Topamax and hands and feet

I am a thirty-two yead old female who began taking Topamax for chronic migraine about 8 months ago. Like many, I experienced the tingling in hands and feet initally but after about 6 weeks it was very rare. I also despise the taste of any carbonated beverage now, unfortuante for me cause sometimes I'd just love to have a soda. I became very "loopy", forgetting things, not having to words to say, not finishing tasks. My husband no longer likes me to drive due to my slowed motor skills. Topamax did relieve my migraines tremendously, down from about two a week lasting on average 6-48 hours to an occasional light headache that I can relieve with Epidrin or Naproxen.
I have became seriously depressed in recent weeks and have worked with my neuroligist to taper off Topamax. I lost all interset in my famliy (4 kids and husband) social activities, and myself for that matter. I was taking 75 mg per day and just fininshed the last week of 25 mg taper. I pray my migraines will not return or that we can find another med without the serious side effects. I also lost weight (about 10 lbs which I needed to lose anyway).

I was put on Topamax for extreme migraines about 6 months ago... Started up slowly with 25mgs to 50mgs to 75mgs daily and now I am taking 100mgs (50 in the morning and 50 at night). Topamax did the job in taking my everyday headaches away but I still continue to get the very painful and extreme migraines that last 304 days.

I did have extreme tingling in the hands and feet for the first month but that soon tapered off. As far as my appetite - I never really lost that and my weight has stayed the same.

After reading all of your posts I can take a deep breath and believe that I am NOT crazy. I have begun to think so because of Topamax. I am constantly anxious (and being an over anxious person to begin with this is not good), my mood swings are horrible - I am a total bitch to my boyfriend, and my mind just does not seem as clear as it once was - struggling to come up with the simplest of words....

I feel like Topamax has made me very paranoid and has set me into a depressed state. It is just not worth it. There are many OTHER drugs out there that can deal with migraines - and trust me I know they are painful, but I am much more willing to get myself back than continue to deal with these side effects for the sake of getting rid of a migraine (which isn’t always the case for me).

After switching doctors (from the one who had put me on this drug to begin with) - she is helping me wean off Topamax and wants me to explore other options.

Has anyone experienced weaning off this drug before - how are the side effects? And will I ever be myself again?

I began getting debilitating headaches 3 years ago. They were everyday and not the classic headache (no visual, nausea etc). It felt like a jackhammer to the back of my head every single day. My neurologist told me they were migraines. I was skeptical as every other migraine med had not worked. I began on Topamax at 25 mg twice daily. I started at this dose for a month. The body really needs to adjust SLOWLY to this med. My side effects were pins and needles in the hands and feet, strange taste in foods, flat tasting sodas, drastic cut in appetite. My doctor assured me these would go away. Headaches did not start to improve until the second month when I went up to 50mg twice daily. By the third month I was up to 100mg twice daily and I feel like I have my life back. I still will have occasional migraine breakthroughs, but nothing like the misery I had before. Within 5 months or so, food began to taste normal again and the pins and needles stopped. I dropped 30 pounds total on Topamax. It has been a life saver for me!! My advice for anyone thinking about this drug is to ease your way up slowly until your body adjusts. One week on a dose is not enough time.

I was placed on Topamax, off label, for suspected bipolar illness (now disproven). My cognition, word finding abilities, memory has been so adversely affected that I am now on disability. I had 5 kidney stones due to the development of Renal Tubular Acidosis, nearing renal failure (a side effect doctors don't warn patients about). This in turn led to osteomalacia, softening of the bones, only discovered after I broke all three major bones in my leg and snapped off my foot stepping off the lowest seat of a bleecher. I've suffered tingling in arms, hands, legs & feet (nerve damage), lesions in the brain, muscle spasms, heat & cold intolerance, insomnia etc... Although I lost weight, I gained it back (then some) as soon as I reduced the dosage of 800 mgs. Upon stopping the drug to save my kidneys, thus my life, my kidney function returned to almost normal within a few months, although there is residual damage. All other side affects remain two years later. Losing weight is not worth dying! Beware of this drug being used off label! I would never trust this drug!

Those of you taking Topamax, you may want to talk to your doctors about trying Zonegran. I took Topamax for "dizzy migraines" and although it worked I had the same side effects you are all mentioning. Although the Zonegran did make me sleepy, if I took it at night I was at least able to function the next day plus no tingling hands or feet which on Topamax was a nightmare. If you decide to stay on Topamax know that Vitamin C helps with the tingling hands and feet very much (my neurologist told me this) and it truly works!

I'm 38 years old and I started Topamax in July of 2008 for severe migraines. I've had an average of 12-15 migraines per month since my early 20's and nothing was working. While initially adjusting to Topamax I had the tingling in my hands and feet during the first month but then it went away. My neurologist increased the dose very slowly from 50mg to 100mg to 150 mg. The migraines have decreased in response to each dose increase. At 100 mg the migraines reduced to 10 per month and at 150mg they reduced to 6 per month. My dose is now being raised to 200 mg which the Dr. says is the maximum recommended for treating migraines. The worst side effects I've experienced are extremely dry mouth (from 150 mg+) and slight hair loss. My starting weight was 138 and I lost 11 pounds very gradually before my weight stabilized at 127. I haven't noticed any problems with food or drinks tasting different. For some reason, I always have insomnia for the first week after a dose increase but then it goes away. I've only had mild concentration problems but nothing notable or problematic. So far, the medication has been remarkable and I can't believe what it's like to live life without so much migraine pain! I hope other people can have the same benefits from this medication.

I had the most horrible experience with this medication. Part of it was due to my doctors poor care. On Monday I started at a new doctors office which is rather large. I gave him him my history with migraines and told him I was finally ready to start some sort of treatment. My previous doctor in the town had often recommended that I take something but I didn't want to take a daily medication. I am a fairly healthy 21 year old who gets between 5 to 10 migraines a month and many more headaches a month. I told him that my doctor and I had always concluded that my migraines were stress related. I told him that I have been experiencing a high degree of anxiety (I am a junior in college and it's the last week of class before exams.) He recommended Topamax and told me that it was an anti-seizure medication that was often used to treat migraines. He warned me that if I had any trouble with speech to let him know immediately but other than that he hasn't seen any other problems. He prescribed me 50mg twice a day,which he did not titrate as he should have. I took the first dose before bed Monday night and woke up so dizzy Tuesday morning I missed my first class. The dizziness passed and I just thought it was an adjustment period so I took my morning dose. I began to feel some tingling in my hands and feet and my reflexes were slowed (I felt like a drunk driver) I am a manager at a retail store and I forgot to do some of my most basic tasks. I took my evening dose and was described by fiancee as zombie. On Wednesday I woke up very emotional and cried a lot but didn't really think much of it. I took that mornings dose. By midday my anxiety and depression was so high I became suicidal. I had a panic attack while driving, i stopped off at my place of work because i couldn't drive anymore and my manager informed me that I was having a panic attack. I had never had one before. I have not been taking this medication for 48 hours but it has not left my system yet. I sought out counseling and am no longer depressed but I still have a great deal of anxiety and have been on the verge of two panic attacks today. I can write today, which I could not do yesterday. I do not recommend this medication to anything. Especially after what it did to me in just 3 days.

