Topamax and medication

I have been on topamax for about 8 months. I started with 25, upped to 50, upped to 100 a day, then went to 300. now i have a raging diarrhea that I cannot control. I can't eat anything anymore. I have had seizures and at this point don't care anymore. So yesterday I simply stopped taking it. I am done. I just want to eat something and stop sitting on the stool. My poo has gone completely green at times....that is stomach bile. This medication is terrible stuff and should be removed from the market!

i was put on topamax for migraines back in aug 07.

well, i stopped it like 5 months ago. (2june 08) i still feel "out of it" like i'm here but im not. headaches came back but i would rather deal with them than all these side effects. i got severe panic attacks and nervousness, MAJOR HAIR LOSS, AGORAPHOBIA (FEAR OF LEAVING MY HOUSE CUZ IM SCARED TO HAVE ANOTHER PANIC ATTACK), i constantly feel dispatched from my family (i have 3 boys and a husband) every day i feel sick or tired, or both. which led me to stop the meds. (25mg am and 25-50mg pm) i weaned off over like 2 weeks (on my own cuz the neuro told me not to stop it and its all in my head.

i had to quit my job cuz of the panic attacks that just happen for no reason.

i still feel all the side effects even though i have been off topamax. hair loss, panic attacks, depression, "high" feeling all the time, cant hold a normal conversation. i have changed soooo dramatically from when i first went to the neuro and started this HORRIBLE DRUG. poor concentration, i don't feel like i want to be involved in anything- i just wanna lay on the couch with an ice pack on my head. i don't know what to do. my neuro doesn't know i stopped the drug and i was so mad at him for putting me on it that i didn't go to my last appt. now i have to wait until January to see him.

I recently started taking topamax for migraines. After increasing my dose to 75 mg twice a day, I am almost migraine free. However, my hair is extremely oily and having to wash it with a clarifying shampoo twice a day. Nothing else has changed other than my this medication so I am assuming it is a side effect of the Topamax. Has anybody else experienced this?

I have been on 200mg of Topamax for almost a year, which helped my headaches immensely so I tried to ignore the itching. The itching got so bad (especially when I get hot and would sweat) that I had to go off of it. I have been off of it for about 4 weeks and I still itch, does anyone know how long this will last or if it will ever go away? If I am going to itch without the drug anyway, I might as well take it and have relief from my headaches.

Hi all...I've been taking 25mg. of Topamax at night for 5 days now. Unlike most of you I have not experienced the tingling in the extremities or the weird taste in the mouth or even much tiredness at all other than what has happened as a result of my weird side effect. I was prescribed Topamax by my neurologist for my migraines. I've had them since I was 12 years old. I'm 49 years old. The got worse during peri-menopause which is kinda normal given the hormonal fluctuations, but was told by my neurologist that they would very likely subside significantly when I became menopausal. Well folks, I've been menopausal for 5 years and for the past 2 years my migraines have been the most horrific of my life. I have approx. 15 to 18 migraine days a month, some of the headaches lasting 3 bloody days. So it comes to this...Topamax. In the past I have suffered some pretty rare side effects from some very benign medications so I guess I shouldn't really be surprised that this is happening to me now. The first night I took it I slept like a baby. The second night I was slightly 'hyper' but managed to get to sleep. But for the past 3 nights it's been hell. When I lie down in bed, my body feels as though there are electric currents shooting through it and coming out my right leg. I have to move my right leg or go completely bonkers. Fortunately my daughter is away at university and so I can sleep in her room. So I lie there...on my left side...with my right leg hanging over the side of the bed swinging and swinging and swinging as hard as I can just so that I don't scream. It's awful. Last night was the worst. I saw dawn this morning. I just got off the phone with my pharmacist and he told me that I had described a classic case of RLS - Restless Leg Syndrome. And guess what? Topamax is used to trest RLS!! For bleep's sake! So nice people I am suffering a completely opposite side effect to the one that seems to be the most common one...tiredness. Has anyone else heard of this? Experienced this? It seems to all focus down to my right hip and leg. I have to move it vigourously or go nuts. I am so tired today but that's because I got like 3 hours sleep. I fell asleep from sheer exhaustion after my husband left for work at 7:30am.
A side note...I also take 75mg of Effexor for panic disorder and my neurologist told me that this is a very good mix of meds for migraine prevention. My top dosage for the Topamax will be 75mg taken at night.
I'd really appreciate any feedback on my side effect. Thanks in advance.

D.

I was only on 25 mg of Topamax for two months and had to stop due to the terrible side effects of mouth numbness, taste aversion and severe dry mouth. Unfortunately, the side effects have gotten worse and persisted now for six months after going off this medication. My personal thoughts: Topamax is the worst drug on the market, has negatively impacted my life, and my neurologist could care less. These symptoms are with me 24/7 and only mildly helped by expensive mouthwash and lozenges specially formulated for dry mouth. Actually, eating certain foods makes these symptoms worse and I am afraid this is permanent, but can find no scientifically plausible evidence to explain such lingering effects. If anybody else has experienced such long-term symptoms after going off this medication, please share.

I have been on Topamax since Jan of 08 for complex partial seizures. I was very pleased with it at first but started having
some more unpleasant symptoms. My hair recently started falling out about two months ago in massive handfuls! I was
and am very upset about it. I did have the tingling in the hands and feet when I first started taking it and I don't drink sodas
at all which I did all the time before. I did not lose weight at first but did a couple of months ago when I got very ill with a GI
problem. I actually lost about 20 lbs in about a month. This is when my hair started falling out. I have had a lot of labs
drawn and my TSH was undetectable but my thyroid levels (T3 and T4 are normal) and my antibodies are normal as well so,
there is no telling what is going on?? I just want off of this medication before I am bald!!

