June 12th
2007
3:53 PM
I was taking solumedrol for five days for an acute attack of MS. I was fine throughout the treatment the nurse came out to my home and showed me and my son what was to be done each day. I left the drip set to 104 which took around 2 hours to complete. The only things I experienced during the treatment was having a metalic taste in my mouth and sour burps thereafter, something I found helpful for this was to take tums or rolaids before my treatment and maybe one or two afterwards. I did ask the nurse was that something I was supposed to experience and she said yes. On my 5th day I took my medication and took the IV out. A couple days passed and I woke up one morning to looking like I was reliving my puberty years I mean my face was broke out all over, my forehead, cheeks, chin oh and also my back. I don't know if this is one of the side effects but I am putting it up here anyways. I have never had a break out like that before, my face is clearing up now, my back is up together, but I did notice that on my forehead where the bumps have dried up my skin looks different sort of like snake skin, and my cheeks look as if they have a rash. I think it did have something to do with the medication because like I said I have never experienced anything like this before, and my skin has never looked the way it looks now. Hopefully it will pass. On the positive note the medication did help me out with my attack, and I feel like I am back on track and pretty much my old self again.
Shelvia Harlan
April 10th
2008
5:24 PM
I TOO HAVE HAD SIDE AFFECTS,BUT LIKE EXSPLAINED ALREADY,I AM GLAD THERE IS THIS DRUG,I HAVE BEEN DIAGNOSED 2.5 YRS AGO WITH CIDP AND I TAKE IVIV INFUSION EVERY MONTH, I USE THE SOLUMEDROL FOR PROTECTION AGAINST THE SIDE AFFECTS OF THE IVIG,( I HAVE HAS ASSEPTIC MENNINGITIS 2 X PRIPOR TO THEM STARTING ME ON THE SOLUMEDROL
-- By awilmot2003 | Reply | Private Message meI AM ALSO ON BENADRYL FOR ALLERGIC REACTION DURING TREAT WHICH DRIP HAS TO BE AT A VERY LOW RATE STARTS AT 50 DRIPS AND THEY EVENTUALY GET THE IVIG UP TO 125 ,TAKES 5 HRS ,I CANT HAVE IT ANY FASTER ,TO MANY ADVERSE SIDE AFFECTS
LATELY I AM ANXIOUS RESTLESS IRRATABLE, HUNGRY AS ALL GET OUT THE FIRST 4 DAYS AFTER TREATMENT I HAVE GAINED 50 LBS I AM DEPRESSED,AND SO WORRIED ABOUT THE HEPERIN RECALL AS WELL ,THEY USE IT DURING MY TREATMENTS TO PREVENT BLOOD CLOTS
SO IS IT LL WORTH IT ,,WELL WHEN I AM SICK I WOULD SAY NO,,BUT I HAVE ABOUT A 10 DAY PERIOD A MONTH WHERE I FEEL REALLY WELL AND I AM STRONGER AND I DONT FALL ALL THE TIME AND MY NEUROPATHY IS NOT CRIPPLING ME, BUT ARE THE SIDE AFFECTS I AM EXSPRIENCING NORMAL , ( OH I TOOK ASPERIN FOR HEADACHE WHICH IS SO BAD AFTER TREATMENT AND WORSE WHEN SOLUMEDROL WEARS OFF ,I THOUGHT I WAS GOING TO DIE ,NO ONE TOLD ME THESE DRUGS CAN NOT BE MIXED ,MY VISION PREVENTED ME FROM READING ABOUT IT
ANYWAYS THERE IS MY STORY