April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (3) replies | Send Private Mail
April 15th
2008
9:23 PM
I've been on Synthroid for 8 months after gaining 10 pounds in two months. The symptoms started to appear when my Mom was very ill. Doctor said it was caused by stress and started me on 25 mcg of Synthroid. My reading at that time was 5.56. I had blood work done every 4 weeks,and the numbers are going down (1.8 last reading), but so is the quantity of my hair, which I see all over my white tile. My weight hasn't budged even though I am dieting. My doctor upped me to 100 mcgs. My blood work is not good - low white count, low lymphocytes, borderline anemic. Mom died, and I didn't get any better. I feel sick all the time and it's difficult for my husband to understand how bad I feel. I've tried to get my doctor to prescrive Armour, but he doesn't even return my phone calls. When I see him in the office, he keeps telling me it takes time. I hate living this way and want to stop the pills completely.
-- By tennis01 | Reply | (4) replies | Send Private Mail
January 20th
2008
5:57 PM
I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??
-- By sharone | Reply | (8) replies | Send Private Mail
September 11th
2007
10:39 PM
I was born without a thyroid gland so I can't compare the way I feel now to the way I would've felt with a thyroid. I've been on Synthroid my entire life (22 years), and I'm up to 112 mcg now. I am very skinny (5'5", 104 lbs) and feel constantly fatigued no matter how many hours I sleep, what I eat, and how much exercise I get. I periodically get pain in my hip joints, heart palpitations, and intense mood swings. My thoughts race but I have very little physical energy. I feel restless and gloomy almost all the time for absolutely no good reason. My doctor tells me I'm depressed but I honestly have no reason to be depressed and I wish she would see it as a symptom instead of a diagnosis. I graduated from a good college, I've got a job I like, I have friends, I enjoy life and my hobbies, yet I feel overwhelmingly sad. This does not seem like depression to me.
I find that after I do aerobics I get a tightness in my chest, which makes me worry about my heart, but again my doctor doesn't seem to think this is cause for concern. I have been irritable/fatigued for YEARS and I suspect I'll feel this way for the rest of my life. The worst of it started when I hit 16 years old and started the 112 mcg. My tests are always normal and it frustrates me that my doctor disregards my symptoms. I've tried other doctors, but they always send me away with my 'normal' test results. Can anybody help?
-- By lexlurgee | Reply | (8) replies | Send Private Mail
August 27th
2007
4:20 PM
Been taken synthroid for 2.5 years. I am 30 old male, Really athletic.
I notice that I get fatique very easly and memmory and concentration problems. But the most noticable is shortness of Breath, and I have very high anxiety. I lost wait since being on synthroid.
April 6th
2007
1:57 PM
I have been taking Synthroid since Jan. 2006, am on 100mcg per day and all test results have been 'normal', I have been told to take this medication in the morning an hour before eating anything, if I do this...I have headache all day, I can't eat after an hour because I am so sick at my stomach there's no way. I feel hungry, but feel like if I eat it's coming right back up. Am having serious joint pain in hips, knees, elbows and wrists, my neck hurts really bad as well. I wake up to arms asleep anymore and just feel like I haven't slept in months...am very weak and very tired all of the time.
I have found that if I take my pill at night this gets a little better, but holy cow, don't tell your Dr. your taking it before bed...no, take it of a day. (don't know why this is a major thing?)
Anymore I feel like I am walking around with flu symptoms constantly, and the Synthroid hasn't done anything weight wise with me, because I was so HYPERthyroid before the RAI, I was very thin and looked like a bag of bones, have been waiting and excited about putting on weight...at one point I stopped taking the Synthroid and let myself go HYPO just so I could gain weight, it worked and I got up to about 130 pounds, was very HYPO so they told me critical that I get back on meds...I lost it again because it makes me so sick I can't eat.
NO-ONE can tell me the Synthroid is not the cause of this problem, if I stop taking it I feel WONDERFUL, but my test reults are bad. After a while of course my feet become numb and I end up having some bad hypo symptoms, have tried breaking pills in half....oh Lord no, need it all...
Have been told they are thinking about raising my dosage again anyway, I can't do this, I will break down in the office if they try to raise it. Right now my TSH is fine but my T4 is 'a tad bit' off. I am already an emotional wreck, if they raise my dosage I am going to try and go a different route with this, am on my 3rd Dr. at this point anyway...
