August 24th
2008
11:58 PM
I am a female and was diagnosed with Hashimoto's three years ago (looking at old childhood photos I've probably had this all my life) and have taken Levoxyl and Synthroid in escalating doses over time. Initially 25mcg for about a year and that was the endo plan until bloodwork indicated a need for more. I quit taking it after a year as it seemed I was gaining weight. After a few months went to a different endo and he started the treatment again with 25 (I weighed 160 at the time) and now has worked it to 100mcg (I now weigh 178!!!). I thought that with the higher dose I would have more of a weight loss effect (definitely not weight gain) and thought I'd have more energy, better brain function and happier outlook. I am experiencing the complete opposite. The last time I visited the endo and he looked at my weight gain he just said to "stop it". I work out almost every day for 45 minutes to 2 hours, have a job that at times requires arduous work, I eat a very healthy diet full of fiber, low in fat, low in carbs. I'm always hungry and feel like eating to make up for a lack of energy. I come home from work exhausted. This isn't living. I've had it with the Synthroid and any form of T-4 alone. I'm going to see a natural healthcare professional to try Armour because none of the medical doctors I've seen will prescribe it or synthetic T-3.
-- By nmcajun | Reply | (3) replies | Send Private Mail
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (3) replies | Send Private Mail
November 23th
2007
5:03 PM
Hello, I had a TT two weeks ago. I had hyperthyroidism. I was diagnosed three years ago after ending up in the hospital because I had a thyroid storm. I started taking synthroid the day after my surgery. I feel like a nut job! I don't know if it is because of the medication or because of the TT. Could it be a combination of both. I don't remember my numbers but I know that I was in a hyper state when I went in for surgery. Since I have been home...I can not fall asleep without meds, can not stay asleep, my day starts around 4:30 AM, have night sweats (big time) and chills (although, that symptom seems to be improving), I have been so irritable that I can't stand myself, my husband and kids are ready to kill me. I know that my behavior is totally unreasonable but I can not seem to control myself. I feel crazy! I see my Endo next week, I just hope that I can make it until then. I feel like I need to pack my bags and head to a hotel and spare my family from me! Please someone tell me that this will get better.
-- By smgawler | Reply | Send Private Mail
November 5th
2007
4:26 PM
hello everyone
i am a full time college student and I believe that i have some side effects from synthroid. As i was reading everyones blog i notice that some people feel the same way that i do. At times i feel that i'm normal but if something upsetting happens i get really tired, depress, and I have a never time concentrating at school and home. My body hurts all the time. especially my joints and i feel that i don't want to do anything. I have about a year left until i graduate and its the going to be hard. I cry sometimes for no reason. help! i'm going to talk to my doctor but if any body else feels the same way please reply.
August 2th
2007
2:49 PM
Originally, i was diagnosed with hyperthyroidism. This was about 6 years ago. I was on a beta-blocker for 3 years. Afterwards i was diagnosed as being hypothyroid (about 2.5 years ago). I've been taking synthroid ever since. At first my dosage was .075 mg. It was changed to .05 mg a year ago. I haven't gained any weight since i became hypothyroid, but i've had many other problems. Some of them include, difficulty swallowing and breathing, heaviness in throat area, memory loss, insomnia, lack of focus. These are the most serious problems.
-- By hound101 | Reply | Send Private Mail
April 8th
2007
12:14 PM
I took 75 cmg of Synthroid after having my thyroid destroyed by radiation, then two months later dropped to 50 cmg. Within a month I was hospitalized for atrial fibrillation. The Synthroid was reduced to 37 cmg by my physician. I am experiencing dramatic hair loss and want an alternative to this poison that has ruined my heart as well as my appearance. In less than two weeks, I have gained 3 pounds. I should have left the thyoid alone but three "experts" said the hyperthyroidism would kill me. I had lost 14 pounds and had a thick gorgeous head of hair. Thanks to Synthroid, I am fatter and have gross hair loss. What hair I have is dry and thinning.
-- By tosca47 | Reply | Send Private Mail
March 22th
2005
8:19 AM
I have been between 110 - 115 lbs most of my adult life. I tried everything to gain weight, but it didn't work. I was diagnosed with Graves Disease when I was pregnant with my son. I took PTU for the duration of the pregnancy. I was symptom free for about 4 years. About two years ago, I started to experience symptoms related to Graves Disease. I saw an Endo doctor who told me that I have a non-cancerous goiter that needed to be removed. I have thyroid surgery 8 months ago. I started taking Synthroid shortly thereafter. I have been trying to explain my symptoms of Hair Lost, Dry skin and nails, Insomnia, weight lost, lost of appetite, and leg cramps to someone for 6 months. Nobody listens. They just discount my symptoms. Today I decided to do some research to find out if I was alone. I AM NOT ALONE. I've been taking Synthroid for 8 months. My hair is so thin that you can see my scalp. Combing my hair makes me upset because I have chunks of hair in the comb. I too called my doctor and he replied,"I can't believe that your symptoms are related to your synthroid use." Reading these articles helped to prepare me for his responses. I insisted that I didn't want to take Synthroid anymore. He ordered blood work and advised that I have to continue taking this medication. I don't want to feel this way for the rest of my life. I have a 6 years old son who is full of life. I don't have the energy to keep up sometimes. I felt better before my Thyroid Surgery. (34 years old Woman, post Thyroid Surgery for an Enlarged Goiter and Hyperthyroidism). Where is the support????
-- By edrogers1198 | Reply | Send Private Mail
July 30th
2004
12:57 PM
I have been diagnosed with having hyperthyroidism. I have lost 70 lbs as a result. My doctor has just informed me that he is ultimately going to kill my thyroid and subsequently put me on synthroid. All of the symptoms reported here are scaring the hell out of me.......
-- By izellejones | Reply | Send Private Mail
March 30th
2004
11:21 PM
I am 23 and found out just a month ago that I had graves disease, hyperthyroidism and a cold nodule that they couldn't determine if it was begning or not so I just had my thyroid removed last week and I started synthroid a few days laterl. I've noticed that I'm a little
shaky, i thought maybe it was from my parathyroid glands not producing enough calcium but even though my calcium levels have gone up i'm not visibly shaky just feel shaky,
I also don't want to sleep I feel like I have more energy but at the same time i've been weepy. Is this normal?
I really haven't had a chance to ajust to any of this it's all been happening sooo fast.
******
This registry is a place to share positive or negative side effects of using Synthroid. If you directly experienced a side effect while using Synthroid, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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September 15th
2008
12:27 PM
I am was diagnosed with Hyperthyroidism about 2 years ago. I took the radiation treatment and was placed on Synthroid. Every 4 weeks the dosage was adjusted until my Dr doc determined 0.125mcg worked best for me. Well, at the time I was diagnosed I weighted about 150 pounds. Two years later I am at 180. I'm 5'8 so my doctor(s) tell me my weight is in portion to my height. Well, the extra weight is centered around my stomach and hips, I am extremely fatigued and lethargic, I have brain fog and would like to exercise but I'm just too tired. I heard about Armour but from reading some of the other experiences, it doesn't appear to be the 'cure all' solution either.
-- By tahiti47 | Reply | (2) replies | Send Private Mail