Topamax and to no avail

I am taking Topomax for migraines. I always start everything at a really LOW dose since I have a lot of probs with side effects. Started at 15 mg and went right away to 30mg (15mg twice daily) the second week because I was dying from headaches. The other antidepressants prescribed for constant daily headache prevention all of a sudden weren't working. I didn't want to take my abortive med for migraines every day (Amerge) so I was curious if Topomax might help my daily headache pain. Possibly my daily headaches had become migraines... so hard to tell one from the other anymore. I teach exercise for a living and so much of my headache pain is exercise induced. I found that while on topomax, all of a sudden 2 Advil would take away a headache I would get after exercising which never happened before. I would take two Advil before doing some of my hardest exercise to prevent a headache and for the most part that worked too... and that never worked before. I had tried all kinds of NSAID's before and after exercise at the advice of my neurologist to no avail. I did have one diffuse headache yesterday that might have been a true migraine and I took Amerge because Advil didn't help. I have been on the 30 mg two week now. But, now the downside. Since on the 30mg I feel like my chest is heavy a lot of time when I do water exercise... I am exhausted a lot doing my usual routines... I feel edgy, can't sleep well at night. I HAVE to have a two hour nap after teaching in the morning or I can't function mentally or physically. I sleep well for that nap time. Seems like I have thermoregulation problems. I teach water exercise and if the water is a little cold it bothers me and it never used to. Then in the pool awhile I feel hot. Same when I sleep.. I need a lot of covers, then I throw them off. Then they are on again. No I am not menopausal yet. My brain is hazy on topomax as well. I take bellydance lessons and sometimes I realize I can't remember what my teacher just told me. Now people reading this, don't think that just because this happens to me, it will happen to you. I know people who LOVE topomax with zero side effects. They don't tend to write in to posting boards. Also, sometimes side effects go away. Be patient if you want to give topomax a shot. I am thinking I am going to go back to 15 mg again... and see how I tolerate that. Because I teach exercise, the hardest thing is to feel the heaviness in the chest and the lack of ambition. This is not me. It is great not to have the headache pain, but I don't know if this is the drug for me. I was excited about the "losing weight " side effect , and I could see how skinny people who lose their appetite easily might be affected, but it takes a lot to stop me from eating LOL darn! I did read in another chat some poor chap had sinisitis for months and took TONS of antibiotics before finding out Topomax gives sinisitis type side effects in a small amount of people. So if you get sinisitis, don't take antibiotics before checking out if topomax is the culprit.

My heart goes out to every person out there trying to find the magic bullet for their headache, siezures, whatever... ADVICE.. .start with SMALL doses... you may be able to get used to side effects if you work up slowly in ALL drugs. In many drugs that didn't come in small doses, I took out 3/4 of what was inside just to get a mini dose. Ask your doc if you can mix one capsule or one pounded up tab of your med with juice and store it in the referigerator. You can drink say 1/8 cup a day of the juice to get 1/8 of a capsule. It is a lot easier than chopping up a tab into eighths. Also ask your doc about childrens doses that come in liquids with droppers. Topomax makes taking smaller doses easy with the sprinkles.. you are encouraged to open the capsule and sprinkle as little as you want on food. Good luck all. L.

I would like to find out if anyone has had similar problems as my wife. My wife has been taking Topamax for 4 to 5 years for migrane relief. During this time she has had a series of problems that list out as side effects (IE: weight loss, difficulty with memory, depression, psychomotor slowing, mood problems, confusion, decreased libido). But the biggest and most problematic is paranoia. We have been married for 29 years and are in our mid 50's. About at the same time she started taking Topamax she went into metaphase. Initially I thought her paranoia was a symptom of metaphase, but she is through that and her paranoia has accelerated. She accuses me constantly of being unfaithful, having another job, investing in things she is not aware of and literally hundreds of accusations. All of wcich are untrue and I have proven that to her time and time again to no avail. Her doctors say no she is on too low of a dose to have these problems, but I dissagree. She went off the medicine in December and January, but started to get frquent migranes in late January so she went back on the medicine. When she was off the medicine her demeanor was like the wife I have had for 25 yaers. When she went back on it she had a significant demeanor and the accusations started up again. She can't get the negative thoughts out of her mind, which is causing her incredible turmoil, and me too as I am the fucus of her paranoia. My next door neighbor was on this very med and developed awful thoughts about her husband and got off the med. It took her about a year to get her mind right. My wife doesn't believe she has this problem. But believe me she does. DO you have or know of others who have had these problems that are on Topax? Please let me know. Thank you! Engineer-guy

I have been having temporal lobe partial complex seizures since I was 5. Was put on Topamax as solo therapy for use also for migraines in 1999. Controlled both well. Gradually I developed severe depression. It was so subtle I was not aware it was my medicine. I did tell my neuro. and he added different antidepressents to the regime to no avail. My life continued to deteriorate. I also had the tingling fingers, toes, twitches on my face, confusion, could not remember anything. I finally became suicidal and a regular MD decided told me to switch neuro and get off the meds in 2005. 1 month after coming off the med I was my old self again. My memory everything came back. I felt like i had lost all those years.