Topamax and drugs

I started right out 3 years ago on 100 mgs. and within a couple weeks migraines were virtually gone! I thought it was a miracle! Only slight side affects for a couple years and only an occasional migraine but not a three day long one. So, I figure, small price to pay for all that relief, right? Now, for the last 6 months or so I'm falling apart! My memory is just gone! Sometimes I'm afraid to leave my house because I'm afraid I'll forget my way back home! I can hardly concentrate long enough to put a meal together and it just took me 4 tries to remember how to spell concentrate! Thank Goodness for spellcheck! I've lost 42 lbs. that I can ill afford to lose and I now I have started to have these anxiety things that I've never had before. I feel scared and nervous and no idea why. I was on a couple of drugs for allergies, a couple for arthritis and a vitamin. I dropped everything except the Topamax and the DR. put me on a 1/2 mg. Zanax twice daily for anxiety which seems to do nothing except make me sleepy. Now it seems all these side affects have just bloomed and I have this constant ache over my right eye which isn't a migraine but never goes away. I'm afraid to just stop the topamax because of what I've read about suddenly stopping. Doctors are no help, they won't even admit there is a problem. They just wanted to check my thyroid.It was fine.

oh my God I wish I had read this sooner I thought I was going crazy! it seems like the doctors just don't know about the side effects of a lot of these drugs, because I have had ALL of those symptoms- the tingling, the muscle pain, the aches, the feeling of bugs crawling, the itching, the one I have the most now is pain in my arms and legs now to the point where today I cannot lift my arms past the front of my chest or over my head. So I barely stand the shower and barely get ready for work. When I told my doctor this last week, he said, hmmm, I don't know, lets just give it a few more weeks and see. I've been on Topomax for 5 weeks. I started at 25 mgs and worked my way up to 100 mgs slowly. Each time I add more mgs I have more EXTREME fatigue, and spaciness, dizziness, etc. My legs and arm and back pain did not start until the past 2 weeks. THIS SUCKS. But having migraines sucks too. I have lost weight. But I just don't know that I can live like this. The migraines are new for me, as a result of an accident I was in on January 26th. The side effects of the Topamax outweigh the pain from my accident. I might have reconsider taking this. Although I must say, this drug is the kind of medicine that definitely takes a while to understand how it will work for you. A lot of the effects will wear off. A lot of my spaciness or "Paula Abdul" moments as I like to call them, are getting so much better. I'm sitting at 100 mgs and really don't want to raise the dosage at all. I will talk to the doctor and see what he says. That's the other thing... doctors tend to give people too much or dont know how much to prescribe. Starting people off at 50 mg is too much. I take mine around dinner time as it tends to kick in around sleepy time and if I increase I ALWAYS increase on a Friday so I can regulate over the weekend. PS. I also have blood clots in my legs so being on Coumadin doesn't help things either!
GOOD TIMES!
I'm just so glad I'm not alone!!!
Caroline

Topamax can cause blindness. Please read about all of the side effects of your antipsychotic meds carefully, and never think you are immune to them. These are powerful drugs, and no one truly knows how they will effect each individual brain.

After taking Topamax for six months, I found my self different person.... I started feeling this way just in the first few weeks after I started the medication, but the simptoms incleased with the time....Anxiety, nervousness, panick attacks, negative thinking and depression....crying, making up problems from nothing, hair loss also....I decided to stop it, slowly and without any concequences I thought I am out of it....But just a couple weeks I stop it is I noticed some red spots on my skin on the lower legs, soon they became more and stronger..... Two months later I was in abnormal stress that I am going to be sick from a terrible desease... Read so much on Internet.... I can explain how terrible I felt and even though I did blood tests (everything was in normal range!!) and spoke with so many doctors, nobody could tell me what exactly is wron with me. One Dermatologist named the skin problem as Progressive Pigmentary purpura and gave me a cream for that. Thanks a lot for that because the spots started desapearing, but it may come again.... nobody knows for sure.... I think this is another side effect of Topamax, that nobody had before..... Please tell me if somebody else had the same situation... I will feel much more relieved....

Topamax causes side effects like agitation, restlessness, depressions, difficulty in breathing, frequent change in body temperature. To know more on Topamax side effects and drugs that interact and increase the intensity of the side effect visit http://www.internationaldrugmart.com/topamax.html

I'm on Topamax, Atenolol, and Citalopram...all for migraine prevention. We added the Topamax to the regimen (100/day) about 6 months ago. The first 6 weeks were the worst for side effects, especially the metallic taste, tingling hands, 'stupid' feeling, and fatigue. However, I did eventually adjust, and the migraines did decrease in frequency and intensity. They were not completely eliminated, but when I still get them, I find that I can abort them with the 'rescue' drugs easier, and they don't last as long.

