Topamax and legs

At 50mg a day, Topamax, taken at night, makes me feel very heavy, tired and numb all day. I have been on it for 3 months so far. I also have other side effects mentioned in previous posts. I hate feeling tingly in hands and legs (from the knee down) and sometimes in my face. It is supposed to go away - soon? I get a bad case of my legs falling asleep in almost any position I sit in other than total upright (which is not comfortable). My lifr-long instiable appetite is hardly affected. I'd say maybe a little bit. I do notice taste difference in drinks and food, sometimes more than other times. I need this medicine for Migraines, it has help relieve my symptoms, but I think I need to continue to increase the dose because I still get Migraines and feel pressure in my head a lot.

After taking Topamax for six months, I found my self different person.... I started feeling this way just in the first few weeks after I started the medication, but the simptoms incleased with the time....Anxiety, nervousness, panick attacks, negative thinking and depression....crying, making up problems from nothing, hair loss also....I decided to stop it, slowly and without any concequences I thought I am out of it....But just a couple weeks I stop it is I noticed some red spots on my skin on the lower legs, soon they became more and stronger..... Two months later I was in abnormal stress that I am going to be sick from a terrible desease... Read so much on Internet.... I can explain how terrible I felt and even though I did blood tests (everything was in normal range!!) and spoke with so many doctors, nobody could tell me what exactly is wron with me. One Dermatologist named the skin problem as Progressive Pigmentary purpura and gave me a cream for that. Thanks a lot for that because the spots started desapearing, but it may come again.... nobody knows for sure.... I think this is another side effect of Topamax, that nobody had before..... Please tell me if somebody else had the same situation... I will feel much more relieved....

I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.

I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.

Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!

Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!

I am wondering about having my doc up my dosage for the weight loss aspect????

I have been taking Topomax for quite some time.Tried it several years ago, the mgs were not high enough (only 25mg/day).My doctor didn't really know the prpoer dosage.It didn't help the migraines.My new doctor has me on it again.50 mgs/day.Here's the good - NO MIGRAINES! Here's the bad: Acne at 45 years old, tingling doesn't even describe my legs or face, ringing in the ears, remembering names and places just doesn't happen, I'm eating less but gaining weight quickly,& one last thing- Itchy spots that I would describe as "hot spots" if I were speaking of my dog. Still sticking with it because I don't have the migraines.I tried to slowly take myself off and the headaches came back.What choice is there?

I just recently started Topamax and had no idea of all the side effects that comes with it. So far I have been loopy, forgetful, have difficulty concentrating and etc.. The other bad side effect that I have had is my legs have hurt to the point that I was out of work for two days because I could barely walk. I couldn't lift myself up with my legs at all I had to use my arms. My arms and hands go completely numb at night and I wake up "looking" for them. I hope these all get better as my body adjusts to the meds. I haven't decided yet if the side effects are worse than the migraines.

Started out with face tingling about a week taking it primiraly on the right side of my face. About 3 weeks into taking the medication I experienced Experience weakness on left side of body which included unable to lift left arm and left leg, unable to stand by self, involuntary tremors to the hands, fingers, legs and mouth, difficulty speaking, very emotional, very tired. Was hospitalized because emergency room doctor felt that the effects were due to reaction to an MRI dye 6 hours before. Was released next morning with slight improvements in left side of body strength, speech slowness cycled from normal to extremely slow, additionally the involuntary tremors with the hands, fingers, legs and mouth continued as well as the emotions, actions like eating and bathing required a lot concentration and caused extreme tiredness.

My sister in law has been taking topamax for at least two years now for migraines, I think 50mg a day. She has developed serious issues, which she nor her doctors believe is from the drug. She has back pain, moodiness, sleeplessness, extreme muscle cramping. Most recently, her legs have become extremely swollen, larger than any pregnant woman I have ever seen. The skin on her feet is breaking open and peeling. The doctors can't find the cause, but I think it is the topamax. Has anyone else had this swelling?

I've only been on Topamax for 3 weeks, and I am already wanting to get off of it. My doctor DID NOT tell me about all of the side effects, he told me the most common was the tingling in the hands and feet, which is so painful for me. I have lost the taste for carbonated beverages, which I only realized for myself by looking on a website that was caused by the medicine. My advice to anyone is to get a second opinion before going on this medicine. Now I have to wait until my doctor says its ok to stop taking it.

I am now on 100mg in the morning and a 100mg at night...I now have knee pain so bad. Then by the end of the day my whol leg hurts....And it's in both my legs. I also have the numbness and tingling in my right limbs and never the left..

yes, I believe this drugs makes you think you have arthriitis. I will not know til I am completely off, however, all my joints ache. Hands and legs....