I am going on topamax for the second time. I think the drug is going to be the best choice for me, personally. I am on it to treat both, epilepsy and chronic migraines. The first time I went on it, I titrated partially to my dosage (400mg) and had to stop because my potassium dropped dangerously low and I was pregnant at the time. I have since had my daughter and am giving it another go. I am having the loss of appetite, redness and tingling of hands and feet, some irritability. I am up to 100mg now and am titrating up to 400mg. I hope that it will subside after a while. I already don't care for carbonated beverages and you are supposed to avoid stimulants if you have migraines and epilepsy anyways people! So figure it a blessing that you can't drink carbonated beverages that MOST contain CAFFEINE aka STIMULANT!!! HELLO!!! As for the other symptoms, i guess you have to weigh the benefits to the risks. I certainly hope it works for me and everyone else. Last time I took it, it could have caused heart failure. That was a biggie! So I would say, Get your routine labs and so long as you can withstand the side effects and the reason you went on the medication is being controlled...... Thank you topamax!

I'm almost 21 years old. I have been taking 100 mg of Topamax before bed since I was 17 for migraines. I did not have the weight loss that a lot of you had. I did have the tingling in the hands and feet for about the first two years. I have also had a lot of memory loss and a change in personality. I have become depressed and aggressive. I have also had extremely realistic nightmares while on Topamax that I did not have before I was on the drug. However, I don't think that I could go off the drug because I ran out of it once, and I know that you aren't supposed to stop cold turkey, but I had terrible headaches and could not go to work. I ended up in the ER because I had such a bad headache.

We learned about this drug in my Educational Psychology class. If you start taking it when you are younger and stay on it for an extended period of time, it can prevent your brain from developing. This would explain the memory loss, at least for me and other people that started taking it when they were young, but the memory loss and confusion is worth it to be able to keep a job and get good grades in college.

Like most of you all I am on Topamax 100mg. I am a 27 year old female that has suffered from severe migraines for over 20 years that would last up to 2-3 days and completely debilitated me. I would bleed from my tear ducts from the extreme pressure and I would need to be in a quiet, cold, closed off room to be left alone until the migraine was gone to continue on with my life. It was ruining my life and taking over my day to day routine. I could never really commit to anything without the constant worry in the back of my mind about a possible migraine until I found Topamax. Now on Topamax I went from 4-5 migraines weekly to 1-2 monthly, it is truly amazing, however there is a catch. Although the medication is wonderful and I will never get off of it at the rate of success that I am at, I do have side effects. I have extreme tingling in my extremities, (hands, feet) along with my face. It feels like they are constantly asleep. I also have noticed the poor tasting carbonating drinks along with my taste buds changing with certain foods that I use to be so fond of. I also have a very smokey haze where it almost feels euphoric if I wake up in the middle of the night. I have horrible nightmares of people that I have not seen in or thought of in years, memory loss and spelling issues-all goes away after 3-4 months of uses. I had shortness of breath, however that subsides as well with the use of the medications along with several other side effects. I have lost over 30lbs that is along with diet, so I can't say it is all Topamax. I have noticed little nodules that have been showing up on my hands since I stared taking the medication that I am in ? about I have a call in to my neurologist to see if he has heard of any such thing. Other than that I love the medication, because if not having migraines is one of the side effects-lol I can handle the side effects. I hope that this will help anyone that might have anything similar to what I am going through. If you can shed some light on my nodule situation please let me know. Thanks

First I want to say, after reading several posts, that it seems a lot of you are taking Topamax without food, which may be causing your "spaciness." My doctor suggested always taking it with food, even though it says with or without food, and I only experienced spaciness the few times I took it at bedtime without food. Once I started taking it with breakfast and dinner, that never happened again.

I am a 48 year old woman, prescribed Topamax in September of 08 for migraine associated vertigo without headaches, with facial numbness. The first thing I noticed was I immediately had headaches, which to me indicated it was dehydrating me as that is the only time I get a "normal" headache. So I knew I had to drink a lot of water. Soon after starting Topamax I developed a dry cough that lasted the entire time I was on the med. I did not relate it to the drug at the time, however. It never even occurred to me. After about two months on the drug I started having trouble breathing with extreme dryness in my airways. I was prescribed an albuterol inhaler which did not help. I was then prescribed a corticosteroid inhaler which also did not help. I thought the trouble breathing was from taking Nadolol which I was prescribed for occasional heart fluttering - the neurologist said this was a normal side effect of Topamax. I stopped taking the Nadolol but the trouble breathing continued. I also had more migraines with vertigo and facial numbness than before I started taking the drug. I hoped it would eventually stop and the drug would kick in to help the vertigo, so I stayed on the drug. I had very minor tingling in my feet, but it was tolerable. I became very stressed out, had trouble sleeping, depression, my face started breaking out in November (and still is), I lost interest in everything that I normally enjoy - reading, photography, following politics in the news (sort of an obsession of mine). In December I was so depressed that for the first time in my 11 year career I started canceling appointments and eventually took three weeks off from work to "re-group." In January the neurologist decided that we would increase the dose from 100 mg to 150 mg for one more month, and if it did not get rid of my migraines with vertigo, we would discontinue the drug. The first day on the increased dose I had a killer headache, and I drank 150 ounces of water before it went away. That night I did not have to go to the bathroom during the night, unheard of for me. That's a lot of water to drink and not have to pee. Within two days of increasing the dose, my cough became much worse, and within three days, the breathing became more difficult. Within five days, I was having trouble speaking because my airways felt so dry. I called the doctor the next morning and he said it was not the drug, but if I wanted to, stop taking it. So I went off it cold turkey, per his instructions. I had rebound migraines every day for a week or two and my heart was pounding, sometimes for three or four hours at a time. Eventually the cough and trouble breathing went away, however, I had to continue drinking lots of water or I would notice that I didn't have to urinate, sometimes not at all. Again, unheard of for me. I saw a cardiologist at the neurologist's urging and they said the heart pounding was just anxiety. I disagree, as did another doctor of mine. We both believe it was withdrawal. I have now found out (by getting copies of my medical records) that the neurologist is now attributing all of my side effects from the Topamax to "somatization." In other words, psychosomatic - not a side effect, but just a way of getting medical attention. I am seeing a few people on this board who have also experienced a dry cough and trouble breathing. Can I have the same side effects as other people and have them still be psychosomatic, even though I had no idea those side effects could occur? I don't think so.