If you like soda's and are upset by the 'flat' and metallic taste caused by Topamax, there are some sodas that don't taste quite as bad. Coke Zero and Diet Pepsi Max seem to be a little more carbonated and have a 'zingier' taste. After about 3 months, some of the carbonation 'feel' came back and I could drink things like beer again, without it tasting like I was sucking on a rusty nail.

I use to get the 'stupid' feeling to for about the first 2 hours after I took my morning dose. I couldn't remember words, and would forget what I was talking about in the middle of my sentence. I started taking my meds at 4 am, so that I had a chance to sleep the 'stupid' off by the time I got up at 6 and left for work by 7am. Then I'd take my evening dose after dinner, because my kids don't care if I'm an idiot...just as long as I'm not cranky :-)

When I have a migraine, I usually want to drive a pick-axe into my head, so all-in-all, these side effects aren't too bad in comparison, and make me a much more pleasant person to live with.

I am also experiencing hair loss and have been on Topamax about 2 months. I had no idea this was a side effect. I initially lost weight which was wonderful, but then my weight dipped so low my family and friends thought I was anorexic. I was finally wearing a size 3 pants. I normally am in size 8's. I am on it for bi-polar and to help with binge-eating. But I cannot deal with the hair loss. I don't think that being skinny is worth losing my hair for. No other meds have helped my depressive moods without making me gain weight and at this point I just don't want to take any drugs. I would rather try some therapy...that has become less common. The doctors just want to give you a pill now-a-days.

I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.

After using Topamax for a week and two days for migraine prevention, I pretty much went blind. I went from having 20/20 vision to -6 in a matter of hours. I was diagnosed with Acute Induced Myopia, a "rare" side effect of topiate drugs. It was prehaps one of the most frightening experiences of my life. While this side effect is widely documented online and in numerous neurolical and other health journals, my neurologist failed to mention the possibility to me. From what I've learned, this is a fairly common, yet reversible side effect, and is found mostly in women ranging in age from 25-50, if topamax isn't stopped immediately, it can result in permanent glaucoma. In 2001 the World Health Organization released a warning describing this side effect and urged medical professionals to discuss it with their clients prior to taking the drug. Apparently my neurolgist missed that memo. Now, three days later my vision has returned to 20/20- much to the surprise of my new opthamologist (never needed one before). I urge everyone who takes Topamax to pay very careful attention to their vision and stop taking the drug if any decrease in vision or blurrieness occurs. I'd hate to see anyone cause themselves permanent damage.

I took Topamax about 6 years ago for migraines, and experienced no side effects. Just started it up again 3 days ago, and I feel like I am totally drugged and my head is spinning, can not drive, can barely hold a conversation, only started with 25mg, and can say that each day I feel a little better, but the only difference this time is that I am on Lexapro and my Dr. said the side effects could be worse till I get used to it..anyone else take this combination? And how long till I can function again?

I've been on Topamax for about a year. I think the worst thing that happen to me is I totally forgot my childs given name. We have called him a nick name all his life but I'm his mom!!! I was so upset I thought I was going crazy! I still get headaches daily but I know topamax has been the best meds I have been on so far. I have heard that if you combine Relpax with topamax it helps so if anyone has any information, let me know.

Just one question I have been on this stuff at the beginning dose for less than a week. My eyes hurt, my head is about to explode, I am sick as a dog, I lost 5 pounds, I can't eat, constipated, can't sleep, can't function, ringing in my ears, and the ADD is unbelievable. I am a medical transcriptionist I kind of need to be able to work, no work, no pay. Topamax is going bye-bye for sure but how long till the side effects go away?

There is a strong warning regarding heartbeat irregularities and Topamax. It is in the PDR and professional literature but is usually not told to patients.

I am an RN, wanted to lose around 30 pounds and my doctor prescribed this medication. He did not tell me about any side effects other than possible dizziness when first starting the medication. I wondered why my thick and healthy hair was falling out by the handfulls and why my Diet Coke was undrinkable.. figured out the soft drink part but had to ask him about hair loss before he offered up that it is a very common side effect. But those are the simple, more common things which most people now know about. The cardiac effects are NOT well known until a person really looks for that particular effect in professional literature. People NEED to know. I have been in the hospital for several days and am still having a very rapid heartbeat with a serious irregularity which I have never had before taking Topamax and which is documented in SOME literature for physician prescribing only.

