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350 Side Effects posted for Synthroid

June 18th
2009
4:39 PM

I've had my thyroid removed in 2006 and since then I've been on medication, i was ok first and i thought i was ok until now. i had leg pains that woke me up from my sleep and i went to doctor and couldn't figure out why i was having this pain, i thought i had restless leg syndrome or sciatic but doctor said no. now i'm reading all your side effects and I'm in shock, i had no idea that it can cause to leg pain. also I've change my medication to generic (because of insurance issues) since then i guess my itching started. i thought i had allergic reaction to food or bugs or something and i went to allergist of course nothing came out. now I'm reading the side effects of this medication, it can cause hives, rashes, itching and even urticaria which i have right now. i went crazy to find anything in my house to find a bed bug, spider, flea or anything that can make me itch like this. the other side effects that I'm having are hair loss, red/hot face. i can not believe all these symptoms are actually side effects to a medication supposed to make me feel better. whoever says that's they find it weird that this medication has this many side effects, we are not crazy. this effects are real and so many of us has them.

-- By tatacim | Reply | Private Message me

June 13th
2009
1:43 AM

I was diagnoised with thyroidism 3 months ago and have been on synthroid. My throat is still very sore as it was before I was diagnoised. Why, I thought thyroid meds was supposed to correct the problem??

-- By bobannl9535 | Reply | Private Message me

June 12th
2009
3:56 PM

I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.

The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.

-- By levels | Reply | (1) replies | Private Message me

June 12th
2009
9:24 AM

Hi everyone! Well, I was just diagnosed with Hyperthyroidism..The doctors say it is really bad ..they prescribed 10 mg of Tapazole..I am trying to get as much info - loaded as I can because I already know that I have to fight my own doctors to keep them on their toes...however, I do believe after all I have read so far ..I may be beat before I even start the fight...It appears I may have had this for a little while ...I have been so sick....serious vertigo...My head is not mine at all...I live in virtual unbalance...always floating...and the heat from the sweats is killing me..then there is the freezing although I refuse to let that bother me..I am tired all the time and get the vertigo every time I try to do anything strenuous and even if I just get up from bed or sitting position....I have some nausea..I refuse to let depression set in although It tries real hard...but I laugh at all my sickness as much as possible and just ask Is there anymore..I am sure I haven't got enough..haha....bring it on..I have been really sick before with the Meniers but this is just as bad..Of course I have Meniers disease, Fibromialgia, and am Peremenopausal...among other smaller problems..so it was really hard to discover thyroidism...I think I got it all....My throat was not swelled ..just throbbed and gave me serious headaches all over my face and especially in my ear....It was hurting so bad and was terribly sore to swallow or even turn my neck...but they did the test and I had one more disease to add to my growing list...go figure...why not ..I am thinking...I am very miserable..and don't trust doctors at all...they like to play to many games with peoples lives...what can I do..I am getting lost..I don't want to live like this..I want someone who really cares...Is it really to much to ask..

-- By sipsy | Reply | Private Message me

June 10th
2009
2:44 PM

I have been on Synthroid .2 for 31 years. Recently I had to add 3 half doses to what I already take. About 10 years ago I experienced rapid weight gain, 40 pounds, in two months. The doctor's reply, "I highly doubt that!" I literally got up one day and could not fit into my clothes. I don't know why doctors discount the drug for this symptom and for anxiety. It seems to me the adrenal gland would be affected by these hormones in some way which could cause stress symptoms. I called the manufacturer and they said they have no knowledge of Synthroid causing weight gain. Perhaps we should all contact the company and REPORT our side effects.

-- By jb2mh | Reply | Private Message me

June 10th
2009
2:13 AM

My entire life I've been very sickly many doctors thought thyroid but I guess my numbers always came back normal and test never lie right... My levels were finally abnormal at age 21 and I was diagnoised with Hashimoto's Thyroiditis last week. Just started Synthroid right away and my breathing is better then it has been in a few years. Doctors had no idea why my breathing was so horrible in the first place since I only have mild asthma. They just heard the wheezing in my throat and in my chest and knew something was wrong. They knew I needed an amount of breathing medication that was pretty much killing me and the E.R gave me even more then I'd take at home. Only a week of being on synthroid I'm now only taking what a severe asthmatic would take daily. Thats going to be like 100 vials less then what I was on by the end of the month!!! I don't know if I will stay on Synthroid because of the side effects I'm having that maybe I won't have on another type of medicine. We'll see I guess. But I Thank god for Synthroid without it I wouldn't be here right now. We had no idea it would even do anything for my breathing...I wasn't even prescribed it for that. I've learned now though to do my own research because doctors don't know it all especially General Doctors. Sometimes it's correct to raise the dose to get past the hyper swings of hypo sometimes it's an overdoes causing it....it's crazy. Anyway I wish all others with thyroid problems good luck your not alone.

