Synthroid and nodule

My thyroid troubles started in 1993. I am not sure how long before the discovery I had the problem. Mine started as a nodule on one side. I was immediately put on Synthroid and had to go see the Endo every 6 months for a biopsy. In 1995 I became pregnant. I had one more biopsy until after the birth of my daughter. The Endo told me he wanted to see me right away after she was born to do another biopsy. I had my suspisions, but didn't think anyhing until after she was born and went for my biopsy. Well, I had cancer. I went through the whole thyroidectomy, the 3 days isolation with radio-iodine, and every year to every few years after I had to go back and get the radio-iodine treatment, while not the high dose as the first time, it went with the complete body scan. In fact, I am due now, but don't have health insurance. My dose has been switched a lot, I have probably been on every dose from the lowest up to .200mcg, which has been the highest for myself.

Symptoms: pre-thyroid disease, I am 5'2. I was always 110-115 lbs, I was 22 yrs old and 120 lbs. when I married in 1993. I did notice gradual weight gain, probably because of my thyroid problems. I am sad to say that now I am around 180 lbs. I cannot seem to lose the weight unless I go on a total starvation diet. I managed to lose 10-15 lbs over the past summer, but unfortunately for me it has come back over the winter. I tried to stay as active as possible by going to stores and malls to walk around. I do for a fact notice that when my dosage for Synthroid goes higher, so does my weight gain. I was on .137mcg over the summer, and I think that was a good dose for me, that was through the regular dr. The Endo is the one who put me back up to .150mcg. My Endo told me the thyroid is a regenerative organ, so it CAN grow back. I guess they don't want that in case of cancer again, and I guess that is why he keeps me on higher doses.

I personally cannot stand it. I feel it is a horrible curse. I feel very robbed of my previous active life. I have been dealing with this now for 12 years not having a thyroid and being on this medication. I feel angry that I do not have the energy to do things with my 12 yr old and 3 yr old. I miss the way I was before having thyroid disease. I feel very sad when they come up to me asking to do certain things and they (nor anyone else I know for that fact) can understand that I just feel so whooped, and no energy. All I ever seem to want to do is take a nap. I have migraine headaches constantly, I am constantly tired. I cannot concentrate, I have some memory loss. My ex-husband, and my current husband too for that fact think I am just being lazy. Well, that is not so. There are moments when I do feel a burst of energy, but then, I have to use that burst to do the things I need to do around the house.

Pre thyroid disease I was always active, never tired, could do anything. After: TIRED, I was 24 in 1996 and felt like an old lady, dry skin, no matter how much lotion I put on. The tub is full of hair, while it doesn't come out in clumps and I still have thick hair, I have hair all over the place. Irritable, mood swings, happy to angry and the snap of a finger. I can have insomnia some nights, constipation, lots of the same stuff others have listed on this forum. Those side affects are the same no matter what dose I am on. And like I said the higher the dose for me, the more weight I pack on. It is instantanious. Over Christmas, and no, it wasn't from eating all the goodies, I gained a lot of the weight I had lost over summer back, and that was because a few weeks before, the Endo had put me on the .150 mcg.

I had 2/3 of my thyroid removed in the 90s' because of a nodule, non cancer, wish I wouldn't have. After being on 125 for years now in Oct I started having palpations and numbness, went to my family dr, my endrocronoligist disapeared, anyway, he cut me in 1/2, I went from .2 to 20 on my levels, he raised me to .88, I was at 8 when my gyn raised me to 100 and then to 125 fast, I went to the ER last Sunday, and still having flushes and my hands are going numb. Right now my family dr has me off thyroid meds til tommarrow, and then start back with the .88. I feel like I am going crazy.. nervous, and then now getting tired, still having flushes and my hands are going numb.

I have been taking synthroid for 20 years due to a nodule. It shrunk the nodule almost imediately but my eye, ear, nose and throat dr. insisted I continue to take sythroid. Today I had an regular appointment to check levels and he said that we are going to take me off synthroid. That a recent school of thought is that Synthroid doesn't need to be continued after the nodule is reduced!! I inquired several times about going off synthroid thru the years because I had alot of side effects. Hair loss, anxiety, heart palpitations, chest pain, sweating constantly, insomnia....all of the symptoms described by others on this page. I am kinda pissed but relieved to finally get to STOP TAKING IT!! Ask your Drs. about this if you just had a nodule and take synthroid for shrinking the nodule!!

Been on .15mg sythroid for 2 years. Had thyroid removed due to cancer nodule. Just recently started having lower back pains, neck, and leg cramps at night with anxiety, also my fingernails keep splitting.

hi there-
well just to fill you in im a 33 year old woman living in brooklyn, ny.
i was recently diagnosed as having a thyroid tumor-
there were also nodule growth on my thyroid-
i was so frustrated when they told me ---they could tell me i had cancer- but they could not tell me it didn't unless they removed the whole thing.
so two weeks ago out she came- tumor , thyroid and all. the aspirate showed that it was a solid mass- and the test result was "suspicious"
i have noticed since i have been on the synthroid-
leg pains- anxiety and depression.
i may be shakey but i am still taking the pain meds-
i think to even out the whole emotions that go with the experience-
i just saw my neck for the first time two days ago-
i feel like a peez dispenser-
and feel constant feeling( almost like a pressure) where the surgery was performed-

they say it might be environmental or genetic. it does seem to be prevolent in the north east-
im still figuring this whole thing out-really
but it helps to hear other testimonies- the leg cramps were really bothering me!

I've been on sythroid for 2 months and gained 9 pounds despite the fact that I strictly follow a Weight Watcher diet (and have remained on it successfully for 6 years...until 2 months ago) and exercise 5 out of 7 days a week. The doctor said it is not from the medication, but I'm getting off of it anyway, as I'm only on it to reduce the size of a nodule.