I have a theory that Topamax interferes with hormones which causes a lot of the side effects like lack of concentration, memory loss, anxiety, depression, insomnia, acne, and hair loss - all symptoms of peri-menopause and menopause. Ask any woman in her 40's or 50's if she has these symptoms and most of them will say yes. My face has not been this broken out since high school! My hair is falling out at a rapid rate. I won't even bother mentioning these to the neurologist. He'll just say it's not the drug.

I'm very frustrated and not sure what to do at this point. The neurologist has me taking a supplement called Migrelief now, but I think it takes three months to kick in, so I have no relief at this point.

Has anyone else experienced the trouble breathing with dry cough? I don't believe for a moment that it was psychosomatic.

I am a 25 year old graduate student that began taking Topamax for migraines after I was involved in a bad car accident. I started taking Topamax in April of 2008 and by July I could barely formulate sentences, couldn't remember simple things like where I parked by car (in front of my apartment) and my family member's names, simple math was impossible, I was always tired but could never go to sleep, had numbness in hands and feet, and was very moody with suicidal ideations. I was then referred to a neuropsychologist to assess any possible brain damage from the accident since I was now having cognitive problems. They tested me for brain damage where I was diagnosed with Severe Brain Damage, I was reading on a 8th grade level, did math on a 4th grade level, needed to begin speech therapy immediately and my doctor felt I needed direct supervision at all times. I was initially told by my neurologist that the medicine would help with the migraines but would "make my thinking slow". That was a huge understatement. I was a 4.0 graduate student in the middle of my program and I suddenly couldn't perform basic daily activities. I have been doing much better since coming off the medication. I have the migraines less frequently but they are still pretty bad. I have regained most of memory, reading, and math skills back the rest is attributed to the car accident. I wouldn't recommend this medication to anyone and I think it should be taken off the market because it almost destroyed my life and had me and my family worried to death about a condition which symptoms were clearly being exacerbated by Topamax.

I've only been on topamax for about a month and a half and already I'm feeling some interesting side effects. In the first week of taking the medication I had such pressure behind my left eye I thought it was going to pop. It eventually went away and has not come back (thank the Lord). I also experienced some pretty nasty numbness, tingling, and uncomfortable pins and needles in my fingertips and toes/sole of my foot. The tingling in my hands usually lasted a few hours and the tingling in my feet only lasted for a couple of minutes. This tingling is never predictable.

Eventually the tingles went away and I was tingle free for a while. But in the past few days they came back. It actually coincided with my PMS. The tingles came back and with intensity about three days before my period started. I was wondering if it was common to have a side effect return or increase in intensity around your menstrual cycle? My hormones are pretty nutty and the reason I'm on topamax is to stop severe migraine auras and slight seizures that are tied to my menstrual cycle.

The feet tingles are the worst. It feels like I'm being jabbed with needles and I hate when it happens while I'm sleeping because it wakes me up and I can't fall back asleep again until they go away... they are that irritating. The hands I can deal with because I'm used to my left arm going numb when I was having the auras.

My sleep patterns have been disturbed because of topamax... I'm not too peeved about that. I still manage to get enough sleep. However there are times when I'm out with friends or having conversations and I'll know the word I want to say and I'll just bust out the wrong one. Like for example saying symphony instead of sympathy. My friends have gotten used to it and know what I'm trying to say. It cracks them up when my word salad produces sexual innuendos on accident when I really mean something else. BUT it's really messing up job interviews at the moment. I'm a bright and articulate person who is getting her BA in Anthroplogy and Archaeology, minor in History and am trying to get research assistant jobs at museums and universities. It's really hard to get a job when you are sitting there sounding like an uneducated moron high on crack.

I haven't had problems with memory, thank the Lord. Even though I've got the word salad going on (and it's strange... the word jumbles are only when I'm speaking... I'm super coherent when typing) I'm not forgetful. I was able to make it through finals week perfect, while juggling a full work load. I hope I don't start losing my memory.

I haven't lost any weight (AW SHUCKS!!!!!). I was looking forward to that one. How soon should I expect to lose weight by, if I do in fact lose weight? I'm a difficult duck when it comes to weight loss. I've been at a stable weight since I was 13. I'm an athlete so my body is my temple sort of thing. But in the past two years I've put on a little bit of unwanted weight in certain areas when I stopped hitting the weight machines :( My question is, if I haven't lost it yet... will I lose any?

I'm also classified as type II bipolar, obsessive compulsive, and anxiety disordered. I've noticed my mood has stabilized. I'm not as all over the place as I used to be. My highs could get pretty high and when they would get up there my obsessive compulsive would almost go on a little joy ride. And when I was low, I was super low and my anxiety would take the depression out for a spin. But now I feel a calmness and a zen that I never felt previously. It's not an apathy I can certainly tell you that. I feel like I am in control of my life. I thank topamax for that.

Reading all of these posts I just worry that the honeymoon period of my medication maybe over. I worry about other side effects cropping up. I think that I can deal with my tingling extremities and that I can manage my word salads. I don't want the pressure in my eye to come back. I also don't want to start exhibiting the other side effects. What is the possibility that I will start exhibiting more side effects or are you generally stuck with what initially presents in the first month or so? My doctor also does NOT intend on increase my dosage. He thinks 50mg once a day will do me just fine. Oh and one last question, anyone else experiencing the side effect increase coinciding with PMS?

Sorry for the super long post! All replies are welcome!

I have been on Topamax since Jan of 08 for complex partial seizures. I was very pleased with it at first but started having
some more unpleasant symptoms. My hair recently started falling out about two months ago in massive handfuls! I was
and am very upset about it. I did have the tingling in the hands and feet when I first started taking it and I don't drink sodas
at all which I did all the time before. I did not lose weight at first but did a couple of months ago when I got very ill with a GI
problem. I actually lost about 20 lbs in about a month. This is when my hair started falling out. I have had a lot of labs
drawn and my TSH was undetectable but my thyroid levels (T3 and T4 are normal) and my antibodies are normal as well so,
there is no telling what is going on?? I just want off of this medication before I am bald!!