-- By schlipfy5 | Reply | Private Message me

June 2th
2009
6:14 PM

Has anyone had problems with their eyes on this medication, my have been going blurry and then I get a terrible headache.

-- By hmurphy | Reply | (1) replies | Private Message me

May 31th
2009
3:57 PM

Synthroid saved my mental well being and my life. When you first go on this medication, you can absolutely feel out of whack. First of all your body has to increase it's metabolism and is too tired to do it. It takes time for the hormone to be absorbed and then get the body back to functioning. Hair loss was not something that I had. But felt severely depressed after taking it. My doc told me that it was because my body was totally in a stress mode as it was trying to heal itself from being hypo. Went on paxil to ride out the storm, and have been totally find for over 6 years on both meds. My thyroid was so low it ran off the chart. A lot of women when discovering low thyroid are also simultaneously going through menopause or perimenopause. That is why the thyroid craps out. A lot of symptoms described in the other experiences here are menopause as well. Don't blame the synthroid. It will work and the hair loss is very temporary.

-- By chrissyb | Reply | Private Message me

May 26th
2009
11:11 AM

I am 57 years old and have been on synthroid for about 3 1/2 years. I had a nodule on my right side that was removed.I felt great but was told to see the endocrinologist. I felt better for quite a while but NOW I have gained over 25 pounds, out of breathe just going up stairs and feel like I always have a lump in my throat. The weight gain has made my feet, back and knees hurt. I have been exercising and even did Jenny Craig and only lost 10 pounds just to put it back on. I retain fluid in my hands and legs. Sometimes my legs feel like they are going to burst. I am seeing many of the same complaints on this site about synthroid. What is this Armour people are talking about?

-- By doreen7286 | Reply | Private Message me

May 25th
2009
1:22 PM

Hi there I had a total thyroidectomy on April 14th and started synthroid 125 mg daily basically since a week after. I felt great for a few weeks then The past week my tongue has been getting increasing swollen, and sore, because I am biting, it also noticed some jaw clenching, The on call doctor told me to stop it but didn’t think it was an allergy to synthroid I have read several online blogs of other people who experienced the same thing of synthroid what do u think it is? I also tend to burn easily, my skin is extremely sensitive to any chemicals, now as well.
i have also gained 10 lbs, ...

-- By scout2603 | Reply | Private Message me

May 20th
2009
12:55 PM

I thought my fatigue and mild depression symptoms were something separate but after reading these posts, it sounds like they could be linked to taking Synthroid? I've been on it for 2 years now. At first, I felt great. I started feeling tired again & my dr. upped the dosage. I just saw him today & complained of feeling tired, depressed, and getting light-headed and off balance at times. He wrote me a Rx for anti-depressants and changed my blood pressure Rx. I'm thinking about trying a Naturopathic Dr. to see if I can get the results I need without all the side affects. It couldn't hurt to get another opinion.

-- By weezer2647 | Reply | (2) replies | Private Message me

May 15th
2009
2:58 PM

headache immediately after taking synthroid. Taking generic...
I hear that 200mcg of Selenium is a natural treatment. I may try that..I'm not going to cont. taking this crap. I have read it can cause cardiac failure too. Who wants all that crap. I feel bad enough as it is with allergies and hormone imbalance(Perimenopause).

-- By lorihutch13 | Reply | Private Message me

May 12th
2009
6:52 PM

O my!!! Here is my long story short, 2 yrs ago was put on synthroid, after a routine physical. I didn't even know I had a problem, gained 20-25 pounds, tried to diet, NOTHING, started breaking out on my face, actually leaving scares, etc...........10 days ago I ran out of my prescription - no refills - forgot about appt. and I actually have lost 3 pounds without even trying. AND my skin has no new blemished!!! I am staying off to do a trial on myself!! Good luck my friends and goodbye synthroid!!!!

-- By nonie45 | Reply | (1) replies | Private Message me

April 15th
2009
1:12 PM

Sometimes the symptoms of depression, anxiety, headaches, short temper and hot flashes are due to out-of-balance TSH and your medication may need to be adjusted. That's been the case with me in the past and it has worked. Usually the doctor increases the dosage and things go back to normal. However, my last increase has produced opposite results. I am on 0.137 now and I feel very, very anxious, fearful, and get easily upset. I feel hot flashes as I get angry and generally feel quite depressed. I've also gained about 6 pounds in the last two months, which should is bizarre, as higher dosage usually means higher metabolism rate and weight loss. I am confused. Should I go back to my old dosage where I felt better, except for the onset of weight gain.