I started taking Topomax three weeks ago and have been feeling spacey, dopey and drowsy since. My sleep is interupted, my feet and legs are numb and tingely much of the time and I have a hrad time concentrating. My skin is very itchy, too. But, what disturbes me most are the postings about hair loss. My hair is thin and fine to begin with -- I can't stand to lose any hair. My doctor didn't warn me about this. Also, I've not lost any weight on the drug, although I did give up drinking sparkeling mineral water as the taste changed dramatically. I am about ready to ask to be taken off the drug, although I haven't had a single migraine since I started, and before I was getting 4 - 5 a week and they'd last 1 - 3 days (and some up to 8 days), so this is a big improvement.

I started Topamax at 25mg at night for 2weeks and just moved up to 50mg at night. My husband kicks me out of bed every night saying I kick my legs. I don't even realize I am doing this. Them when I try to go back to sleep, my legs feel like I have to tense them up to relax in a constant cyle. I am also on Effexor 225mg and Lunest 2mg, which seems to not work anymore since I went up on the topamax dose.

I have been taking 100mg of Topamax daily for 9 months now. At first I noticed being confused, and slight memory problems, but now I am having serious health issues. I have extreme pain in my legs, most joints, middle and upper respitory pain(mostly at night), and just don't feel well. 6 months ago I was running half marathons, now I can barely exercise for 30 minutes a day. My Dr.'s have no idea whats going on, but tell me that Topamax is not the problem. I don't think they know what their talking about.

Keith

I started on Topamax a month ago and the first five days were wonderful. I bounced out of bed in the morning after a good night's sleep and felt wonderful all day. I take fifty mg. at night. On the sixth day I noticed I ached in my head and legs. My head felt like it was stuffed full of cotton and after a few more days I was having a hard time thinking and my sleep patterns started getting messed up. Two weeks into this pill and my legs were stiff and my feet burned while my arms ached and my hands and fingers tingled and twitched. I'm a newly wed and love my husband but you'd never know it if you were in our bedroom the past couple of weeks. He keeps asking what is wrong and all I can say is I think it's the topamax. After I snarled at him Saturday he looked at me and said...you have to get off that crap, it's doing you no good whatsoever. I agree with him and am making an appt. with my doctor today. I only hope she listens to me.

I am on now 400mg of Topamax a day. I take it for epilepsy. I have some halluciations but I ignore them. I lost over 30 lbs. The weight loss was needed because of a seond medication I am still currently on that made me gain weight. The Topamax gives my legs and neck the worst pain and mucsle achs... I get blurred vision. I will be trying to talk and my speech will start to slur or I forget words that I will need help remembering that are right on the tip of my tongue. My short term memory, that is not so good, I forget things most of the time. The medicine is for migrane relief but since I have been on it I have had the worst headaches ever! Along with the rest of you I do have gas problems also......The only reason I do not get off this stuff is that I have tried over 10 different medicines that didn't control my seizures, this does. I have had all the tests, Just went in for an MRI, what else can we do?

I started on Topamax about a year and a half ago at 50mg, then up to 75, then 100mg. About 3 months ago I started getting some sporatic pain in my upper arm, then my wrist and pinky finger. Over the weeks the pain increased, now it's daily pain, that travels somewhere over my arms, or legs, 90 pct on my left side, also getting neck pain. My dr. insists it's not the topamax, but lowered my dosage to 75mg, I'm not convinced. I've had MRIs, blood work, tests and everything's come back normal. I'm exhausted easily and slightly dizzy whenever I move my head (or eyes) to quickly. I'm getting an MRA this week and if that comes back normal, I'm going to insist I get weaned off this drug! If the symptoms go away, then I'll know it was the drug. If they don't, then I'll know I need to keep exploring to find an answer to my problems. But I'm sorry I started on this drug to begin with! I'd rather deal with the migraines and take the Imitrex as needed.

I have been on T-Max for a little over 3 weeks. Started at 25 mg per day and am up to 75. Have experienced all of the general side effects but the one I have been experiencing in the past few days has been a feeling of insects crawling on my head and neck and in and out of my ears and on my feet and lower legs. (hallucinations) I should mention that I am taking the medication for a closed head injury I suffered in April. And NO I am not on any other meds I don't even drink alcohol or caffeine for that matter. Am I losing my mind or has anyone else experienced this side effect too?

I HAVE BEEN ON TOPAMAX FOR ABOUT 6 TO 8 MONTHS
BUT THE HEADARCHES STOPS FOR A LITTLE WHILE WITH A MUSCLE RELAX I WAS TAKEN THEN THE DR MOVED ME UP TO 400MG A DAY I AM ONLY 26YRS OLD BUT IT DID NOT HELP MY HEADACHES GOT BAD AGAIN TO THE POINT HE TOOK ME OFF OF TOPAMAX AND ON SOMETHING ELSE NOW I HURT IN MY CHEST AND I SHACK BAD MY LEGS ACT LIKE THEY DO WANT TO HOLD ME UP I NEVER HAD THIS PROBLEM MY HUSBAND SAYS I LOOK OFF IN A DAYS. IF YOU ARE ON IT I WOULD NOT GO OFF OR I WOULD NOT GO ON IT