August 26th
2009
7:20 PM
also everyone on here are describing symptoms of hypothyroid if your having symptoms you might not be on enough.
-- By moodyjulz | Reply | (3) replies | Private Message me
August 16th
2009
12:17 PM
Since on 0.175mcg of synthyroid after thyroidectomy and neck dissection two years ago, I have started to feel great fatigue? I can go to sleep at anytime during the afternoon. I also have a lethargy and malaise of the mind! If you mention this to the G.P., nurse or consultant you get vague looks!! Can anyone help?
-- By paulburn | Reply | (1) replies | Private Message me
July 28th
2009
6:21 PM
I've had numerous side effects from Synthroid, but the ones that finally scared me off the drug were the thoughts of death, dying and suicide.
These thoughts came as casually as thoughts of what I'll wear tomorrow, which was more frightening. They also came unbidden. First, I was thinking about death generally. About a month later, I began thinking about dying, and the whole process of dying. Then, when I started thinking about just walking in front of a train, I got on the Internet and did some research.
Synthroid was the only medication I take daily, so I stopped taking it at once. And about a week later, the thoughts of death, dying and suicide stopped. My doctor refuses to prescribe natural thyroid, so I'm out of luck until I find a doctor who will help me.
-- By kittywellington | Reply | (6) replies | Private Message me
June 12th
2009
3:56 PM
I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.
The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.
-- By levels | Reply | (3) replies | Private Message me
June 2th
2009
6:14 PM
Has anyone had problems with their eyes on this medication, my have been going blurry and then I get a terrible headache.
-- By hmurphy | Reply | (3) replies | Private Message me
May 20th
2009
12:55 PM
I thought my fatigue and mild depression symptoms were something separate but after reading these posts, it sounds like they could be linked to taking Synthroid? I've been on it for 2 years now. At first, I felt great. I started feeling tired again & my dr. upped the dosage. I just saw him today & complained of feeling tired, depressed, and getting light-headed and off balance at times. He wrote me a Rx for anti-depressants and changed my blood pressure Rx. I'm thinking about trying a Naturopathic Dr. to see if I can get the results I need without all the side affects. It couldn't hurt to get another opinion.
-- By weezer2647 | Reply | (2) replies | Private Message me
May 12th
2009
6:52 PM
O my!!! Here is my long story short, 2 yrs ago was put on synthroid, after a routine physical. I didn't even know I had a problem, gained 20-25 pounds, tried to diet, NOTHING, started breaking out on my face, actually leaving scares, etc...........10 days ago I ran out of my prescription - no refills - forgot about appt. and I actually have lost 3 pounds without even trying. AND my skin has no new blemished!!! I am staying off to do a trial on myself!! Good luck my friends and goodbye synthroid!!!!
-- By nonie45 | Reply | (2) replies | Private Message me
April 7th
2009
2:57 PM
You Can Now Boost Your Thyroid Function,
Eliminating Your Most Troubling Symptoms…
Without A Prescription and Without
Begging Your Doctor!
How? By adding a simple but vital supplement to your diet: Iodine.
Just how important is iodine? Consider this… about 25¢ worth is all that stands between an infant developing normally and one that’ll be severely mentally handicapped the rest of its life.
Iodine is essential to a proper functioning thyroid. But as we grow older, our thyroid starts slowing down. It just can’t metabolize the iodine it needs as efficiently, and that means the hormone produced (also known as thyroid) goes down as well.
There are 2 other reasons why most of us are iodine deficient:
Inadequate dietary intake, and
Exposure to toxic substances that displace iodine.
Iodine is a mineral, but one that is not abundant in the food we eat. Primarily found in very small quantities in seawater, soils are naturally deficient in iodine, especially the further away you get from the ocean.
Iodine is also fairly easily displaced from your body by toxins called toxic halides… fluoride, bromine and chloride.
Fluoride is by far the worst culprit. Found in toothpaste and in your water supply, every time you take a shower, brush your teeth or drink from the tap, your body gets a little exposure to fluoride, leeching out good iodine. And contrary to popular belief, fluoridated water is actually rather poor at preventing tooth decay.
Why is it in our water supply then? Poor science combined with corporate greed and political ignorance paved the way. Basically a toxic by-product of aluminum production, fluoridation was sold as a way to prevent cavities because some areas with natural fluoride in the water also had lower instances of tooth decay. Based upon that spurious observation, fluoridation began.
If You’re Human, You’re Most Certainly Iodine Deficient!
Because of these factors, 96% of all people tested are iodine deficient! This according to a study of 4000 patients conducted by Dr. David Brownstein, Medical Director for The Center of Holistic Medicine, and renowned author of several books on hormones, iodine and hypothyroidism.
The World Health Organization also concurs, estimating that 72% of the world’s population is being affected by iodine deficiency.
