Topamax and lips

After daily pounding migraines for ten months, the side effects of the tingling fingers, tongue, lips and toes; the inability to find words, the weird way certain foods taste, are all very do-able. What does worry me is the way I can get incredibly depressed, but the anti-depressant (Wellbutrin) I've been taking for more than ten years just suddenly started making me worse. I just keep telling myself that at least I don't have a headache. It definitely makes it worth it. The headaches were so bad, and thanks to the topamax, they're gone.

I was doing just fine taking 50 mg of Topamax but I was still having minor headaches. My doctor said to go to a neurologist because there may be a tumor to worry about. He doubled my morning dosage and added an evening dosage so now I am taking 200 mg. a day. I started the insanity on Friday. By Monday i went grocery shopping and couldn't remember what I was shopping for. Thank God i brought my husband with me...when I could remember that he was with me. And then when I remembered to ask him what we came for I needed to remember where it was. Upon returning home I offered to help my 7 year old grand daughter with her spelling homework. Do you how embarrassing it is to not remember how to spell first grade spelling words? Tuesday was Mardi Gras and we went to the movies so I was saved any further mind questions. Then along comes Wednesday and I returned to work. Well, I tried to get to work. I got lost. Here I was at Walgreen's trying to figure out what I was doing out at 6:00 in the morning. What day was it? The looks on other's faces when you ask them these question is not something funny. So, I get back in my car and aim in the direction I hope is work. Luckily, I remember where I habitually stop for breakfast. My memory comes back again and I make it to work. I am on time and all is well. Now, the day begins.

I haven't had a period since December. Here it is February. And no, I am NOT pregnant. I can't concentrate. I ate 2 chicken nuggets for lunch and am full (now that is a healthy lunch, huh?). I was addicted to Dr. Pepper and now can't even stand the smell of it. I can't walk and chew gum at the same time. I found a note that I wrote sometime yesterday that really scares me because I don't remember writing it. It says, " Headache @ 1:55 no known trigger jut sudden movement to pick up papers from bin over desk. Nausea as well. Need to go to sleep forever." Good feeling to have? Depression is kicking in.

I just called my doctor and he says decrease the medication down to 100 mg. Ummmm...How about I decrease it down to 0 mg and I take a Imitrex or 2 and a hot bath with a nap when I get home and live to see my grandchildren grow old! I think living with a migraine or 50 is far better than what I have been feeling this past week.

If anyone can tell me that it gets better in less than 2 weeks I will stay with it but 1 more week of this and I will be a patient in a mental hospital. I can't even play Nintendo with my grandson...NOW THAT IS DEPRESSING!

I've been having breathing issues since last Sunday (so for one week now) and ended up in the emergency room yesterday because I was hyperventilating so bad at work, I nearly fainted. My lips, hands and feet were tingling. On the way to the hospital my hands, feet and lips became numb. Then my muscles started to cramp and I lost the feeling in my hands (at this point, I was struggling to hold it together and not cry, so I was having some anxiety as well). At the hospital, I had my lungs x-rayed, blood work, urine tested, and an ekg---all normal. They gave me some Ativan and said it was probably anxiety. I still couldn't breathe. I was anxious because I haven't been able to breathe properly for a week and no one has an answer for me! When I talk, I get winded. If I have to move around and talk at the same time, I am gasping for air. If you read the information sheet on Topamax, it can cause something called "metabolic acidosis" which can be quite dangerous. My blood work came back normal. You can have the pH of your blood tested to see if this is the case. If your pH is too low, then the you may be experiencing this. Read your Topamax literature. For me, I decided to take myself down to 50 mg from 75mg anyway, just to be on the safe side and hopefully, I'll here from my headache doctor tomorrow and will follow up with my internist on my own. It's very scary. Please be careful. Good luck to everyone. Oh, yes, and if I forget that I wrote this, it's the Topamax! :)

Hello, everyone. I didn't know there was a page like this, but I'm glad there is. I've been on Topamax for 3 weeks because the medicine I was on for 2 years didn't do anything and the headaches weren't going away at all anymore; they were continuous. The first week at 25 mg I had the tingling for a day or two, the involuntary muscle twitches, the terrible mouth taste, and the chest pain. All but the terrible taste went away by the second week at 50 mg but I started getting wobbly legs and dropsy. I read an article somewhere where a person on Tomamax called the drug Stupamax or Dopamax and said anyone on it turned into a box of rocks. The box hit me at 3 weeks and 75 mg. I'm not wobbly anymore, I'm still irritatingly dropsy, and I am doing things that only a person with half a brain would do. Plus, my ears have been ringing for two days, and today I feel like I'm in a tunnel and everything is far away. I'm getting ready to call my doctor. On the OTHER hand, I haven't had a headache that lasted for more than a half hour in 3 weeks. So what's best? Going back to headaches or continue to evolve into a box of rocks?

I started taking Topamax Jan 07 while weaning off of Dilantin (for seizures) after brain tumor removal. Been having tingling in fingers and lips and I'm not yet up to full dosage (100 m.g. 2 x day). Memory Loss, about 20-30 minute attention span. After reaching and maintaining the maximum dosage I may report changes.

hi my daughter has been on topamax for 3 weeks she has had a back ache ever since she began her dosage which started at 25mg per day and increased to 100mg by week 3.
she suffers bipolar and so far have noticed a great improvement but no weight loss,plenty of tingreling in her hands and feet and also her lips.
does anyone have any aches and pains in their back?

I have had trouble breathing with Topamax. I have been on the med twice. The first time, my doctor suspected that the mix of Allegra D and the Topamax caused an allergic reaction, the feeling of someone sitting on my chest and a breathing difficulty. So, she told me to stop both of them cold turkey. I did. The side effects went away, I felt better after 3 days. My migraines came back so I went to see a neurologist who wanted to try the Topamax again. I agreed to try it. I feel that familiar breathing problem, but not as bad. This time around, I think it is triggering asthma attacks which I have never had before. Someone was cutting the grass next door and when I breathed it in, I couldn't breathe. I had to shut the windows quickly and I coughed until I caught my breath. There was a natural gas smell in my apartment bldg. last week, I was in the hall for 4 mins. and had to leave quickly because it took my breath away. It took me 20 mins. to stop coughing. When I smell nail polish or the remover, etc. now, I can't breathe. I left the house yesterday and was panting while driving. I can't walk on my new treadmill without breathing hard. That never used to happen. Other side effects include pain behind my eye when I go out in the sun, my lips burn every time I go out in the sun, so do my ears, tingling in my thumbs and feet that can be painful, allergic to my cats now (breaking out in hives), and just not quick with the mind like I used to be. I know I shouldn't be driving. I've only been taking it for 6 weeks.

Positive side affects
mo more migraines
negative side affects
tingling in fingers and lips
eye twitching
discharge from my breasts..ya I'll say it.. doc said it was from the t-max.
confusion every once and awhile

Honestly though, I can go to work everyday and lead the normal life, with no migraines, and keep the shades open and let the sunshine in, so it's okay.