-- By nevenabentz | Reply | Private Message me

April 13th
2009
10:52 AM

I am not on synthroid, but also feel tired all the time with brain fog. I was actually thinking about getting my thyroid checked. I just read a wonderful book called "Breakthrough" and will be going to one of the recommended doctor's in the book. All of everybody's symptoms, including mine, sounds like the result of out of whack hormones---estrogen, progesterone, testosterone, cortisol, etc.(guys, you too) You might want to go to a doctor that deals with bio-identical hormone replacement---not your OB/GYN. They also have a better thyroid hormone replacement---a natural one made from, um, here it comes--pig--which is supposedly better than the synthetic stuff everyone is taking. Also, every single doctor interviewed in the book raved about the fact that diet sodas are poison--the artificial sweeteners are killing us--so if you're downing those, you might want to stop for a while to see if you feel better. Good luck and God bless you all---hope this helps you and I hope the doctor that I'm going to see helps me...I really recommend reading that book---there is a wealth of info in there. Some things I questioned but most things really made sense.

-- By sb1 | Reply | Private Message me

April 7th
2009
2:57 PM

You Can Now Boost Your Thyroid Function,

Eliminating Your Most Troubling Symptoms…

Without A Prescription and Without

Begging Your Doctor!

How? By adding a simple but vital supplement to your diet: Iodine.

Just how important is iodine? Consider this… about 25¢ worth is all that stands between an infant developing normally and one that’ll be severely mentally handicapped the rest of its life.

Iodine is essential to a proper functioning thyroid. But as we grow older, our thyroid starts slowing down. It just can’t metabolize the iodine it needs as efficiently, and that means the hormone produced (also known as thyroid) goes down as well.

There are 2 other reasons why most of us are iodine deficient:

Inadequate dietary intake, and
Exposure to toxic substances that displace iodine.

Iodine is a mineral, but one that is not abundant in the food we eat. Primarily found in very small quantities in seawater, soils are naturally deficient in iodine, especially the further away you get from the ocean.

Iodine is also fairly easily displaced from your body by toxins called toxic halides… fluoride, bromine and chloride.

Fluoride is by far the worst culprit. Found in toothpaste and in your water supply, every time you take a shower, brush your teeth or drink from the tap, your body gets a little exposure to fluoride, leeching out good iodine. And contrary to popular belief, fluoridated water is actually rather poor at preventing tooth decay.

Why is it in our water supply then? Poor science combined with corporate greed and political ignorance paved the way. Basically a toxic by-product of aluminum production, fluoridation was sold as a way to prevent cavities because some areas with natural fluoride in the water also had lower instances of tooth decay. Based upon that spurious observation, fluoridation began.

If You’re Human, You’re Most Certainly Iodine Deficient!

Because of these factors, 96% of all people tested are iodine deficient! This according to a study of 4000 patients conducted by Dr. David Brownstein, Medical Director for The Center of Holistic Medicine, and renowned author of several books on hormones, iodine and hypothyroidism.

The World Health Organization also concurs, estimating that 72% of the world’s population is being affected by iodine deficiency.

This trend is worsening. Over the last 30 years, the NHANES (National Health and Nutrition Examination Survey I) shows iodine levels have dropped 50% in the U.S.A. alone.

-- By fernando111 | Reply | (2) replies | Private Message me

March 21th
2009
5:23 PM

Everyone out there, try Armour Thyroid!!! I was changed to Synthroid (because my endo only believed in it) a few years ago, and put on 15 pounds and lost half of my hair. I work out at least 6 days a week, run 3-4 miles a day, and live on salad. I asked my regular MD to switch me to Armour, and in three weeks, my hair stopped falling out, and I'm losing weight. I was losing, yes, I counted, at least 45 hairs a day when I combed my hair after my shower (and I'm not counting the clumps that came out in the shower). Now, maybe when I wring my hair out in the shower, only one will come out and less than 15 in my comb. Ask you doctor to just try it, and if it doesn't work, you can always go back. I swear by it. I'm happy all the time again, where I have just been monotone for the last few years, and I'm thrilled. Good luck!!!

-- By marina217 | Reply | (7) replies | Private Message me

March 19th
2009
3:53 PM

Someone PLEASE help or offer assistance! I have been on 50mcg Synthroid for about 1.5 yrs now and have gained about 25 pounds!! I am a very, very active triathlete, not just your 30 mins on the treadmill kind of girl. How about running 5-6 miles, riding my bike 40-50 miles, and swimming all about 3 times per week!! How can a human being continue to gain weight at this activity level? I am considering just stop taking it, cold turkey. Has anyone tried any of the supplements for thyroid support, or natural meds? If you've got any suggestions, I am open to just about anything at this point!!

-- By trigirl | Reply | (3) replies | Private Message me

March 19th
2009
8:14 AM

lol im 22, ive been on this drug since i was 7-8ish I find this really interesting as I never have had any side effects.As a teen I even stopped taking the drug for weeks at a time, though my doctor advised me not to because he said my body would be all wacked out... i was a teen it was bound to happen. And there was no change in me, lol. Im so surprised you guys say you had this many side effects!!!!

