April 18th
2008
1:34 AM
Hi, I was looking for a way to describe what it is how I feel as I go through my 3 days. This is the second time that I have done this treatment, if not for my first results I would not have done this again. The first time was a year ago and almost instantly the taste in my mouth was like I had a mouth full of rusted pennies. Then within hours the pain, the pain was so bad it brought me to tears. EVERY inch of my body hurt, having clothes on or a sheet touching me was unbearable. My skin hurt, it did not make any sence to me and I called my Doctor and explained how I was feeling to the best of my ability. I was given sleeping pills to take so that I could sleep through the pain and make it to the second day. It was worse as the 3 days went on, I never thought I would do this to myself again but I had results quickly so when my eyesight started going last week and the headaches were unbearable I chose to try this again.
Yesterday was my first day, I was up at 3 I think because I was worried about the pain, I was not due to start the IV until 9:30. I went and within 1/2 hour of starting the taste was there, 2 hours later my feet felt as though my toes were going to explode. 3 hours after that the pain was up to my knees, throbbing, shooting, knawing at my legs. In another 6 hours it was up to my thighs, I was sure at this point that I could no longer walk every movement I made took everything I had. I laid on my bed and cried. By 2 am, still no sleep and the pain was in the middle of my back, I went and laid in the bath, very hot. I was okay for about an hour and was almost asleep when the pain retuned. I knew I should keep track of what I was feeling but as I tried to explain to my friends today it just does not seem real. They wonder why I would do this but they dont know what it is like if I dont. So as I started my second one today I was so tired and I finally did fall asleep for the last 20 minutes of it. It is now 12 hours later and still no more sleep, so much pain and less than 12 hours before my next and last one. At this point I have had 2 baths, Taken tylenol 3, tylenol and the pain is here. I think I am going to be awake again tonight but I just need to get through tomorrow. I do not remember from last year how long I felt the pain afterwards but I dont think it was more than a few days. I am a single mom with a very active 7 year old and it is so hard to go through this with him. I have been told that I have a high pain tolerance, I have many tattoos, piercings I take copaxone every day and give myself my needle but what happens on this drug is unreal. I know people all experience differnt pain but I cannot imagine anyone not feeling it like this or worse. I know it worked for me the first time and quite quickly and that is why I was ready to go through this again. It is hard.
April 28th
2008
6:37 PM
I had solu medrol 1gm/200 ml infused for 3 days for new MS. First day I became pale and "dead" looking. I had weakness and confusion. Day 2 I was irritable and weaker. Day 3, I was even weaker and began having shortness of breath. Day 4, I woke up feeling like I was drowning. I shuffled as I walked, had a total of 10 pound gain, I was weak and unable to eat. I began to not urinating and had extreme abdominal distention. I could not go to the bathroom. I had to sit or sleep upright. I spent a lot of time sleeping. Day 5 sudden 6 pounds more gain. Had a feeling of death. Heart rate was high..checked in the hospital..BP 90/50. I was so weak that a whisper is all I could do. I spent 3 days in the hospital. Today out of the hospital, I can only eat same amounts. solu medrol caused my system to stop functioning.
-- By starf6hnfl | Reply | (1) replies | Private Message me