March 2th
2007
10:12 AM
Im 39 years old I have been on topamax for 3 months now on 50 mg a day first and now for the past month it was increaded to 75 mg a day. I have begun to have panic attacks/ nightmares. I also suffers from memory loss and inability form my words ( I guess thats the best way to describe it) my neuro gave me topomax for what he calls complicated migraines where my left sarm and leg became numg along with headaches and neck pain. The pain has decreased although the occurrrences have not subsided and Im not sure if Im going to saty on the Topomax. I have lost 8 pounds. The panic attacks and anxiety and debilitating.
-- By mlscsw | Reply | Private Message me
January 29th
2007
2:18 PM
I've been on Topamax twice now for migraines. I went off of it the first time b/c I didn't think the side effects were worth it. As soon as I stopped taking it... my migraines came back. Now I'm on Topamaz again... and I can't decide what's worse.. the medicine or the migraines... especially after reading all of this. And what's really interesting... is that the second time around my side effects are different and I'm taking the same dose! I can drink carbonated beverages this time (which I couldn't do before), but I'm experiencing a lot of neck pain. And I have very sore, swollen knuckles this time. Mine are red and have strange bumps on them. Has anyone else had this???
-- By jcopeland | Reply | Private Message me
January 17th
2006
5:31 PM
I started on Topamax about a year and a half ago at 50mg, then up to 75, then 100mg. About 3 months ago I started getting some sporatic pain in my upper arm, then my wrist and pinky finger. Over the weeks the pain increased, now it's daily pain, that travels somewhere over my arms, or legs, 90 pct on my left side, also getting neck pain. My dr. insists it's not the topamax, but lowered my dosage to 75mg, I'm not convinced. I've had MRIs, blood work, tests and everything's come back normal. I'm exhausted easily and slightly dizzy whenever I move my head (or eyes) to quickly. I'm getting an MRA this week and if that comes back normal, I'm going to insist I get weaned off this drug! If the symptoms go away, then I'll know it was the drug. If they don't, then I'll know I need to keep exploring to find an answer to my problems. But I'm sorry I started on this drug to begin with! I'd rather deal with the migraines and take the Imitrex as needed.
-- By pmb | Reply | Private Message me
June 25th
2008
2:33 AM
I have been on Topamax for 2 1/2 years at 250mg for migraines and have decided to get off because of side effects. I have had all mentioned: mood swings, dehydration, not sweating,tingling, dizziness, loss for words, short term memory loss,numbness, fatigue, GI problems, anorexic weight loss,rage... And this all began from the starting 25mg dose!
-- By chrisallyson | Reply | (2) replies | Private Message meThe migraines decreased from 24 a month to 12, at best down to 6 or 7, but I seemed to hit a plateau then back to 15.
I saw three different doctors and all wanted to simply increase the Topamax or add another med (Depakote, beta blocker, etc.)
Finally, I found that a problem with my neck may be causing the headaches and treating that has reduced them enough for me to try and get off the Topamax. I still rely on the Relpax to get me through the bad days, but I'm hoping I can get free of the Topamax for good!
I just encourage anyone thinking of starting Topamax to investigate all possible migraine causes before starting!! Topamax doesn't cure the migraine, it only blocks the pain! And the side effects are not worth it if you can find another way to alleviate the problem!