Today I will be having heart tests and possibly even a heart cath. to determine if the Topamax which I stopped taking 2 weeks ago is the cause of my own irregular heartbeat ( Ventricular Ectopy) and chest pain.

IF you don't need this medication very badly for seizures, please do not take if " off label".
The risks are sometimes much more severe than the condition being treated.

I wish you all health and happiness. God bless.

Texas RN

I have suffered migraines for five years now, there horrible. I took topamax for the first four years as the doctors experimented with several drugs. After five months into the med I had my first kidney stone and two or three for the next 3 1/2 years. I went to so many doctors and none of them new what was wrong with me. I began searching online on all the medications and found out that topamax causes stones. I can see one here and there but I was having them every other week, and all of them were painful and caused a lot of bleeding. I would like to beat all the doctors and who invented this with a bat over and over again.

I started on Topamax about a week ago after coming off Seroquel. I am bipolar and had a break through in June. My doctor had me on Seroquel to control any possible rapid cycling. Unfortunately the Seroquel made me anxious so after 7 months we agreed to try Topamax.

So far, my stomach is upset if I eat too much. Soday tastes like crap. I have minimal tingling at 150 mgs. Chocolate upsets my stomach. I feel ditzy. I can't sleep more than three or four hours. And I am having to pee all the time.

I am going to have a referenced EEG in three weeks. Hopefully at that time the neuropsychiatrist will determine what drugs I really should be on. I am losing weight but I don't think it's worth it.

yes, I believe this drugs makes you think you have arthriitis. I will not know til I am completely off, however, all my joints ache. Hands and legs....

I've been on Topamax (for seizures) for almost 2 years now, gradually increasing my dosage from 150 mg/day to 400 mg/day when I learned that 150mg is a migraine sufferer's dosage and not a Epilepsy dosage. I mention that because at 150mg, the side effects were present, but tolerable. I had the tingling fingers, eye twitching that was only behind my right eye (seems everyone only has it behind their right eye...why is that?), I can't find the right words in conversation, memory loss , constant sleepiness, backaches, depression, etc. At 400mg, I was an emotional wreck...I could not handle my emotions anymore. I would cry hysterically when talking for no reason, I couldn't concentrate on my work as an analyst, I had to read and re-read instructions in order to understand them, and sometimes read them out loud....and this is the kicker...sometimes when I'm buying something and at the check-out, it'll take forever to do something as simple to count out change. I have given the wrong change to cashiers a few times and then told them something to cover up my embarrassment like "Oh, I thought I gave you a quarter!", when in all actuality, I thought I gave them the correct change.
I feel like a moron pretty much all of the time. I used to pride myself on my intelligence and speaking ability but on Topamax, that is seriously diminished.
I don't know if this is related, but because of my inability to concentrate, I lost my job in Nov. '06. I thought I lost my insurance too, so I made the decision to stop my seizure meds, thinking that I was "cured". Well, I had another seizure in Jan '07 and am back on Topamax...depressed, twitching eye, the whole gamut. But you know what? The entire month of January, before my seizure...before Topamax...was the happiest I've been in sooo long. It's not worth losing a few pounds for.

I HAVE PERMANENT SENSORY PRECEPTIN LOSS IN MY MOUTH, MY DR NOW WAS IN ON TESTS AT BEGINNING AND HE SAYS IT IS A SIDE EFFECT OF TOPAMAX, I WONDER IF ANYONE ELSE HAS HAD THIS SIDE EFFECT AND IS AFRAID TO TELL ANYONE BECAUSE PEOPLE WILL THINK THEY ARE CRAZY, MY DR THAT I HAD EARLIER WHEN THE SIDE EFFECTS OCCURED DID THINK I WAS CRAZY AND GAVE ME DRUGS TO MASK THE PROBLEM AND THEY MAKE ME FEEL CRAZY. I ALSO HAD ALL THE TYPICAL SIDE EFFECTS, WT. LOSS, HAIR LOSS, ETC.

I have just discovered this site and was amazed to find out that Topamax caused hair loss. I have been on Topamax 100 mg. for about 1 1/2 yrs. now and started to lose my hair, and didn't know why. Also I just recently in Nov. started to get ringing in my ears called Tinitis and contacted the Tinitis Assoc. and they sent me a list of medications that can cause ringing in the ear. Yes Topamax is one of the drugs listed that can cause ringing in the ears. I'm definitely going to stop taking Topamax and try the B vitamins that have been recommended. Thanks.

