Topamax and mom

Hi all...I've been taking 25mg. of Topamax at night for 5 days now. Unlike most of you I have not experienced the tingling in the extremities or the weird taste in the mouth or even much tiredness at all other than what has happened as a result of my weird side effect. I was prescribed Topamax by my neurologist for my migraines. I've had them since I was 12 years old. I'm 49 years old. The got worse during peri-menopause which is kinda normal given the hormonal fluctuations, but was told by my neurologist that they would very likely subside significantly when I became menopausal. Well folks, I've been menopausal for 5 years and for the past 2 years my migraines have been the most horrific of my life. I have approx. 15 to 18 migraine days a month, some of the headaches lasting 3 bloody days. So it comes to this...Topamax. In the past I have suffered some pretty rare side effects from some very benign medications so I guess I shouldn't really be surprised that this is happening to me now. The first night I took it I slept like a baby. The second night I was slightly 'hyper' but managed to get to sleep. But for the past 3 nights it's been hell. When I lie down in bed, my body feels as though there are electric currents shooting through it and coming out my right leg. I have to move my right leg or go completely bonkers. Fortunately my daughter is away at university and so I can sleep in her room. So I lie there...on my left side...with my right leg hanging over the side of the bed swinging and swinging and swinging as hard as I can just so that I don't scream. It's awful. Last night was the worst. I saw dawn this morning. I just got off the phone with my pharmacist and he told me that I had described a classic case of RLS - Restless Leg Syndrome. And guess what? Topamax is used to trest RLS!! For bleep's sake! So nice people I am suffering a completely opposite side effect to the one that seems to be the most common one...tiredness. Has anyone else heard of this? Experienced this? It seems to all focus down to my right hip and leg. I have to move it vigourously or go nuts. I am so tired today but that's because I got like 3 hours sleep. I fell asleep from sheer exhaustion after my husband left for work at 7:30am.
A side note...I also take 75mg of Effexor for panic disorder and my neurologist told me that this is a very good mix of meds for migraine prevention. My top dosage for the Topamax will be 75mg taken at night.
I'd really appreciate any feedback on my side effect. Thanks in advance.

D.

I had been dealing with numbness in my hands and feet for about a month (I've been on Topamax for maybe 2 months now, maybe 1.5 months...) and I am happy to deal with that. Anything is better than the migraines that I had, and anything is better than waiting for the next migraine to start.

But for the past few days, I have been dealing with a total shortness of breath. It's like I can't catch my breath, in a way... or, as my mom put it, can't really get a "fulfilling" breath. I am constantly yawning, but that's how I am getting to that deep breath, although it takes me 3 or 4 tries to get there. It's frustrating, and SCARY!

I called the Topamax number today, and the nurse said that the side effects should only last 3 months total, but 1.5 more months of this?! I can barely imagine 1.5 more hours!!!!!

I started taking Topamax 2 days ago and I have already noticed side effects..such as the flat soda...numbness in my arms and face at night...BUT the worst part are the morbid thoughts at night ( I take only 25 mg at night) I have the most bizarre dreams and I wake up feeling like I havent slept for days. I am taking it due to severe migraines which result in seizures. I am horrified after reading some of the posts here. I am wondering if anyone started out with any of these side effects and then as their body became accustomed to the medication did they pass?

I've been on Topamax for about a year. I think the worst thing that happen to me is I totally forgot my childs given name. We have called him a nick name all his life but I'm his mom!!! I was so upset I thought I was going crazy! I still get headaches daily but I know topamax has been the best meds I have been on so far. I have heard that if you combine Relpax with topamax it helps so if anyone has any information, let me know.

I've only been on Topamax for 3 weeks, and I am already wanting to get off of it. My doctor DID NOT tell me about all of the side effects, he told me the most common was the tingling in the hands and feet, which is so painful for me. I have lost the taste for carbonated beverages, which I only realized for myself by looking on a website that was caused by the medicine. My advice to anyone is to get a second opinion before going on this medicine. Now I have to wait until my doctor says its ok to stop taking it.

I have been taking Topamax for about two weeks now just 25 mg to start and I woke up this morning and my perfect vision was no more.
EVERYTHING IS BLURRY. I was told that one of the side affects of this medication is Glacoma like symptoms where you lose your vision fast.
I was told to stop taking the medication and hopefully the symptoms will go away

Hello my 16 year old son has been on topamax for a siezure for about 8 months and this scool year he is failing or about failing 4 classes he seems to be kind of dispondant doesn,t really care that his video games have been taken away because of the grades , he seems more distant than before he started taking it . please help me . a concerned mom..

I'm on 50 mgs of Topamax, and it's really fuckin" me up man. Listen to this crrraaaazzzzzy ass story. My Mom took me to MCV (Virginia's State funded Hospital) on Monday, August 28th to pick up my seizure medicine and she dropped me off in front of the Gateway building and told me to go in and wait for her while she went and parked the car. No big deal. Nothing I couldn't handle. I've done this before I started the Topamax. Yeah, right........Well, I went in and sat down for a minute then got up (before she got there), crossed the street over to the pharmacy and got my meds. Crazy thing too was I got on the elevator and went up to the 3rd floor, thinking that I was supposed to meet mom up there. After I started walking down the hall I finally realized I was supposed to have waited for mom in the Gateway building before got my meds. So I got back on the elevator and went back down to the pharmacy and back over to the Gateway building and found her. I thought she was gonna be mad, but she wasn't. Anyway, on the way out of the Gateway building I almost walked out in front of a moving ambulance.
I am like a walking zombie. I have been on Lamictal (anti-epileptic) but the Neurologist is slowly building me up on the Topamax, another anti-epileptic, so that I can quit the Lamictal altogether cuz she's worried about a rash I have developed. Lamictal is known to cause life threatening rashes. She doesn't want me to quit the Lamictal until the Topamax is completely at 200mgs in my system for fear I would have a seizure. So for the time being I will be a zombie without an appetite. I barely eat anything. I'm always thirsty though. And driving.......HA! Forget that! I don't even WANT to try it. I might kill myself or someone else and/or end up lost somewhere. Wouldn't that be a bitch!
I'm willing to see this thing through though. I'm tough and think I can handle it.

topamax- started 2months ago...the sinus trip is unbearable! i always sound like i have the flu! haven't lost a pound and i am craving sweets like crazy. i hate the tingles everywhere! the thirst is unquenchable. i feel like i am suicidal. i hate my husband when i use to love him. i am also on effexor er 300 mgs topamax 200mgs ....i have now decided to go off ALL of these drugs. iwas first put on them when my mom died because of anxiety.......then when my daughter went to jail. more stress....more drugs....zoloft...attempted suicide....effexor er...for the pass 4 yrs...i am no longer suicidal..i am at peace with my moms death. my daughter has grown up and has stated a family of her own with her husband .... do i really think i need to be on these drugs any more???? nope! comin down the hard way starting tomorrow...need encouragment people! drudogs