Synthroid and heart

Does anyone here ever had any tingling issues? I had total thyroidectomy in Feb. 2009. Felt good the first month or two and have gone down from there! Some days are good, some are bad. Never know from day to day how Im going to feel! I started out for about a month and a 1/2 on 125 levothyroxin.....then my doc lowered it to 100.......as of July 14th, Im now taking .88. The tingling Im getting is all over my body, different places, here and there. Ive had some heart rate issues for a couple of months now too and finally had my regular doc send to me see a heart doctor.
Thought maybe the tingling could be from low calcium.....it was normal, CBC was normal, ECHO was normal.....waiting on the holter test results right now. The heart doc gave me a prescription for Toprol. I told him I wasn't going to take it cuz sometimes my heart feels like its barely beating and Im afraid it will make it worse. Im glad I didn't get it! Ive read of too many side effects.
Palpitations, kinda fast heart beat with pounding.....sometimes it feels likes its barely beating! Most of this occurs when first laying down......every now and then while sitting, etc. I do not exercise.....and should but just don't find the time. I switched jobs around the time I found out I had several nodes on each side of my thyroid. I was getting tired a lot and just thought i worked too much. I went from a physical job to a sit down, 12 hour, graveyard shift. Since the surgery, Ive felt it more. Im tired of feeling like crap all the time......I was already going thru some perimenopause stuff before all of this! Before I ever found out about my thyroid, I did have real light pounding of heart when laying down and tingling every blue moon, but very mild as well.
Now with no thyroid.......and medicines with all the side effects......IM GOING NUTS!!! Right now the moodiness and tingling are whats bothering me the most. Some days Im really tired, others Im ok. My body gets hot off and on, no fever. The past 3 days my calves, feet, and ankles have started to swell........never before! Plus I get some throbs and pains in my legs and arms and under my arms here and there. I probably need a new doc and I change of medicine......but Im afraid.
For one, Ive decided to go back to a physical job........and hopefully it wont screw with my heart rate even more. Ive read up on tingling........Im guessing maybe its from all the damn stress since my calcium was normal. Does anyone here have any suggestions?????

I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.

The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.

I have always had and currently have the side of effect of extreme fatigue associated with the use of synthroid and now Armour thyroid replacement as well.
Whenever my tsh reaches normal levels I become increasingly fatigued. Now I an hardly stay out of the bed and yet my levels are normal.
I have Hashimoto's Disease and am menopausal with severe insomnia to cloud the issue. But the fatigue associated with thyroid replacement is longstanding and has occurred for about 15 yrs. For many years, I would stop taking the medication because of it. My doctors do not believe that the fatigue is related to Synthroid which I find utterly frustrating. Will be looking for another endocrinologist soon. Has anyone out there experienced this side effect of extreme fatigue?
Any input would be greatly appreciated.

im just took synthroid this year,,, and just recently i begin to feel my heart my doctor said my tests results were normal,,, i turned to Jesus and my suffering has a new meaning i just entrust my situation to him,, i felt relieved that im not alone,,,,,, i wish this drug will have no side effect,,,,, but i trust my lord

I was diagnosed as having Hypothyroidism in 1-07. My TSH was 83 and I was sleepy all the time, moody and anxious, hair falling out, gaining weight, heavy clotting peiods, etc. I was 51 and it was all blamed for a while in perimenopause. I have been on Synthroid .50 since then and some things are better like hair loss and sleepiness. My last check a few months ago was 1.3. What I hate most of all is waking up after a few hours of sleep and I feeing like I am on some kind of speed. My mind is wide awake and jumping from one thought to another, sometimes sweating heavily with my heart racing. I was diagnosed 10 years ago with Inappropriate Sinus Tachycardia and was on Beta blockers for a while. I have a new doctor now and never discussed this with her. The anxiety is awful sometimes too . I start to get fears of not being able to swallow or breathe but can keep it under control. An average night of sleep is five broken up hours of sleep and every now and then from exhaustion I will get close to seven hours. I am foggy headed a lot but I never hardly yawn or feel sleepy in the daytime.

