Topamax and lamictal

I just got off topamax after being on 800 mg/day for over a year. Unlike most of you, I used it to treat seizures. Because of the side effects (slurred speech, bad memory, and NO sex drive) my doctor to switched me to Lamictal.

After just one week, my sex drive is back to normal, my memory is better, and I'm more confident in my speech.

I've been on topamax at 400mg 2x a day for about 8 years now. It is a great drug but it has HORRIBLE side effects! It ( along with lamictal) gives me WONDERFUL seizure control. And it is safe for pregnancy. BUT it has destroyed my memory. short term and long term I cant remember much of anything! The sexual side effects is just awful. It makes reaching an orgasm almost impossible! I am very scared that I may have full blown alzheimers by the time I am 30!

Has anyone gained they're memory back after stopping topamax?

I have been taking 300mg of Topamax BID for 4 years. I also am Taking 300mg of Lamictal BID. I have had all The same side effects that have been listed. I still get some numbness and tingling in my hands, feet or legs from time to time. The weight loss eventually leveled off for me. (My Dr. said that would happen). I lost 30lbs and gained 10lbs back. the confusion and memory loss was a big deal for me, but I had finally found a great combination of meds that controlled my seizures. I found B12 shots and no caffeine really helped keep my mind clear and gave me back my "verbal capacity" (you guys know what I mean).
Overall I think it's a great drug. It defiantly changed my life for the better.
I Tried 4 others before I tried Topamax.
Nothings gong to be perfect.
Jessica, Tampa,FL

I have been on Topamax for 4 months and so far the migraines I have suffered for 40 years are gone. Great Some side effects like can't stand carbonated drinks. Reaction time is a little slower. I stress out a little more then I used to. I get really tired at the end of the day. I used to be a night owl but now love my sleep. Question to you all. Any one had problems with their teeth? Such as pain, fillings falling out? Let me know.

I have been on TOPAMAX for over a year and until recently I didn't realize I was suffering from any side effects. It helps the content headaches and the weight loss is great. In the past six months I have been suffering from severe chest pains, you would think that it was a heart attack. The doctors can't seem to figure it out. After the help of my family doing research, we've found that TOPAMAX DOES NOT mix with METFORMIN for diabetics or LAMICTAL for bi-polar or seizures. Why don't the doctors or the pharmacist warn you about this kind of stuff. I have went from a fairly healthy energetic person, to someone that can even get up and go to work. I have 2 to 3 attacks a day and each one drains me more and more. It is not good for my mental well-being, and I am uncertain if it will have any long term effects or damages on me. It has not been proven that this is the cause of my pains after specialist to specialist and many more to come, but I am positive it has a lot to do with it. I just don't want to hurt any more.

I am also experiencing hair loss and have been on Topamax about 2 months. I had no idea this was a side effect. I initially lost weight which was wonderful, but then my weight dipped so low my family and friends thought I was anorexic. I was finally wearing a size 3 pants. I normally am in size 8's. I am on it for bi-polar and to help with binge-eating. But I cannot deal with the hair loss. I don't think that being skinny is worth losing my hair for. No other meds have helped my depressive moods without making me gain weight and at this point I just don't want to take any drugs. I would rather try some therapy...that has become less common. The doctors just want to give you a pill now-a-days.

Haven't seen anyone mention any sexual SE's but I know I'm not imagining this. It's not a lack of libido but, it's as if my wiring has been disconnected.
A lack of sensation. Major bummer. I can live without sodas but not this!
That was my major reason for getting off the Topamax. My doctor was very incredulous about this being a SE of the Topamax but he didn't argue with me. I came across this site just looking to see if anyone else had experienced this. After getting here I can not believe all the things I have been brushing aside as due to something else. Stomach pain and diarrhea, severe GERD, depression and morbid thinking, oh and my gosh the trouble searching for words and connecting thoughts--I thought I was loosing it, shortness of breath and weakness that I was attributing to weight gain! I have only been on 25 mg a day for 6 months. The migraines did improve and the paresthesia in my hands subsided over time. But all this other crap that has slipped in and I have been passing off as aging or just wondering what else was up with my body and mind. Sheese! Thank goodness for this site! I am tapering off this crap-- and I feel like crap. Weakness and fatigue and a weird pain in the side of my head that is not a headache exactly. I hope I'm back to normal soon, this is awful!

Today is day 8 on Topamax. The only symptoms I've really had were the first few nights on it I woke up in the middle of the night but that has stopped. I had a few bad dreams but that has stopped. Drinks taste a little weird to me, but nothing like anyone else on here has described. I can still taste the carbonation at times. I just started taking 50mg today. I do 25mg in the am and I am going to take 25mg in the pm. For the previous 7 days I was only on 25mg per night. I have heard all this talk about weight loss on Topamax. That's part of the reason I am on it...to counteract the weight I have gained since I've been on Lamictal. Anyway, I haven't noticed a decrease in my appetite OR any weight loss at all so far. I was just wondering how long it took to start affecting you guys with the weight loss. Is there a certain mg you are on that it starts to affect your appetite/weight loss or a certain time frame or what? Any information would help. Thanks!

I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.

