September 18th
2008
1:08 PM
I've been taking 25mg toprol-xl since December 07, Went to Dr one day for something not heart related and he told me I have a heart murmur, after several test I found out my tricuspid valve was regurgitating. My BP has been a little high but nothing out of control. I have gained over 20lbs since Dec, I ve been extremely tired, swelling in hands and feet. Aches and pains in joints and muscles. I just recently stopped taking zocor thinking that was the culprit and probably was, but now I think it could be the combination of the two. I am going to take myself off of the toprol (monitoring my BP of course) and was wondering how. Any suggestions would be appreciated.
-- By littletexan61 | Reply | (4) replies | Private Message me
September 16th
2008
12:51 AM
I am a 56 year old that had an aortic valve replacement 51/2 years ago, I have been on toprol only 12 mg a day for around 4 years I have had minor side effects, cold feet, cold hands, optical migraine headaches (once in a while). I was on the real toprol for years and then the folks at walgreens offered a generic and I excepted, things were fine and I was rolling along until they chaned generic brands from SANDOZ to ETHEX, I seemed fine on the SANDOZ it even looked the same as the real thing, but when walgreens gave me ETHEX (which is a round pill about twice as large as the other) I began to feel sensations in the middle of my chest and sometimes while taking my pulse it felt like my Heart stopped or skipped a beat, this scared the shit out of me! I took about 22 days worth of EHTEX and the symptoms kept getting worse, I finally called the Cardio folks and they suggested that I wear a Holter monitor for 24 hours, which I did and felt that I had a few Heart stopping moments along with a odd heart burn sensation in the middle of my chest. Two nights ago I found some of the SANDOZ that I had saved for vacations and began taking 12 mg of that instead of the ETHEX today for the first time in nearly 3 weeks I had NO Heartburn problems and NO Heart stopping experience, mind you this was only day one! Looking forward to day 2 and now that I have read all of the side effects from all the good folks on this site, that are not listed when you purchase the drugs, my opinion is that all GENERIC drugs that are suppose to be IDENTICAL to the real thing is a huge lie! What the hell is the FDA doing? Are they trying to let the GENERIC FOOLS poison all of the good folks that actually need these drugs without doing or maybe reading the test results? Or maybe the drug company's have so much clout that they can grease a few palms and get there GENERIC shit to market. To think that these drugs are suppose to be IDENTICAL and then to receive a pill that looks NOTHING like the real thing and when you bust it in half it's a different frickin color (ETHEX)!!!! What was I thinking taking this GENERIC piece of garbage! The GENERIC buttheads along with the real manufacturers should be required by LAW to list ALL ingredients on the label so all of the good folks can read and compare to see what there swallowing and putting into there bodes! I hope to get off of thos drug soon but if I don't rest asure that I will seek out the real thing. I was so freaked out by the side effects that the Cardio Doctor scheduled an ECHO for this Friday, I think the valve is fine but we will find out! Good luck all!
-- By nova63 | Reply | (2) replies | Private Message me
September 7th
2008
3:16 AM