I was on topamax for about 2 years. I took it for frequent migraines caused by my sinus's. I had all the normal side affects but got used to it after awhile. The only one i didn't get used to was the hair loss. During this time I started allergy injections and now i'm up to my maintenance level. So i decided to ween myself slowly off the topamax. I have been off for about 2 months now and I have been fine on the headache side, but i have started to get other symptoms (i think withdrawal symptoms). They have progressively gotten higher in number as the days go by. First my hair loss has not stopped. I gained about 10-15lbs, I am edgy and climbing the walls all day. I have a really hard time relaxing. I recently developed horrible insomnia, and about a week ago i started having digestive problems including water retention, bloating, gas, irregular bowl movements, and acid reflux. And I've recently had bouts of tightness in my chest and throat which make it difficult to breath (lasts about an hour). I didn't have any of these symptoms while i was on the topamax (except the hair loss), nor did I have them before it.
I am seeing an endocrinologist in a few weeks to make sure nothing on that front is causing any of this, but i really feel it's from taking and going off the topamax. If you can find other ways to deal with your migraines, DO!

I started right out 3 years ago on 100 mgs. and within a couple weeks migraines were virtually gone! I thought it was a miracle! Only slight side affects for a couple years and only an occasional migraine but not a three day long one. So, I figure, small price to pay for all that relief, right? Now, for the last 6 months or so I'm falling apart! My memory is just gone! Sometimes I'm afraid to leave my house because I'm afraid I'll forget my way back home! I can hardly concentrate long enough to put a meal together and it just took me 4 tries to remember how to spell concentrate! Thank Goodness for spellcheck! I've lost 42 lbs. that I can ill afford to lose and I now I have started to have these anxiety things that I've never had before. I feel scared and nervous and no idea why. I was on a couple of drugs for allergies, a couple for arthritis and a vitamin. I dropped everything except the Topamax and the DR. put me on a 1/2 mg. Zanax twice daily for anxiety which seems to do nothing except make me sleepy. Now it seems all these side affects have just bloomed and I have this constant ache over my right eye which isn't a migraine but never goes away. I'm afraid to just stop the topamax because of what I've read about suddenly stopping. Doctors are no help, they won't even admit there is a problem. They just wanted to check my thyroid.It was fine.

In August I started taking Topamax and every week i am to up the dosage now I am taking 50mg in the morning and and 50 mg at night because my headaches was so bad that I had to quit my job because I couldn't serve food and vomit at the same time. Now that my headaches have gone from everyday to about every other day I have noticed the indigestion. Because I had because sick so long the doctor suggested I had a reflux and it would correct itself.I started looking at all the medication I was on and the list from the pharmacy never indicated indigestion on as a side effect for Topamax.My appetite is non.Weight lost about 20 lbs but I could afford that and then some. I try not to use the upstairs of my home if no one is there because of the dizziness.And simple chores around the house go undone.I have bounce $130 in bank fees this month and can't figure out how and gave the finances over to my husband to keep up with and I am a math major in college this semester.This is how bad things have gotten some simple words i can't recall how to spell . I have to use the dictionary. It's bad.

I've been on Topamax for a year and a half now. I started with 50 mg. and am now up to 100 mg. I did have the usual side effects of the tingly fingers, feet and arms the first six weeks and then that went away. Food and soft drinks tasted funny for a while, but that too went back to normal. I did lose 15 pounds and I didn't really have it to lose in the first place, so I upped my workouts with weights to compensate. My migraines have gone from five a week to one, so it's helped me BIG time being on this medication. My eyesight, however, has suffered. I used to have 20/20 vision. I now need reading glasses. I'm sure it's because of this medication, but to be honest, I'll take the glasses over being in that severe pain five times a week.

Topamax may help some people, but for me it is poison and I've tried it twice! This second time around I tried it longer and went to higher dose. I'll just list the bad side effects that I had this time, although I had some of the same the first time. By the way, I took it for migraines. The first time a couple of years ago I was on 25 mg a day. Then, this time decided to try again since migraines were so bad thought I would give it another chance. I went from 25 mg to 100 mg a day slowly increasing as directed. The side effects started occurring right after the first couple of days, numbness in my hands, jaw area. Then sometimes numbness in my feet. Started to feel bloated in my stomach, waistband on pants a little tighter, and also noticed a little fluid retention in my fingers and ankles. I would forget a word here and there, or when typing, type the wrong word. Eventually it got so bad that I would sit there and think to myself, ok I know this is the right word but should I actually say it or type it? Friends thought I was in a bad mood when I wasn't. I would get very very quiet and I didn't want to leave the house. Thank goodness my husband was understanding. We knew it was the drug. And we knew I would stop taking it! Sometimes my back and sides would ache which is unusually for me, and I drank a lot of water. I lost my appetite completely but still did not lose weight at all like others say they do, if anything I think I gained in fluid retention. The skin on my ears started to burn and itch, then the skin on my face started to itch. I felt nauseous almost every day. I also felt like I was completely encased in cement, this is about the only way I can describe it. You just do not feel like yourself at all. You have that foggy brain feeling people mention. You know you don't feel like your normal self, but you feel so lousy you almost don't care. It's a scary feeling. This was all in one month, I figured I had given it a chance but that was it. Even with the warnings about seizures I quit taking it immediately. I would rather have migraines than have all of those side effects. Also I wonder what is it doing to your other vital organs if it can have those effects? For those who do not experience any of this, I'm glad, but I have to say very surprised.

