Solu-Medrol side effects

My daughter had just about every reaction mentioned above. She was being treated for an acute flare of SLE (Lupus in the worst form.) Not only did she lose her kidneys (19 yrs old, second year in Pre-med at Baylor University. She began seeing strange "black ghosts" while in CCICU. The nurse talked to the Doc, he says oh, its only "ICU Psychosis". What??? She wasn't hallucinating, just strange vision. The came the pressure in her head. No one bothered to call in an Optho, so they did Lumbar Puncture after Lumber Puncture. They released us with the pressures still high. Suddenly, my baby sat up and said "Mother is my right eye open?" It was...I jumped into action, got her to a local doc who sent us running to Houston...my daughter lost all of her sight in her right eye and most of it iin her left, she has no peripheral vision or color in the tiny bit of vision she has. The depression is killing her. Her doctor says "yeah, it happend...200 out of 1000. Can you imagine..all he had to do was has a doc use his little light,look behind her eyes and my precious daughter would be simply waiting on a kidney and then back to medicine. Please don't let this happen to you or a loved one...insist that they call in an eye doctor. Our lives will never be the same.

I was given solu-medrol for an allergic reaction to something unknown. I was given benadryl just prior because of my itching hives.
Immediately after the RN injected the solu-medrol into my IV I started choking, I couldn't catch my breath, I felt as if I had a rush of adrenaline but at the same time it felt like my heart was fluttering. My blood pressure and my heart rate jumped up considerably. I was unable to speak and had a hard time swallowing. My vision was effected and I had light sensitivity, everything suddenly seemed very bright. My thought process was very distracted, I would try to speak and within a second forget what I wanted to say. I had to concentrate extremely hard just to get out a single word.
I also had slight numbness or loss of sensation in my hands.
I don't want to know what would have happened if I hadn't been given the benadryl first! I felt as if someone was inducing brain damage onto me and instantly turning me into a vegetable.

I have MS and FINALLY tried the Solu-Medrol. 3 days infusion and then once a month for the next 5 months. I have been on it for 3 months. The pain in my joints goes away almost completely, though it comes back sooner now than at first. It feels great not to hurt. The metallic taste and bloating is worth it. The first several years after being diagnosed, I would not take it. Now I can hardly wait for my next infusion. I also take Betaseron injections every other day.

I had my first infusion at home 1gram IV at 11am. It is now 9pm and I am having hallucinations of people that are not really there. I'm scared, my heart is racing and I feel like I may faint. I'm thirsty. what should I do, no one to call, if anyone is out there that can help me, please email.

Debbie
******

I had solu medrol 1gm/200 ml infused for 3 days for new MS. First day I became pale and "dead" looking. I had weakness and confusion. Day 2 I was irritable and weaker. Day 3, I was even weaker and began having shortness of breath. Day 4, I woke up feeling like I was drowning. I shuffled as I walked, had a total of 10 pound gain, I was weak and unable to eat. I began to not urinating and had extreme abdominal distention. I could not go to the bathroom. I had to sit or sleep upright. I spent a lot of time sleeping. Day 5 sudden 6 pounds more gain. Had a feeling of death. Heart rate was high..checked in the hospital..BP 90/50. I was so weak that a whisper is all I could do. I spent 3 days in the hospital. Today out of the hospital, I can only eat same amounts. solu medrol caused my system to stop functioning.

Hi, I was looking for a way to describe what it is how I feel as I go through my 3 days. This is the second time that I have done this treatment, if not for my first results I would not have done this again. The first time was a year ago and almost instantly the taste in my mouth was like I had a mouth full of rusted pennies. Then within hours the pain, the pain was so bad it brought me to tears. EVERY inch of my body hurt, having clothes on or a sheet touching me was unbearable. My skin hurt, it did not make any sence to me and I called my Doctor and explained how I was feeling to the best of my ability. I was given sleeping pills to take so that I could sleep through the pain and make it to the second day. It was worse as the 3 days went on, I never thought I would do this to myself again but I had results quickly so when my eyesight started going last week and the headaches were unbearable I chose to try this again.
Yesterday was my first day, I was up at 3 I think because I was worried about the pain, I was not due to start the IV until 9:30. I went and within 1/2 hour of starting the taste was there, 2 hours later my feet felt as though my toes were going to explode. 3 hours after that the pain was up to my knees, throbbing, shooting, knawing at my legs. In another 6 hours it was up to my thighs, I was sure at this point that I could no longer walk every movement I made took everything I had. I laid on my bed and cried. By 2 am, still no sleep and the pain was in the middle of my back, I went and laid in the bath, very hot. I was okay for about an hour and was almost asleep when the pain retuned. I knew I should keep track of what I was feeling but as I tried to explain to my friends today it just does not seem real. They wonder why I would do this but they dont know what it is like if I dont. So as I started my second one today I was so tired and I finally did fall asleep for the last 20 minutes of it. It is now 12 hours later and still no more sleep, so much pain and less than 12 hours before my next and last one. At this point I have had 2 baths, Taken tylenol 3, tylenol and the pain is here. I think I am going to be awake again tonight but I just need to get through tomorrow. I do not remember from last year how long I felt the pain afterwards but I dont think it was more than a few days. I am a single mom with a very active 7 year old and it is so hard to go through this with him. I have been told that I have a high pain tolerance, I have many tattoos, piercings I take copaxone every day and give myself my needle but what happens on this drug is unreal. I know people all experience differnt pain but I cannot imagine anyone not feeling it like this or worse. I know it worked for me the first time and quite quickly and that is why I was ready to go through this again. It is hard.

