January 6th
2008
10:50 AM
Haven't seen anyone mention any sexual SE's but I know I'm not imagining this. It's not a lack of libido but, it's as if my wiring has been disconnected.
A lack of sensation. Major bummer. I can live without sodas but not this!
That was my major reason for getting off the Topamax. My doctor was very incredulous about this being a SE of the Topamax but he didn't argue with me. I came across this site just looking to see if anyone else had experienced this. After getting here I can not believe all the things I have been brushing aside as due to something else. Stomach pain and diarrhea, severe GERD, depression and morbid thinking, oh and my gosh the trouble searching for words and connecting thoughts--I thought I was loosing it, shortness of breath and weakness that I was attributing to weight gain! I have only been on 25 mg a day for 6 months. The migraines did improve and the paresthesia in my hands subsided over time. But all this other crap that has slipped in and I have been passing off as aging or just wondering what else was up with my body and mind. Sheese! Thank goodness for this site! I am tapering off this crap-- and I feel like crap. Weakness and fatigue and a weird pain in the side of my head that is not a headache exactly. I hope I'm back to normal soon, this is awful!
December 15th
2007
2:29 PM
I'm on my first month of Topamax and going to work for the first time in two weeks! Someone mentioned feeling like a box of rocks on this stuff, its true, but in my case the dosage increase might have been too abrupt. I take it for epilepsy, 100 mg. I was completely non-functional during the transition! Not only was I so tired I couldn't move, so sick I couldn't eat (I've lost a lot of weight), but I was constantly dizzy. I would often get icy to touch and pass out, mores after eating.
Cognitively, I was severely depressed, and had a constant "noise" sensation in my head which I started yelling at during odd moments. I believe I even hallucinated at one point that the room was expanding. Mostly, people thought I was stoned because I would just stare at the wall and have difficulty talking to them without slurring my words.
It's been a truly terrifying couple weeks, however I've settled pretty quickly out of the major side effects. I think thats pretty much what happens for everyone. I'm happy to have my brain back.
-- By uberzwitter | Reply | (1) replies | Private Message me
September 26th
2007
12:04 PM
Hi, my 14 year old daughter was prescribed Topamax about 6 months ago due to migrains that started when she had Mono. The mono lasted a good five months and the nuerologist to whom we were referred prescribed Tomamax after nothing else worked.
This morning as she was leaving for school, she said " I will take Aleve twice a day for the rest of my life, the Tomamax has made me stupid and I can't take it anymore!" With that my beautiful, brilliant daughter was out the door.
I am sick that I didn't look into this drug sooner. I found this site and am floored at all the side effects that sound exactly like hers. She has always been an A+ sudent who works hard, she lately has been saying she feels dumb, can't remember things, her knees hurt, her hair is falling out, she can't think, she is depressed etc. I have been downplaying her symtoms and blaming it on the mono. I am outraged at the craziness this drug has obviously caused and my failure to recognize the cause.
My questions now are, can she quit the Topamax immediatly and when, if ever can she expect her cognitive ability to return?
Please tell me the effects are not life long and what my next step should be to help relieve her of these symptoms.
Peace, Becky
-- By beckyok | Reply | (4) replies | Private Message me
July 15th
2006
12:58 AM
I have had migraine for 26 years, I took depakote for 12 years before taking topamax. Now the sensation of what I feel in my mouth is wrong. It helped with my migraine but now I have something that every doctor I've seen hasn't heard of. It made me loose 85 lbs., quit sweating, not sleep.... Doctors give me phych drugs to mask the mouth thing, but I'm allergic I'll take migraine over all the things extra this drug has given me also. I think it is dangerous because I QUIT eating I had to make myself eat. This is hard to do when you are absolutely not hungry. Has anyone else had the mouth sensory reaction?
-- By thecarlsons | Reply | Private Message me
January 8th
2005
6:44 PM
loss of weight 18 pounds in 2 months. Also fac ial muscle spasms. I also get a trebling sensation in my head this is particularly bad at night. I recently have noticed eye pain.
-- By justbritt_ | Reply | Private Message me
January 21th
2008
3:58 PM
I have only been on Topamax for a couple of weeks now and it seems I've had every side effect known to man. It is not a boring drug. I've had all the ones you hear about--the fuzzy tingling/numbness in my feet and fingers, stomach cramps/nausea/disinterest in food that comes and goes, and sleeplessness. Sometimes I get this bizarre, creeping sensation that a hair is on this one part of my nose and I can't get it off, a bad weighted, heavy, weak feeling that comes over me about an hour or two after I take the pill, some dizzy moments and even some balance issues. I've had insane cotton mouth since taking the pill and just the last several days my eyes have been so dry it feels like tiny shop vacs are attached to my eye balls. I'm relieved this is maybe a common symptom because I had not read that one and I'm overly paranoid about my eyes because my doctor scared me to death talking about all of the potential rare side effects, such as glaucoma. I have no idea how to know whether what I am feeling is an early symptom of glaucoma versus dry eyes but I believe it is simply dry eyes. It seems logical is you have cotton mouth you'd have dry eyes. Does anyone know how common this is and does anyone have a great drop?
-- By amyy | Reply | (2) replies | Private Message me