Topamax and siezures

I started with 25 mgs of topamax about 5 months ago for migraine prevention. I very gradually increased the dosage to 50 mgs and started having the usual side effects of tingling in hands, metal soda taste, concentration problems; but not bad enought to make me stop as my migraines were stopping as well! Then I upped the dosage to 75 mgs, and the side effects were sudsiding. My nurologist had me up the dosage to 100mg, and that very night I awoke from sleep having my first partial conscious siezure. At the time I didn't know what the heck was happening to me and thought I may be having a stroke. I am only 44 years old and I ran across the street at 2:30 in the morning to my neighbors house who is a nurse. Long story short, it took uppin the dosgae two more times and having this happen each time I upped the dose, to finally realize that it was the topamax that was causing the seizures. Now my nurologist is gradually decreasing my dosage to wean me off the topamax, and hopefully the siezures will stop! Has anyone had any experiences like this? Or am I the only one who get s siezures from an anti sewizure medication?

I was given Topamax about 2yrs ago because I have epilepsy. It seemed to be working pretty well at first, all I had noticed was that I lost about 10 to 15lbs and that the medication seemed to be controlling my siezures fairly well-and who was going to complain about that right? As time went on both my family and I began to notice that my weight wasn't the only thing I seemed to be losing. I'm only 20 and I'm losing both my memory and my hair. At first I just seemed a bit more flighty than usual, and I was finding my hair everywhere-but at this point its really just impossible to deny the difference in me or the amount of my hair thats consistently in my hands, sink or tub. I don't care how thin I am, it's not going to be worth anything if I end up without any hair.

My husband and I had the pleasure of raising a beautiful, very smart grandson for the past 3 and a half years. Hunter had CP and epilepsy. Most of his siezures would last at least an hour which meant ER visits regularly. He took Keppra and Carbatrol and experienced few side effects from these medications,but still had siesures about once a month. Then he started having siezures more often. He was put on Topamax as an add on drug. He built up slowly to 150 Mg per day split into twice a day doses and still had two more siezures so 50 more Mg was added. During the time Hunter was on Topamax he suffered many side effects such as slurred speach, uncoordination, wetting his pants, agressive behavior, and lathargic. He was 5 years old and to young to discribe some of his symptoms. Everyone noticed that he was not the same child as he was before taking Topamax. We were very concerned and did discuss our concerns with his doctors. They felt that it was his body getting adjusted to the Topamax and that the symptoms would lesson when his systom leveled out. I did read that Topamax may cause nose bleeds and if he had a nose bleed to take him to his doctor. He had no nose bleeds till the morning of July 6,2005. I always slept with him because most of his siezures occured at night. It was just habbit for me to check him often if I woke up before he did. On the morning of July 6,2005, I got up at 6:A.M. made sure Hunter was okey and was getting things together for a trip to Magic Springs, an amusement park. Hunter was so excited the night before and all he could talk about was the fun he was going to have at Magic Springs. At 7:00 A.M. I checked on him. He was still asleep and okey. Again at 7:30 A.M. he was checked and was still sleeping and was okey. Twenty minutes later I went in his room to wake him and get him dressed for our trip. Hunter was laying at the foot of his bed face down in a pool of blood. When I turned him over blood was coming out of his nose massively, his face was blue. 911 was called, I did CPR on him till they got to our home, the EMT's did CPR and transported him to the ER. The doctors in ER tried to save him also. Hunter died July6,2005. When Hunter had his first nose bleed it was so massive no one could save him.