June 12th
2009
9:24 AM
Hi everyone! Well, I was just diagnosed with Hyperthyroidism..The doctors say it is really bad ..they prescribed 10 mg of Tapazole..I am trying to get as much info - loaded as I can because I already know that I have to fight my own doctors to keep them on their toes...however, I do believe after all I have read so far ..I may be beat before I even start the fight...It appears I may have had this for a little while ...I have been so sick....serious vertigo...My head is not mine at all...I live in virtual unbalance...always floating...and the heat from the sweats is killing me..then there is the freezing although I refuse to let that bother me..I am tired all the time and get the vertigo every time I try to do anything strenuous and even if I just get up from bed or sitting position....I have some nausea..I refuse to let depression set in although It tries real hard...but I laugh at all my sickness as much as possible and just ask Is there anymore..I am sure I haven't got enough..haha....bring it on..I have been really sick before with the Meniers but this is just as bad..Of course I have Meniers disease, Fibromialgia, and am Peremenopausal...among other smaller problems..so it was really hard to discover thyroidism...I think I got it all....My throat was not swelled ..just throbbed and gave me serious headaches all over my face and especially in my ear....It was hurting so bad and was terribly sore to swallow or even turn my neck...but they did the test and I had one more disease to add to my growing list...go figure...why not ..I am thinking...I am very miserable..and don't trust doctors at all...they like to play to many games with peoples lives...what can I do..I am getting lost..I don't want to live like this..I want someone who really cares...Is it really to much to ask..
-- By sipsy | Reply | Private Message me
March 6th
2009
10:54 AM
I have been on synthyroid for at least 7 years, and I still constantly battle fatigue and mood swings. All the doctors thought it was in my head and the last one suggested anti-depressants which I wouldn't go for. I feel depressed because I wake up tired almost every day or at least after 2 hours of being awake I can still just lie down and sleep! It's awful when just the thought of having to walk a block takes huge effort. I used to go to the gym every day but now it takes so much effort to do the smallest thing. I finally have a new doctor who has started to additionally give me Liothyronine (T3) which has given me new hope. I seem to feel better. We are still tweaking the dosage, first it was too low, now too high, but I am hopeful with the right "combo" we can get it right, if not I am considering going to a homeopathic doctor or just going off the stuff entirely, except I am not sure whether that will be worse.....If anyone has any advice or comments, please reply!!!!
-- By anniegirl | Reply | (1) replies | Private Message me
March 6th
2009
9:31 AM
I have been on Synthroid for about five months. I started out on a relatively small dosage- 50 mcg. My Doctor upped me 50 mcg every month after he checked my TSH levels. They started out at 150, and right now they're at a 10. I hate this medication. Im now on a 250 mcg, and my side effects keep getting worse. I have probably lost about a third of my hair. I started to loose weigh, but i don't feel like i really am anymore. I am very moody, and also emotional. I lash out for absolutely NO reason whatsoever. Im hot, cold, but can never find a comfortable temperature. Im always tired, No matter if i just wake up, or if its time to go to bed. He's put me on Celexa, he said i was just depressed. But its not depression. Three months ago i wouldn't have lashed out for something as small as the mail didn't come. I hate to be this way, and i wish i didn't have to take this medication for the rest of my life.
