because he kicks and yells in his sleep. I've just chalked all of this up to his age. While taking a walk yesterday I ran into a neighbor that was telling me the doctors want to put her son on Singulair but because of the possible hyperactivity and other side effects she won't do it. I came home and found this site along with others describing similar side effects as my sons. As of last night, we took him off of Singulair. I'm curious to see if this is the problem. I'll keep you posted.
-- By dominla | Reply | (7) replies | Private Message me
November 6th
2009
8:57 AM
I am starting to think I would like to be a part of a class action law suit, my daughter had to switch schools because of her mood swings, and vague hallucinations. and vague paranoia. She once ran into a parking lot she was so afraid of needles! Took her to a psychiatrist, sensed she was quick to put her on mood stabilizers and left before the eval. Recently her ped refused to up her dose of singulair and told me about depression. I subsequently upped her flovent and took her off her singulair. I did this after I heard her teacher saqy she kept on leaving the classroom to go to the nurse, and was exhibiting defiant behavior. and saying she was depressed, hearing music that wasn't there, etc. Now that shye has been off of it a week, she is a different child, and hasn't argued with me once. Hasn't cried for 5 days. has not argued w2ith her brother either! I feel I have the child back from 5 years ago when she started taking it! unfrigging believable! I would love to sue, because these episodes have almost ruined my marriage, and caused me to miss many days of work, and feel guilty when I didn't Thank-God I just took her off of it on a whim!
-- By sanshir | Reply | (2) replies | Private Message me