This trend is worsening. Over the last 30 years, the NHANES (National Health and Nutrition Examination Survey I) shows iodine levels have dropped 50% in the U.S.A. alone.
-- By fernando111 | Reply | (2) replies | Private Message me
March 21th
2009
5:23 PM
Everyone out there, try Armour Thyroid!!! I was changed to Synthroid (because my endo only believed in it) a few years ago, and put on 15 pounds and lost half of my hair. I work out at least 6 days a week, run 3-4 miles a day, and live on salad. I asked my regular MD to switch me to Armour, and in three weeks, my hair stopped falling out, and I'm losing weight. I was losing, yes, I counted, at least 45 hairs a day when I combed my hair after my shower (and I'm not counting the clumps that came out in the shower). Now, maybe when I wring my hair out in the shower, only one will come out and less than 15 in my comb. Ask you doctor to just try it, and if it doesn't work, you can always go back. I swear by it. I'm happy all the time again, where I have just been monotone for the last few years, and I'm thrilled. Good luck!!!
-- By marina217 | Reply | (7) replies | Private Message me
March 19th
2009
3:53 PM
Someone PLEASE help or offer assistance! I have been on 50mcg Synthroid for about 1.5 yrs now and have gained about 25 pounds!! I am a very, very active triathlete, not just your 30 mins on the treadmill kind of girl. How about running 5-6 miles, riding my bike 40-50 miles, and swimming all about 3 times per week!! How can a human being continue to gain weight at this activity level? I am considering just stop taking it, cold turkey. Has anyone tried any of the supplements for thyroid support, or natural meds? If you've got any suggestions, I am open to just about anything at this point!!
-- By trigirl | Reply | (3) replies | Private Message me
March 19th
2009
8:14 AM
lol im 22, ive been on this drug since i was 7-8ish I find this really interesting as I never have had any side effects.As a teen I even stopped taking the drug for weeks at a time, though my doctor advised me not to because he said my body would be all wacked out... i was a teen it was bound to happen. And there was no change in me, lol. Im so surprised you guys say you had this many side effects!!!!
-- By kaylyn1234 | Reply | (1) replies | Private Message me
March 16th
2009
12:28 PM
I have only been on Synthroid for 2 months, but my appetite is out of control. I read that gaining weight might be a side effect of Synthroid. You would think that you would lose weight with it since it makes your thyroid run more efficiently. My TSH is 4.3, still normal, so I don't guess I really need it yet. I am going off of it and going to the health food store and take Thyroid support.
-- By lyndy27 | Reply | (2) replies | Private Message me
March 10th
2009
1:32 AM
I have been taking Synthroid 25 mcg for a year now, and here is a list of side effects that I have experienced. Appetite has gone nuts, Gained 15 lbs, ringing in my ears has gotten louder, here is some scary stuff-constant visual disturbances, and now moderate to severe vertigo of which I have never had before the medicine!
-- By petedillard | Reply | (1) replies | Private Message me
March 6th
2009
9:31 AM
I have been on Synthroid for about five months. I started out on a relatively small dosage- 50 mcg. My Doctor upped me 50 mcg every month after he checked my TSH levels. They started out at 150, and right now they're at a 10. I hate this medication. Im now on a 250 mcg, and my side effects keep getting worse. I have probably lost about a third of my hair. I started to loose weigh, but i don't feel like i really am anymore. I am very moody, and also emotional. I lash out for absolutely NO reason whatsoever. Im hot, cold, but can never find a comfortable temperature. Im always tired, No matter if i just wake up, or if its time to go to bed. He's put me on Celexa, he said i was just depressed. But its not depression. Three months ago i wouldn't have lashed out for something as small as the mail didn't come. I hate to be this way, and i wish i didn't have to take this medication for the rest of my life.
-- By ericaxnicolex09 | Reply | (1) replies | Private Message me
February 24th
2009
5:04 PM
I also gained weight, work out 4-5 days a week and havent lost a pound. I am now having a vibrating or shaking feeling through out my body that is worse at night. I tried to stop taking it but that was worse.
-- By kernan77 | Reply | (2) replies | Private Message me
February 17th
2009
5:04 PM
I have always had and currently have the side of effect of extreme fatigue associated with the use of synthroid and now Armour thyroid replacement as well.
Whenever my tsh reaches normal levels I become increasingly fatigued. Now I an hardly stay out of the bed and yet my levels are normal.
I have Hashimoto's Disease and am menopausal with severe insomnia to cloud the issue. But the fatigue associated with thyroid replacement is longstanding and has occurred for about 15 yrs. For many years, I would stop taking the medication because of it. My doctors do not believe that the fatigue is related to Synthroid which I find utterly frustrating. Will be looking for another endocrinologist soon. Has anyone out there experienced this side effect of extreme fatigue?
