Topamax and toes

I am on 300mgs of topamax a day for epilepsy, and my side effects are the flat tasting carbonated beverages. But the worst side effects is the feeling in the bottoms of my feet. They feel as if my sox are all bunched up and stuffed between my toes, and knotted up under the balls of my feet. It is a miserable feeling. I get the tingling feelings as well. My wife and I love hiking and I a try to stay in shape by doing 4 miles a day on my treadmill. I am 60 years old. I have to really push myself mentally. I hate this feeling. I don't mind the flat tasted, as I can do without the carbonation anyway, but the feet stuff has got to go.

I was on Topamax for about a year. I lost 50 Ibs because, I did not have an appetite. I decided to go off of it. Then I started to gain weight back and wanted to go back on it but, I had terrible itching and every time I got sweaty or in the sun I would start to itch. Now it has been about 9 months that I have been off of it. I have problems with migraines and I also would like to try it to help lose weight but, I am trying to weigh the risks because I don't want that itching problem to start back. Oh yeah...I did not have many problems with memory loss or anything. I liked how I could think everything out more slowly. Basically...I felt like I could concentrate better on stuff and not have racing thoughts. So that was a plus for me. Also had tingling in my toes for about the first 5 or 6 months on it.

After daily pounding migraines for ten months, the side effects of the tingling fingers, tongue, lips and toes; the inability to find words, the weird way certain foods taste, are all very do-able. What does worry me is the way I can get incredibly depressed, but the anti-depressant (Wellbutrin) I've been taking for more than ten years just suddenly started making me worse. I just keep telling myself that at least I don't have a headache. It definitely makes it worth it. The headaches were so bad, and thanks to the topamax, they're gone.

My doctor put me on topamax for daily chronic headaches. I worked my way up to 200mg and had all the symptoms, tingling in my hands and toes, short term memory loss, hard time putting sentences together, etc. I backed myself down to 100mg. and the side effects lessoned up significantly. I stayed on 100mg for almost a year (lost 10 lbs.) One day I decided that I was going to ween myself off and started going down 25mg every week until I stopped altogether. Since I have stopped, I do get headaches, usually 1 or 2 per week, nothing like when I started out on the topamax. I have gained 20lbs since stopping the topamax but no longer have a memory problem or putting together a complete sentence. In my opinion, you should try to take the lowest dose possible that gives you the greatest relieve from your pain.

I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.

Hi. I was on Topamax for about a year for severe pain in my foot. I had nerve pain on the front outside part of my foot so bad I could not walk. I am also a sufferer of chronic migrains and have been hospitalized several times a year for them. I stopped having migrains - didn't realize until now that it was probably the Topamax. I didn't know why they stopped and didn't know that Topamax was used for that. I took it for just over a year. 100 mg a day at bedtime. I lost 40 lbs, the pain in my foot went away, and I haven't had a severe migrain since. I have been off of it for abou 1 1/2 years now, but want to go back on it because of the weight loss and some other nerve pain I am having with my ciatic (sp?) nerve. I did experience tingling in my leg and toes and soda was flat. I didn't know what the leg tingling was from until I read this blog. I can deal with soda being flat because I really don't need the sugar!! I love Topamax. It worked GREAT for me!! The pros far outweigh the cons for me. But everyone is different!!

I have been taking Topamax since 2002 for migraines. I started out slow with 25mg at night for a week then 50, 75 then 100mg after one month. The following week I was suppose to start 25mg in the morning. I received headaches from that. I only stick with 100mg at night and have not suffered from a migraine since. Unless I am hung over. I did get the tingling in my hands and now I hate soda. Which to me is a good thing for all the sugar it has in it. However, when my script runs out and it takes me two or more days for a refill, I get extremely sick. Must be a withdrawel thing. So do not miss more than one day.

I took 75mg of Topamaz for 3 1/2 months for my chronic migraines. The side affects for me were nearly as bad as the headaches: I lost 17 pounds, tingling in my toes and fingers, tiredness, food intolerances, and still had the headaches. I went off the Topamax 2 months ago and thought I was going to be OK. But last week, I developed appendicitis and had my appendix taken out by emergency surgery. I am curious if any other patient has had appendicitis but just didnt relate it to the Topamax.

I have been on Topamax for only 4 weeks now and I have lost alot of my taste for many things like soda. I am also now having tingling in my fingers and panic attacks. Is this happening to anyone else?

Been on 200mg. tpamax about 6 weeks. Problem swelling of the legs and tingling in toes they sometimes turn blue. Is this a side affect of topamax or something else. Doctors have no clue what the problem is any suggestions on what to do.

I have been on Topamax for three weeks now. I have a genetic brain abnormality that causes severe and frequent migraines. Before being put on Topamax, I was experiencing at least one migraine a week lasting for NINE hours. They were unbearable. I am still working up to my full dosage of Topamax, but it seems to be working. My head is clearer than it has been in some time. At this point, I am experiencing some side effects including decreased appetite (though nothing that I couldn't afford to lose) and tingling in the toes and fingers. Of course these pale in comparison to the migraines that I have been rid of since I have been on the medication. I will repost later if I begin to have negative experiences.

I am 34 years old, and I have been taking Topamax for the last 11 months for migraines. I used to get about 1 or 2 headaches a week, and my daily dose is 50mg. I do not have these same side effects that a lot of other people have been having. I have not been dopey, lost weight, lost hair....sometimes - rarely really - my toes do tingle (kind of the pins and needles feeling after they've fallen asleep if you've been sitting on them...) But it's nothing to make me reconsider taking this medication. I just wanted to post this in case there's someone wondering if there is *anyone* who has had a good experience....and I have. I'm so sorry that there are people who have not found the drug to be as helpful as I have. I've been able to accomplish a lot in the last 11 months that I never would have if I'd been plagued by the migraines that I used to have. It's been a lifesaver.

since taking Topamax I have tingling in my toes and above my upper lip and the tip of my nose.

I have been having temporal lobe partial complex seizures since I was 5. Was put on Topamax as solo therapy for use also for migraines in 1999. Controlled both well. Gradually I developed severe depression. It was so subtle I was not aware it was my medicine. I did tell my neuro. and he added different antidepressents to the regime to no avail. My life continued to deteriorate. I also had the tingling fingers, toes, twitches on my face, confusion, could not remember anything. I finally became suicidal and a regular MD decided told me to switch neuro and get off the meds in 2005. 1 month after coming off the med I was my old self again. My memory everything came back. I felt like i had lost all those years.

I started Tomomax one month ago and lost 10 pounds in a week. I have not lost any more but I have not had a migraine either. Just increased my dosage to 50mg a day. My side effects are loss of words sometimes and tingling in my toes.

tingling in my fingers nad toes, cold hands & feet, loss of appitite i have not lost weight, yet.