I have been on Topamax for 2 months and it has been horrible. I started at 25mg at bedtime and worked up to 50mg at night and 25 in the morning. I wish I never took it at all. I have had numerous migraines with the medication except now my tongue goes numb every time. I can't remember anything and I am in a fog all the time. I had to take a trip to the emergency room for tachycardia that occurs every time I stand. It goes up from normal to 166bpm. The cardiologist insists the Topamax is causing orhtostatic hypotension. I stopped all of the Topamax on Monday and it is now Saturday and I still feel horrible. Migraines are horrible but being stuck on your couch all the time because your hr increases sharply and you feel like you are going to pass out is worse. My hands and feet tingle all the time. I feel out of breath and I have always been very active. I now feel anxious all the time (never like this before). I feel like I am not myself and I am going crazy. I do not trust myself because I do not feel like myself. Has anyone else had these symptoms? Do they eventually go away? The cardiologist can't guarantee that they will ever go away.

I have just started taking this drug today for drug and alcohol cravings. After reading all of the testimonials about the drig on this website, I am definitely scared. I definitely won't go up to more than 50mgs a day. I just weighed the possible side effects against giving into a craving that might kill me. It took me 3 weeks since I've had this medication to start it. Wish me luck! Mahalo and Aloha from Kauai!

My psychiatrist started me on Topamax 2 yrs ago for depression from being 75 lbs overweight. Started at 25 mg/day up to 50/day for 2 yrs. Lost 70 lbs and kept off with only minor side effects. Also took 150/day Wellbutrin during this time. (For being kind of a neat freak and washing my hands a lot.- didn't affect my social or work life much) Have slowly started gaining the weight back (+12 lbs). Seem to have built up an immune to the 50/day dosage over the 2 yrs. So he added 25 in the am in addition to the 50 I've been taking in the evening. (1 mo. ago) Having some strange reactions. My memory seems to be taking a real hit. I am a CPA (passed these exams 15 yrs ago) and now I'm studying for the Cert.'d Internal Auditor exams. I am having a great deal of trouble trying to memorize for these 12 hour long tests! I feel fatigued every day. My blurred vision (that requires reading glasses) has gone crazy. I can't read the song book at church at all. And I'm only 47!. I've had acne like bumps all around my nose and face. How could such a slight increase cause so much change? Also sometimes my heart feels like it is going to beat out of my chest. And I'm losing patience w/my 13 yr old son who's pushing my buttons to see how much he can get away with. He seems to sense that I'm not at my best. But if I go off this Topamax and gain back my 70 plds I know I will plunge into a DEEP depression. Has any one talked to their doctor about the possibility of these side effects going away after time? My tingling hands and feet did and my slight hair loss did. And my weight loss is trying to go away but I don't want that. I'm majorly concerned about the memory loss and blurred vision eventually going away. DALIAL

I took Topamax for my migraines following a significant car accident. All I can say is this medication didn't help me at all. In fact, it made my migraines 10x WORSE! Before, when I had a migraine, they were debilitating and would last up to 48 hours. Once I was on Topamax I had a migraine that would not go away. It was almost a month of me being out of work so that I could be weened off this medication and feel better. Now I take something called Axert which you take at the first sign of a migraine. It is my miracle drug. It is not a narcotic like every other doctor seemed to want to give me and would make my migraine go away within an hour. However, I have noticed I have built up a little bit of a resistance to it!

Hello All,
I"m a 50 year old Mother and Grandma who takes Topamax as a Mood Stabilizer for Bipolar Disorder. I took it about 5 years ago and about 6 months after I started taking it I was struck down with debilitating diarrhea, nausea, loss of appetite, extreme weight loss ( 26 pounds in one month ). No one knew what was wrong with me. My psychiatrist actually upped my Topamax dose because I was becoming depressed and having severe mood swings. I was sick for 8 months. I saw a new psychiatrist and he stopped the Topamax because it just was too over medicating at that time and started a different mood stabilizer.

I didn't put 2 and 2 together. I just was happy that the diarrhea and nausea for the most part was gone. I still have nausea frequently but that is from a totally different cause.

In December we discussed that the new mood stabilizer was no longer working so we went back on the Topamax. In April the diarrhea and nausea this time accompanied by vomiting started. I was ready when it started tho even tho I didn't know the cause. I got hooked up with a GI doctor, started probiotics immediately, started eating organic yogurt with as many live active cultures in it as i could find. I would only eat plain boiled rice, boiled macaroni, toast, ripened organic bananas and drink lots of fluid. No gatorade but pedialyte because gatorade has citric acid in it which can be irritating. Pedialyte doesn't. I also drank decaf ice tea with small amounts of sugar.

Now today I read that Topamax can give you diarrhea and if you have a history of diarrhea tell your doctor. Great, just great. Trade my mental health for my physical health but having diarrhea at the most unopertune times does affect my mental health. What am I going to do?

I refuse to take a weight positive mood stabilizer and that is all I'm left with. Like Lithium, Depakote. they will make me as big as a cow. I'd rather have diarrhea to tell you the truth. I don't think I'm gonna tell him.

Missyk10atx

I started Topamax in November of 2007 the usual 25mg and worked my way up to 150mg. I have always had pretty thick hair and now have hair loss in the widows peak and top part of my hair. Needless to say I am devastated. I have cut myself down to 50mg in the am and 50 mg in the pm. My Neurologist states that she has not heard of hair loss but even this web site and the drug company states that it can cause hair loss. I have with the help of a very good massage therapist determined that my migraines are cervical so I am seeking a second opinion and taking myself off this drug. Not worth the hair loss if I don't need to be on this drug.

