Synthroid and 10 years

I been on Synthroid now for 10 years. Almost right after I started the medication i started to have headaches. I had / have headaches every single day , all day long. Before the Syntthroid i NEVER had headaches, EVER. It has been 10 years and i still complain. I have spent so much money and wasted time on exams and doctors. All the doctors tell me is that i am stressed or its sinus or something else . Which i don't think i am . I have CT scans a few times. I am not crazy, i know what i am saying. Doctors don't listen. I looked on online and saw that headaches are a side effect. I went back to my doctor and explained. The doctor(s) insist that the Synthroid is not a cause of my headaches. With headaches every single day a person can not function normally.

I ran across this website and in a way i felt better knowing that this symptom is real and other people are experiencing the same thing. On the other hand it upset me that all these people are complaining and no one is listening.

Is there no solution?

I was diagnosed as having Hypothyroidism in 1-07. My TSH was 83 and I was sleepy all the time, moody and anxious, hair falling out, gaining weight, heavy clotting peiods, etc. I was 51 and it was all blamed for a while in perimenopause. I have been on Synthroid .50 since then and some things are better like hair loss and sleepiness. My last check a few months ago was 1.3. What I hate most of all is waking up after a few hours of sleep and I feeing like I am on some kind of speed. My mind is wide awake and jumping from one thought to another, sometimes sweating heavily with my heart racing. I was diagnosed 10 years ago with Inappropriate Sinus Tachycardia and was on Beta blockers for a while. I have a new doctor now and never discussed this with her. The anxiety is awful sometimes too . I start to get fears of not being able to swallow or breathe but can keep it under control. An average night of sleep is five broken up hours of sleep and every now and then from exhaustion I will get close to seven hours. I am foggy headed a lot but I never hardly yawn or feel sleepy in the daytime.

I was put on Synthyroid 20 years ago. It did nothing beneficial that I could detect, so I discontinued taking it. -- I was always cold, always tired, I just learned to live with it. (Thankfully, I was a stay-at-home Mom, so didn't have to punch a time clock.) -- Fast forward 10 years to 1999. I had many food allergies, dust allergies, pet allergies, was tired, cold, ached all over. etc;etc: -- Was referred to an old doctor who listened patiently and told me he thought thyroid supplimentation would help. -- Started me on Armour thyroid. One pill, then upped to two all the way to 6 a day before I felt any differently. -- Slowly, my allergies improved. My energy improved. I started to feel like a new person.

For those of you who are still strugling with getting your thyroid situation straigntened out, try going to this web site:

http://www.majidali.com/temperat.htm.

It will fill you in on why some of what has been done for you hasn't worked.

Good Luck!

Marie

PS My daughter was on Armour thyroid, and when she couldn't get it, was put on Synthroid. -- Within three weeks she had mood swings, was mean, was always cold, was depressed, ached all over. Had a cough.

I have been on Synthroid since about 1995. I had a thyroidectomy and do not have a thyroid anymore. I have been on 0.175 mcg for about 10 years and did not have any side effects except for fatigue and a little depression.Everything else was pretty good. My TSH is registering low so my doctor moved me to 0.1 mcg of Synthroid and 5 micrograms of Cytomel. I took this for about three weeks and for the last 1.5 weeks have had awful headaches and the dryest eyes ever. Something, I have not experienced before. My doctor keeps saying he wants to help me but does not listen to
any of my symptoms. I actually pulled off the symptoms from the list online of hypothyroidism and have 15 out of about 20. I am wondering why I felt so much better on the higher dose than this low dose. Can anyone releate. I am starting to think maybe my body is not processing this right. The funny thing is is that my lab work came back with normal results today, which means my doc is probably going to keep me where I am and I feel the worst I have felt in ten years.

I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??

I have been taking Synthroid for about 10 years. I have had different issues; but it was not because of the hormone itself. There were times, when I was just in denial and would stop taking it all together and I felt great, too! But, then, eventually I would feel bad again. Here are some things that I have learned throughout the years:

Your levels need to be checked on a regular basis because your levels are constantly changing.

Sometimes the dosage of Synthroid is correct for you, but the dye (whatever color that dosage pill comes in) could be causing certain symptoms. Example: headaches, stomach aches.

You must take your pill at the same exact time everyday! I usually take mine 45 minutes before I get up for the day. Put a bottle of water and your pills by your bed and roll over and take one each morning 30-45 minutes before you actually get up and start your day.

Never use generic!!!!! The chemicals are the same, but the recipe is not.

As always, eat right and exercise.

It is important to know that some people will never stop losing their hair; Some people's goiter will never go down; and some days you will be more tired than others. That is the nature of the disease.

Last but not least, change doctors if you feel that your current doctor is not trust worthy. I have had 3 different endocinologists and they each had different philosophies. Using your OBGYN or Main Doctor is okay for your initial test, but only a specialist can help you maintain this disease. The specialist also test on more levels, unlike your OBGYN.

Hope this helps!!!!