Any input would be greatly appreciated.
January 26th
2009
4:49 PM
I was prescribed this drug in hopes of keeping thyroid nodules and goiter from growing larger. My TSH levels have always been in the normal range throughout my life, so the theory that "normal TSH' means a working, normal thyroid is absolutely untrue. I am a prime example of a person who's numbers have always remained normal and yet their thyroid does not work properly. I have decided to discontinue this drug after 3 months of use. The weight is packing on faster than I can diet and exercise it off. My face is puffy, my stomach bloated and looking pregnant, and now retaining water. Anyone who does not believe that Synthroid causes weight gain, I welcome you to try this drug. It does the exact thing it claims it is combating. I am not hypo with levels of 1.07 and yet something odd is occurring within my body with this synthroid. I'm praying that if I stop the drug I might return to some form of normalcy soon.
-- By debs661 | Reply | (1) replies | Private Message me
January 13th
2009
10:31 AM
Oh My Gosh....I cannot believe I just stumbled across this site. Feeling so NOT LIKE MYSELF for quite sometime now made me decide to google Snythroid side effects, wondering if this medication I am on could possibly be the reason I am feeling so badly. I am 50-years old and started taking synthroid (Levythyroxine) about a year ago for hypothyroidism. I have been struggling tremendously with anxiety, mood swings, fatigue, more hot flashes, emotional instability, and sudden weight gain (about 10 lbs) since I started taking it. I never had any weight issues. I have just assumed this was all related to being "menopausal" (and I'm sure some of it is) and stress-related.....but here's the thing....BEFORE I started taking it, I felt "normal" emotionally, I never had a problem with my weight, and never really had any major "pre-menopausal" symptoms....in fact, I think I had A LOT LESS hot flashes and emotional turmoil, BRAIN FOG, etc., BEFORE I went on this stuff. I was technically POST MENOPAUSE two months ago. Okay, so symptoms should be subsiding now. Any menopausal symptoms would/should have been worse during pre-menopause. Again, I never remember having any major symptoms going through "the change" and felt blessed in that respect......so could it be possible that this hell I have been going through COULD be related to this fricken Snythroid????!?!? I want to just stop taking it to see if I feel normal again, but don't know if it's SAFE to go off all of a sudden. What is this Armour?? I cannot believe how many others out there are feeling like me. I hope this is the reason, so I can feel some hope. But now what do I do? I'm sure I still have to get my TSH levels or whatever regulated. Any suggestions out there? I'll try and make a doctor's appt and check levels again and see what my options are...I was told I probably had to stay on this stuff for the rest of my life. Thanks, everyone.
-- By grose58 | Reply | (4) replies | Private Message me
January 8th
2009
11:23 AM
I have hypothyroid. Have been taking Synthroid for about a year, 0.075MG a day. Had my levels checked 3 times since on the meds and still have never gotten to normal, but a lot closer. I have gained 20 pounds that I can't get rid of, which for me, is crazy. I have never had a problem dropping weight, and for the past month or so, I have started losing my hair. Not just losing it, but the texture and everything has changed. No matter what I do it looks dry and flat, and even when I condition it and also use a leave in conditioner, it still knots up and tangles. I have NEVER had a problem with tangles. It's coming out in handfuls. Im not taking any other meds, so I imagine it has to be the Synthroid. My problem is..What else can I take? I mean, I have Hypothyroid, so I can,t just leave it untreated, But I have no wish to be fat and bald either. Please...anyone know of others meds without these side effects?
-- By ksheila | Reply | (6) replies | Private Message me
December 13th
2008
8:16 PM
Im 17 years old and started getting sick a lot after getting my period at the age of 13. after numerous tests, and 2 years later i was diagnosed with both hashimotoes and graves disease. the doctors put me on synthroid and for a week i felt great. then after that i no longer wanted to take it. i didn't like the way it made me feel. i've been on the medication now for 2 years and my hair is so thin. it keeps falling out, and its very noticeable. i get a lot of headaches and severe cramps. i'm almost always tired. i get my levels checked every two months like the doctor wants. they are regular. anyone else feel the same? my mom is considering switching doctors.