I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464

I've been on Synthroid for 8 months after gaining 10 pounds in two months. The symptoms started to appear when my Mom was very ill. Doctor said it was caused by stress and started me on 25 mcg of Synthroid. My reading at that time was 5.56. I had blood work done every 4 weeks,and the numbers are going down (1.8 last reading), but so is the quantity of my hair, which I see all over my white tile. My weight hasn't budged even though I am dieting. My doctor upped me to 100 mcgs. My blood work is not good - low white count, low lymphocytes, borderline anemic. Mom died, and I didn't get any better. I feel sick all the time and it's difficult for my husband to understand how bad I feel. I've tried to get my doctor to prescrive Armour, but he doesn't even return my phone calls. When I see him in the office, he keeps telling me it takes time. I hate living this way and want to stop the pills completely.

I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??

I was born without a thyroid gland so I can't compare the way I feel now to the way I would've felt with a thyroid. I've been on Synthroid my entire life (22 years), and I'm up to 112 mcg now. I am very skinny (5'5", 104 lbs) and feel constantly fatigued no matter how many hours I sleep, what I eat, and how much exercise I get. I periodically get pain in my hip joints, heart palpitations, and intense mood swings. My thoughts race but I have very little physical energy. I feel restless and gloomy almost all the time for absolutely no good reason. My doctor tells me I'm depressed but I honestly have no reason to be depressed and I wish she would see it as a symptom instead of a diagnosis. I graduated from a good college, I've got a job I like, I have friends, I enjoy life and my hobbies, yet I feel overwhelmingly sad. This does not seem like depression to me.

I find that after I do aerobics I get a tightness in my chest, which makes me worry about my heart, but again my doctor doesn't seem to think this is cause for concern. I have been irritable/fatigued for YEARS and I suspect I'll feel this way for the rest of my life. The worst of it started when I hit 16 years old and started the 112 mcg. My tests are always normal and it frustrates me that my doctor disregards my symptoms. I've tried other doctors, but they always send me away with my 'normal' test results. Can anybody help?

Been taken synthroid for 2.5 years. I am 30 old male, Really athletic.
I notice that I get fatique very easly and memmory and concentration problems. But the most noticable is shortness of Breath, and I have very high anxiety. I lost wait since being on synthroid.

I have been taking Synthroid since Jan. 2006, am on 100mcg per day and all test results have been 'normal', I have been told to take this medication in the morning an hour before eating anything, if I do this...I have headache all day, I can't eat after an hour because I am so sick at my stomach there's no way. I feel hungry, but feel like if I eat it's coming right back up. Am having serious joint pain in hips, knees, elbows and wrists, my neck hurts really bad as well. I wake up to arms asleep anymore and just feel like I haven't slept in months...am very weak and very tired all of the time.

I have found that if I take my pill at night this gets a little better, but holy cow, don't tell your Dr. your taking it before bed...no, take it of a day. (don't know why this is a major thing?)

Anymore I feel like I am walking around with flu symptoms constantly, and the Synthroid hasn't done anything weight wise with me, because I was so HYPERthyroid before the RAI, I was very thin and looked like a bag of bones, have been waiting and excited about putting on weight...at one point I stopped taking the Synthroid and let myself go HYPO just so I could gain weight, it worked and I got up to about 130 pounds, was very HYPO so they told me critical that I get back on meds...I lost it again because it makes me so sick I can't eat.

NO-ONE can tell me the Synthroid is not the cause of this problem, if I stop taking it I feel WONDERFUL, but my test reults are bad. After a while of course my feet become numb and I end up having some bad hypo symptoms, have tried breaking pills in half....oh Lord no, need it all...

Have been told they are thinking about raising my dosage again anyway, I can't do this, I will break down in the office if they try to raise it. Right now my TSH is fine but my T4 is 'a tad bit' off. I am already an emotional wreck, if they raise my dosage I am going to try and go a different route with this, am on my 3rd Dr. at this point anyway...

Man, I really messed myself up, I guess. I have been taking the 1.50 for a few years now. I am now 55, ...and lately, for the last twenty days or so, I started having daily, all day long palpitations. So I walk four miles a day, or whenever they start up..but the first thing I thought, was it was time to lower my thyroid..so I broke them in half..BIG MISTAKE...caused my heart to go faster, leg cramps. cold feet, then hot feet, hands, etc....so when I put it back after one week, I started feeling a little better..but still have the heart palpitations...so I figure time to buy some insurance and get it all in order...WOW...how terrifying...

I have been taking Synthroid for many years and I think I've had all of the side effects. Hair loss, lack of restful sleep, dried, itchy skin, tiredness, fast heart at times. It went hyper for a while and I felt good then but I did sweat a bit.
My condition is now hypo and I am having a lot of stiffness as well as the other symtoms.