I have been on Topamax for 2 1/2 years at 250mg for migraines and have decided to get off because of side effects. I have had all mentioned: mood swings, dehydration, not sweating,tingling, dizziness, loss for words, short term memory loss,numbness, fatigue, GI problems, anorexic weight loss,rage... And this all began from the starting 25mg dose!
The migraines decreased from 24 a month to 12, at best down to 6 or 7, but I seemed to hit a plateau then back to 15.
I saw three different doctors and all wanted to simply increase the Topamax or add another med (Depakote, beta blocker, etc.)
Finally, I found that a problem with my neck may be causing the headaches and treating that has reduced them enough for me to try and get off the Topamax. I still rely on the Relpax to get me through the bad days, but I'm hoping I can get free of the Topamax for good!
I just encourage anyone thinking of starting Topamax to investigate all possible migraine causes before starting!! Topamax doesn't cure the migraine, it only blocks the pain! And the side effects are not worth it if you can find another way to alleviate the problem!

I was given a free sample of Topamax to help with neuropathy, but while I still feel the neuropathy pain, I have so many side effects. It's been several weeks, and family members are concerned with the changes in my behavior and ability to function. My wife is afraid to let me drive, and worries about my performance at work - the stress is hard on me.

I've had severe moments of panic, agitation, rage and thoughts of suicide.

Since I can't tell that it's really treating the pain, I want off of this medication.

This is tough. I was on Topamax for about two years. But then I wanted to detox my body from all meds. Topamax helped with my chronic headaches. I had headaches 23-24 days out of the month. Topamax helped me quite a bit. But the side effects were horrible. Once my body got used to it, it was not too bad, not great but somewhat bearable. But after getting off of it again after a year, I got the worse headache ever, I blacked out. It felt as if someone was shoving an icepick through my eye. This started to happen more than once. My doc suggested I go back on because it helped me before. So here I go again. I lost 12 pounds in seven days. I forget what I am going to say. I have poor concentration. I am hyper-aware. And I cry quite a bit. This is NOT ME. But I try to keep walking along and doing my best, because neither the medication nor the headaches are going to get the best of me!!!!!

I started taking Topamax 3 weeks ago. My Neurologist started me on the 25mg dose and gradually moved me up to the 75mg dose. I've had several different side effects. I don't like this medication at all. I want to stop it but I'm afraid because all the web sites say when you stop it you can have seizure's. I have suffered the last 3 years with everyday headache's and would do anything to have relief but cant stand the way this medicine is making me feel. I have felt nausea's for day's. My 3year old has ate more than me. I cry over anything. I'm tired! I've had a headache everyday while on the med's. I have a nasty taste in my mouth. My vision is impaired. I definitely will not stay on this medicine. I would rather deal with my Migraines, then to deal with Migraines and side effects!!!

After taking Topamax for six months, I found my self different person.... I started feeling this way just in the first few weeks after I started the medication, but the simptoms incleased with the time....Anxiety, nervousness, panick attacks, negative thinking and depression....crying, making up problems from nothing, hair loss also....I decided to stop it, slowly and without any concequences I thought I am out of it....But just a couple weeks I stop it is I noticed some red spots on my skin on the lower legs, soon they became more and stronger..... Two months later I was in abnormal stress that I am going to be sick from a terrible desease... Read so much on Internet.... I can explain how terrible I felt and even though I did blood tests (everything was in normal range!!) and spoke with so many doctors, nobody could tell me what exactly is wron with me. One Dermatologist named the skin problem as Progressive Pigmentary purpura and gave me a cream for that. Thanks a lot for that because the spots started desapearing, but it may come again.... nobody knows for sure.... I think this is another side effect of Topamax, that nobody had before..... Please tell me if somebody else had the same situation... I will feel much more relieved....

I started taking Topamax 3 weeks ago, 25mg for the first week then up to 75mg starting week 2. I am also on Effexor,150mg 1 per day.. I feel good and have had a loss of appetite. My thinking is a little fogged and I must concentrate a bit harder. I started taking this as a pain medication and it works. I am also overweight and know for a fact I've lost. I find myself eating better choices and much smaller portions. My moods are good and I like this medication. Thanks for letting me share ! (:

Laurie

I have been on Topamax for 4 months and so far the migraines I have suffered for 40 years are gone. Great Some side effects like can't stand carbonated drinks. Reaction time is a little slower. I stress out a little more then I used to. I get really tired at the end of the day. I used to be a night owl but now love my sleep. Question to you all. Any one had problems with their teeth? Such as pain, fillings falling out? Let me know.

I had what I thought was a sinus infection for three months, I was treated with various antibiotics and Prednisone. Finally a CT Scan was done and I had clear sinuses. I was having pain/tingling under my eyes, extreme tension in my cheeks, jaw, neck and shoulders. It turned out that I was having "involuntary muscle contractions" related to the medication. I had to take muscle relaxers for several days after getting off Topamax. It has been 3 months since I've been off and I am still having some tingling/discomfort under my eyes. I am seeing a neurologist soon to see if this is permanent nerve damage.

My 6 year old daughter is taking topamax. Since the time she been taking it she has forgotten who she was and everyone around her, she went for an excellent student to not be able to do simple things like reading writing and math. She does even seem like the same child. She is very emotional and I just want my little girl back.