-- By owenskate | Reply | (2) replies | Private Message me
November 12th
2008
12:40 PM
When I was first put on this we started at the lowest level and worked up from there, after having labs every 6 weeks for the first few months. I did feel better and had a little more energy, but I had to pee all the time and it smelled god awful, went to my GYN she said it came back fine.....then a G/F who had thyroid cancer told me she takes Armour (a natural ,made from pig liver)...OMG what a difference, I can take less meds, it is cheaper and my urine no longer smells.My energy level is back too!! Armour has T3 and T4 and Synthroid does not. I suggest to those not happy with Synthroid to try Armour thyroid, again it takes about 6-8 weeks to notice but what a great change, and better for your kidneys (which is how synthroid is excreted)
-- By momof3_grandma3 | Reply | (1) replies | Private Message me
October 28th
2008
8:52 PM
I AM SO GLAD TO KNOW THAT MOST OF YOU HAVE THE SAME SYMPTOMS. I am 25 yrs old and I went from 117-162 in about 4 years. I have been miserable!!!!! I was diag. in Aug. and have been taking SYNTHRIOD ever since when I first started taking it I took the medicine in the morning like the bottle and the doctor recommends, but I felt just like all of you. So I tried taking it in the afternoon for kicks and giggles to see if it would help at all. After about a week taking it at about 2pm I started feeling like a champ so I continued and now a month later I have lost 10 pounds. Just a suggestion......... The one question I do have is that I recently noticed that I have actually been ovulating and I am convinced that I haven;t in years hince why I have no kids I guess... Could your thyroid levels mess you up that bad to where you spend years not ovulating or should I go through the expensive process to see a fertility specialists. This is a question that I asked my doctor and of course they want to do 1000 $$$$$$$ tests to find out. Which I have no problems with in the future if worse comes to worse but I would like some advise from my fellow hypo sufferers and see if anyone was in the same boat as mee before being diag.
-- By cherrybit | Reply | (2) replies | Private Message me
October 10th
2008
9:34 PM
i just started taking synthroid for the first time, i am 54, started me on 25mcg which is a low dose, i noticed after about a month i started getting hot flashes all over again and my appetite was increasing, i am not overweight but i will be soon , I know i gained about 5 pounds in the last month, I do not like this so I decided (forget that) if it going to make gain weight, not sleep, have hot flashes, and i don't have any more energy and even getting more forgetful, it not worth it, I'll see how I feel without it!
-- By katie724 | Reply | (1) replies | Private Message me
October 4th
2008
10:41 PM
After a year and a half of synthroid because of removal of my thyroid for cancer, I feel worse than I have ever felt in my life. Many tests have shown that there is no recurrence of the cancer. I would think I had fibromyalgia if it weren't that I read the blogs from other sufferers like me. I now take 150 mcg on most days. Some days I have to cut it down or skip it because I just cannot bear the body pain, weakness, brain fog, constant awakening in the night, severe cramping knee and leg pain, and muscle aches (there's no word strong enough to describe this pain -- 'aches' just doesn't do it). On the days I don't take synthroid I begin to feel like my old self. But my old self was 40 pounds thinner and losing. My old self walked three miles a day and hiked into the back country with my son. And my old self felt energetic and woke up every day with happy plans. Now I feel like an invalid. Some days I can barely walk. I cannot stand for longer than 5 minutes. I have tried cytomel, unithroid, and armour with varying problems. Synthroid is all that is left. Those of us who are dependent on this drug really need some good research on its effects. And we also need compassionate physicians who do not dismiss our pain and, it is not overdramatic to say, suffering.
-- By carefree | Reply | (2) replies | Private Message me
September 29th
2008
12:58 PM
Hi there,
I am reading all these postings and I'm here to say, "I survived Synth". I have been off for 15 days now and went the homeopathic route. My levels were always on the higher end even with 100mcg. They never really balanced out. I was so sick of vertigo, brain fog, and the WEIGHT GAIN. I stopped September 15. I will continue to have labs run just for piece of mind, but a major upswing for me......nine pounds have come off and I know I will go back to my ORIGINAL WEIGHT. I feel for all who are dealing with these side affects, it's not right. No more. I'm done.
-- By garyislarge | Reply | (4) replies | Private Message me
September 28th
2008
4:53 PM
IVE BEEN ON SYNTHROID FOR A LITTLE OVER A YEAR AND ITS BEEN HELL. I WAS STARTED OUT ON A 100MCG MY PERIOD STOPPED I HAD MOOD SWINGS HOT FLASHES AND MY IRREGULAR HEART BEAT IM 31 YEARS OLD I GAINED 42 POUNDS IN 1 YEAR MY FAMILY DOCTOR CHANGE MY SYNTHROID TO 125MCG WERE THEN I WAS RECEIVING TO MUCH NOW IM ON 112 WERE I HAVE BEEN IN REAL BAD LEG AND FEET PAIN AND AWAITING A CURE FOR THIS AWFUL ILLNESS IF ANYONE HAS ANY SUGGESTIONS PLEASE EMAIL ME B/C IM ALSO TRYING TO HAVE A BABY PLEASE REPLY ASAP
-- By tterrell | Reply | (1) replies | Private Message me
September 26th
2008
5:03 PM
Hello Ladies....I am 56 and diaged Hashimotos disease 3 years ago.At the moment on 112mcg of synthroid....dosage started off low and have gradually worked up....So angry with drs...was seeing endo, but moved and using family practice...so frustrated with weight gain approx 25lbs since diag. Also does the word sweat ....mmmm perspire for all us ladies, mean anything? I can't even wash dishes without breaking out in to a sweat...mmm beads of perspiration....Dry skin, I own stock in Aveeno....Also....does anyone get "boil type" skin eruptions in the nether region...butt, inner thighs etc? Does anyone or has anyone done any serious research on Iodine? I try to eat as well as I can, was doing Weight Watchers and gained weight do ya hear me? I am questioning my idodine intake or lack of....Presently take mulit vit with 150mcg. Considering uping it and dc ing my synthroid...cuz docs have been useless....eat less, (how much more less?) exercise more...I swim so much I look like a freaking prune....Any comments?