I started right out 3 years ago on 100 mgs. and within a couple weeks migraines were virtually gone! I thought it was a miracle! Only slight side affects for a couple years and only an occasional migraine but not a three day long one. So, I figure, small price to pay for all that relief, right? Now, for the last 6 months or so I'm falling apart! My memory is just gone! Sometimes I'm afraid to leave my house because I'm afraid I'll forget my way back home! I can hardly concentrate long enough to put a meal together and it just took me 4 tries to remember how to spell concentrate! Thank Goodness for spellcheck! I've lost 42 lbs. that I can ill afford to lose and I now I have started to have these anxiety things that I've never had before. I feel scared and nervous and no idea why. I was on a couple of drugs for allergies, a couple for arthritis and a vitamin. I dropped everything except the Topamax and the DR. put me on a 1/2 mg. Zanax twice daily for anxiety which seems to do nothing except make me sleepy. Now it seems all these side affects have just bloomed and I have this constant ache over my right eye which isn't a migraine but never goes away. I'm afraid to just stop the topamax because of what I've read about suddenly stopping. Doctors are no help, they won't even admit there is a problem. They just wanted to check my thyroid.It was fine.

I have been on Topamax for 2 months and it has been horrible. I started at 25mg at bedtime and worked up to 50mg at night and 25 in the morning. I wish I never took it at all. I have had numerous migraines with the medication except now my tongue goes numb every time. I can't remember anything and I am in a fog all the time. I had to take a trip to the emergency room for tachycardia that occurs every time I stand. It goes up from normal to 166bpm. The cardiologist insists the Topamax is causing orhtostatic hypotension. I stopped all of the Topamax on Monday and it is now Saturday and I still feel horrible. Migraines are horrible but being stuck on your couch all the time because your hr increases sharply and you feel like you are going to pass out is worse. My hands and feet tingle all the time. I feel out of breath and I have always been very active. I now feel anxious all the time (never like this before). I feel like I am not myself and I am going crazy. I do not trust myself because I do not feel like myself. Has anyone else had these symptoms? Do they eventually go away? The cardiologist can't guarantee that they will ever go away.

My psychiatrist started me on Topamax 2 yrs ago for depression from being 75 lbs overweight. Started at 25 mg/day up to 50/day for 2 yrs. Lost 70 lbs and kept off with only minor side effects. Also took 150/day Wellbutrin during this time. (For being kind of a neat freak and washing my hands a lot.- didn't affect my social or work life much) Have slowly started gaining the weight back (+12 lbs). Seem to have built up an immune to the 50/day dosage over the 2 yrs. So he added 25 in the am in addition to the 50 I've been taking in the evening. (1 mo. ago) Having some strange reactions. My memory seems to be taking a real hit. I am a CPA (passed these exams 15 yrs ago) and now I'm studying for the Cert.'d Internal Auditor exams. I am having a great deal of trouble trying to memorize for these 12 hour long tests! I feel fatigued every day. My blurred vision (that requires reading glasses) has gone crazy. I can't read the song book at church at all. And I'm only 47!. I've had acne like bumps all around my nose and face. How could such a slight increase cause so much change? Also sometimes my heart feels like it is going to beat out of my chest. And I'm losing patience w/my 13 yr old son who's pushing my buttons to see how much he can get away with. He seems to sense that I'm not at my best. But if I go off this Topamax and gain back my 70 plds I know I will plunge into a DEEP depression. Has any one talked to their doctor about the possibility of these side effects going away after time? My tingling hands and feet did and my slight hair loss did. And my weight loss is trying to go away but I don't want that. I'm majorly concerned about the memory loss and blurred vision eventually going away. DALIAL

Hi I've been on topamax for 4 years . Had all the side effects...weight loss,tingling in hands and feet,no memory and speech problems! I was taking 600mgs a day! I take it for epilepsy! I was on the highest dose. my doc then weened me from top. to zonegran 600mgs. It's very similar to topamax. For me it is not helping me as much as the topamax. I think it's a great drug!!!! I did not loose hair, no constipation, no rapid heartbeat for me! I am going back on it . Yes sometimes I would get in a hostel mood and can't spell shit , but for me it's all GOOD !

I dont know if it has anything to do with Topamax but i think i may be doing some weird stuff in my sleep or not sleeping as much as i think i am. i would call it cat napping. other than that, the first 2 months were horrible. i had the numbness in the hands and feet and i could never find what i wanted to say and i would stutter and feel like a dope. the doctor told me to wait it out for awhile and sure enough, the worst of the side effects went away. I still have problems finding things to say and im a bit more spacier but my seizures and my headaches and everything that was wrong is gone. Overall. its all good. I would just like to know what the heck im doing in my sleep and if its ever happened to anyone else. Maybe i should call my doctor. hah.

I started Topamax a month ago. My neurologist told me to start out taking 50mg in the morning and evening. I am a nurse and have read that this med needs to be started out on small doses and slowly increase every few days. When I questioned him about it, I was told that I should be fine. Although I did not follow his directions and start out small and increase it every 3 days. After about a week I was on the full dose of 100mg daily. All carbonated drinks tasted flat, I was having a funny taste in my mouth, and I was sleeping more. Within the past week, I have been having numbness in my hands and feet to the point that my hands go completely numb. The tighter I tried to grip something, the worse it got. I also am having severe dizziness. I am unable to stand and walk without feeling like I'm going to get sick and fall. Forget trying to drive. I work 45 mins away and have no other option on getting to work. During the time that I have started to have the dizziness, I have also noticed a drop in my blood pressure. I do not even have to be standing or moving to have the vertigo start, I can be laying down. When I called the Dr, I was told to abruptly stop the med. No weaning. Everything I can pretty much deal with but, my main concern is the severe vertigo (dizziness) and low blood pressure. Is anyone else having this issue?

I've been on Topamax since Sept 2007 and the only side effects I have had were at the beginning were the tingling in the hands and feet when I was brining my dosage up. Soda tastes awful but I no longer drink it and that is a godsend after being a heavy drinker of it for years. I do find there are time when I can't find the right word to say, or I forget what I was doing, but I deal with it. I have lost 20 pounds since being on the medication. After being on it for 6 months the tingling is gone, I usually counteracted it by drinking plenty of water in the morning, that got rid of it. The drug has taken away the migraines, and regular headaches I have suffered from for years. It has also stabilized my moods and taken away my anxiety issues. I'm 36 and have never felt better. Topamax is definitely not for everyone. For those that are suffering, please do contact your doctors and try to get off the medication.

