March 1th
2008
11:00 PM
2 yrs ago I was diagnosed with peripheral neuropathy. I have been on Topamax since, because of the severe pain it causes. I have never experienced weight loss and I was on up to 400mg a night. I am now on 200mg a night. My tastes are fine and my drinking sodas were never like metal. But for the fatigue of the disease I also take Provigil in the morning. I have noticed my eyes have changed. Never gave it a thought to be Topamax. Plus I just got new glasses again 3 months ago and am seeing a change in my sight again. Also there is a noise in my ears,not ringing,but sounds like crickets. Never had that before. I was on 2 other meds but I took myself off of them because I really don't like taking so many. The others had worse side effects. Until they find a cure for this disease it looks like I'm stuck with Topamax. This is one pain I will not and can not live with.
-- By javajo | Reply | (2) replies | Private Message me
September 29th
2007
5:06 PM
I took Topamax about 6 years ago for migraines, and experienced no side effects. Just started it up again 3 days ago, and I feel like I am totally drugged and my head is spinning, can not drive, can barely hold a conversation, only started with 25mg, and can say that each day I feel a little better, but the only difference this time is that I am on Lexapro and my Dr. said the side effects could be worse till I get used to it..anyone else take this combination? And how long till I can function again?
-- By ka527 | Reply | (3) replies | Private Message me
October 6th
2006
7:00 PM
I've been taking Topamax for just slightly over two months to treat migraines and neuropathy and it has helped with both. My dr. also thought some of the side effects might be beneficial (i.e., wakefulness, weightloss, etc.). I wasn't prepared for all the negative side effects. I'm constantly thirsty (but everything tastes so bad I can't find anything to drink and I don't drink soda - so that's not the problem), I've have had a sore throat for the past two - three weeks, my tongue also burns and has streaky, red craters running over it. I'm incredibly crabby and my sex drive (which has never been a problem, is non-existent). I also seem to be craving sweets - maybe because they seem to be the only thing that tastes good. I'm currently taking 50mg 2x per day and I'm going to talk to my dr. about cutting each dose in half. If that doesn't help then I'm going to have to stop this med.
-- By chicago252 | Reply | Private Message me
July 14th
2008
11:33 PM
I am a 39 year old man with peripheral neuropathy and migraines. When I was diagnosed 3 years ago, the pain in my right leg was horrible and headaches daily. My Dr. put me on Topamax and I was so happy, it seemed to help but one night( about three weeks into it) I went to bed and awoke in the morning legally blind. Topamax was stopped that day but it took 4 months ( and changing the prescription in my glasses 3 times) for my vision to return to 20/20. The doctors tell me I was lucky as some people have perminate lens damage from the optical pressure change.
-- By athorson | Reply | (1) replies | Private Message meMy doctor said I could not take any thing in that class of medications as it would probably have the same effect on me. So he decided to put me on Cymbalta for the neuropathy. He said it was being tested as a possible use for neuropathy but had not been proven. It works great for the pain and oddly my migraines have gone down to about two a month.