-- By bboyzgram | Reply | (6) replies | Private Message me
September 25th
2008
12:19 AM
i have been on 137 mcg of synthroid after a total thyroidectomy 1.5 yr/ago. i have since gained 40 lbs...am fatigued and irritable...have severe pain in both of my feet...and my hair is falling out by the hand full. i am 43 yrs old and had hopes of conceiving a child with my husband...but have had no luck for the last 6 months. i am interested in meeting with a holistic doctor that is willing to listen to my symptoms. my physician now is only interested in my blood leves. will someone recommend someone in san antonio, Texas?
-- By tbellion | Reply | (1) replies | Private Message me
September 20th
2008
12:11 AM
I was on synthroid for 10 years after getting treated with Radio Active Iodine. As the years went by my period was all all over the place. They were heavy the first three days and lasted 9 days or more days. I spotted all the way through the month. Other times I was so late that I thought I was pregnant. I had PMS two weeks before I started and was irritable. I had low grade depression. I had anxiety and heart palpitations. My skin was dry and rough. I went to the doctor and had my blood test. He checked for TSH and T4 and T3 levels. He insisted they were normal and that something else is wrong wth me (he wanted to give me sleeping pills, anxiety pills, depression pills) and that it had nothing to do with my thyroid. He sent me to an endo to get a second opinion and he said my levels were normal too. I ended up going to a holistic doctor (paid over 1000 dollars for two visits plus meds) that checked under my feet (yellow) and my reflexes. She checked my reverse T3 and my free T3 and T4. It turns out that my body was not converting T4 to T3 the way they said synthroid (T4 only med) should. My diagnosis was hypothyroid. I was put on Armour and felt the difference in my skin. It was softer and moist! My teeth felt strong compared to before I felt like my teeth were getting loose. My stamina last longer and can run on the treadmil 45 min at six miles per hour. I am less nervous and my low grade depression seems to be lifting. My days are brighter and less anxious. My hair is falling less. I know I have a long way to recovery because my Adrenal glands need some healing and I am still being optimized. I might still need to be raised on the dose that I am in. I will never go back to synthroid! My period has improved drastically as soon as I started on Armour! I am down to 4 days of period and less heavy. I still spot on day 5 and 7 but it is nothing compared to what I went through when I was on synthroid (T4 med only). My gynecologist wanted to burn my uterus to control the menstrual flow. He said that he could also pull it out. It seems like main stream doctors are more interested in treating the symptoms than looking to see what is the problem that is causing the symptoms.
-- By viviana2008 | Reply | (1) replies | Private Message me
September 19th
2008
10:48 PM
1990 - 2003 synthroid
Major bone loss
Complete hair loss
September 15th
2008
12:27 PM
I am was diagnosed with Hyperthyroidism about 2 years ago. I took the radiation treatment and was placed on Synthroid. Every 4 weeks the dosage was adjusted until my Dr doc determined 0.125mcg worked best for me. Well, at the time I was diagnosed I weighted about 150 pounds. Two years later I am at 180. I'm 5'8 so my doctor(s) tell me my weight is in portion to my height. Well, the extra weight is centered around my stomach and hips, I am extremely fatigued and lethargic, I have brain fog and would like to exercise but I'm just too tired. I heard about Armour but from reading some of the other experiences, it doesn't appear to be the 'cure all' solution either.
-- By tahiti47 | Reply | (2) replies | Private Message me
September 10th
2008
8:48 PM
Why is it OK with the DR. if synthroid makes us gain weight?!!! I've been hyperthroid before and lost weight...why does the med make us GAIN weight...I've tried EVERYTHING....We must demand they do more research..something just isn't right..but what do they care as long as our blood work LOOKS right! We should have the same rights to meds that work as the rest of the population.
