January 6th
2008
10:50 AM
Haven't seen anyone mention any sexual SE's but I know I'm not imagining this. It's not a lack of libido but, it's as if my wiring has been disconnected.
A lack of sensation. Major bummer. I can live without sodas but not this!
That was my major reason for getting off the Topamax. My doctor was very incredulous about this being a SE of the Topamax but he didn't argue with me. I came across this site just looking to see if anyone else had experienced this. After getting here I can not believe all the things I have been brushing aside as due to something else. Stomach pain and diarrhea, severe GERD, depression and morbid thinking, oh and my gosh the trouble searching for words and connecting thoughts--I thought I was loosing it, shortness of breath and weakness that I was attributing to weight gain! I have only been on 25 mg a day for 6 months. The migraines did improve and the paresthesia in my hands subsided over time. But all this other crap that has slipped in and I have been passing off as aging or just wondering what else was up with my body and mind. Sheese! Thank goodness for this site! I am tapering off this crap-- and I feel like crap. Weakness and fatigue and a weird pain in the side of my head that is not a headache exactly. I hope I'm back to normal soon, this is awful!
September 29th
2007
5:06 PM
I took Topamax about 6 years ago for migraines, and experienced no side effects. Just started it up again 3 days ago, and I feel like I am totally drugged and my head is spinning, can not drive, can barely hold a conversation, only started with 25mg, and can say that each day I feel a little better, but the only difference this time is that I am on Lexapro and my Dr. said the side effects could be worse till I get used to it..anyone else take this combination? And how long till I can function again?
-- By ka527 | Reply | (3) replies | Private Message me
April 3th
2006
5:45 PM
Topamax has completely altered my life. I had a year and a half of daily migraines, with only a day or two of let-up each month -- my migraines are "common", not "classical", just to clarify, and my symptoms are more like that of a stroke victim's.
Now I only have bad premenstrual migraines (no solution to that yet). I still have migraines with Topamax, but it is like they have been pushed way down.....
I'm on 200 mg/day.
Side effects of Topamax: Mostly marvellous! The sexual side effects I really want to say something about, because I couldn't find anything about this when I first had them. Please allow me, and forgive me for graphically saying this -- this is about anatomy, and I needed to know I wasn't alone when I first experienced this: I experience marvellous spasms in my anus and vaginal walls sometimes, especially during sex, and I've had spontaneous near-orgasms a few times (though once in a grocery store, which was NOT NOT NOT pleasant). My libido has skyrocketed. It's been wonderful. It's been beautiful.
Sometimes I get a definite "Topamax buzz", especially in the afternoon. I sleep much better, and with a migraine can actually push myself, whereas before it was the end of the world. I can push myself, period. That used to be an impossibility.
Definitely, Topamax impairs my ability to speak sometimes. But my ability to think? It's improved 100%. I used to be a writer, and have now returned to this. It would have been unthinkable before Topamax.
I have intense tingling in my extremities, which can be awful at times. I find the negative side effects most unpleasant some days, like the facial twitches -- mostly the left side of my mouth, and sometimes both of my eyelids (like right at this moment). The fatigue, blech.
But honestly, compared to the migraines symptoms, these side effects are a dream. .....And the weight loss is a bit worrisome at times -- though my body looks great I always have to worry that I'm eating enough. I am getting my life back now. Topamax has some wretched side effects, but some beautiful ones too -- it re-opened my mind, gave me focus again.... and the migraines were hell. I am so very very grateful for Topamax.
October 4th
2008
5:06 AM
I've been on topamax at 400mg 2x a day for about 8 years now. It is a great drug but it has HORRIBLE side effects! It ( along with lamictal) gives me WONDERFUL seizure control. And it is safe for pregnancy. BUT it has destroyed my memory. short term and long term I cant remember much of anything! The sexual side effects is just awful. It makes reaching an orgasm almost impossible! I am very scared that I may have full blown alzheimers by the time I am 30!
Has anyone gained they're memory back after stopping topamax?
-- By lolligirl | Reply | (1) replies | Private Message me