-- By ericaxnicolex09 | Reply | (1) replies | Private Message me
January 13th
2009
10:31 AM
Oh My Gosh....I cannot believe I just stumbled across this site. Feeling so NOT LIKE MYSELF for quite sometime now made me decide to google Snythroid side effects, wondering if this medication I am on could possibly be the reason I am feeling so badly. I am 50-years old and started taking synthroid (Levythyroxine) about a year ago for hypothyroidism. I have been struggling tremendously with anxiety, mood swings, fatigue, more hot flashes, emotional instability, and sudden weight gain (about 10 lbs) since I started taking it. I never had any weight issues. I have just assumed this was all related to being "menopausal" (and I'm sure some of it is) and stress-related.....but here's the thing....BEFORE I started taking it, I felt "normal" emotionally, I never had a problem with my weight, and never really had any major "pre-menopausal" symptoms....in fact, I think I had A LOT LESS hot flashes and emotional turmoil, BRAIN FOG, etc., BEFORE I went on this stuff. I was technically POST MENOPAUSE two months ago. Okay, so symptoms should be subsiding now. Any menopausal symptoms would/should have been worse during pre-menopause. Again, I never remember having any major symptoms going through "the change" and felt blessed in that respect......so could it be possible that this hell I have been going through COULD be related to this fricken Snythroid????!?!? I want to just stop taking it to see if I feel normal again, but don't know if it's SAFE to go off all of a sudden. What is this Armour?? I cannot believe how many others out there are feeling like me. I hope this is the reason, so I can feel some hope. But now what do I do? I'm sure I still have to get my TSH levels or whatever regulated. Any suggestions out there? I'll try and make a doctor's appt and check levels again and see what my options are...I was told I probably had to stay on this stuff for the rest of my life. Thanks, everyone.
-- By grose58 | Reply | (4) replies | Private Message me
January 2th
2009
8:55 AM
June 27th
2008
9:16 AM
I've been on synthroid now for about a year. My dosage is VERY little (0.075). My doctor keeps running blood tests every 3 months and assures me I am within the "lower-end" of the norm, but I still feel tired, sleep deprived, wake up with night-sweats and I keep gaining weight...
I am only 24 and have just been told that I need to take this medication for the rest of my life, it\s pretty depressing. I keep asking if there are other ways to lose weight and feel more energized. He tells me that I need to keep taking this medication and has put me on a "sleep hygeine" routine where I go to bed and wake up at the same time every day.
Does this "disease" mean I will always be overweight and tired for the rest of my life? I would like to know if someone else with more experience with this medication can give any sort of advice? Feeling a little hopeless about it and not really interested in complaining to my doctor anymore.
Thanks:)
-- By melie_k | Reply | (7) replies | Private Message me
May 30th
2008
5:54 PM
Wow! So glad and sad to find other sufferers. I wish our doctors would listen to us and take us seriously! Why are they stuck on forcing Synthroid on us? At this point, I think I'd rather not take any Synthroid. I stumbled upon this site while looking for something I might take to counteract the effects of Synthroid. I had to halve my 112 mg pills because of the side effects: frequents headaches, bloating, weight gain, irritability and anxiety, dry mucus membranes (eyes, nose, throat, etc.), allergies, muscle fatigue, achy joints. Of course, my doctor is slowly upping the dosage again, because my TSH is chronically high, but I feel like sh*t, physically and mentally. I used to feel so much more normal and like myself before I was diagnosed and "forced" to take Synthroid.
-- By poingosiba | Reply | (5) replies | Private Message me
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (4) replies | Private Message me
April 15th
2008
9:23 PM
I've been on Synthroid for 8 months after gaining 10 pounds in two months. The symptoms started to appear when my Mom was very ill. Doctor said it was caused by stress and started me on 25 mcg of Synthroid. My reading at that time was 5.56. I had blood work done every 4 weeks,and the numbers are going down (1.8 last reading), but so is the quantity of my hair, which I see all over my white tile. My weight hasn't budged even though I am dieting. My doctor upped me to 100 mcgs. My blood work is not good - low white count, low lymphocytes, borderline anemic. Mom died, and I didn't get any better. I feel sick all the time and it's difficult for my husband to understand how bad I feel. I've tried to get my doctor to prescrive Armour, but he doesn't even return my phone calls. When I see him in the office, he keeps telling me it takes time. I hate living this way and want to stop the pills completely.