-- By kaylyn1234 | Reply | (1) replies | Private Message me

March 18th
2009
10:10 AM

edrogers, sorry to hear about all your difficulties. Hair loss is a hallmark of Synthroid and any doc that tells you it isn't, is simply incompetent! I too am 110 and can't gain weight. After years of having tests, incl thyroid (I figured I had Graves), tests always came back normal. A year ago I had a large goiter that turned out to be non-cancerous but I had to have half my thyroid removed. I ended up on 50 mcg and now 75 mcg of Synthroid. Since the dosage increased 2 mos ago, I have had SEVERE leg and foot cramps that wake me up several times during the night. Plus when I wake up, I feel an aching in my legs and wonder if that is not "restless leg syndrome". I am not sure if that syndrome is related to thyroid disease or Synthroid. I have not read about that one anywhere so far. I hate the idea of being on this med from what I have read and am considering Armour.

Two things I have learned though are: 1. If you have thyroid disease, you MUST have your adrenal levels checked. Even the drug info states this must be done before any thyroid treatment and 2. if your doc doesn't listen to you, find a new one. The best article I have read for thyroid disease is Gail's Thyroid Tips. it is a real eye opener.

-- By violet713 | Reply | Private Message me

March 16th
2009
12:28 PM

I have only been on Synthroid for 2 months, but my appetite is out of control. I read that gaining weight might be a side effect of Synthroid. You would think that you would lose weight with it since it makes your thyroid run more efficiently. My TSH is 4.3, still normal, so I don't guess I really need it yet. I am going off of it and going to the health food store and take Thyroid support.

-- By lyndy27 | Reply | (2) replies | Private Message me

March 10th
2009
1:32 AM

I have been taking Synthroid 25 mcg for a year now, and here is a list of side effects that I have experienced. Appetite has gone nuts, Gained 15 lbs, ringing in my ears has gotten louder, here is some scary stuff-constant visual disturbances, and now moderate to severe vertigo of which I have never had before the medicine!

-- By petedillard | Reply | (1) replies | Private Message me

March 9th
2009
6:20 AM

I think the key is perseverance. Find a good endocrinologist who is willing to treat you. A Dr. who realizes that normal blood tests may not be normal for everyone. A Dr. that knows which blood tests to order. It doesn't end there. You hold the keys to the answer. Simply keep a journal of how you feel, along with blood test results and medication levels. You and your Dr. will learn so much more about what you take and how you feel and can work together to find your "normal." I am still in search of my "normal," which I found about 6 months ago but seem to have misplaced after a recent increase in dosage of synthroid. Called the Dr., described my symptoms and he ordered blood tests which I had 2 days ago. I am looking forward to the results and a call from my Dr. this week. I am confident that he will work with me on the dosage and that I will find my "normal."

Our "normals" are out there...keep a journal, find a great endocrinologist and persevere!

-- By cbaccoli | Reply | Private Message me

March 6th
2009
10:54 AM

I have been on synthyroid for at least 7 years, and I still constantly battle fatigue and mood swings. All the doctors thought it was in my head and the last one suggested anti-depressants which I wouldn't go for. I feel depressed because I wake up tired almost every day or at least after 2 hours of being awake I can still just lie down and sleep! It's awful when just the thought of having to walk a block takes huge effort. I used to go to the gym every day but now it takes so much effort to do the smallest thing. I finally have a new doctor who has started to additionally give me Liothyronine (T3) which has given me new hope. I seem to feel better. We are still tweaking the dosage, first it was too low, now too high, but I am hopeful with the right "combo" we can get it right, if not I am considering going to a homeopathic doctor or just going off the stuff entirely, except I am not sure whether that will be worse.....If anyone has any advice or comments, please reply!!!!

-- By anniegirl | Reply | Private Message me

March 6th
2009
9:31 AM

I have been on Synthroid for about five months. I started out on a relatively small dosage- 50 mcg. My Doctor upped me 50 mcg every month after he checked my TSH levels. They started out at 150, and right now they're at a 10. I hate this medication. Im now on a 250 mcg, and my side effects keep getting worse. I have probably lost about a third of my hair. I started to loose weigh, but i don't feel like i really am anymore. I am very moody, and also emotional. I lash out for absolutely NO reason whatsoever. Im hot, cold, but can never find a comfortable temperature. Im always tired, No matter if i just wake up, or if its time to go to bed. He's put me on Celexa, he said i was just depressed. But its not depression. Three months ago i wouldn't have lashed out for something as small as the mail didn't come. I hate to be this way, and i wish i didn't have to take this medication for the rest of my life.

-- By ericaxnicolex09 | Reply | (1) replies | Private Message me

February 24th
2009
5:04 PM

I also gained weight, work out 4-5 days a week and havent lost a pound. I am now having a vibrating or shaking feeling through out my body that is worse at night. I tried to stop taking it but that was worse.