-- By fatandsassy | Reply | (2) replies | Private Message me
September 2th
2008
4:13 PM
I had my thyroid removed 16 months ago. I had nodules and biopsies, but the biopsies couldn't tell if the nodules were cancerous or not---so I had the whole thyroid removed at my doctor's advice. I have been taking Synthroid and increasing the dosage---now up to 200---and I have gained 37 pounds!! I can't stand myself any more, none of my clothes fit,and I am so unhappy. I had gastric bypass surgery 9 years ago and lost 123 lbs. I had gained 20 lbs, but was stable for 7 years. Then I had the tyroidectomy and -boom- I'm fat again. I am really panicked. I don't want to gain all my weight back. It seems like I get fatter every day. My endo doesn't take me seriously, he says my thryoid is at the right level. I don't know what to do!!!!
-- By alicelund | Reply | (4) replies | Private Message me
September 1th
2008
3:37 PM
I have been on Synthroid since 1983--varying dosages. Side effects have included: weight gain, heart palpitations,adrenalin misfires, extreme reaction to heat (sun burns) and body feels hot all the time, fingers go numb in cold weather. Just recently have not been able to regulate dosage--fluctuating between hyper/hypo. I would like to try a new medication with few side effects. Anyone had any luck finding a different med that works?
-- By nf1849 | Reply | (5) replies | Private Message me
August 24th
2008
11:58 PM
I am a female and was diagnosed with Hashimoto's three years ago (looking at old childhood photos I've probably had this all my life) and have taken Levoxyl and Synthroid in escalating doses over time. Initially 25mcg for about a year and that was the endo plan until bloodwork indicated a need for more. I quit taking it after a year as it seemed I was gaining weight. After a few months went to a different endo and he started the treatment again with 25 (I weighed 160 at the time) and now has worked it to 100mcg (I now weigh 178!!!). I thought that with the higher dose I would have more of a weight loss effect (definitely not weight gain) and thought I'd have more energy, better brain function and happier outlook. I am experiencing the complete opposite. The last time I visited the endo and he looked at my weight gain he just said to "stop it". I work out almost every day for 45 minutes to 2 hours, have a job that at times requires arduous work, I eat a very healthy diet full of fiber, low in fat, low in carbs. I'm always hungry and feel like eating to make up for a lack of energy. I come home from work exhausted. This isn't living. I've had it with the Synthroid and any form of T-4 alone. I'm going to see a natural healthcare professional to try Armour because none of the medical doctors I've seen will prescribe it or synthetic T-3.
-- By nmcajun | Reply | (3) replies | Private Message me
August 24th
2008
4:21 PM
Ive been on synthroid since Saturday august 23rd and I noticed Im more nervous like I want to climb the walls and im sweating profusly. I have lost over 100 lbs since February and I had blood work done on tues august 19th and the doctor put me on 25 mg. Im suppose to go back in 6 weeks and get my level checked again but Im going to call the doctors office tomorrow and tell them what is happening. If this is what is going to happen Im not staying on it. Im only 42 and I am battling deg.disc disease which hurts enough and sciatia.
-- By tonette | Reply | (2) replies | Private Message me
August 24th
2008
2:36 PM
I had always been 160 lbs since 8th grade, which was a fine weight for me bacause I'm tall and muscular. When I was 25 I gained 20 lbs over 3 months with no change in diet or activity. So I went to the doctor because hypothyroidism is very prevelent in my family. The blood work showed I was borderline hypothyroid, so the dr didn't suggest starting any medication. So I started working out 4-5 times a week for at least 1-1 1/2 hours per day. I also got on phentermine to help jump start my diet. After doing this for 2 months, I had gained 5 lbs. Which is crazy because anytime I needed to lose weight, I had no problem dropping 10 lbs in 2 weeks. I was frustrated but ignored it for a while because I got pregnant shortly after that. During the pregnancy, my throid was checked again and was normal. I weighed 248 lbs the day I went in to give birth. 2 weeks later, I weighed 210lbs and a month after that I was 200lbs. Then I went back to work,(where I walk continuously all day) and I could not budge my weight below 200 lbs no matter what I did. So I went back to the dr and I was slightly hypothyroid again. I opted to go on generic Synthroid 25mcg. I then gained 37 lbs over 4-5 months. So I went to another dr. to get on phentermine. I started the phentermine and lost about 27 lbs. I have been off phentermine for a while, but have been working out vigorously working out and watching my diet and couldn't lose another pound. So, I thought the synthroid might be making it harder to lose weight. I stopped taking it and have lost about 10lbs in the last month. I think there is definitely a connection in synthroid and my inability to lose weight. But I still can't get below 200lbs and I still feel sluggish. I am only 28 and don't think I should attribute this to age. I can understand age causing weight gain of 5-10 lbs per year but not 155lbs in May '05 to 183lbs in Nov '05 then to 200lbs in Jul '07. Please give me any suggestions you might have. Diet, medication, activities???
