Topamax and nerve damage

I had what I thought was a sinus infection for three months, I was treated with various antibiotics and Prednisone. Finally a CT Scan was done and I had clear sinuses. I was having pain/tingling under my eyes, extreme tension in my cheeks, jaw, neck and shoulders. It turned out that I was having "involuntary muscle contractions" related to the medication. I had to take muscle relaxers for several days after getting off Topamax. It has been 3 months since I've been off and I am still having some tingling/discomfort under my eyes. I am seeing a neurologist soon to see if this is permanent nerve damage.

I have been back on 125mg of Top for about 9 months now. I tried it for 1 year prior to this with too many side effect. I have taken it for migraines and an eating disorder. Instead of helping this time around I believe it triggered emotional issues, panic attacks, nerve damage in the occipital region of the left side of my brain (more than what seemed to already be causing headaches from the start), I relapsed with my eating disorder and lost too much weight, and had something called psychosis. Psychosis is a disordered thought pattern seen in many different mental illnesses or those in a confused state of mind. When I'd look at a stop like I would not be able to determine in my mind whether it was red or green and I would just go through it. I felt like I was going into some sort of coma all the time as well. Now that I am on an eating plan and exercising a bit less the side effects are a little less but the doctors are looking for an alternative at this time. I have tried every med out there.

Extreme moodiness, one day I love everybody, the next day I hate everybody, from my husband to my co-workers, even the lady at the gas station. Causes either extreme paranoia (from my husband is having an affair and Im going to get fired) to the other end of the sprectrum, TOTAL whimsical carelessness! Not me at all! Im typically very grounded, very stable, very predictable, very reliable, very easygoing, the office manager of a large corporation, with my husband for almost 14 years.

on a good note, I have lost approximately 6 pounds in 2 weeks. However, my feet, legs, fingers and hands tingle frequently to the extent that it is quite annnoying. Pins and needles annoying, at any given time. During traffic, in a meeting, its caused me to drop things.

After reading various posts, it causes concern to nerve damage. Its not worth the risk. I am going to back myself off of my prescription. If you are on topomax, and see any warning signs, Consult your physician!!

I had been taking topamax for 4 years for complex migranes and then stopped cold turkey after feeling like there was a tight band across my waist and watery diahrea and soreness in lower back , burning itchy pain..... went to the emergency room 14 times for them to tell me that I was crazy. I had a feeling like water was running in my head, normal cat scan of brain. water feelings throughout body... they still come and go but last a couple of seconds.... feels like sensory or nerve damage of some kind.... don't know if this is a side affect or not..... Doctor finally is getting something done. she checked my heart becasue I have MVP... and I am shedualed to get a mri of brain... I have a herniated disk in lower back, scoliosis, degenerative disk disease.... nuerologist checked for nerve damage due to herniation. won't hear back anything on that till after mri of brain. won't hear back about the heart till april.... Just found out that I am borderline hyperthyroidism... and the doc is sending me to a specialist. thyroid is inflammed and big.... My bones are crackly and pop alot and sore.... The water feeling and burning and tingling hands and feet scare me alot but I try to not think about it... Try to stay positive.. I am only 29.... I feel like I am 70 sometimes...... Does anyone have these symptoms after taking topamax...????? Yes I do have the thinning hair but that could also be the thyroid... and fatigue... problems sleeping and hot flashes. palpatations..... any help would be nice... Thank you,,,, love and light to all, jess

I have been taking 25 mg Topamax, 4 doses per day, for 5 months now. I am taking it for nerve damage in my ankle. I have previously taken Neurontin had to discontinue because weight gain.

I have lost 10 lbs and have trouble sleeping at night. I also have short sttention span.

I just started taking this two days ago. Unlike many of you I am taking this for nerve damage in my leg instead of migraines. I have previously taken Neurontin and Lyrica and had to discontinue because I am apparently very sensitive to this kind of medication. I am only taking FIFTEEN mg (the pharmacy had to special order it for me) and only right before I go to bed, but I am OUT of it. I am very, very tired, nauseous, and just not all there. I have no attention span whatsoever (it just took me like, thirty seconds to think of the phrase 'attention span'). I just called the pharmacy to ask them if these side effects last, or disappear as your body gets used to the meds. They told me to give it a couple of weeks if I can. I'd like to give it a chance- but I'm supposed to increase to three times a day, and I don't think THAT'S gonna happen anytime soon.