-- By kernan77 | Reply | (2) replies | Private Message me

February 18th
2009
10:33 AM

I have been taking Synthroid for less than 6 months - My joints ache and my tongue and teeth hurt - Could this be Synthroid symptoms

-- By amo10 | Reply | Private Message me

February 17th
2009
5:04 PM

I have always had and currently have the side of effect of extreme fatigue associated with the use of synthroid and now Armour thyroid replacement as well.
Whenever my tsh reaches normal levels I become increasingly fatigued. Now I an hardly stay out of the bed and yet my levels are normal.
I have Hashimoto's Disease and am menopausal with severe insomnia to cloud the issue. But the fatigue associated with thyroid replacement is longstanding and has occurred for about 15 yrs. For many years, I would stop taking the medication because of it. My doctors do not believe that the fatigue is related to Synthroid which I find utterly frustrating. Will be looking for another endocrinologist soon. Has anyone out there experienced this side effect of extreme fatigue?
Any input would be greatly appreciated.

-- By shoprite | Reply | Private Message me

February 7th
2009
1:12 PM

I have been on Snythroid for 20 years. I had radiation treatment. I have experienced weight gain and most recently I think my hair is thinning. I take 1 0.15mg everyday except Sunday.I was reading a book that said the medication can cause loss of bone mass. I have been taking 1000 mg of Calcium a day. If you don't get those levels checked you will feel terrible! Take it from me! Thanks for sharing snythroid family

-- By rmhaley | Reply | Private Message me

February 4th
2009
10:17 PM

I started taking synthroid in November and have experienced severe muscle and joint pain. I took myself off of it! I can't wait to see my new endocrinologist on March 3rd. By the way, I haven't taken it for two weeks and I still feel absolutely awful.

-- By divasupreme | Reply | Private Message me

February 1th
2009
6:36 PM

I had my thyroid removed because of cancer. I was 18 years old. At that time, I was put on Armour thyroid because that was the only thing available. I am now 56. Somewhere along the line they figured out how to make chemical thyroid and of course I was put on it - for the next 35 years. Blood checked so many times I can't remember, dosages changed. Always a runny nose, hot and cold always a problem. I drink something hot and I start sweating, I drink something with ice and I get the chills. Back on Armour now - not the absolute best - but certainly much better than synthroid! Still what do you do when you have no thyroid? Also to let you all know, after the thyroid was removed I was treated with Radioactive Iodine, and told that I probably could not have children. Well, I am stubborn - I have three boys - had them at ages 23, 25 and 37! Many, many problems through the years ( oh yeah, the radiation treatment that I had at 1 month old fried my thymus as well as starting the cancer - it took 17 years for the cancer to develop. It was only after all this that they began to find out the you really did need a thymus too. Oh well, I could go on and on. So find me a solution to my thyroid that is gone. Can we regrow it like they are regrowing ears, fingers, etc?? Something to look into for the medical profession...

-- By herblady88 | Reply | Private Message me

February 1th
2009
6:05 PM

runny nose - took synthroid for years and never knew why my nose was always running. Went in for a blood test last year and the lady taking my blood mentioned that she too took synthroid and had a horrible runny nose. She switched to Armour Thyroid and no more nose problems. I then switched to Armour Thyroid and my runny nose went away! There must be something in the filler indgredents that causes the constant runny nose.

-- By herblady88 | Reply | Private Message me

January 28th
2009
11:48 AM

As most of you, my TSH always came back normal/border line as well. However, due to all of my symptoms - every single one for Hypothyroid - they went ahead and did an ultrasound. I had a nodule 15mm x 5mm on the left lobe and 5mm x 4mm on the right. Because I had the constant "turtleneck" feeling around my throat, it was getting hard to swallow and sounded like I was an 11 year old boy gowing through puberty again, because of the hoarseness, I had Total Thyroidectomy last week. My surgeon put me on 150mg of Synthroid. So far so good with the side effects, granted it's only been 6 days. I actually have more energy, and a decrease in appetite. I've already lost 5 lbs. Not real sure if my energy level has gone up because I no longer have a thyroid to bring it down or if it is from the medication. Either way I hope my side effects stay as they are, I could stand to lose another 50 lbs - haha

-- By vancil | Reply | Private Message me

January 26th
2009
4:49 PM

I was prescribed this drug in hopes of keeping thyroid nodules and goiter from growing larger. My TSH levels have always been in the normal range throughout my life, so the theory that "normal TSH' means a working, normal thyroid is absolutely untrue. I am a prime example of a person who's numbers have always remained normal and yet their thyroid does not work properly. I have decided to discontinue this drug after 3 months of use. The weight is packing on faster than I can diet and exercise it off. My face is puffy, my stomach bloated and looking pregnant, and now retaining water. Anyone who does not believe that Synthroid causes weight gain, I welcome you to try this drug. It does the exact thing it claims it is combating. I am not hypo with levels of 1.07 and yet something odd is occurring within my body with this synthroid. I'm praying that if I stop the drug I might return to some form of normalcy soon.