-- By laretajtanner | Reply | (2) replies | Send Private Mail
December 7th
2004
5:10 AM
Man, I really messed myself up, I guess. I have been taking the 1.50 for a few years now. I am now 55, ...and lately, for the last twenty days or so, I started having daily, all day long palpitations. So I walk four miles a day, or whenever they start up..but the first thing I thought, was it was time to lower my thyroid..so I broke them in half..BIG MISTAKE...caused my heart to go faster, leg cramps. cold feet, then hot feet, hands, etc....so when I put it back after one week, I started feeling a little better..but still have the heart palpitations...so I figure time to buy some insurance and get it all in order...WOW...how terrifying...
-- By joannfalconer2000 | Reply | (1) replies | Send Private Mail
July 22th
2004
5:00 PM
I have been taking Synthroid for many years and I think I've had all of the side effects. Hair loss, lack of restful sleep, dried, itchy skin, tiredness, fast heart at times. It went hyper for a while and I felt good then but I did sweat a bit.
My condition is now hypo and I am having a lot of stiffness as well as the other symtoms.
This registry is a place to share positive or negative side effects of using Synthroid. If you directly experienced a side effect while using Synthroid, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
I need to take it all my life- isn't there any natural remedy somewhere?
by ginga3, 4 replies, updated about 12 hours ago.I have sufferred from panic attacks or fear of them since I was about 11 yr old.Am now 51 and never been anywhere by myself apart from the local easy to get to shops Thinking of doing the antieppressaant thing but really cynical and unsure about it Would appreciate any un biased oppinions
by michellebf, 3 replies, updated about 24 hours ago.Hi Guys I have been suffering from chronic daily headaches since March 2006. Have been to 4 neurologists and they all confirm that there is nothing seriously wrong with me neurologically and they put it down to stress. I have tried herbal remedies, acupuncture, body stress release, dietician, exercise, pain killers, massage, physio, posture modifying appliance, bean bags and oils, ice pack, pilates, chiropractor, daily meds like inderal and trepiline and still, nothing has been able to give me long te...
by rose81, 7 replies, updated 1 day ago.I have a son who now is 12 from birth on he had constipation,with the years it didnt get any better,i went to differant doctors with him and they him medications like mineral oil,miralax,stoolsoftner,nothing help sometimes he has terible pain and needs to go to the ER they give him a enema and IV to hydrate him now when he needs to go to the bathroom maybe 1 a week he doesnt feel it anymore only when he start to go into his pants and feels the stools against his bottom skin does he realize whats hapenin...
by celine302002, 1 replies, updated 1 day ago.My sun has suffered from three years of age with stomach pain and discomfort uppon eating he is now 12 years old. We have seen many doctors all of whom are very vague. His blood work consistantly comes back with low amylase and lipase. Yet they dont see any need for further investigation. I have been told he has a sensitive stomach. As a mother I see more. I live with him and see him every day. He eats very little, (i think it still hurts) he says he's not in pain anymore. At nine he was still thr...
by lisa39, 6 replies, updated 3 days ago.
April 28th
2008
10:32 AM
I was diagnosed as having Hypothyroidism in 1-07. My TSH was 83 and I was sleepy all the time, moody and anxious, hair falling out, gaining weight, heavy clotting peiods, etc. I was 51 and it was all blamed for a while in perimenopause. I have been on Synthroid .50 since then and some things are better like hair loss and sleepiness. My last check a few months ago was 1.3. What I hate most of all is waking up after a few hours of sleep and I feeing like I am on some kind of speed. My mind is wide awake and jumping from one thought to another, sometimes sweating heavily with my heart racing. I was diagnosed 10 years ago with Inappropriate Sinus Tachycardia and was on Beta blockers for a while. I have a new doctor now and never discussed this with her. The anxiety is awful sometimes too . I start to get fears of not being able to swallow or breathe but can keep it under control. An average night of sleep is five broken up hours of sleep and every now and then from exhaustion I will get close to seven hours. I am foggy headed a lot but I never hardly yawn or feel sleepy in the daytime.
-- By sunnycat | Reply | (1) replies | Send Private Mail