Hi-new here and new to Topamax! I am taking Topamax for BiPolar. I have tried a dozen different drugs and they all seem to make me gain weight. Thsi seems to not have that listed as a side effect. As a health careworker I am very dedicated to being on top of knowing the side effect of my meds. I have been having issues with hair loss and thought it was again issues with my thyroid but must have been the Depakote-still hasn't stopped-guessing it's not going to huh?
Anyhow, I have tingling in my face-anyone else??? I have found that soda tastes HORRIBLE! Not such a bad thing though! I have found that my appetite isn't too vast either.
Anyhting I should be seriously worried about???

Just started, and reading all these post, eeeeekkkkkkkk. I have mig everyday, and just want help. Is there any one with a good experince on topamaz? I mean really? SHouldnt there be people that it help's?

I have had migraine for 26 years, I took depakote for 12 years before taking topamax. Now the sensation of what I feel in my mouth is wrong. It helped with my migraine but now I have something that every doctor I've seen hasn't heard of. It made me loose 85 lbs., quit sweating, not sleep.... Doctors give me phych drugs to mask the mouth thing, but I'm allergic I'll take migraine over all the things extra this drug has given me also. I think it is dangerous because I QUIT eating I had to make myself eat. This is hard to do when you are absolutely not hungry. Has anyone else had the mouth sensory reaction?

hi everyone! i have been off topamax now for 22 days and i must say what a relief!!! i feel human again, no pains no weird thoughts, i can speak coherently now and sleep like a baby. i am still on effexor er 150 a day and functioning quite well. vision is better too. take care and becareful with these drugs..if it ain't broke don't mess with it. drudogs

Does anyone here have positive side effects on topomax??? All I have read are negative ones!

As for me it's been a blessing. I have noticed some side effects annoying, but not to the extent that I don't want to quit it.

If you are experiencing side effects to the point that you want to kill yourself, first of all call your doctor IMMEDIATELY! Check with your doctor to see if other medications you're taking could be causing your feelings.
I've noticed that many of you who are feeling suicidal are also taking Effexor or something else that could be interacting with Topomax. Check into it, and don't stop EVERYTHING at once!!! Doing THAT just might kill you!

Always wean off the drugs with the help of your doctor. If you don't agree with your doctor then go to another one or at least go to the ER and they will help you. Don't take matters into your own hands. Doing it yourself puts your life in risk.

If you think you are suicidal then remember you are not thinking objectively. YOU NEED HELP. If you make a foolish decision you will not only destroy your life, but the lives of many people who love you. GET HELP NOW. Please.

topamax- started 2months ago...the sinus trip is unbearable! i always sound like i have the flu! haven't lost a pound and i am craving sweets like crazy. i hate the tingles everywhere! the thirst is unquenchable. i feel like i am suicidal. i hate my husband when i use to love him. i am also on effexor er 300 mgs topamax 200mgs ....i have now decided to go off ALL of these drugs. iwas first put on them when my mom died because of anxiety.......then when my daughter went to jail. more stress....more drugs....zoloft...attempted suicide....effexor er...for the pass 4 yrs...i am no longer suicidal..i am at peace with my moms death. my daughter has grown up and has stated a family of her own with her husband .... do i really think i need to be on these drugs any more???? nope! comin down the hard way starting tomorrow...need encouragment people! drudogs

On 200mg twice a day morning and evening about a year now for neuropothy(sorry about spelling). Hands and feet. Used neurontin for about 8 years and put on weight. topomax initially took off about 30 lbs. I weight 300 male. Anything carbonated tastes bad, beer soda etc. I prefer water, lemonade, tea, coffee. Now neurontin's patent is about to run out and the makers have come up withtheir subsitute which is Lyrica. Your dr will be suggesting you try this one. It works basically the same as neurontin, maybe just more potent so you take less and they have a new patent. Probably add the lbs too. It affects my sex life in that cannot seem toget to an orgasam as easily so I avoid it. Many drugs for my condition have this affect since they affect seratonin in the brain and thus have a bad affect on sex life of men who still want to be sexually active. Sorry to be so frank. Actually, the topomax does not help all that much with the pain I experience but I do not want to be too quick to switch drugs. Lyrica is still not available through insurance companies in this country although I here they are working on it.