-- By debs661 | Reply | Private Message me

January 13th
2009
11:09 PM

Hello, I have been on synthroid since 1999. I am hypothyroid with hashimotos. Endr. docs couldn't seem to get any levels right so I went to my Intergretted doctor . and he put me on 1/4 grain armour so I took anywhere from 50mcg to 100mcg of synthroid in the AM and 1 armour at night. It worked but after a short while I felt terrible. Then I had to start taking high blood pressure presc., it was about 170/116 after I had some shots in my back for pain, never had hp. before these shots. In Sept. of this year I stopped the Topralxl because I felt my heart was pounding out of my chest which I was in hospital for they said I was having a heart attack, had anigram, but I didn't have a heart attack and and angigram came out good. Then this summer they put me on 2 Topralxl. My heart was pounding with 4 extra beats so with a ultra sound{echo]of my heart and 24 hour halter it was all good, so I figured it had to be something I am taking. So that lead up to the stop of Topralxl which I researched and took a few things from Health Food store and got my pressure down to 140/80. My heart quit racing and beating so hard, but still felt depressed, puffed up, confused, teeth felt loose, urinated a lot, gained weight, rashy on my neck, tired all day, did not sleep good, eyes were always red and watery, skin and hair dry, blemishes on my face{ I am'56 yrs. old] just didn't feel good and the list goes on. Came across this site and read them all. Realized so much from you all. Sythroid only has T4 which your cells should be able to covert T3 out of that. T4 stores in your body and T3 is used up as the day goes on. But some peoples bodies don't convert the T3. Several people have talked about TSH which is your thyroid stimulating hormone which comes from your Pituitary Gland. When you thyroid or your meds. don't give you enough thyroid of what you need the Pituitary kicks in there to tell your thyroid gland to to produce more. It's not good for your TSH to be high so Docs. put you on a higher dose of Sythroid or whatever you take for the pituitary to stop producing TSH. So I want to say I am not a doc. but have felt so terrible and researching what I could I quit my Synthroid on the 29 of Dec. and started taking my armour thyroid 1 AM, 1 late afternoon and 1 PM on my own cause I figured I am still getting my T4 and T3. I went to my Endr. Doc. yesterday and told him I went off my Synthroid and just taking Armour. and told him I felt so terrible, after stopping the Topral heart felt great but the rest of me felt drugged, I just felt desperate and horrible. So again it had to be something I was taking. Well I have to say that I feel 100% better than I was. I am much more alert with my surroundings and whatever i am doing, sleep so good, teeth feel good, no rash, urinate normal, not confused, face cleared up, eyes not red or watery, pretty much I already feel normal again. Working at my job is not exhausting, my neck, which I didn't mention before quit hurting. In a whole it was the right thing for me but maybe not for everyone. I just felt that it was slowing taking me out. Blood Pressure, Thyroid issues are to be concerned about but seems like a person should feel better not worse with the meds. So this is the information I have learned and I'm sure there is much more. So good luck to you all and listen to your body and talk to your doc.about how you feel. It can be very scary when you are diagnosed with something but we are all different in what our body needs and our side effects.

-- By debbie56 | Reply | Private Message me

January 13th
2009
10:31 AM

Oh My Gosh....I cannot believe I just stumbled across this site. Feeling so NOT LIKE MYSELF for quite sometime now made me decide to google Snythroid side effects, wondering if this medication I am on could possibly be the reason I am feeling so badly. I am 50-years old and started taking synthroid (Levythyroxine) about a year ago for hypothyroidism. I have been struggling tremendously with anxiety, mood swings, fatigue, more hot flashes, emotional instability, and sudden weight gain (about 10 lbs) since I started taking it. I never had any weight issues. I have just assumed this was all related to being "menopausal" (and I'm sure some of it is) and stress-related.....but here's the thing....BEFORE I started taking it, I felt "normal" emotionally, I never had a problem with my weight, and never really had any major "pre-menopausal" symptoms....in fact, I think I had A LOT LESS hot flashes and emotional turmoil, BRAIN FOG, etc., BEFORE I went on this stuff. I was technically POST MENOPAUSE two months ago. Okay, so symptoms should be subsiding now. Any menopausal symptoms would/should have been worse during pre-menopause. Again, I never remember having any major symptoms going through "the change" and felt blessed in that respect......so could it be possible that this hell I have been going through COULD be related to this fricken Snythroid????!?!? I want to just stop taking it to see if I feel normal again, but don't know if it's SAFE to go off all of a sudden. What is this Armour?? I cannot believe how many others out there are feeling like me. I hope this is the reason, so I can feel some hope. But now what do I do? I'm sure I still have to get my TSH levels or whatever regulated. Any suggestions out there? I'll try and make a doctor's appt and check levels again and see what my options are...I was told I probably had to stay on this stuff for the rest of my life. Thanks, everyone.