I TOO HAVE HAD SIDE AFFECTS,BUT LIKE EXSPLAINED ALREADY,I AM GLAD THERE IS THIS DRUG,I HAVE BEEN DIAGNOSED 2.5 YRS AGO WITH CIDP AND I TAKE IVIV INFUSION EVERY MONTH, I USE THE SOLUMEDROL FOR PROTECTION AGAINST THE SIDE AFFECTS OF THE IVIG,( I HAVE HAS ASSEPTIC MENNINGITIS 2 X PRIPOR TO THEM STARTING ME ON THE SOLUMEDROL
I AM ALSO ON BENADRYL FOR ALLERGIC REACTION DURING TREAT WHICH DRIP HAS TO BE AT A VERY LOW RATE STARTS AT 50 DRIPS AND THEY EVENTUALY GET THE IVIG UP TO 125 ,TAKES 5 HRS ,I CANT HAVE IT ANY FASTER ,TO MANY ADVERSE SIDE AFFECTS
LATELY I AM ANXIOUS RESTLESS IRRATABLE, HUNGRY AS ALL GET OUT THE FIRST 4 DAYS AFTER TREATMENT I HAVE GAINED 50 LBS I AM DEPRESSED,AND SO WORRIED ABOUT THE HEPERIN RECALL AS WELL ,THEY USE IT DURING MY TREATMENTS TO PREVENT BLOOD CLOTS
SO IS IT LL WORTH IT ,,WELL WHEN I AM SICK I WOULD SAY NO,,BUT I HAVE ABOUT A 10 DAY PERIOD A MONTH WHERE I FEEL REALLY WELL AND I AM STRONGER AND I DONT FALL ALL THE TIME AND MY NEUROPATHY IS NOT CRIPPLING ME, BUT ARE THE SIDE AFFECTS I AM EXSPRIENCING NORMAL , ( OH I TOOK ASPERIN FOR HEADACHE WHICH IS SO BAD AFTER TREATMENT AND WORSE WHEN SOLUMEDROL WEARS OFF ,I THOUGHT I WAS GOING TO DIE ,NO ONE TOLD ME THESE DRUGS CAN NOT BE MIXED ,MY VISION PREVENTED ME FROM READING ABOUT IT
ANYWAYS THERE IS MY STORY

my bf had an asthma attack and was given a iv injection of solumedrol at the emergency. when we got home he slept for 3 hours then got up in a bad mood. my daughters boyfriend started some arguing with him and my boyfriend was violent. we have lived together for 4 years and NEVER has he even raised his voice. he was irrational and very, very loud. this drug made him very angry and hyper. he said he felt like his adrenalin was through the roof. after work he came home and was calmer but his eyes were bothering him. (all day they bothered him) i will not let him take this injection again. this guy could drink a bottle of tequila and not be loud or violent. he is a very calm man. the hospital said he would have no side effects to really speak of. it took all i had to try to calm him. he also had 5 doses of albuterol inhalation and 3 doses of ipratroprium brom inhaled. could be combo of all, i don't know. but never again solu-medrol

I have not been diagnosed with MS yet but have had 3 bouts of Optic Neuritis and this is the second time they are putting me on 3 day iv 1g solumedrol. I had to taper with prednisone last time and it caused a lot of pain in my knees and alot of anger/crying. I'm on day two of the solumedrol and feel very anxious, strange, crying, leg pain, crazy? I wish I could find an effective way of lessoning these side effects...i'm trying Chamommile tea & vitamins B's at 3am hopefully it will help.

I was on solumedrol for copd 3 days than tapering dose of prednisone.I had extreme anxiety/anger.heart pounding,sleeplessness,contd dizziness, vague unease. off steroids 2 days now,still have side effects to some degree.

