July 16th
2008
11:23 AM
I was wondering if topomax causes high blood pressure? Also I'm on 350 mg a day plus 1600 mg of tegretol a day . I was wondering if any one was on such a high dose?
-- By cindyann | Reply | (3) replies | Private Message me
December 22th
2007
12:36 AM
I was put on Topamax around thanksgiving time 07 for Bipolar disorder. Over a week my dose was raised to 100mg/day. Immediately I began experiencing muscle cramps in my Legs that were intermittent. It wasn't too severe so I decided to give it time. Also, I was an inpatient at a Psych facility when I was put on Topamax and was also placed on a few other things at the same time. Recently, the pains in the legs have become severe and I have been getting pains in my arms as well. In addition to this I have been getting tingling in my face and hands and numbness in my throat. It has been difficult to breathe at time, especially if I really relax, then I suddenly realize that I am not breathing at times. My eyes feel like they are going to pop out of there sockets. I tried talking to my Psychiatrist and was told to go to the ER. At the ER I was told to goto my Psychiatrist. No one will listen to me!!! Finally yesterday I decided to take myself off of the Topamax. It's hard to tell if things are any better yet and I imagine it will take time. I have noticed what I believe to be improvements though. I guess the moral of this story is sometimes you have to use your own brain and do what you know is right for you.
-- By jstreet610 | Reply | (2) replies | Private Message me
August 24th
2006
9:29 PM
I was on 75 mg of Topamax for 6 months. I became unable to empty my bladder. I was taking Cardura high blood pressure meds to release the bladder muscle. Even had to have a cystoscope. My urologist did not think it was the Topamax causing the problem. Finally I decided to get off Topamax on my own. Its been a week now and I m totally cured. This drug was a horror!
-- By swif4ter | Reply | Private Message me
July 3th
2009
1:50 PM
I was placed on Topamax, off label, for suspected bipolar illness (now disproven). My cognition, word finding abilities, memory has been so adversely affected that I am now on disability. I had 5 kidney stones due to the development of Renal Tubular Acidosis, nearing renal failure (a side effect doctors don't warn patients about). This in turn led to osteomalacia, softening of the bones, only discovered after I broke all three major bones in my leg and snapped off my foot stepping off the lowest seat of a bleecher. I've suffered tingling in arms, hands, legs & feet (nerve damage), lesions in the brain, muscle spasms, heat & cold intolerance, insomnia etc... Although I lost weight, I gained it back (then some) as soon as I reduced the dosage of 800 mgs. Upon stopping the drug to save my kidneys, thus my life, my kidney function returned to almost normal within a few months, although there is residual damage. All other side affects remain two years later. Losing weight is not worth dying! Beware of this drug being used off label! I would never trust this drug!
-- By suzieq1958 | Reply | (2) replies | Private Message me