-- By grose58 | Reply | (2) replies | Private Message me

January 10th
2009
3:11 PM

Here' what it says..

10/28/2008 7/1/2008 2007 2006
TSH 1.41 1.71 4.08 4.28

TUP 36.1

FTI 9.96

T4 11.02

Am I still low enough to have the dry brittel hair and al the hair loss and wieght gain?

-- By ksheila | Reply | (1) replies | Private Message me

January 8th
2009
3:55 PM

i have a lot of the same symptoms and had a nodule and was told i may be able to get off of my thyroid medicine after it went away, but please be careful and don't just stop taking your medicine. Your body is not making enough of the thyroid hormone that is why you had a swollen gland it was trying hard to make enough but couldn't keep up. Your body has to have that hormone to function without it. If it doesn't have enough it can throw you into toxic shock and a coma. the side affects are terrible and I agree get to your doctor and demand help! But the side affects are nothing compared to what going without your medicine can do to you. i know i tried it and ended up in the er!

-- By bud82 | Reply | Private Message me

January 8th
2009
11:23 AM

I have hypothyroid. Have been taking Synthroid for about a year, 0.075MG a day. Had my levels checked 3 times since on the meds and still have never gotten to normal, but a lot closer. I have gained 20 pounds that I can't get rid of, which for me, is crazy. I have never had a problem dropping weight, and for the past month or so, I have started losing my hair. Not just losing it, but the texture and everything has changed. No matter what I do it looks dry and flat, and even when I condition it and also use a leave in conditioner, it still knots up and tangles. I have NEVER had a problem with tangles. It's coming out in handfuls. Im not taking any other meds, so I imagine it has to be the Synthroid. My problem is..What else can I take? I mean, I have Hypothyroid, so I can,t just leave it untreated, But I have no wish to be fat and bald either. Please...anyone know of others meds without these side effects?

-- By ksheila | Reply | (6) replies | Private Message me

January 4th
2009
10:42 PM

Hash thyriod disease with vitiligo.Synthroid .88mg. 3 yrs on Synthroid.
NONE OF THESE SYMPTOMS I HAVE HAD BEFORE SYNTHROID.
SEVERE knee pain,ovary pain,joint pain, bone pain,muscle aches, fatigue, sleep apnea, weight gain,depression, anxiety, edema, FIBROMYALGIA / LUPUS SYMPTOMS,chronic inflammation, numbness in left foot,numbness in left hand, lower back pain, headaches,elbow pain,abdominal pain, brain fog,HAIR LOSS and greasy hair (always had thick curly drier hair) greasy skin, white pimple-ish areas on arms, itchy breast, lymph breast pain,increased hunger, strong food cravings, irritability,high blood sugars (I am type 1 diabetic) synthroid is known to mess with insulin in a diabetic, all my symptoms have had one test or another ran and all come back normal. I have no diabetic neuropathys..which surprised the doctors when my nerve tests came back normal...he was blaming my diabetes for most symptoms and told me to eat less in regards to weight gain.Still he brushed off my symptoms. I have asked my (endo doctor) to put me on Armour but she refused, she said I would be taking steps into the dark ages.
As if the symptoms are not enough, I am developing more.
NEW SYMPTOMS..Globus sensation (feels like constant lump in throat) eye twiches, eye floaters (not diabetic related).
I did experience twice after a higher dosage was made I felt great for the first two weeks and then like crap again.
I have oddly noticed I have crazy-fast hair growth, although my hair is thinning and not replaced..I have to shave twice a day.

Also I read a comment about one person switching synthroid to evening and said they felt better. I am pretty sure this is because doing it that way the body absorbs less synthroid. And for any one who doesn't know..synthroid takes calcium from the bones over time.
I am sure the avg person on synthroid complains to a dr about symptoms and doctors never get a clue.

-- By rikki74 | Reply | (1) replies | Private Message me

January 2th
2009
8:55 AM

depression, stomach pains

-- By michelecr221 | Reply | Private Message me

January 1th
2009
6:31 PM

I had excruciating muscle spasms in the legs when taking synthroid. My physicians argued that Synthroid or T4 was all that was needed because my body would produce T3. This simply is not accurate information for everyone. The muscle spasms became so severe that I went to the Cleveland Clinic in hopes of resolving this issue. This was a waste of time; the docs could only confirm the presence of muscle spasms in my legs and offered no other options. Finally, while reviewing all my lab reports and the related symptoms, I discovered that the muscle spasms only occurred when I was taking synthroid for hypothyroidism. I switched to Armour thyroid and the muscle spasms ceased. I urge everyone with hypothyroidism to find a doctor that can think outside the box.