I've been on Topamax since Sept 2007 and the only side effects I have had were at the beginning were the tingling in the hands and feet when I was brining my dosage up. Soda tastes awful but I no longer drink it and that is a godsend after being a heavy drinker of it for years. I do find there are time when I can't find the right word to say, or I forget what I was doing, but I deal with it. I have lost 20 pounds since being on the medication. After being on it for 6 months the tingling is gone, I usually counteracted it by drinking plenty of water in the morning, that got rid of it. The drug has taken away the migraines, and regular headaches I have suffered from for years. It has also stabilized my moods and taken away my anxiety issues. I'm 36 and have never felt better. Topamax is definitely not for everyone. For those that are suffering, please do contact your doctors and try to get off the medication.

Okay, this is the comprehensive list
memory loss, cognitive damage, exhaustion, mood swings, suicidal ideation, paranoid ideation, auditory hallucinations, depression, daily weeping.

Dry mouth, enamel stripped off teeth, no sweating, constipation and resulting hemorrhoids, loss of appetite and extreme weight loss, tingling in extremities, trembling hands, twitching eye muscles, myoclonic jerks

I have been on Topamax for the last year for migraines but during the same time period, started having problems with my eyes. I thought it was an infection from my contacts so I stopped wearing them plus my eye make up. I have been to 5 doctors and they all seem to think it's "Dry Eye Syndrome" and I have been having them insert plugs into my tear ducts and I am constantly putting lubricant drops in my eyes to relieve the burning and itching. It dawned on me this weekend that this All started the same time I was prescribed this medication. I have stopped the pills since Fri.

My question to all: Does Anybody have been having similar problems and will it go away or is the damage done?? Will the doctor.s admit to knowing anything?
Thank you!

I was doing just fine taking 50 mg of Topamax but I was still having minor headaches. My doctor said to go to a neurologist because there may be a tumor to worry about. He doubled my morning dosage and added an evening dosage so now I am taking 200 mg. a day. I started the insanity on Friday. By Monday i went grocery shopping and couldn't remember what I was shopping for. Thank God i brought my husband with me...when I could remember that he was with me. And then when I remembered to ask him what we came for I needed to remember where it was. Upon returning home I offered to help my 7 year old grand daughter with her spelling homework. Do you how embarrassing it is to not remember how to spell first grade spelling words? Tuesday was Mardi Gras and we went to the movies so I was saved any further mind questions. Then along comes Wednesday and I returned to work. Well, I tried to get to work. I got lost. Here I was at Walgreen's trying to figure out what I was doing out at 6:00 in the morning. What day was it? The looks on other's faces when you ask them these question is not something funny. So, I get back in my car and aim in the direction I hope is work. Luckily, I remember where I habitually stop for breakfast. My memory comes back again and I make it to work. I am on time and all is well. Now, the day begins.

I haven't had a period since December. Here it is February. And no, I am NOT pregnant. I can't concentrate. I ate 2 chicken nuggets for lunch and am full (now that is a healthy lunch, huh?). I was addicted to Dr. Pepper and now can't even stand the smell of it. I can't walk and chew gum at the same time. I found a note that I wrote sometime yesterday that really scares me because I don't remember writing it. It says, " Headache @ 1:55 no known trigger jut sudden movement to pick up papers from bin over desk. Nausea as well. Need to go to sleep forever." Good feeling to have? Depression is kicking in.

I just called my doctor and he says decrease the medication down to 100 mg. Ummmm...How about I decrease it down to 0 mg and I take a Imitrex or 2 and a hot bath with a nap when I get home and live to see my grandchildren grow old! I think living with a migraine or 50 is far better than what I have been feeling this past week.

If anyone can tell me that it gets better in less than 2 weeks I will stay with it but 1 more week of this and I will be a patient in a mental hospital. I can't even play Nintendo with my grandson...NOW THAT IS DEPRESSING!

Hi, I'm 34 yo man from Spain, I started Topamax 3 weeks ago, first 25 mg at night then increasing 25 per week first in the morning then 50 in the night, next week I have to take 50 mg in the morning and 50 mg in the night and I'm really scared. About two hours after taking the pill, I can't hardly speak, i know the words but i can't say them, my head is buzzing, nothing is clear, I talked to my neurologist and he said everything should go in two or three months, but this is affecting to my job, i can't think clearly and i can't do anything right, i have to talk to my doctor to determine to keep on working or taking some days off. I have severe migraines since i was 24. I hope the side effects go soon. Excuse about my English, it's not good and I'm under Topamax right now.

I was prescribed Topamax with Wellbutrin in combination by a Psychiatrist to aid with an eating disorder. He told me how this was an "off-label" use of the drug and warned me about side effects like the tingling hands and feet, but assured me that drinking plenty of water and making sure that I get enough Potassium in my diet would be enough. He never once mentioned anything about my eyes.
When I picked up the medication, the Pharmacist went over the information and asked if I had questions. He did not once say anything about my eyes, vision, or glaucoma.
I started with 25mg on Dec 18, 2007 and went up to 50mg on Jan 9th, 2008. On Jan 26th, anytime I would stand up from a sitting position, I would get an intense pressure in my head, ears, and a very forceful pressure behind my eyes, and also rainbow circles popping up in my vision when I moved my eyes around. If I stood still and waited anywhere from 30seconds to 2minutes, the pressure would go away and I could function just fine until the next time I sat for more than 10-15minutes.
I called my Psychiatrist and he recommended that I drink more fluids and take a multi-vitamin. No mention of glaucoma.
The next day (yesterday), the same "head rush" was happening only it lasted longer and felt like a mini-migraine. I started looking online and WOW, there is info everywhere about the side effects.
I did not take the Topamax last night and this afternoon I have an appointment to see my eye doctor. I will also be looking for a new Psychiatrist. The way doctors are bribed to push meds is frightening.
The drug combo he prescribed really did help the way he said it would, but I would never have risked my eyesight!!!!!