2 yrs ago I was diagnosed with peripheral neuropathy. I have been on Topamax since, because of the severe pain it causes. I have never experienced weight loss and I was on up to 400mg a night. I am now on 200mg a night. My tastes are fine and my drinking sodas were never like metal. But for the fatigue of the disease I also take Provigil in the morning. I have noticed my eyes have changed. Never gave it a thought to be Topamax. Plus I just got new glasses again 3 months ago and am seeing a change in my sight again. Also there is a noise in my ears,not ringing,but sounds like crickets. Never had that before. I was on 2 other meds but I took myself off of them because I really don't like taking so many. The others had worse side effects. Until they find a cure for this disease it looks like I'm stuck with Topamax. This is one pain I will not and can not live with.

I have been taking this for about two weeks and have just ramped up to 50 mg. I had a closed head injury last November and have been suffering from balance, headache and memory issues since. Doctor put me on Topamax for headaches and I have had the eye checks after experiencing eye pain but I was fine. Have had slight tingling in my feet and my right eye has been red off and on since starting. My right eye has also been constantly hard to focus.

I have read over and over that the side effects usually go away after about 8 weeks, so I'll see how it does till then. I'm still waiting to see if it helps my headaches, it hasn't yet.

It seems to have made my balance issues worse, and I am constantly dizzy now, although in Topamax's defense, I have been having more dizziness since my injury.

The spinny thingies that used to be there when I close my eyes are gone now, at least they have been since I started at 50 mg.

I'd say the most disconcerting issue I'm having is a feeling of being doped up and becoming more afraid of doing things, like driving a car.

This is my third time on Topamax...and I am weaning myself off again...The first time I loved it! I don't drink pop so I could care less about the taste issues. I suffered some tingling so I took Magnesium for that, some fatigue, low blood pressure, etc. But, due to a rapid weight loss (I was already small) and low blood pressure my doctors took me off. Then when I put some weight back on and the severe migraines persisted, I was put back on. Then, lots of tingling, dry eyes, fatigue, NO weight loss (apparently it only works the first time for loss) and weird vision disturbances and feeling dopey and not being able to talk, teach to type. So, I stopped again. Well, I can't live with the headaches, so on again. Well, it's been over 2 and a half years total now and I am just now beginning to see the real effects of this nasty medicine. I have been "sick" for over a year and no doc (10 total) can figure out what's wrong!!!! I have been researching a lot and come to the conclusion that it very well may be long-term use Topamax effects...45 lb. weight GAIN in a year and a half, constant nausea, severe fatigue, skin rashes, female infections non-stop, dry skin, lips and hair, dental issues, muscle and joint pain, pins and needles in feet, eye twitching, constant cold hands and feet, metallic smell to hands, body odor,insomnia the list goes on and on...Some of these I just noticed when my neuro (who thinks Topamax is the only cure!) upped my dosage again due to daily headaches and I started researching. I am currently weaning off of 150 mg. (100 at night and 50 in the am). I have been on up to 250 mg before. Although it used to help my headaches, the side effects are just too much to bare.

I was doing just fine taking 50 mg of Topamax but I was still having minor headaches. My doctor said to go to a neurologist because there may be a tumor to worry about. He doubled my morning dosage and added an evening dosage so now I am taking 200 mg. a day. I started the insanity on Friday. By Monday i went grocery shopping and couldn't remember what I was shopping for. Thank God i brought my husband with me...when I could remember that he was with me. And then when I remembered to ask him what we came for I needed to remember where it was. Upon returning home I offered to help my 7 year old grand daughter with her spelling homework. Do you how embarrassing it is to not remember how to spell first grade spelling words? Tuesday was Mardi Gras and we went to the movies so I was saved any further mind questions. Then along comes Wednesday and I returned to work. Well, I tried to get to work. I got lost. Here I was at Walgreen's trying to figure out what I was doing out at 6:00 in the morning. What day was it? The looks on other's faces when you ask them these question is not something funny. So, I get back in my car and aim in the direction I hope is work. Luckily, I remember where I habitually stop for breakfast. My memory comes back again and I make it to work. I am on time and all is well. Now, the day begins.

I haven't had a period since December. Here it is February. And no, I am NOT pregnant. I can't concentrate. I ate 2 chicken nuggets for lunch and am full (now that is a healthy lunch, huh?). I was addicted to Dr. Pepper and now can't even stand the smell of it. I can't walk and chew gum at the same time. I found a note that I wrote sometime yesterday that really scares me because I don't remember writing it. It says, " Headache @ 1:55 no known trigger jut sudden movement to pick up papers from bin over desk. Nausea as well. Need to go to sleep forever." Good feeling to have? Depression is kicking in.

I just called my doctor and he says decrease the medication down to 100 mg. Ummmm...How about I decrease it down to 0 mg and I take a Imitrex or 2 and a hot bath with a nap when I get home and live to see my grandchildren grow old! I think living with a migraine or 50 is far better than what I have been feeling this past week.

If anyone can tell me that it gets better in less than 2 weeks I will stay with it but 1 more week of this and I will be a patient in a mental hospital. I can't even play Nintendo with my grandson...NOW THAT IS DEPRESSING!

I was prescribed Topamax with Wellbutrin in combination by a Psychiatrist to aid with an eating disorder. He told me how this was an "off-label" use of the drug and warned me about side effects like the tingling hands and feet, but assured me that drinking plenty of water and making sure that I get enough Potassium in my diet would be enough. He never once mentioned anything about my eyes.
When I picked up the medication, the Pharmacist went over the information and asked if I had questions. He did not once say anything about my eyes, vision, or glaucoma.
I started with 25mg on Dec 18, 2007 and went up to 50mg on Jan 9th, 2008. On Jan 26th, anytime I would stand up from a sitting position, I would get an intense pressure in my head, ears, and a very forceful pressure behind my eyes, and also rainbow circles popping up in my vision when I moved my eyes around. If I stood still and waited anywhere from 30seconds to 2minutes, the pressure would go away and I could function just fine until the next time I sat for more than 10-15minutes.
I called my Psychiatrist and he recommended that I drink more fluids and take a multi-vitamin. No mention of glaucoma.
The next day (yesterday), the same "head rush" was happening only it lasted longer and felt like a mini-migraine. I started looking online and WOW, there is info everywhere about the side effects.
I did not take the Topamax last night and this afternoon I have an appointment to see my eye doctor. I will also be looking for a new Psychiatrist. The way doctors are bribed to push meds is frightening.
The drug combo he prescribed really did help the way he said it would, but I would never have risked my eyesight!!!!!