-- By tennis01 | Reply | (4) replies | Private Message me
April 8th
2008
8:11 PM
I have been on Synthroid since about 1995. I had a thyroidectomy and do not have a thyroid anymore. I have been on 0.175 mcg for about 10 years and did not have any side effects except for fatigue and a little depression.Everything else was pretty good. My TSH is registering low so my doctor moved me to 0.1 mcg of Synthroid and 5 micrograms of Cytomel. I took this for about three weeks and for the last 1.5 weeks have had awful headaches and the dryest eyes ever. Something, I have not experienced before. My doctor keeps saying he wants to help me but does not listen to
any of my symptoms. I actually pulled off the symptoms from the list online of hypothyroidism and have 15 out of about 20. I am wondering why I felt so much better on the higher dose than this low dose. Can anyone releate. I am starting to think maybe my body is not processing this right. The funny thing is is that my lab work came back with normal results today, which means my doc is probably going to keep me where I am and I feel the worst I have felt in ten years.
April 6th
2008
3:56 PM
I was diagnoed back in november with Hashimoto Disease and had a complete thyroidectomy in December. I have been switched three times since Dec. 07 (only April 6 '08) to different doses of Synthroid. I still experienced weight gain and cannot lose weight, irritability, depression, hair loss, exhaustion... I decided last month to stop taking it all together and was wondering what effects this may have on me. Any clues as to the effects of NOT taking the medication after having a my thyroid completly removed?? I feel the same (depressed, irritable, still losing hair, exhausted...) but am sure this is probably not a good thing to not take any medication when I don't have a thyroid anymore.
-- By cinle | Reply | (4) replies | Private Message me
January 20th
2008
5:57 PM
I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??
-- By sharone | Reply | (23) replies | Private Message me
January 9th
2008
12:23 AM
I have read a lot of these blogs and I am seeing that many other people have the same side effects. I was diagnosed with hypothyroidism when I was in 6th or 7th grade I think and I am now a high school senior so about 5 years taking Synthroid. the doctors said that my antibodies had completely destroyed my thyroid gland so I wasn't getting any of the hormones I needed which became very noticeable when I started gaining weight and loosing energy in 5th grade. I haven't really seen any weight gain in a while but I still look like I am overweight. I am 5'6 and 130 lbs so I am about average. Side effects that are also occurring are rapid mood changes, one minute I am happy and something sad happens or I think about something and ill be tearing up. I feel depressed a lot. I am currently on 150 mcg. also during 9th and 10th grade I was put on this drug to stop my puberty so that I could grow more while on the Synthroid I guess it helped a little with height but I still look like a freshman. I don't know if I should stop taking it or keep taking it because I stopped for about a month once and started getting really sick, I would get really bad nose bleeds at random, had constant migraines and felt sick to my stomach. I started taking the Synthroid again and felt fine. I really don't know what to do.
-- By burton360 | Reply | (5) replies | Private Message me
September 11th
2007
10:39 PM
I was born without a thyroid gland so I can't compare the way I feel now to the way I would've felt with a thyroid. I've been on Synthroid my entire life (22 years), and I'm up to 112 mcg now. I am very skinny (5'5", 104 lbs) and feel constantly fatigued no matter how many hours I sleep, what I eat, and how much exercise I get. I periodically get pain in my hip joints, heart palpitations, and intense mood swings. My thoughts race but I have very little physical energy. I feel restless and gloomy almost all the time for absolutely no good reason. My doctor tells me I'm depressed but I honestly have no reason to be depressed and I wish she would see it as a symptom instead of a diagnosis. I graduated from a good college, I've got a job I like, I have friends, I enjoy life and my hobbies, yet I feel overwhelmingly sad. This does not seem like depression to me.
I find that after I do aerobics I get a tightness in my chest, which makes me worry about my heart, but again my doctor doesn't seem to think this is cause for concern. I have been irritable/fatigued for YEARS and I suspect I'll feel this way for the rest of my life. The worst of it started when I hit 16 years old and started the 112 mcg. My tests are always normal and it frustrates me that my doctor disregards my symptoms. I've tried other doctors, but they always send me away with my 'normal' test results. Can anybody help?