I HAVE BEEN ON TOPROL-XL FOR 2 YEARS. 25 MG. IN AM AND BLOOD PRESSURE WOULD FLUCTUATE UP TO 170/116 AND GO BACK DOWN TO 140/85. THEN WAS ALSO PUT ON NORVASC 25MG. IN PM. I ALSO AM HYPOTHYROID WITH HASHIMOTOS. MY SIDE AFFECTS HAVE BEEN EXTREME. SWEATING, HAVE TO CARRY A PAPER TOWEL OR SCARF TO WIPE SWEAT OFF, SPACED OUT, TIRED, FORGETFULNESS, RACING HEART, LEGS ANKLES SWOLLEN, THEY FEEL SO HEAVY, WEIGHT GAIN, EYES WATER, NOSE WILL HAVE NASAL DRIP, CONSTIPATED, SORE NECK, HEADACHES, THE LIST GOES ON. THIS SUMMER I WENT TO THERAPY FOR MY NECK, HAD ECHO AND WORE 24 HR. HEART HALTER, WHICH I HAVE FOUR EXTRA BEATS, WENT TO ENDRICONE DOCTOR WHO RAN TESTS FOR EVERYTHING, 24 HR. URINE, TESTS CAME BACK WITH TSH HIGH, EVERYTHING ELSE WAS NORMAL BUT FOR MY HEART EXTRA BEATS ENDR. AND FAMILY DOCTOR TOOK ME OFF NORVASC AND PUT ME ON TOPROL-XL 25MG IN PM ALSO AM. WELL FEELING LIKE I WAS READY TO GIVE IT ALL UP, LIKE I WAS DYING, I QUIT TAKING IT LAST NIGHT AND HAVE THOUGHT ABOUT THIS ALL YEAR, TRYING PEPTACE AND CELERY SEED EXTRACT. I FELT SO BAD THAT I KNOW IT COULD BE DANGEROUS TO QUIT THE TOPROL-XL LIKE THAT BUT I FELT LIKE MY HEART WAS GONNA BURST AND IT WAS GANNA TAKE ME OUT ANYWAY, AND DOCS. WOULDN'T LISTEN AND I HAVE BEEN IN TO THEM A LOT WITH ALL MY ISSUES. I AM 56 AND HAVE ALWAYS BEEN ACTIVE, OUTDOORS TYPE PERSON. I WALK 2 MILES ON TREADMILL EVERYDAY AND 30 MIN. OF TAE-BO EXERCISE. I WORK 5 DAYS A WEEK AND HAVE LOTS TO DO AT HOME. THEY TRIED TO PUT ME ON CYMBALTA, LEXAPRO, ELIVOIR FOR THEY SAID WHEN YOU FEEL THAT BAD YOU CAN GET DEPRESSED, I TOLD THEM NO, I AM NOT ADDING ANY MEDS. KNOWING I WOULD GET WORSE. PEOPLE AT WORK, MY FAMILY WILL SAY YOU DON'T LOOK LIKE YOU FEEL GOOD OR IS SOMETHING WRONG, HOW COMPLICATED IT WOULD BE TO EXPLAIN. SO I AM LISTENING TO MY BODY CAUSE FEELING THAT BAD ISN'T RIGHT SO I HOPE THIS WORKS. I COULN'T FEEL ANY WORSE ANYWAY. SO GOOD LUCK TO YOU ALL AND ALL OF US ARE UNIQUE TO FIND WHAT MIGHT WORK FOR US, AND MOST THOSE PRESCRIPTIONS ARE FOR ONE THING AND THEN TRIGGER OFF OTHER THINGS THEN YOU GOTTA TAKE ANOTHER MED. FOR THAT. I AM GLAD TO FIND THIS SITE.
-- By debbie56 | Reply | (1) replies | Private Message me
August 1th
2008
9:32 AM
I am a 37 year old female that went to the ER 3 days ago for chest tightness & extremely high blood sugar. I have had high blood pressure in the past years but as of a year ago when I was diagnosed as being diabetic my blood pressure has been normal about 117/75 so I go to the ER and they give me 2 EKG's and a heart monitor for 24hrs and put me through a stress test,they also give me this little pill and say it will help me, well not feeling well and wanting to feel good again I take the pill no questions asked. I have never felt so tired in my life. I thought well chest pains will do that to you so I dismissed it. I know they were making sure I do not have a heart attack but, my blood pressure seems to be going lower and lower and I am more tired by the minute, they released me from the hospital and gave me a million RX's including toprol and lisinopril both of whch lower blod pressure ??? do they want me to pass out? so yesterday I took the toprol only and felt like I was sinking , my thinking seemed foggy and my legs felt rubbery. I am sooooo glad I found this site because I will not take this drug ever again I already suffer weight issues being diabetic I don't need anything else. I would prefer to be interested in sex and be able too function this drug seems like it is more negative than it is worth. I think I will stick with the lisinopril, and why would they give me two blood pressure meds when my blood pressure is already normal??? If anyone has a comment please let me know I am very scared about this whole thing
-- By kahmere6 | Reply | (2) replies | Private Message me
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (3) replies | Private Message me
July 20th
2008
6:41 AM
Hello all,
I'm a 45-yr old Air Force Major (Male) recently diagnosed with asymptomatic chronic Atrial Fibrillation (As in I have it and was walking around not knowing it). When I went to see the cardiologist, my B.P. was only 120 / 74 (Which, until they changed the rules, used to be normal)and he puts me on Diovan 80mg once a day plus Coumadin 5mg. Well the Diovan almost made me faint and I had numbness in both arms, plus a funky rash, kind of like chicken pox showing up on my arms and thighs.
