This registry is a place to share positive or negative side effects of using Topamax. If you directly experienced a side effect while using Topamax, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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February 14th
2009
7:00 AM
I have been using Topamax now for 8 years off and on. I stopped the Topamax about 3 months ago, something I do once or twice a year to try and feel 'normal' again. Then last month I went to see my regular doctor because of numb, pale, swollen, achy fingers, swollen ankles and feet, and for a papercut on my knuckle that overnight turned into a radical staph infection. The NP ordered a full blood panel and the results came back positive for Lupus. I have had so much pain in my hips and knees, more frequent headaches (not migraines), insomnia and vision trouble. The past two weeks I have been super irritable and nauseous. I still need to have a 2nd opinion and/or referral to a rheumatologist, but is all of this related to taking the Topamax? I take 2 Imitrex injections if a migraine comes on and am hesitant to start the Topamax if it has indeed induced Lupus. Am I crazy or is this common??? THANKS for the feedback...SM.
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