-- By lexlurgee | Reply | (18) replies | Private Message me
August 19th
2007
9:23 PM
I have been taking Synthroid for at least 10 years. I am on a very high dosage now175mcg. I have been on a lower dose but my counts were still low so my doctor put my dosage higher. I have been having a tremendous amount of body aches including finger joint aches and right flank problems. I have taken x-rays and various tests to determine what the pain is but I feel that after reading much of the side effects from this web site, much of what I am experiencing is from the Synthroid or Levothyroxin. I now feel that I need to take matters into my own hands and do more natural healing. Many doctors don't connect the dots to determine the real cause of your concerns.
-- By jjrogers77 | Reply | (1) replies | Private Message me
July 18th
2007
11:41 AM
I was diagnosed with hypothyroidism in April of this year (2007) kind of by accident through a routine checkup. I had gained a bit of weight over the past two years, but that was really my only symptom. I was begun on 75 mcg of a generic brand of Synthroid, levothyroxine. Since I began this medication, I have rapidly gained another 15 pounds despite a 1,000 calorie per day diet. I retain fluid horribly. My ankles, wrists, hands and face swell daily. My muscles ache, especially my legs, upon walking across a room. I'm fatigued, short of breath. My LDL cholesterol level has skyrocketed in only three months and now I'm being told I need to be on a statin drug. I cry frequently and feel uncharacteristically anxious and irritable, but this could be due to the frustration I am experiencing with the loss of my sense of well-being. In essence, I felt much better before being placed on the medication. I may, in fact, discontinue the medication totally and see if over time I begin to feel better. Like so many other stories I'm hearing, my doctor seems totally unconcerned.
-- By iveepush | Reply | (7) replies | Private Message me
December 27th
2005
6:14 AM
I've only been taking synthroid for a little over 2 months and not only has my husband noticed behavioral changes with me but I feel them as well. If I didn't know what depression felt like, I would say that would be the problem, however; it's a lot more than that. I've felt "sad", as though my heart were breaking and then I get angry and have the "I don't care" attitude. Mood swings galore which is very unlike me. I'm naturally a very outgoing and friendly person who has turned to the irate, don't bother me person who likes to be alone. Though these changes have taken place, I feel they may just be temporary which is why I will remain on the med. It's truly a pain in the neck to experience such changes and not be able to so to speak "control" them on your own, but in the long run, if it means being healthier and losing the weight that needs to be lost (on me), then for me, it's worth it. Thank God my husband understands all this!!!
-- By amainelady | Reply | Private Message me
May 22th
2004
7:27 PM
Does anyone have any side effects which affect voice quality - husky, airy or weakness in the voice speaking or singing? I'm hypothyroid, 200mcgs synthroid daily, some depression, insomnia, weight gain and struggling with getting back to my pre-hypothyroid state of well being.
-- By qunselika | Reply | (1) replies | Private Message me
July 15th
2009
9:48 PM
jesus its really comforting to explore the possibility that all this unnecessary havoc is the synthroid! i have wasted the last four years in complete confusion, and utter weirdness .and frankly feel old as hell ..
-- By wormholeworthy | Reply | (1) replies | Private Message meive always felt up until 5th grade, the times would never be so jolly, but the last four have been dead since my diagnosis at .75 mg; i feel like a numb, lifeless, terrified kid trying to feel something, if anything at all. I have experienced many of the symptoms below, hair loss, anxiety, extreme bipolar moods, and depression. I want to cry for keeping my mouth shut for so long and i constantly fret and worry that age twenty is killing me faster than other people for no apparent reason- im done and would be thrilled to cash in my manic depressive cynicism for a sleepy and happy soul. now i have to figure what to do next...any suggestions other than throwing the shits in a fire?