I went online and read horror stories of Diovan so I stopped taking it immediately (I had only taken four doses and never had any horrible symptoms until after I took the meds!). Then the Dr. put me on an Event Monitor and it showed I was indeed in A-fib all the time, plus at night, my heart was racing briefly to 200 a minute while I was sound asleep. So he puts me on Toprol XL 100mg once a day.
Immediately I had trouble sleeping (Which I never had before, ever!) with crazy dreams and tossing/turning. My B.P. dropped to 88/65 and my fibrillating heart rate was 64!!! I was so mad because I actually felt better before the meds. I found this site and saw what everyone was posting and immediately took myself off the Toprol XL.
The day after stopping the Toprol I had slight chest pains (Like angina or gas bubble) but they went away on their own. I slept fine the next night.
I'm having an Electro-Cardiversion done on the 21st July to see if I can stop the A-fib and get in normal rhythm. I know the Dr. is going to be mad at me for stopping the Diovan and Toprol, but I'm sorry, I'm convinced there is a better way to beat all this (Namely exercise and eating right). Being in the service means you have to be Mr. Physical and Mental "perfect" all the time. I cannot afford to be diagnosed with depression in my line of work! Thanks to all on this website and I wish you the best.
PS. for those who think I'm being ignorant of my medication, I have a nice fat insurance policy and Power of attorney for my wife and kid in the event I keel over!!! I may be medication intolerant but at least I took care of my family.
July 3th
2008
4:18 AM
OK FOLKS -HERE'S A GOOD ONE FOR YA- Just over a year ago I was on a heart transplant list. Today my heart function is normal and I am off ALL HEART MEDS. Even after finding out my heart function level was normal I was still living a nightmare for some unexplained reason. After MONTHS of tests and everyone telling me I was nuts a neurologist finally found out I was having seizure activity. Funny how my "seizure activity" feels EXACTLY how I felt when they increased my beta blocker dosage. I'm telling all of you.. This beta blocker helps some but they are burying their mistakes. I now know all of my ER trips, only to have them laugh and have them send me back home, were do to seizures caused by beta blockers while I had heart failure. I'm lucky to be alive.... and now that my heart function is good I have to fight this seizure BS. *REMEMBER THIS - Only YOU know what your body is telling you.. LISTEN TO IT! But do be careful.. You can't just stop taking a beta blocker.. Good luck all cuz we sure need it!
-- By deucey22 | Reply | (3) replies | Private Message me
June 24th
2008
8:36 PM
I've booen on 100 mmg of toprol for over ten years. Have all the side effects including tinnitus and impotence. Last week for chest pain spent the night at the er , three blood tests, three ekgs, a stellar stress test and echo. All normal and still the sense of doom and the pain under the breastbone... This has been ruining my life. I'm furious after reading all this testimonies . Olease someone give me advise. ******
-- By freddy | Reply | (1) replies | Private Message me
June 17th
2008
12:23 AM
55 year old female
I have been on Toprol 5 years. 50mg. it works for me but since it went generic,I wonder...I am on 10mg lexapro and December started the vivelle-dot for my hotflashes. It is now June and the last 4 weeks my hair is falling out big time.
It is so thin I have to wear a scarf as not to scare small children at work.!! :)
I have talked to a couple of hairdressers and they have told me many of they're clients with thinning hair were on Toprol.
Anyone heard of this? Please help me figure this out.