I'm a 26 year old female and I've been on Topamax since March 2007. It has completely gotten rid of the debilitating headaches I experienced 3-6 times a week. It also got rid of my anxiety. I got my life back, my antidepressant kicked in at the same time. I experienced all the usual side-effects, tingling hands and feet, forgetting words, memory problems, loss of appetite, but was COMPLETELY pain-free. I still am. However, I never remember anything now, forget whether or not I did something, paid my bills, etc, lose things constantly, and I have lost about 20 lbs. Not good. I look anorexic. I have bones sticking out. Eating is hard. I forget to eat and drink all day and food is just unappealing. I feel fuzzy and stupid and slow. Not sharp like I used to be. It has killed my confidence and self-esteem. But I was wondering if any women out there got yeast infections while they were on Topamax. I've had one monthly since I started it, and my doc said it's a rare side effect. Oh yeah, I've had mild hair loss and mild to moderate acne now. This drug, it is such a 50-50. Living with chronic pain, those headaches were awful. But doubting yourself is awful too. Anyone have similar experiences?

I've been having breathing issues since last Sunday (so for one week now) and ended up in the emergency room yesterday because I was hyperventilating so bad at work, I nearly fainted. My lips, hands and feet were tingling. On the way to the hospital my hands, feet and lips became numb. Then my muscles started to cramp and I lost the feeling in my hands (at this point, I was struggling to hold it together and not cry, so I was having some anxiety as well). At the hospital, I had my lungs x-rayed, blood work, urine tested, and an ekg---all normal. They gave me some Ativan and said it was probably anxiety. I still couldn't breathe. I was anxious because I haven't been able to breathe properly for a week and no one has an answer for me! When I talk, I get winded. If I have to move around and talk at the same time, I am gasping for air. If you read the information sheet on Topamax, it can cause something called "metabolic acidosis" which can be quite dangerous. My blood work came back normal. You can have the pH of your blood tested to see if this is the case. If your pH is too low, then the you may be experiencing this. Read your Topamax literature. For me, I decided to take myself down to 50 mg from 75mg anyway, just to be on the safe side and hopefully, I'll here from my headache doctor tomorrow and will follow up with my internist on my own. It's very scary. Please be careful. Good luck to everyone. Oh, yes, and if I forget that I wrote this, it's the Topamax! :)

I had been dealing with numbness in my hands and feet for about a month (I've been on Topamax for maybe 2 months now, maybe 1.5 months...) and I am happy to deal with that. Anything is better than the migraines that I had, and anything is better than waiting for the next migraine to start.

But for the past few days, I have been dealing with a total shortness of breath. It's like I can't catch my breath, in a way... or, as my mom put it, can't really get a "fulfilling" breath. I am constantly yawning, but that's how I am getting to that deep breath, although it takes me 3 or 4 tries to get there. It's frustrating, and SCARY!

I called the Topamax number today, and the nurse said that the side effects should only last 3 months total, but 1.5 more months of this?! I can barely imagine 1.5 more hours!!!!!

Hi All, I am a 37 year old mother of 4, with a history of severe Hemiplegic migraines (up to 14 a month). I've been on Verapamil and Topamax for 7-8 months with a gradual increase of the Topamax to 150 mg a day. Before I start writing this I have to preface it with two things: First, Before Topamax I was one of those women my friends refer to as a "Supermom", I home school my kids and used to love it, we normally have a lot of fun and I have a successful, happy marriage. Second, on Topamax, I went from 14 migraines a month to 0. It didn't happen over night, they went away as we ramped up the dosage, but for the last few months I have had no migraines, I can feel it occasionally when my head is fighting one off, but nothing an Advil won't stop, and for those of us who've lived with trying to care for kids while having migraines (especially Hemiplegic) you may understand why I initially put up with the following: I started out with the tingling in my hands and feet (that went away in a couple of months), word finding difficulties (which never really went away, I just learned to accept it),occasional blurred vision which never lasts very long but which has been an issue the entire time I've been on the med, and weight loss ...I am 5'4" and was only 118 lbs to start with, and have nearly "disappeared" into a size 0 and 105 lbs, and it doesn't matter how much I eat, I've been trying 3 meals, snacks, cookies, candy, you name it, I can't gain weight. I was never nauseous, no diarrhea, I just don't get hungry... I had to start wearing a watch at one point to remind myself to feed the kids, because if they didn't ask, they weren't getting lunch until 2:00 because I wasn't getting hungry! Soda does taste like metal (fortunately I don't drink it normally anyway), and you do get loopy with one glass of anything alcoholic.
Then to add to the lovely appearance of skin and bones, my hair is falling out. Before Topamax I worked out regularly, I am even on commercials for my gym (recorded a year ago), since Topamax, I was so tired, depressed, and so afraid of losing weight that I stopped working out. Now a woman who has always made it a goal to set a good example for my daughters that a fit body is the goal, not a thin body, has her mother in law telling her that she looks "bulimic"! In August I noticed I was crying a lot, then I thought well, maybe it's the Topamax, so I started drinking more water and it went away... so I've been very careful to drink A LOT of water and only decaf tea while on this med, but apparently that wasn't enough, because a few weeks ago my husband pointed out that I stopped showering every day. I have been crying at the drop of a hat for a couple of months again, and I have never been someone to cry in public, I have even started crying in front of my daughters friends' mothers and near tears in front of her teacher over the littlest things... then last weekend I found myself with four hours to myself in my house for the first time in months and I was thinking about how I might be able to use it for unspeakable things like running away, or worse... if those aren't signs of a pretty severe depression I don't know what are, fortunately I recognized them and put them together with the memory problems, etc. As for the memory loss, there have been problems with that for months as well, my daughter has been telling me I "have a bad rememberer" , This weekend everything culminated and other people were recognizing the memory issues that I had been keeping private until now (including my husband). Before that, I would be in the kitchen cooking and forget what I was doing, I went to drive to a party this weekend and forgot where I was going, so I called a friends husband and he had to tell me four times where to go before I could retain it (at first he thought I was joking) and then I still couldn't remember the name of the place, only the # and street, I haven't been able to remember routes to places I used to drive... I'll find myself sitting at a light not sure where to go, and making mistakes with our money because I forgot whether I did or didn't pay a bill (something I've never done, we have always had excellent credit). On Topamax I went from feeling like an attractive, successful, good mom,with a happy family... to constantly stressed, even by things I had previously enjoyed doing, and a completely depressed failure... but I had no migraines. I have now been weaning off the Topamax for a few days. I was playing phone tag with my neurologist... so due to the urgency of the problem I took myself down to 100 mg a day. I have since spoken with my neurologist and I am going off of it completely... by the way don't ever discontinue this med without ramping off of it, doing so can cause a seizure. I am unbelievably grateful that I put 2 and 2 together the weekend I had time to myself and got lost going to the party and I already feel more awake, less tearful and depressed... I know that things will be ok anyway. I hope that anyone reading this who is having memory or emotional issues on Topamax and just brushing them aside (because they don't want to risk going back to the migraines or whatever), will get off this med. Please realize that this med could have cost me, my kids and my husband a lot more than my migraines ever will. I have never experienced depression before Topamax, and I can't say that I'm completely back to myself yet, but I hope that when I am off this med I will find normal again, and I pray it will be without migraines, but I know that I wouldn't wish these past few months that I've put myself and my family through on anyone. Now, I need to go take a shower :) , then I'm going to my neurologist to pick up some 25 mg samples to continue ramping off! Good luck to you all!