-- By w001wyj | Reply | Private Message me

December 31th
2008
9:10 AM

I gained 50 lbs, short of breath, irritable and miserable. I want to stop taking this but am afraid my levels may go up again. I am depressed all the time and so tired and achy. I am not the person I once was happy go lucky and always loved to socialize. I now go to work and go home and do nothing. My family is so concerned but its like I don't want to be around anyone anymore. I am always too tired.

-- By gailene | Reply | Private Message me

December 13th
2008
8:16 PM

Im 17 years old and started getting sick a lot after getting my period at the age of 13. after numerous tests, and 2 years later i was diagnosed with both hashimotoes and graves disease. the doctors put me on synthroid and for a week i felt great. then after that i no longer wanted to take it. i didn't like the way it made me feel. i've been on the medication now for 2 years and my hair is so thin. it keeps falling out, and its very noticeable. i get a lot of headaches and severe cramps. i'm almost always tired. i get my levels checked every two months like the doctor wants. they are regular. anyone else feel the same? my mom is considering switching doctors.

-- By owenskate | Reply | (2) replies | Private Message me

December 7th
2008
8:57 AM

burning/tingling/pain of hands/feet, weight gain, teeth hurt whenever I try to decrease dosage, painful joints, palpitations, sores in my scalp, puffy hands, irritability, fatigue, increased appetite

-- By southernbelle44 | Reply | Private Message me

November 12th
2008
12:40 PM

When I was first put on this we started at the lowest level and worked up from there, after having labs every 6 weeks for the first few months. I did feel better and had a little more energy, but I had to pee all the time and it smelled god awful, went to my GYN she said it came back fine.....then a G/F who had thyroid cancer told me she takes Armour (a natural ,made from pig liver)...OMG what a difference, I can take less meds, it is cheaper and my urine no longer smells.My energy level is back too!! Armour has T3 and T4 and Synthroid does not. I suggest to those not happy with Synthroid to try Armour thyroid, again it takes about 6-8 weeks to notice but what a great change, and better for your kidneys (which is how synthroid is excreted)

-- By momof3_grandma3 | Reply | (1) replies | Private Message me

November 12th
2008
10:18 AM

I have been on Synthroid now about a year, and have had absolutely no side effects! In fact, it has assisted in diminishing the side effects I was experiencing from hypothyroidism. My doctor started me on a low dose, monitored me closely, and raised the dose. I think some people with so many side effects are not having their levels checked, so they are on too high a dose.

-- By iowamom | Reply | Private Message me

November 6th
2008
5:58 PM

I Had half of my thyroid removed 16 years ago. I was immediately put on synthroid. It made me crazy. I had rage and emotions that I couldn't control. I went through 2 divorces because of synthroid. I did not realize that was what was causing it. My doctors thought that i was crazy when I told them my symtoms. It must be the help of God because I stopped taking synthroid and started doing research and found out that sea weed would help me and do the same thing that synthroid did. Just a flake or two a day has been helping me for almost 2 years now. I feel great without the side effect that I would normally get from synthroid. Two much will make you weak though but the small about I take works just fine for me.

-- By savior | Reply | Private Message me

November 2th
2008
11:43 PM

im just took synthroid this year,,, and just recently i begin to feel my heart my doctor said my tests results were normal,,, i turned to Jesus and my suffering has a new meaning i just entrust my situation to him,, i felt relieved that im not alone,,,,,, i wish this drug will have no side effect,,,,, but i trust my lord

-- By oceancookie04 | Reply | Private Message me

October 28th
2008
8:52 PM

I AM SO GLAD TO KNOW THAT MOST OF YOU HAVE THE SAME SYMPTOMS. I am 25 yrs old and I went from 117-162 in about 4 years. I have been miserable!!!!! I was diag. in Aug. and have been taking SYNTHRIOD ever since when I first started taking it I took the medicine in the morning like the bottle and the doctor recommends, but I felt just like all of you. So I tried taking it in the afternoon for kicks and giggles to see if it would help at all. After about a week taking it at about 2pm I started feeling like a champ so I continued and now a month later I have lost 10 pounds. Just a suggestion......... The one question I do have is that I recently noticed that I have actually been ovulating and I am convinced that I haven;t in years hince why I have no kids I guess... Could your thyroid levels mess you up that bad to where you spend years not ovulating or should I go through the expensive process to see a fertility specialists. This is a question that I asked my doctor and of course they want to do 1000 $$$$$$$ tests to find out. Which I have no problems with in the future if worse comes to worse but I would like some advise from my fellow hypo sufferers and see if anyone was in the same boat as mee before being diag.

-- By cherrybit | Reply | (2) replies | Private Message me


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