I'm a 26 year old female and I've been on Topamax since March 2007. It has completely gotten rid of the debilitating headaches I experienced 3-6 times a week. It also got rid of my anxiety. I got my life back, my antidepressant kicked in at the same time. I experienced all the usual side-effects, tingling hands and feet, forgetting words, memory problems, loss of appetite, but was COMPLETELY pain-free. I still am. However, I never remember anything now, forget whether or not I did something, paid my bills, etc, lose things constantly, and I have lost about 20 lbs. Not good. I look anorexic. I have bones sticking out. Eating is hard. I forget to eat and drink all day and food is just unappealing. I feel fuzzy and stupid and slow. Not sharp like I used to be. It has killed my confidence and self-esteem. But I was wondering if any women out there got yeast infections while they were on Topamax. I've had one monthly since I started it, and my doc said it's a rare side effect. Oh yeah, I've had mild hair loss and mild to moderate acne now. This drug, it is such a 50-50. Living with chronic pain, those headaches were awful. But doubting yourself is awful too. Anyone have similar experiences?

I'm 24 and I have had increasingly more migraines as I get older. I now have them 2-3 times a month, and they sometimes last 3-5 days. I went to the doctor, for the first time for migraines, three months ago and he just gave me a to take as needed. those were gone quickly. I had another appointment a few days ago and asked to be put on a daily preventative med. he prescribed topamax. what concerns me is the dosage. he gave me 200 mg to take twice a day. I have never taken any daily med for migraines before, and I see that most people start at 25 mg a day and gradually increase the dosage. I'm very sensitive to medication and I'm worried I can't handle 400 mg of Topamax right off the bat. I was considering cutting the tablets into halves or quarters and starting myself on a lower dosage. perhaps I should just call the doctor for clarification. is this dosage too high for a first time taking Topamax?

any advice much appreciated,

Sarah

I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.

I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.

Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!

Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!

I am wondering about having my doc up my dosage for the weight loss aspect????

I had been dealing with numbness in my hands and feet for about a month (I've been on Topamax for maybe 2 months now, maybe 1.5 months...) and I am happy to deal with that. Anything is better than the migraines that I had, and anything is better than waiting for the next migraine to start.

But for the past few days, I have been dealing with a total shortness of breath. It's like I can't catch my breath, in a way... or, as my mom put it, can't really get a "fulfilling" breath. I am constantly yawning, but that's how I am getting to that deep breath, although it takes me 3 or 4 tries to get there. It's frustrating, and SCARY!

I called the Topamax number today, and the nurse said that the side effects should only last 3 months total, but 1.5 more months of this?! I can barely imagine 1.5 more hours!!!!!

I have been on Topamax since October of 2007. I currently take 150 mg (split in AM and PM) for migraines. The drug is working wonderfully for the migraines but I am finding that I cannot do my job anymore due to the side effects and am not considering filing for disability. I am so fatigued all the time I literally cannot keep up with my work load. I have the tingling in my feet and hands, the funny taste of soda, the forgetfulness, and the "cannot find the word" thing. But the biggest problem is just that I cannot get everything done that I used to be able to get done due to plain old fatigue. I am so tired all the time. I find myself crying all the time due to constant stress of not being able to do what I used to. It took me a while to admit to myself that I couldn't to it anymore ( that nasty ego was in the way) but I finally had to admit that I couldn't keep up like I did before I was on the Topamax. I don't want to give up the Topamax and go back to the daily migraines and if I find a different job I lose all my retirement. I'm a teacher so I don't get any social security so my only alternative is to go for disability due to my having to take Topamax. I may have to hire an attorney to help me but after fighting migraines and trying to work my entire life, I surrender.

Hi so I've only been taking Topamax for five days now and I have a question? I am black and I also have a problem where I woke up this morning and instead of hair loss per se, my bangs on either side were cut straight across about 4 inches missing (this is a lot for a black person, maybe even to anyone trying to grow their hair for their upcoming wedding). It's like someone used scissors to cut off 4 inches, of only the front of my hair (breakage). Has anyone else heard of this? Please help.

I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.

