January 6th
2008
10:50 AM
Haven't seen anyone mention any sexual SE's but I know I'm not imagining this. It's not a lack of libido but, it's as if my wiring has been disconnected.
A lack of sensation. Major bummer. I can live without sodas but not this!
That was my major reason for getting off the Topamax. My doctor was very incredulous about this being a SE of the Topamax but he didn't argue with me. I came across this site just looking to see if anyone else had experienced this. After getting here I can not believe all the things I have been brushing aside as due to something else. Stomach pain and diarrhea, severe GERD, depression and morbid thinking, oh and my gosh the trouble searching for words and connecting thoughts--I thought I was loosing it, shortness of breath and weakness that I was attributing to weight gain! I have only been on 25 mg a day for 6 months. The migraines did improve and the paresthesia in my hands subsided over time. But all this other crap that has slipped in and I have been passing off as aging or just wondering what else was up with my body and mind. Sheese! Thank goodness for this site! I am tapering off this crap-- and I feel like crap. Weakness and fatigue and a weird pain in the side of my head that is not a headache exactly. I hope I'm back to normal soon, this is awful!
November 23th
2007
9:12 PM
I've been on Topamax for over a year for hormonal migraines, and it's working great for the headaches. I started out at 25mg twice a day and now I'm up to 100mg twice a day. I've lost 40lb (mostly due to the drug -- but my appetite is starting to come back) and have just recently started experiencing the anxiety and tingling in the extremities. I've always felt I've had trouble concentrating and "finding the word", but I attributed it to lack of sleep because I have two small children. My most recent side effect, however, is most worrisome, which is the reason for my visit to this website. I am experiencing severe abdominal pain, almost constant, and it seems to be increasing. I had abdominal pain and diarrhea when I first started Topamax last year, but it stopped after the first month or so. I'm just wondering if maybe long term use can cause ulcers or other stomach problems. Anyone have any experience with this? I know from experience that Topamax dosages have to gradually weaned up and down, so I'm considering decreasing my dosage to see if my stomach problems will stop. I'm just in so much pain, yet my migraines have almost stopped now with 200mg a day, that I'm reluctant to change my dose.
-- By tawbrey | Reply | (2) replies | Private Message me
September 28th
2007
11:36 AM
I just started taking Topamax about 2 1/2 months ago -- am up to 50 mg now, and had hit 75 when the side effects became so bad that I went online and discovered that my neurologists had been pretty lax with their advice. They told me that Top. was "a great drug for migraines" and that I might "lose a few pounds," and have "some memory issues at first" but that was it. I believed them and so didn't research further.
20 pounds later (I HAD been on a diet, and thought I lost the weight myself) I started experiencing sore throat in the morning and stomach pain (acid from Topamax). I thought I had appendicitus. So I hit the boards. Weight loss was from theTopamax (and my diet coup goes out the window) Appendicitus --probably not. Oh, also I can't be relied on to remember words or sentences or thought structure; or how to move thoughts into words. And it's not like the words are on the tip of my tongue, etiher. They are gone, as if they never existed. The oddest thing! Professional hell. Hair has yet to fall out. I'm going to have to wean myself off, I suppose, and get ready to ream out the neurologists. If I can remember their names or where they practice....
-- By arilew | Reply | (1) replies | Private Message me
July 12th
2005
8:11 PM
I have been on Topamax since 5/2004 for depression. Currently down to 100mg/day
Negative side effects:
Memory loss
Aphasia
Weight gain (I actually began binge eating and gained 60 pounds on Topamax after having lost 120 pounds on atkins -pre topamax)
Sleep irregularity
Irritability
Leg cramps, stomach pain
Lethargy
Positive side effects
No more migraines, but I am not sure I have a brain left that can feel pain!
The depression is not crippling, but certainly not cured.
March 28th
2005
12:18 PM
I've been on it since mid December. Up to 150mg. Have had minor hand and feet tingling. I do have the problem with memory and trying to get the right words out. Was up to 100 mg and then increased to 150 mg, since then having terrible stomach pain almost daily. My Dr. cut me back to 100 mg to see if it would take the stomach problems away. I hope so, since being on it my migraines have been almost eliminated and I have lost 36 lbs.
-- By slstc | Reply | Private Message me
September 28th
2008
8:46 AM
Topamax makes things taste yucky!! things like soda, beer, etc. And I've typed a whole report before or listed something on ebay and only looked back later and called myself a STUPIDAS# because of all the misspelled words- should of used spell check- which if you take Topamax make sure your spellcheck is on! Don't know why but the med will slurr your speech and brain. I do still get the occasional migraines while taking it so I'll stop it, plus tired of the spelling probs I have while on it. But my doc says I should be persistent with it, just like everything else out there... there's always a price to pay! Other than that, no side effects like stomach pain or weight loss like I've heard in others. Oh but it will make you tired..especially at first..very tired!
-- By 502heather74 | Reply | (1) replies | Private Message me