I've been on Topamax since just Tuesday, 10/9/07. I find that I get very tired a couple hours after taking it and I have horrible nightmares and very dark thoughts, too. Diet coke tastes so HORRBILE which is bad because I loved my diet cokes, but then again I guess that's good b/c I need to stop drinking them anyway. My worst side effect is that I have horrible mood swings. Is this normal? Is this going to go away over time? Because if not, I'm going to stop taking it now. This is not like me and I am not going to subject my family to this - losing weight is not THAT important to me. Thanks for any help. :(

P. S. I'm taking 25 mg in the morning, afternoon and evening.

I've been on Topomax for about 3-4 months now. I've had memory loss, slurred speech, decreased concentration (I have to re-read something several times to understand it) tingling in the hands and feet, depression, increased anger, loss of appetite, weight loss. I'm now at the point where I have a rash on my leg, severe nausea, and abnormal bleeding. I going to follow up with my neuro and PCP to see what's going on so we'll see. My migraines have decreased from 3-4 a week to maybe 1 a week, so it has been worth it so far so I can function for work and for my kids as a single mother. I've suffered from migraines for about 10 years and can't take the pain no more!!! If anyone has experienced the nausea, rashes or bleeding please reply.

I have had migraines for 4 years almost on a daily basis and nothing has worked. Finally started Topamax, the first week iI felt like i had a stroke, my speech was slurred, I couldn't concentrate, I was exhausted couldn't make complete sentences, numbness in hands and feet and every thing tastes bad., I had been on 4 pills a days to start so decreased to one-i believe it it 50 mg. worked well then headaches began again after 2 weeks, so increased to 2 then again in a few weks to 3 now i have had only 3 migraines in 3 months. Still have the numbness and taste aversion but I have never felt better as far as migraines. My new problem is I am having a lot of digestive issues including cramping and constant acidy, bubbly,gassy, bloating feeling and no gas x, pepto or anything works??? Is this a side effect or something unrelated??

Taking Topamax for 2 years started out at 25 mgs 3 times a day for a mood stabalizer (bi-polar). Had tingling in hands and feet sometimes in face. Lost waight, pop tasts nasty, sleepy, short term memory loss, slurred speach. Now I take 100mg at bed time have no symptoms except I still am able to controll my eating (had a problem with over eating) no more road rage but I still felf a little depressed and did cry so I was not to stable until Citalopram 10mg at bedtime and Adderall XL 10mg in the morning was added. Now I finally feel like a totaly normal person. No more anxiety, mood swings, crying, paranoia,or any other weird stuff. I feel pretty good. Rarely I get pins and needles in my hands or feet or I forget where I put something.

I too had chest pains!! That is something that they do no tell you.

This medication definitely needs to be re-evaluated by the FDA, to determine what damage it may do to your heart.

I was already seeing a psychiatrist for Panic disorder so I had valium at home. However, I still ended up in the ER for my chest pains after getting no call back from my dr for two weeks telling her that I was having all of the other side effects ( except the hair loss), tingling in the hands and feet, fatigue, moodiness, different tastes of things, especially colas.

Nevertheless, I was diagnosed at the ER with having a panic attack....DUHHHH, how could I possibly be having a panic attack when I had taken about 2 1/2 10 mg valium to try to get my chest to stop hurting. I explained to the ER dr. that I had started taking the topamax 3 weeks prior...There absolutely needs to be better education of this drug and its terrible side effects!!!

Chest pains, fatigue, mood swings, pins and needles feelings in hands and feet, nausea, depression, terrible terrible medication.....do not take this medicine.. I actutally sent a letter to the FDA telling them to re-evaluate this medication.

I have been taking topamax for 2 weeks and started having dizziness to the point of not being able to stand up. Has anyone else had this?

Hi Everyone,
I have been taking Topamax 25 mg for 1 week. I can't stand it. Today I am to up my dosage to 50 mg.I am not sure if I want to do that. The side effects suck.. I think I would rather just deal with my migraines, at least I know how to do that since I have had them for over 25 years. I have tried everything and nothing has worked so the Dr. and I thought we would give this a try.
I am trying to keep my place of employment happy with trying to cut down on the migraines but nothing works.
Most days I just want to give up.
Hopefully we will be able to figure something out.

I can't stand the pickhands and feet, the stumbling like I am drunk( and I dont' drink) nothing tastes right anymore, I have the shakes and I ache.
And all it does is makes me sleepy and like I am in another world.
I went to work today and made it half an hour before I came home because I stumbled and almost fell over. And when the boss talked to me it was like I wasn't there. So I came home. I don't know but I don't like it at all.

I've only been on Topamax for 3 weeks, and I am already wanting to get off of it. My doctor DID NOT tell me about all of the side effects, he told me the most common was the tingling in the hands and feet, which is so painful for me. I have lost the taste for carbonated beverages, which I only realized for myself by looking on a website that was caused by the medicine. My advice to anyone is to get a second opinion before going on this medicine. Now I have to wait until my doctor says its ok to stop taking it.

I have been on Topamax for approximately six weeks - 100 miligrams for migraine. I have to say that so far my side effects have been minimal and my results have been quite good. I am experiencing some parasthesia in my hands and feet - but it is transitory and mildly annoying at worst. I have found that a lot of foods don't taste very good - and I really only like highly flavorful things like fruits and vegetables. I don't enjoy anything fatty, starchy or sugary. I'd like to be able to complain about that - but let's get real - that's probably a good thing. I've lost about 20 pounds since I started on the Topamax, 20 pounds that I can easily afford to lose. I also find that I am quite thirsty. I was experiencing some tiredness, but by switching to dosing only at bedtime, I have minimized that side-effect. My appetite has diminshed a great deal. I am not noticing cognitive side effects. I have had two migraines since I started on the Topamax (I was having approxmitately 15-20 days a month of severe migraines before), but I was able to take 1/2 dose of Relpax, and the migraine was gone within a half an hour. Typically I woiuld have to take a whole dose, repeat the dose in 2 hours and still have a headache, and repeat for 3-5 days, so I am seeing a big difference in the incidence of my headaches. All-in-all I am feeling quite hopeful that the Topamax, for me, will be an excellent overall solution for something that has been quite debilitating.

my side effects : - Tingling hands and feet which are going away now, memory problems, word finding difficulties, speech problems, visual hallucinations. Mine ball of light flashing, red/orange colour lasting seconds, then also a white out line of doors or bjects or my body. ( even neurologist's are not aware of these visual problems and because they don't fit into the normal visual aura pattern they may think you are made. The drug company need to put out a visual hallucinatinatinations as a noted side effect. I'm taking Topamax 50mg twice a day for migraine for the last for months. It is only just now controling the migraine. I have lost 12lbs in weight.