Started on Topamax about 3 months ago. Taking for visual seizures from scar tissue due to gamma knife on an AVM that bled.I was seeing all kinds of things like people, dogs, cars, you name it. Doctor first put me on Dilantin (pretty strong dose). It did nothing, and it did not even show up in my blood on a blood test. That was a nuerosurgeon. He sent me to a nuerologist. He put me on lamictal. I took it for one week, and wanted to drive my car over a cliff!!! I was so depressed and I felt horrible. I just stopped taking it. Then he put me on Topamax. I take 100mg. Soda is bad. I do miss my diet pepsi. I lost 30 pounds ( this is a benefit). My brain is fuzzy at times, and I can go to introduce a family member, and not even remember their name for a minute. I have trouble with urination, actually starting it. Sometimes I lose my balance, and bang into things. I get stomach cramps once in a while.However, all the people, dogs, cars, and "unwanted" visions are gone. So, I guess it is worth it. I wonder if I will ever like Diet Pepsi again. Also, now eggs and chicken are really starting to gross me out.

Started 50 mg Topomax a week ago and to help lose weight gained from my lithium. I'm already on a mood stabilizer lamictal so I didn't need it for mood - only appetite suppression. The first day I did notice that my taste for diet sodas changed - I thought something was wrong with the can and threw it away and got another, but no, it was the same. Oh well. My appetite is pretty much zero, which is fine with me since I gained over 30 pounds since starting lithium seven months ago. I don't feel any tingling or any wierd sensations - but I did feel lethargic/"stupid" the first day (and I'm definitely not that!) - so I switched to taking it at night only and that took care of that. I still feel tired when I take it at night and a little slow in the morning but by the time I get to work I'm good to go. As far as how I'll do when my psych ups the dosage I'll have to see - I'll be sure and post. I think everyone tolerates meds differently and you need to research any drug before you take it.

I started topamax on Tuesday for bipolar disorder. My pdoc started me on 50 mg and I took one in the am and got really sleepy so I cut back to 25 mg at night and went back to 50 mg on the weekend. I was surprised to feel the effects the first day. I thought I had gotten a flat pepsi at lunch and then realized that my tastes had already been effected. I got the tingly hands and have noticed that my leg muscles have been twitching some. The very first day I felt like I was in a fog and I definitely don't want to feel dumb. I'm hoping that cutting back and titrating up more slowly, as well as taking the medicine at night will help. The side effects I can stand as I withstood 6 months on Accutane for acne which was waaayyy worse.

I too had chest pains!! That is something that they do no tell you.

This medication definitely needs to be re-evaluated by the FDA, to determine what damage it may do to your heart.

I was already seeing a psychiatrist for Panic disorder so I had valium at home. However, I still ended up in the ER for my chest pains after getting no call back from my dr for two weeks telling her that I was having all of the other side effects ( except the hair loss), tingling in the hands and feet, fatigue, moodiness, different tastes of things, especially colas.

Nevertheless, I was diagnosed at the ER with having a panic attack....DUHHHH, how could I possibly be having a panic attack when I had taken about 2 1/2 10 mg valium to try to get my chest to stop hurting. I explained to the ER dr. that I had started taking the topamax 3 weeks prior...There absolutely needs to be better education of this drug and its terrible side effects!!!

I have been taking topomax 100mg twice a day for one year. I began taking it for seizures and headaches. I weaned myself off of it in December feeling that it was unnecessary being that I've always been on lamictal as a monotherapy treatment for my seizures and that the dizziness, memory problems and tingly feelings were not worth it. Now the ten pounds that I originally lost and kept off for all this time has came back on and all the while I have been exercising 1 1/2hrs a day (which is new to me) and it isn't helping. I am back at my normal weight of 123 whereas I was happy to be 113 while on the drug. I am going to begin taking it again to see what happens... I don't experience the symptoms I spoke of before-unless I take too much because my memory is bad.

I'm on 50 mgs of Topamax, and it's really fuckin" me up man. Listen to this crrraaaazzzzzy ass story. My Mom took me to MCV (Virginia's State funded Hospital) on Monday, August 28th to pick up my seizure medicine and she dropped me off in front of the Gateway building and told me to go in and wait for her while she went and parked the car. No big deal. Nothing I couldn't handle. I've done this before I started the Topamax. Yeah, right........Well, I went in and sat down for a minute then got up (before she got there), crossed the street over to the pharmacy and got my meds. Crazy thing too was I got on the elevator and went up to the 3rd floor, thinking that I was supposed to meet mom up there. After I started walking down the hall I finally realized I was supposed to have waited for mom in the Gateway building before got my meds. So I got back on the elevator and went back down to the pharmacy and back over to the Gateway building and found her. I thought she was gonna be mad, but she wasn't. Anyway, on the way out of the Gateway building I almost walked out in front of a moving ambulance.
I am like a walking zombie. I have been on Lamictal (anti-epileptic) but the Neurologist is slowly building me up on the Topamax, another anti-epileptic, so that I can quit the Lamictal altogether cuz she's worried about a rash I have developed. Lamictal is known to cause life threatening rashes. She doesn't want me to quit the Lamictal until the Topamax is completely at 200mgs in my system for fear I would have a seizure. So for the time being I will be a zombie without an appetite. I barely eat anything. I'm always thirsty though. And driving.......HA! Forget that! I don't even WANT to try it. I might kill myself or someone else and/or end up lost somewhere. Wouldn't that be a bitch!
I'm willing to see this thing through though. I'm tough and think I can handle it.

My husband has been taking Topomax for a year along with Wellbutrin and Lamictal for Bipolar 2. He also has the often tingling, he describes it as crawling bees, on his feet, numbness in his hands. He bruises very easily now, and the worst symptom is the chronic muscle bursitis and joint aches. We were'nt sure at first, but after every test in the book came back negative, and realizing the pain started when the drug was started, he is finally off of the drug and the pain...unfortunately, the mental symptoms may soon reoccur. Has anyone else dealt with this?