-- By helpmeplease | Reply | (2) replies | Private Message me
August 7th
2008
12:27 AM
Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf
August 5th
2008
7:21 PM
I was put on synthroid a year ago, due to a tsh level of 87. I pretty much felt better right away after taking it. First I took 50mcg and then it was upped to 100mcg. Everything went well until I had my latest tsh test. The level was going up again (tsh 5.4) so the doctor decided to put me on 125mcg. After about a week I began feeling like crap. Slugglishness, tiredness, muscle pain, joint pain, and it became progressively worse. I have an appointment coming up thank god. In the mean time I read 3 books on thyroid and it was mentioned that most people don't benefit from just taking T4 (ie. synthroid), despite the fact that the pharmac. and some docs say that body breaks t4 down into t3.
Some people's body cannot successfully break it down enough, some are cellular resistant to thyroid hormones, and those people absolutely need t3 in order to not develop Hypometablolism. The cell need the T3 to function. But unfortunately one can be hypo and still have good TSH levels, because this particular test only tests if there is enough T4 in the body.
Unfortunately, it's so hard to explain that to mainstream doctors.
One doctor I read about said it right: Don't just treat the test results but also the bodily symptoms, for everybody is different anyways. Just like our finger prints are unique, so is our hormonal metabolism.
I'm going to try to talk to my doc about this, but if he doesn't listen I will look for another doc until I found one that will. Good luck to all in this hormone jungle.
July 28th
2008
11:22 AM
I been on Synthroid now for 10 years. Almost right after I started the medication i started to have headaches. I had / have headaches every single day , all day long. Before the Syntthroid i NEVER had headaches, EVER. It has been 10 years and i still complain. I have spent so much money and wasted time on exams and doctors. All the doctors tell me is that i am stressed or its sinus or something else . Which i don't think i am . I have CT scans a few times. I am not crazy, i know what i am saying. Doctors don't listen. I looked on online and saw that headaches are a side effect. I went back to my doctor and explained. The doctor(s) insist that the Synthroid is not a cause of my headaches. With headaches every single day a person can not function normally.
I ran across this website and in a way i felt better knowing that this symptom is real and other people are experiencing the same thing. On the other hand it upset me that all these people are complaining and no one is listening.
Is there no solution?
-- By arn12 | Reply | (2) replies | Private Message me
July 18th
2008
6:33 AM
It took 3 years for me to be diagnosed with hypothyroidism and for a year I tried levethyroxine. This was a total waste of time. I was so exhausted the kids kept missing school, I kept walking into things, couldn't remember anything so I asked my doctor to let me try armour thyroid. This has apparently T4 T3 T2 and T1 and the T2 is the one that helps your metabolism (weight).
The change is nothing short of miraculous...I know it may not work for everyone but it is worth trying. I also had very extreme mood swings and the doctors were considering manic depression, but the latest thinking with that is to take your TSH levels higher before considering drugs such as lithium. I have just moved to Reading and my new doctor thought my T3 levels too high so reduced my armour dosage by half .....BIG mistake. Ended up in bed for days, couldn't remember which day it was, and the mood swings
!!!!!!! screaming, tearing my hair in frustration, punching my boyfriend. I staggered, literally, in tears back to the doctor who reinstated my original dosage of 2 grains one day 3 the next etc. For me my TSH has to be 0.1,
T4 around 14 and T3 around 8 to 9; basically on the high side but my blood pressure stays low as does my body temp and I feel alive again. It is worth trying different variations synthetic T4 AND T3, and don't rule out armour thyroid if nothing else is working after 6 months of use.
June 30th
2008
5:05 PM
I was diagnosed with graves disease last year, I had a really acute case that turned me into a total nut job.
In October after going through several thyroid storms and the doctors not being able to keep me stable with medications, I had a full thyroidectomy in October.
I started on .100 mcg of levothyroxine and then the dosage was gradually decreased, I started having a lot of random body aches, mood swings, lots of muscular pains and no energy.
They ended up raising my dosage and detected that I had a large vitamin D deficiency, after several treatments of taking 50,000 units of vitamin D, and also adding my levothyroxine dosage I started feeling better. I still have mood swings here and there, and feel sad periodically, but the last month or so I've been feeling more fine than I have in a long time. They have me on .170 mcg of levothyroxine for two months now. Last week I started getting headaches more frequently, and one of the times I got this nose bleed.
This past weekend I got a headache, and then later that night I had another nose bleed.
I don't usually get nose bleeds or this many headaches so I'm a little concerned.
Also the last time I was getting headaches and constant nosebleeds was when I was really hyperthyroid.
As far as the doctors go, I'm in between insurances and quite honestly I've been frustrated with both my pcp and endocrinologist...
