October 5th
2007
10:02 AM
I can't believe all of these posts, wow. I was starting to feel as though I was alone with all of the symptoms I was experiencing. I started this drug 2 1/2 weeks ago at 25mg am/pm and am currently up to 75mg am/am. I have really bad chest pain/tightness and mild shortness of breath. As someone else had mentioned, pop is enhanced not dulled, seems as though its like pins on my tongue. I have been forgetting words but not too bad, just for a couple of seconds. The anxiety is the worst, sometimes I lay in bed and the chest pain will increase and I get so axious it feels as though I'm going to die. I went to the ER last night but they did an EKG and told me my heart was fine that the chest pain most likely was not related to my heart. (I'm a 22 year old male and have never had problems with my heart) These chest pains only started after starting this drug. I'm ready to try something else. This was the first drug I was put on for my seizures, my doctor said it could possibly help the seizures/headaches/weight. These side effects are just too much.
-- By czambrano | Reply | (2) replies | Send Private Mail
August 24th
2007
10:12 PM
Be careful, do your research before taking Topamax. I took Topamax for 5 weeks for severe migraines. The first 2 weeks were fine, a slight decrease in my appetite. The third week, my memory suddenly got really bad, really scary. By the 4th week, my memory was non-existant and I felt slightly depressed. My Dr. assured me these side effects would soon pass. By the 5th week of Topamax, I plunged into a horrendous, suicidal depression. I cried all the time, I woke at 4 am with irregular heart beats. I have never been so uncomfortable in my own skin. I became a stranger to myself.
I much prefer my migraines over the side effects I suffered from Topamax.
-- By laurabird | Reply | (4) replies | Send Private Mail
June 22th
2007
9:57 PM
I was given topamax to treat headaches and cyclical mood disorder. I was not given any info about side effects or that, at the time(April of 2006), the drug was not FDA approved for treating mood disorders. I took about 3 25mg tablets a day for 6 weeks and started noticing pain in my chest, stomach, back, and neck, my heart felt irregular as well. Towards the end of the 6 weeks, I felt so bad that at times that I had to crawl to the bathroom at home because my body and heart felt so weak. I weighed 135 pounds before starting the drug and 117 after, lot of weight to lose for me in such a short period of time(my weight very rarely fluctuates at all). I started noticing that when I would eat a large meal, I would then be hungry with an empty stomach an hour later, and about 15-20 minutes after taking my 2nd pill for the day I would feel shooting chest pains and become slightly dizzy, I would take my third pill at home a couple before bed and the symptoms were even worse. I called the on-line nurse late at night a few times and they would say it was just anxiety, my friends and family that knew about all this would also say that I was just worrying too much. I decided to take matters in my own hands and started doing research on the drug. I found all the information I needed, that was not given to me, decided I was experiencing some of the specific side effects people had noticed. I finally decided on my own to stop taking the drug after my doctor told me that all this was because I wasn't taking a high enough dosage, I still can't believe that she said that!!
Now that I've had some time to look back and gather myself a little, I know that I also experienced side effects such as dizziness, loss of taste, decreased sex-drive, Loss of wittiness, feeling like being in slow-motion, slurring speech, heartbeat going from 64bpm sitting on the couch to 128bpm after walking to the bathroom to pea, difficulty breathing, basically felt like crap but was too drugged up to really notice.
It did stop my headaches and stabalized my mood but I think the improvements in mood were primarily due to the fact that I wasn't all there. DEFINETLY NOT WORTH ALL THE SIDE EFFECTS!!!
As soon as I stopped taking this, I felt much better in the head, noticing that I was probably running on about 70% for the past few weeks. Also gained back all the weight very quicky. I felt like myself again and was rejuvanized in my life!! Primarily all the side effects disappeared and I moved on with my life. Unfortunately the chest pains slowed down but did not disappear. I felt like, and still feel like, I had a broken Sternum. I went to the same clinic and had numerous tests done(EKG, blood tests, X-rays), everything came up clear. I have had to tell some of my friends, numerous times in the past year, not to restle with me or hug me too hard because it hurts.
I have not been taking any perscription drugs for the past 14 months because of all of this and now have recently started feeling increased pain in my chest(the chest pains never completely went away) . I do not have health insurance but am going to get this all checked out ASAP, I will post again once I find out what's going on.
-- By nfortune737 | Reply | (3) replies | Send Private Mail
June 15th
2007
8:46 AM
I too had chest pains!! That is something that they do no tell you.
This medication definitely needs to be re-evaluated by the FDA, to determine what damage it may do to your heart.
I was already seeing a psychiatrist for Panic disorder so I had valium at home. However, I still ended up in the ER for my chest pains after getting no call back from my dr for two weeks telling her that I was having all of the other side effects ( except the hair loss), tingling in the hands and feet, fatigue, moodiness, different tastes of things, especially colas.
Nevertheless, I was diagnosed at the ER with having a panic attack....DUHHHH, how could I possibly be having a panic attack when I had taken about 2 1/2 10 mg valium to try to get my chest to stop hurting. I explained to the ER dr. that I had started taking the topamax 3 weeks prior...There absolutely needs to be better education of this drug and its terrible side effects!!!
-- By cristyerickson | Reply | (3) replies | Send Private Mail
June 11th
2007
5:00 PM
Chest pains, fatigue, mood swings, pins and needles feelings in hands and feet, nausea, depression, terrible terrible medication.....do not take this medicine.. I actutally sent a letter to the FDA telling them to re-evaluate this medication.
-- By cristyerickson | Reply | Send Private Mail
June 6th
2007
7:23 AM
I have been taking topamax for 2 weeks and started having dizziness to the point of not being able to stand up. Has anyone else had this?
-- By lucyling | Reply | (3) replies | Send Private Mail
This registry is a place to share positive or negative side effects of using Topamax. If you directly experienced a side effect while using Topamax, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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I have sufferred from panic attacks or fear of them since I was about 11 yr old.Am now 51 and never been anywhere by myself apart from the local easy to get to shops Thinking of doing the antieppressaant thing but really cynical and unsure about it Would appreciate any un biased oppinions
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by lisa39, 6 replies, updated 4 days ago.
February 26th
2008
1:14 PM
I have been on TOPAMAX for over a year and until recently I didn't realize I was suffering from any side effects. It helps the content headaches and the weight loss is great. In the past six months I have been suffering from severe chest pains, you would think that it was a heart attack. The doctors can't seem to figure it out. After the help of my family doing research, we've found that TOPAMAX DOES NOT mix with METFORMIN for diabetics or LAMICTAL for bi-polar or seizures. Why don't the doctors or the pharmacist warn you about this kind of stuff. I have went from a fairly healthy energetic person, to someone that can even get up and go to work. I have 2 to 3 attacks a day and each one drains me more and more. It is not good for my mental well-being, and I am uncertain if it will have any long term effects or damages on me. It has not been proven that this is the cause of my pains after specialist to specialist and many more to come, but I am positive it has a lot to do with it. I just don't want to hurt any more.
-- By bybeegirl1971 | Reply | (1) replies | Send Private Mail