This is about my 4th or 5th time being infused w/solumedrol 1 gram for 3 days. I have been diagnosed w/MS for about 7 years. I have experienced joint pain but only when one doctor did not put me on a prednisone taper.
Overall, I am apreciative to the makers of this drug because it allows me to walk, button my clothes, cut up vegetabes for my 13 yr old daughter and my husband. Currently I am on my first day of a three day treatment and already I am experiencing the benefits. I am rt handed and it was tighter and feeling like card board, the same with my chest, back, and right leg. I felt like someone had tied a belt around my chest very tightly. It was hard to breath like a chest was on my chest! I am waiting for the nurse to start my IV at 4:00. I inject every Tuesday with Avonex. I REALLY need this medication to work so that I can drive my daughter to school each Wednesday. She is in Independant Studies because I was having vertigo and was afraid to continue driving. I was given a one day treatment of solumedrol in the emergency room. After treatment vertgo stopped. Yippee!!That was 11 months ago. Hot weather, sunlight exaserbates my condition to the 'enth degree. So here I am again hoping my right foot and right leg will get back to almost normal. People that are infirm are happy to receive whatever relief they can get in order to cope better with an illness even though I know that the only true cure for makinds ills can only come from God's Kingdom, but for now God has giver men intelligence to cure some of the illnesses that we face: Cancer - Chemotherapy (20 years ago killed my mom - hardened her lungs) ; Ads, Polio, Measles, TB and the list goes on there are upsides and downsides and it's a slippery slope, but I LOVE THAT I CAN MAKE THAT CHOICE!!! P.S. I have started using some vitamins ( B12,B6, Calcium (as solumedrol does some bone damage) and Vitamin E

I was taking solumedrol for five days for an acute attack of MS. I was fine throughout the treatment the nurse came out to my home and showed me and my son what was to be done each day. I left the drip set to 104 which took around 2 hours to complete. The only things I experienced during the treatment was having a metalic taste in my mouth and sour burps thereafter, something I found helpful for this was to take tums or rolaids before my treatment and maybe one or two afterwards. I did ask the nurse was that something I was supposed to experience and she said yes. On my 5th day I took my medication and took the IV out. A couple days passed and I woke up one morning to looking like I was reliving my puberty years I mean my face was broke out all over, my forehead, cheeks, chin oh and also my back. I don't know if this is one of the side effects but I am putting it up here anyways. I have never had a break out like that before, my face is clearing up now, my back is up together, but I did notice that on my forehead where the bumps have dried up my skin looks different sort of like snake skin, and my cheeks look as if they have a rash. I think it did have something to do with the medication because like I said I have never experienced anything like this before, and my skin has never looked the way it looks now. Hopefully it will pass. On the positive note the medication did help me out with my attack, and I feel like I am back on track and pretty much my old self again.
Shelvia Harlan

I started on IV Solu-medrol this past Monday for an MS exacerbation. I was on it for five days. Yesterday was the fifth day.

I have had trouble sleeping, heart palpatations and today my face is very bloated and all flushed. The biggest thing I feel is that I am really out of it and feel really tired, but can't sleep. I hope these treatments are worth it and slow down the exacerbation. I went from 4 to 14 lesions in six months and have a new one on my brainstem. I am also on copaxone, so that could be causing the heart palpatations too.

On IV SoluMedrol for 3 days. Have RRMS and was having leg weakness and problems with vision. Steroids caused horrible heart palpatations and shortness of breath, along with nausea and facial swelling, and and increase in temp and facial flushing. Is this normal??

HAVE USED IV 1GM FOR THREE DAY FOR MIGRAINE.FOR TWO WEEKS AFTER I HAVE EXTREME FATIGUE,CAN HARDLY MOVE,MOOD SWINGS, SWELLING ANKLES,LEGS,NECK AND A LOT OF WEIGHT GAIN. I CAN NEVER GET A CLEAR ANSWER ON HOW LOG MED STAYS IN YOUR SYSTEM. I THINK STAYING IN BED WITH A MIGRAINE WOULD BE EASIER THAN DEALING WITH THE SIDE EFFECTS.

I don't know if this is related to recent S-M IV of 1GM/day x 3 days + extended graduated taper off with prednisone.
There is excruciating pain in legs, more left side than right but both. Every atom, waist to toes hurts on maximum volume, in surges and dips of indescribable pain, for hours and hours. Usually back to normal, daily pain level of raw skin with sunburn on waking after so so sleep of 4-5 hours daily.
I have chronic, secondary progressive MS of 14 years. Ambulatory with walker and cane. Also exposed to Agent Orange in heavily sprayed areas of I Corps, Vietnam, 1968-69. I have 100% service connected, permanent and total, combat related PTSD rating.
I am on Methdone and Percocet 3 months, and just started Lorazipam. M&P do not work at prescribed dosages. Yesterday I took 8 10mg Methadone pills and 6-7 5mg Percocet tabs, and it was inadequately bearable, and I barely made it out alive, again.
I'm going to the VA soon to see what they say, but I would greatly appreciate any advice some nice, knowledgable person may take the time to give.
Thank you