July 28th
2005
5:10 AM
My husband and I had the pleasure of raising a beautiful, very smart grandson for the past 3 and a half years. Hunter had CP and epilepsy. Most of his siezures would last at least an hour which meant ER visits regularly. He took Keppra and Carbatrol and experienced few side effects from these medications,but still had siesures about once a month. Then he started having siezures more often. He was put on Topamax as an add on drug. He built up slowly to 150 Mg per day split into twice a day doses and still had two more siezures so 50 more Mg was added. During the time Hunter was on Topamax he suffered many side effects such as slurred speach, uncoordination, wetting his pants, agressive behavior, and lathargic. He was 5 years old and to young to discribe some of his symptoms. Everyone noticed that he was not the same child as he was before taking Topamax. We were very concerned and did discuss our concerns with his doctors. They felt that it was his body getting adjusted to the Topamax and that the symptoms would lesson when his systom leveled out. I did read that Topamax may cause nose bleeds and if he had a nose bleed to take him to his doctor. He had no nose bleeds till the morning of July 6,2005. I always slept with him because most of his siezures occured at night. It was just habbit for me to check him often if I woke up before he did. On the morning of July 6,2005, I got up at 6:A.M. made sure Hunter was okey and was getting things together for a trip to Magic Springs, an amusement park. Hunter was so excited the night before and all he could talk about was the fun he was going to have at Magic Springs. At 7:00 A.M. I checked on him. He was still asleep and okey. Again at 7:30 A.M. he was checked and was still sleeping and was okey. Twenty minutes later I went in his room to wake him and get him dressed for our trip. Hunter was laying at the foot of his bed face down in a pool of blood. When I turned him over blood was coming out of his nose massively, his face was blue. 911 was called, I did CPR on him till they got to our home, the EMT's did CPR and transported him to the ER. The doctors in ER tried to save him also. Hunter died July6,2005. When Hunter had his first nose bleed it was so massive no one could save him.
-- By conniedougan | Reply | Private Message me
July 12th
2007
2:12 PM
Taking Topamax for 2 years started out at 25 mgs 3 times a day for a mood stabalizer (bi-polar). Had tingling in hands and feet sometimes in face. Lost waight, pop tasts nasty, sleepy, short term memory loss, slurred speach. Now I take 100mg at bed time have no symptoms except I still am able to controll my eating (had a problem with over eating) no more road rage but I still felf a little depressed and did cry so I was not to stable until Citalopram 10mg at bedtime and Adderall XL 10mg in the morning was added. Now I finally feel like a totaly normal person. No more anxiety, mood swings, crying, paranoia,or any other weird stuff. I feel pretty good. Rarely I get pins and needles in my hands or feet or I forget where I put something.
-- By tac | Reply | (3) replies | Private Message me