August 22th
2008
12:12 AM
I had my first infusion at home 1gram IV at 11am. It is now 9pm and I am having hallucinations of people that are not really there. I'm scared, my heart is racing and I feel like I may faint. I'm thirsty. what should I do, no one to call, if anyone is out there that can help me, please email.
Debbie
******
April 10th
2008
5:24 PM
I TOO HAVE HAD SIDE AFFECTS,BUT LIKE EXSPLAINED ALREADY,I AM GLAD THERE IS THIS DRUG,I HAVE BEEN DIAGNOSED 2.5 YRS AGO WITH CIDP AND I TAKE IVIV INFUSION EVERY MONTH, I USE THE SOLUMEDROL FOR PROTECTION AGAINST THE SIDE AFFECTS OF THE IVIG,( I HAVE HAS ASSEPTIC MENNINGITIS 2 X PRIPOR TO THEM STARTING ME ON THE SOLUMEDROL
I AM ALSO ON BENADRYL FOR ALLERGIC REACTION DURING TREAT WHICH DRIP HAS TO BE AT A VERY LOW RATE STARTS AT 50 DRIPS AND THEY EVENTUALY GET THE IVIG UP TO 125 ,TAKES 5 HRS ,I CANT HAVE IT ANY FASTER ,TO MANY ADVERSE SIDE AFFECTS
LATELY I AM ANXIOUS RESTLESS IRRATABLE, HUNGRY AS ALL GET OUT THE FIRST 4 DAYS AFTER TREATMENT I HAVE GAINED 50 LBS I AM DEPRESSED,AND SO WORRIED ABOUT THE HEPERIN RECALL AS WELL ,THEY USE IT DURING MY TREATMENTS TO PREVENT BLOOD CLOTS
SO IS IT LL WORTH IT ,,WELL WHEN I AM SICK I WOULD SAY NO,,BUT I HAVE ABOUT A 10 DAY PERIOD A MONTH WHERE I FEEL REALLY WELL AND I AM STRONGER AND I DONT FALL ALL THE TIME AND MY NEUROPATHY IS NOT CRIPPLING ME, BUT ARE THE SIDE AFFECTS I AM EXSPRIENCING NORMAL , ( OH I TOOK ASPERIN FOR HEADACHE WHICH IS SO BAD AFTER TREATMENT AND WORSE WHEN SOLUMEDROL WEARS OFF ,I THOUGHT I WAS GOING TO DIE ,NO ONE TOLD ME THESE DRUGS CAN NOT BE MIXED ,MY VISION PREVENTED ME FROM READING ABOUT IT
ANYWAYS THERE IS MY STORY
September 9th
2008
10:38 PM
I have MS and FINALLY tried the Solu-Medrol. 3 days infusion and then once a month for the next 5 months. I have been on it for 3 months. The pain in my joints goes away almost completely, though it comes back sooner now than at first. It feels great not to hurt. The metallic taste and bloating is worth it. The first several years after being diagnosed, I would not take it. Now I can hardly wait for my next infusion. I also take Betaseron injections every other day.
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