Hi All, I am a 37 year old mother of 4, with a history of severe Hemiplegic migraines (up to 14 a month). I've been on Verapamil and Topamax for 7-8 months with a gradual increase of the Topamax to 150 mg a day. Before I start writing this I have to preface it with two things: First, Before Topamax I was one of those women my friends refer to as a "Supermom", I home school my kids and used to love it, we normally have a lot of fun and I have a successful, happy marriage. Second, on Topamax, I went from 14 migraines a month to 0. It didn't happen over night, they went away as we ramped up the dosage, but for the last few months I have had no migraines, I can feel it occasionally when my head is fighting one off, but nothing an Advil won't stop, and for those of us who've lived with trying to care for kids while having migraines (especially Hemiplegic) you may understand why I initially put up with the following: I started out with the tingling in my hands and feet (that went away in a couple of months), word finding difficulties (which never really went away, I just learned to accept it),occasional blurred vision which never lasts very long but which has been an issue the entire time I've been on the med, and weight loss ...I am 5'4" and was only 118 lbs to start with, and have nearly "disappeared" into a size 0 and 105 lbs, and it doesn't matter how much I eat, I've been trying 3 meals, snacks, cookies, candy, you name it, I can't gain weight. I was never nauseous, no diarrhea, I just don't get hungry... I had to start wearing a watch at one point to remind myself to feed the kids, because if they didn't ask, they weren't getting lunch until 2:00 because I wasn't getting hungry! Soda does taste like metal (fortunately I don't drink it normally anyway), and you do get loopy with one glass of anything alcoholic.
Then to add to the lovely appearance of skin and bones, my hair is falling out. Before Topamax I worked out regularly, I am even on commercials for my gym (recorded a year ago), since Topamax, I was so tired, depressed, and so afraid of losing weight that I stopped working out. Now a woman who has always made it a goal to set a good example for my daughters that a fit body is the goal, not a thin body, has her mother in law telling her that she looks "bulimic"! In August I noticed I was crying a lot, then I thought well, maybe it's the Topamax, so I started drinking more water and it went away... so I've been very careful to drink A LOT of water and only decaf tea while on this med, but apparently that wasn't enough, because a few weeks ago my husband pointed out that I stopped showering every day. I have been crying at the drop of a hat for a couple of months again, and I have never been someone to cry in public, I have even started crying in front of my daughters friends' mothers and near tears in front of her teacher over the littlest things... then last weekend I found myself with four hours to myself in my house for the first time in months and I was thinking about how I might be able to use it for unspeakable things like running away, or worse... if those aren't signs of a pretty severe depression I don't know what are, fortunately I recognized them and put them together with the memory problems, etc. As for the memory loss, there have been problems with that for months as well, my daughter has been telling me I "have a bad rememberer" , This weekend everything culminated and other people were recognizing the memory issues that I had been keeping private until now (including my husband). Before that, I would be in the kitchen cooking and forget what I was doing, I went to drive to a party this weekend and forgot where I was going, so I called a friends husband and he had to tell me four times where to go before I could retain it (at first he thought I was joking) and then I still couldn't remember the name of the place, only the # and street, I haven't been able to remember routes to places I used to drive... I'll find myself sitting at a light not sure where to go, and making mistakes with our money because I forgot whether I did or didn't pay a bill (something I've never done, we have always had excellent credit). On Topamax I went from feeling like an attractive, successful, good mom,with a happy family... to constantly stressed, even by things I had previously enjoyed doing, and a completely depressed failure... but I had no migraines. I have now been weaning off the Topamax for a few days. I was playing phone tag with my neurologist... so due to the urgency of the problem I took myself down to 100 mg a day. I have since spoken with my neurologist and I am going off of it completely... by the way don't ever discontinue this med without ramping off of it, doing so can cause a seizure. I am unbelievably grateful that I put 2 and 2 together the weekend I had time to myself and got lost going to the party and I already feel more awake, less tearful and depressed... I know that things will be ok anyway. I hope that anyone reading this who is having memory or emotional issues on Topamax and just brushing them aside (because they don't want to risk going back to the migraines or whatever), will get off this med. Please realize that this med could have cost me, my kids and my husband a lot more than my migraines ever will. I have never experienced depression before Topamax, and I can't say that I'm completely back to myself yet, but I hope that when I am off this med I will find normal again, and I pray it will be without migraines, but I know that I wouldn't wish these past few months that I've put myself and my family through on anyone. Now, I need to go take a shower :) , then I'm going to my neurologist to pick up some 25 mg samples to continue ramping off! Good luck to you all!

I started Topamax about 2 weeks ago; I still have the tingling in my hands, had headaches for the first few days, and I get so dizzy when I stand up that I usually have to sit back down... and I would love for the taste of metal to leave my mouth, I have already lost around 10lbs and didn't need to loose any weight in the first place, this makes me feel sick and frail. I'm already annoyed of people questioning my eating habits especially my parents, constantly telling me to eat; food just doesn't sound good. I am also very tired all the time. I just turned 20 and my doctor put me on this medication because I have been hospitalized for severe migraines even TIAs and he doesn't want me to be on birth control without being on something for migraines. I really don't like taking medicine every day, especially something that seems this serious to me, but I know that TIAs scare me more than a medicine. I increased my dosage last night and couldn't sleep at all. I'm really hoping that the dumb affect doesn't hit until after finals at least...

I have been taking Topamax (25mg twice a day) for about 2 years now and it has greatly improved the frequency and intensity of my migraines. (I used to have a minimum of 4 migraines per week, and though medications such as Immitrex and Zomig often work, it's still hard to function properly when you have so many headaches. The Topamax has brought that number down to about 1 per week.) The side effects are not too bad, but I am freezing all the time and very tired - complete lack of energy. I almost feel like my head is in a cotton ball, like everything is just slightly fuzzy and I'm a bit disconnected. I wouldn't call it feeling stupid though... I am still able to do my job well; perhaps a slight lack of concentration. Some dizziness, but nothing serious. I have recently started experiencing weight gain, rather than weight loss (not sure if this is related to the Topamax). When I first started taking the medication, I also had that horrible numbness in the tips of my fingers, but that went away.
I wouldn't want to give up Topamax now, because I just can't go back to having that kind of pain and vomiting 4 to 5 times per week.
Good luck to everyone!

I was on Topamax for 10 months at 100 mg twice a day. At first I experienced severe dizziness and actually passed out twice, so my doctor decreased the dose and had me increase it slowly, every two weeks instead of every week. The entire time I was taking Topamax, I was dizzy when standing, no matter how slowly I stood up, although I stopped passing out. I also experienced cognitive side effects such as memory loss, inability to 'find the right word' (I know everyone experiences this sometimes, but I was constantly having trouble speaking). I was in my first year of graduate school and had switched to Topamax, because I had been taking Depakote for over a year with little improvement in my migraines, and when I started my doctoral work I started having migraines daily. The Topamax did wonders for my migraines, reducing them to twice a month, but I had a severe decline in my academic performance due to its side effects. I had excellent grades as an undergraduate, but I had to take a leave of absence from grad school and switch to another medication and am now hoping that when I return to school I will be able to succeed. I actually considered changing my career choice and staying on the Topamax because it worked so well for my migraines, so if you aren't in school I would recommend you try it if nothing else has worked for you.