June 28th
2008
7:29 PM
Re: Dosage Confusion- Synthroid
This simple of communicating dosage became confusioning. To prevent confusion synthroid is always discussed in terms of (mcg). That is, micrograms (mcg) vs. milligram (mg).
This is of tremendous value The conversion factor is 1000, for example a dose of Synthroid represented as 0.025mg, would be converted as
.025mg x 1000=25mcg. To fully understand this blogger’s statement feel comfortable to talk with your pharmacist or physician.
June 27th
2008
9:16 AM
I've been on synthroid now for about a year. My dosage is VERY little (0.075). My doctor keeps running blood tests every 3 months and assures me I am within the "lower-end" of the norm, but I still feel tired, sleep deprived, wake up with night-sweats and I keep gaining weight...
I am only 24 and have just been told that I need to take this medication for the rest of my life, it\s pretty depressing. I keep asking if there are other ways to lose weight and feel more energized. He tells me that I need to keep taking this medication and has put me on a "sleep hygeine" routine where I go to bed and wake up at the same time every day.
Does this "disease" mean I will always be overweight and tired for the rest of my life? I would like to know if someone else with more experience with this medication can give any sort of advice? Feeling a little hopeless about it and not really interested in complaining to my doctor anymore.
Thanks:)
-- By melie_k | Reply | (7) replies | Private Message me
June 24th
2008
1:53 PM
I have been on synthyroid for the past 4 months and my doses have been increased from .75 to .112 which I am currently on. I weigh 92 pounds, which is my normal weight, but it seems this new increased dose has increased my appetite (I always had a fast metabolism) given my palpitations, flushing, sweating, high and low blood pressure and generally feeling overstimulated. It's been two weeks since my dose was increased and I felt better with the lower doses. My endocrinologist keeps increasing my dose since my TSH levels are still not in the right numbers, but this new dose is making me sicker than I was before. Could this new dose be too high for me.
-- By jackcharles | Reply | (1) replies | Private Message me
June 17th
2008
7:08 AM
I have Hashi's and have been on Synthroid for about 2 years. I was recently on 75 mcg and was teetering on the brink of being hypo again so my doctor increased my dosage to 88 mcg last week. Ever since I have been on the new dosage, I have had the worst insomnia. I wake up covered in sweat (in air conditioning) and I feel caffeinated all the time ( I don't consume caffeine). I feel strung out! Is my body just getting used to the new dosage or am I being over medicated? I don't want to complain yet to my doctor if this is just my body getting used to the new dosage but this really is terrible.
-- By msv | Reply | (2) replies | Private Message me
June 10th
2008
3:23 AM
Hello To All,
I too am on this med, I have been on it for 1 year as of July 2008-
35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.
Please email me at ****** I would be so very thankful.
Thanks to all and be healthy.
-- By n2quality888 | Reply | (7) replies | Private Message me
June 4th
2008
12:37 PM
I am a diabetic with hashi. I had been taking synthroid longer than metformin and had been on both for at least a year now. Recently I have been to ER due to heart palpitation and shortness of breath, so I had stopped my synthroid .1 for one day and felt better. So I stopped taking synthroid altogether, After 3 weeks I took it again because I was afraid not to follow my doctors order. 3 days into it, I was back to a high pulse, shortness of breath, chest pin and palpitation. I went to a different doctor,
and he agreed that we experiment on the dosage and try a generic brand.
I took .25 this time and I had the same reaction as taking synthroid .1.
I have now stopped completely, I am hoping to that my doctor will listen to me and will give something else other than synthroid.
May 30th
2008
5:54 PM
Wow! So glad and sad to find other sufferers. I wish our doctors would listen to us and take us seriously! Why are they stuck on forcing Synthroid on us? At this point, I think I'd rather not take any Synthroid. I stumbled upon this site while looking for something I might take to counteract the effects of Synthroid. I had to halve my 112 mg pills because of the side effects: frequents headaches, bloating, weight gain, irritability and anxiety, dry mucus membranes (eyes, nose, throat, etc.), allergies, muscle fatigue, achy joints. Of course, my doctor is slowly upping the dosage again, because my TSH is chronically high, but I feel like sh*t, physically and mentally. I used to feel so much more normal and like myself before I was diagnosed and "forced" to take Synthroid.
-- By poingosiba | Reply | (5) replies | Private Message me
September 2th
2009
10:19 AM
I feel bloated and hungry all the time since taking generic and switching to Synthroid for about a month now. I can hardly think as well. I am foggy brained and unenergetic physically and mentally. I am going to an herbalist who uses Nature's Sunshine products and said it is very simple to get back on track with sea kelp and black walnut. She is very experienced and has helped others.
-- By mom24girls | Reply | (2) replies | Private Message me