March 6th
2007
4:42 PM
I am a 62 yr old lady that was started on Topamax a little more than 2 yrs ago for migraines that were getting worse as I was aging. After the first "weaning on" period I have been taking 100mg a day at bedtime for the entire time. Initially, I had a lot of tingling in my hands and feet, but it subsided somewhat and never seemed like a big deal. The Topamax brought my migraines to a grinding halt. However, more recently I've noticed quite a number of new increasing symptoms that are bothersome and scary. Difficulty concentrating, a certain amount of confusion, and some eye pain that sometimes feels like pressure and my vision is blurry. My balance does not seem quite normal. I'm not really dizzy, but I have "missed" a step too many times lately. My mind functions do not seem all together "there". Normal functions like spelling, counting change, answering questions, like my address and phone number, aren't always easy especially if I'm under pressure or get upset. Backaches and joint pains are present, but since I have Degenerative Disc Disease it is hard to distinguish the source of the pain. The problem is I cannot determine if this is from the medication or if I am experiencing another kind problem. ? Most medications have side effects; however, if the benefits out weigh the (negative) side effects, it is worth it.
-- By calaneet | Reply | Private Message me
November 6th
2006
7:22 PM
When I started taking Topamax a couple of years ago, I noticed that I had changes in my night vision. It was so strange. It was like I would see aura-like images. Flashes of light, etc. and kind of blurry. As soon as I cut WAY down on the doasge, it went away. It worked very well for a couple years, then I began getting cluster headaches. They just told me to increase my dosage and I'm a little nervous. I lost 25 lbs when I first started.
-- By heymelissaw | Reply | Private Message me
October 4th
2006
7:10 AM
I have been on Topamax for 1 1/2 yrs. I woke w/migraines daily! I am now migraine free, except sometimes when it rains?? I am so torn......The Topamax has made me "Stupid", my feet tingle, no sex drive,(husband NOT happy!!) totally unorganized, I feel sad for no reason, vision a little blurry. But hey, I lost 10lbs & I am not in PAIN!!!!! I am now NUMB??I take 100mg./day. 2 am & 2 pm. Should I cut back??Anyone try anything else that works?? Which is the lesser of the 2 evils.......Pain or Numbness????
-- By kfgmorris | Reply | Private Message me
February 10th
2006
8:08 PM
i am only on 25mg of topamax which i take before going 2 bed but ive noticed that about 30 mins after taking it i pass out.....i am extremely tired during the day like im in a fog.....no one in my family wears glasses yet i had 2 get glasses cauz i was seeing blurry out of my left eye my right eye still has perfect vision...im never ever hungry ..............and for some weird reason i am always itchy itchy alllllllll over my body. i have extremly strange dreams that is when i get sleep cauz i only get about 4 hours a nite i cant manage to sleep thru the nite also ive notice alot of tachycardia......like my hearts about 2 jump out......ahhhhhh...but on the good note i no longer have migraines :)
-- By skozak1969 | Reply | Private Message me
May 15th
2005
8:46 AM
I've been taking Topamax for a couple months now and am up to 200mg per day for both my Trigeminal Neuralgia (right sided facial nerve pain) and migraines that I was having 2-3 times a day. I now only have migraines 2-3 times a week which is so much better and my trigeminal neuralgia is under control, no pain as long as I take the medicine. I have frequent tingling of my hands and feet, I feel drowsy alot, but there are some times where I go one to three whole days when I can't sleep at all and I feel like a zombie and I'll even try taking tylenol PM to try to sleep but still can't. That is such a horrible feeling. When I finally do get some sleep, I'll sleep for like a whole day and night and then I am so relieved and back to normal. I used to love diet pop but now it just tastes totally bitter, so I pretty much just drink water which is good. I've lost about 8 pounds of weight and hope to lose more, sounds like others of you out there have lost some weight on this drug. Thats a good thing right? Like some of you out there, I also have that tip of the tongue thing where you know what you want to say but you can't say the words some times, and that is very frustrating. But on a positive note, I have friends that don't take anything and it happens to them too! I have had lasix surgery on my eyes and since being on Topamax, I have had to get some glasses and contact lenses for my eyes which is quite a frustration for me. I don't absolutely have to wear them, but things are just too blurry now if I don't wear them especially when I drive. Overall though, I am happy with the fact that my migraines are so much less frequent and I feel like I have a much better quality of life than before. I hope as time goes on my sleep patterns will even out, I have a feeling that they will. Good luck to all of you out there! ;-)
-- By kodiakcreek | Reply | Private Message me
April 6th
2007
3:30 PM
I have been taking Topamax for about two weeks now just 25 mg to start and I woke up this morning and my perfect vision was no more.
-- By cabs715 | Reply | (1) replies | Private Message meEVERYTHING IS BLURRY. I was told that one of the side affects of this medication is Glacoma like symptoms where you lose your vision fast.
I was told to stop taking the medication and hopefully the symptoms will go away