I am a 32 y/o female that was put on Topamax 10 days ago for migraines. I am taking 25mg twice a day so far, and the side effects I have experienced are all carbonated drinks taste flat; including beer, and if I take it close to bed time, I cannot sleep. The medication actually revs me up! Nothing i cannot handle. I have not had any problems with loss of appetite, nausea or diarrhea. Sure, sometimes I feel a little spacey, but I did that even before I started the medication. My doctor did tell me that you do need to drink plenty of water and eat plenty of protein. Also, when I start to feel a little spacey, eating a small amount of sugar seems to help with that... I have had a few headaches since starting the medication, but I haven't had a full blown migraine!!! I will continue to keep you posted. So far, I haven't had any side effects that i can't live with and by reading the posts and talking with several other people on the medication, it seems like the side effects are temporary and improve as your body "adjusts" to the medication. I am a nurse and I guess I am at at advantage because I am educating people on daily basis about this very issue!

I have been on Topamax for two years had most of the side effects I am used to them. The only thing is I am freezing all the time . Anyone have this?? I am cold all the time!!! I also experiance, in the summer, the no sweating thing, that makes me dizzy in the sun, I have to stay under an umbrella at the beach etc. I never had to do this , I was always a sun worshiper and could take it.

I've been on Topamax for over a year for hormonal migraines, and it's working great for the headaches. I started out at 25mg twice a day and now I'm up to 100mg twice a day. I've lost 40lb (mostly due to the drug -- but my appetite is starting to come back) and have just recently started experiencing the anxiety and tingling in the extremities. I've always felt I've had trouble concentrating and "finding the word", but I attributed it to lack of sleep because I have two small children. My most recent side effect, however, is most worrisome, which is the reason for my visit to this website. I am experiencing severe abdominal pain, almost constant, and it seems to be increasing. I had abdominal pain and diarrhea when I first started Topamax last year, but it stopped after the first month or so. I'm just wondering if maybe long term use can cause ulcers or other stomach problems. Anyone have any experience with this? I know from experience that Topamax dosages have to gradually weaned up and down, so I'm considering decreasing my dosage to see if my stomach problems will stop. I'm just in so much pain, yet my migraines have almost stopped now with 200mg a day, that I'm reluctant to change my dose.

I have been taking Topomax for quite some time.Tried it several years ago, the mgs were not high enough (only 25mg/day).My doctor didn't really know the prpoer dosage.It didn't help the migraines.My new doctor has me on it again.50 mgs/day.Here's the good - NO MIGRAINES! Here's the bad: Acne at 45 years old, tingling doesn't even describe my legs or face, ringing in the ears, remembering names and places just doesn't happen, I'm eating less but gaining weight quickly,& one last thing- Itchy spots that I would describe as "hot spots" if I were speaking of my dog. Still sticking with it because I don't have the migraines.I tried to slowly take myself off and the headaches came back.What choice is there?

I have been on Topomax for 2 years now at 200 mg. for mood stabilization. I was recently hospitalized for my depression and they upped my Topomax dose to 400mg saying it was the "therapeutic dosage". I went into the hospital weighing 116 pounds and I am 5' 6" tall. I started having diarrhea within a couple days. By the tiime I left 2 weeks later I had gone from a size 4 to a size 2. A month and 1/2 later I had lost 15 pounds, had severe abdominal pain everytime I ate, diarrhea every morning, nausea, and had absolutely no appetite.

My psychiatrist insisted it was not the medication and I went to a gastroenterologist for the full workup- ultrosound, colonoscopy, endoscopy and surprise surprise they found nothing. My Gastro doctor concluded it must be the meds so I started backing down on the Topomax and already the diarrhea has stopped. I am at 250 and up to 101 pounds now. I am taking in over 1200 calories a day but I still can't seem to gain weight. My doctor still doesn't believe it's the Topomax but it all points in that direction. Instead they insist I'm just not eating enough But I make sure to force myself to get down 3 meals plus 2 ensures and some snacks. I still am waiting to get some appetite back. I know some women would love to be in my place to have to try to gain weight but I feel like I'm dying all the time. I have no energy, I can't even get up in the morning to take care of my kids. My fiance left me because he got so fed up with my "sickness" and thought it was all in my head. I have my mother living with me now just to help me take care of my own children and it breaks my heart that I don't have the enery to play with them. I can't see my psychiatrist for 2 more weeks so I am taking my level of medication into my own hands which I know you are not supposed to do but at this point it's that or lie in bed feeling like I'm just wasting away.

Hello to all! I have been taking Topamax 200mg twice a day for eleven years for epilepsy. I have had all the symptoms previously mentioned. You will get your apetite and taste back! I still get the tingly sensations in my feet at times, but no longer in my face nor hands. I still have trouble remember really easy words; for instance, answering machine and sometimes have trouble explaining what I mean. About two years into the medication I developed anxiety, never corralating it with the medication. About three years later I decided to get treated by a physician and began taking xanax. I am begining to wonder however, if the topamax is the underlying factor. I am going to taper off the drug to see. I hoped this helped. Good luck to all.