I have been taking Topamax for approx. 16 months. I began with 25 mg at bedtime and have just a week ago worked up to 100 mg at bedtime. My Dr. was good to prepare me for some of the side effects so that I wouldn't freak out and want to discontinue the medication. I was having about 3-5 migraines a week. It was scary how much Imitrex/Phenergan I was taking just to be able to get through a day only to face another headache. When my Dr. offered me Topamax for "migraine prevention" and told me of possible side effects, he also told me that if I would work through them it would be worth it. He was right! I had tingling in my hands and feet at first that only lasted a few days. I had subtle hair loss after about 2 wks. The most noticable side effect that I've had has been how it has affected my concentration and memory. For the first month or two, I had a very hard time getting out the words I was trying to think of in a conversation and I would forget to do ordinary things. This has gotten back to normal!!!! I encourage you to hold on! The side effects aren't as bad as the headaches - at least not for me! My Dr. also told me that it was VERY important to drink LOTS OF WATER! I even noticed that when I would wake up in the morning and feel the tingling in my hands and feet - if I would drink a glass of water the tingling would get better. The higher the dosage of medicine the more the water; especially in hotter weather. I think my body doesn't sweat as much as it used to unless I drink plenty of WATER!
Just hang on - if you can - and know that you can decrease your dosage and take it easy until your body completely adjusts to that dosage and stay there a while (months) then increase a little more until you get to the goal dosage. That's what my Dr. and I have done. It has worked!!!!!!!!!!

I am a 62 yr old lady that was started on Topamax a little more than 2 yrs ago for migraines that were getting worse as I was aging. After the first "weaning on" period I have been taking 100mg a day at bedtime for the entire time. Initially, I had a lot of tingling in my hands and feet, but it subsided somewhat and never seemed like a big deal. The Topamax brought my migraines to a grinding halt. However, more recently I've noticed quite a number of new increasing symptoms that are bothersome and scary. Difficulty concentrating, a certain amount of confusion, and some eye pain that sometimes feels like pressure and my vision is blurry. My balance does not seem quite normal. I'm not really dizzy, but I have "missed" a step too many times lately. My mind functions do not seem all together "there". Normal functions like spelling, counting change, answering questions, like my address and phone number, aren't always easy especially if I'm under pressure or get upset. Backaches and joint pains are present, but since I have Degenerative Disc Disease it is hard to distinguish the source of the pain. The problem is I cannot determine if this is from the medication or if I am experiencing another kind problem. ? Most medications have side effects; however, if the benefits out weigh the (negative) side effects, it is worth it.

hi my daughter has been on topamax for 3 weeks she has had a back ache ever since she began her dosage which started at 25mg per day and increased to 100mg by week 3.
she suffers bipolar and so far have noticed a great improvement but no weight loss,plenty of tingreling in her hands and feet and also her lips.
does anyone have any aches and pains in their back?

Im only 16, and ive been on topamax for about 6 months. Im on it because i have epilepsy, and because of my headaches. Just recently in December i got put on 100mg and ive been noticing alot of hair loss. I also get alot of tingling in my hands and feet, sometime in other places. Sometimes it is really painful. Yesterday, i was wondering if hair loss was a side effect of Topamax so i decided to look it up on the internet and i found this website, and i read what everyone else had to say, and now im kind of scared to see if any thing else happens. I haven't had anything like Soda Pop tasting bad but yeah.

<3 Sarah :)

I've been on Topamax 3 weeks now, and I've read all you side effect comments and I agree with all soda taste terrible! I have not experienced any hair loss as of yet, very little tingling in my hands or feet, my biggest problem is aching legs, it's literally waking me up in the early morning hours and can last a couple of hours, has anyone experienced this? It has started since I've started 75 mg on my 3rd week. But my migranes are completely gone and my appetite has lessened which is another plus! Thanks for any feedback.

I was on Topamax for 3 weeks, and only got up to 75mg/day before insisting to be taken off it. I felt drunk all the time, couldn't concentrate or find the right words, my hands and feet were numb and tingly all the time, I had awful heartburn/belching for almost 3 weeks straight, I couldn't sleep, and was very nauseous all the time. I may have stuck it out a bit longer, but I had 5 migraines in 12 days, which was an increase in frequency compared to before taking the Topamax, so I didn't feel this drug was working for me. Today was my first drug-free day, and my head is so clear, it is just great! My feet are still tingly though, so I'm hoping that will go away soon...

My Dr. Prescribed Topamax for anxiety. I've tried all the other anxiety meds and nothing seemed to work. This one worked great for the anxiety. But the side effects are getting to me. I can take the tingling hands and feet. That actually happened it seemed non stop at first, but went away after about three months. The main problem I've had is the weight loss. I was at a good weight to begin with, 5'6" 130lbs. but after four months I'm down to 105lbs. I can't gain any weight no matter how hard I try because I'm constantly Nauseous. When I do get my appetite, I can only eat a quarter of what I used to before I get nauseous again. I also have found myself at a loss of words A LOT!!!!!! So, tomorrow I'm going to see if there's something else my Dr. can think of for me to try.

My Dr. Prescribed Topamax for anxiety. I've tried all the other anxiety meds and nothing seemed to work. This one worked great for the anxiety. But the side effects are getting to me. I can take the tingling hands and feet. That actually happened it seemed non stop at first, but went away after about three months. The main problem I've had is the weight loss. I was at a good weight to begin with, 5'6" 130lbs. but after four months I'm down to 105lbs. I can't gain any weight no matter how hard I try because I'm constantly Nauseous. When I do get my appetite, I can only eat a quarter of what I used to before I get nauseous again. I also have found myself at a loss of words A LOT!!!!!! So, tomorrow I'm going to see if there's something else my Dr. can think of for me to try. I was on Effexor which was good for anxiety, but the sexual side affects were terrible.... Gosh, what do I have to go through for a good love life??? lol

Just started, and reading all these post, eeeeekkkkkkkk. I have mig everyday, and just want help. Is there any one with a good experince on topamaz? I mean really? SHouldnt there be people that it help's?