May 30th
2008
9:35 AM
I am 36 and take 100 mg of generic Toprol a day. I was put on it due to many ( I mean 30 to 40) palps a day. I had been on Atenolol for about 5 years and the doctors told me it had simply quit working. I had an echo and a 24 hour holtor monitor and both came back negative, yet I felt like I was dying daily. My palps have diminished with the medicine, with a change in diet and running 5 or 6 days a week for about 3 miles. Caffeine and alcholol have almost been excluded. I do have cold hands and feet and have had much trouble losing weight. Stomach cramps and an upper right side cramps have been an issue. After reading your posts I think we need to get off this stuff
-- By chadjenfrey | Reply | (3) replies | Private Message me
May 29th
2008
1:18 PM
My BP had been slightly elevated for over a year and my doctor felt it was time for medication. He started me on 25mgs and continued to increase it till I reached 100mgs. I started having anxiety attacks, lightheadedness, dizziness and finally ended up so sick that I was in bed for three days. It was the toprol. I was only on toprol for 3months but found out that trying to come off the drug was the hardest thing I have done. I never had BP spikes before but at the end of the first 24 hrs. without Toprol my BP was hitting 200/104. I went to ER. Matter of fact, the spikes continued and I was in and out of ER until I was finally admitted for tests. The spikes were also accompanied by flushing, rapid pulse(122 beats per minute), lightheadedness and diarrhea.Many times I thought I was having a heart attack. I have seen two cardiologists, an internist and now an endocrinologist for these "BP spikes". All tests come back normal. No matter what the new medication is, nor how low my BP might stay for up to three days....the episodes still happen. My BP can go from a normal range too 200 systolic in a matter of less than 1/2 hr..........Has anyone else had spikes in their BP when coming off toprol. It has been 11 months since stopping this awful drug and I still I no answers....but I have a pile of medical bills.
-- By bjsand | Reply | (1) replies | Private Message me
May 2th
2008
10:44 AM
Hi,
I just found this site and was wondering how long it takes this horrible drug to leave your system. I have been taking it for a year and have suffered the WORST depression and anxiety attacks from it. I have been lucky enough to have never suffered from any of these symptoms in my entire life and my heart goes ou to those who live with it every day
So far I have lost my job, any chance of sleep, and I can barely get out of the house in the morning. Its having a direct affect on my marriage, I have lost all intest in my hobbies, unable to concentrate, I'm just a wreck. I just saw my Dr. last week and she made my dose smaller (25 MG) for the past week and I feel worse. Is there any ending to this?
April 20th
2008
2:37 PM
I too had HORRIBLE experiences on Toprol-XL. I was put on it after I walked into a doctor's office and my BP was 235/152. Yep..you read that right! Scary times. I started taking the med, and I too gained 35 pounds with no change in diet. I was tired, weak, groggy - I honestly felt like I was slowly dying. At that point, I decided that high blood pressure was far better than the experience I had on Toprol. It ruined my marriage. Can you say ZERO libido? I decided that I would try a different form of metroprolol - metroprolol tartrate versus succinate. I did this when I went out of town - I honestly thought my heart was going to pound out of my chest - coming off this medication was horrible, and if the other posts are true about this being worse to come off than opiates, I REALLY feel for addicts now. I have been off the Toprol now for about 9 months, and I feel so much better. I've lost what I call the Toprol weight, and I made some life changes. I did the following: (A) I purchased a rebounder (mini-trampoline) and have built up from 5 minutes per day to 15 minutes per day (goal = 40 minutes per day) - there are HUGE health benefits in rebounding and it's really easy on my joints (google the benefits - I promise you won't be disappointed). I turn on the TV or turn on my Ipod and bounce away. (B) I joined Freelife International, and began drinking Go Chi juice (www.pbowen.freelife.com) because it has three scientific studies proving its effectiveness. (C) I stopped drinking caffeinated soda and began drinking a homemade blend of green (matcha) & darjeeling teas (if you want the recipe, e-mail me and I'll send it pamela.bowen@gmail.com), and (D) I bought a device called RESPERATE (www.resperate.com). I HAVE MY LIFE BACK!!! Don't think you have to live the way you are forever!
-- By pamelabowen | Reply | (2) replies | Private Message me
March 30th
2008
5:10 PM
I just discovered this after 3 months of total misery, 7 different doctors, multiple tests, 1 hospitalization, 16 pound weight loss, almost lost my job, etc., etc., etc.. I want to know if this will have permanent effects on my body and heart and will I ever be the same again. I have been back on the brand TOPROL XL for 9 days now. Keep in mind I didn't know what was happening to me, I never thought twice about the switch to generic, it was cheaper and I also had a lot of stress going on in my life at the time.
My pharmacy switched my "Toprol XL 50 mg" to a Generic one called "Metoprolol Succinate ER 50 mg" (manufactured by Sandoz) in December 2007. I have been on some form of Beta Blockers for years due to PVC's, AVNRT, Bigeminy, Trigeminy and Couplets. NOT High Blood Pressure. In my case I get very symptomatic from the arrhythmias: very low blood pressure, chest pain, fatigue, blacking out. I've had EP studies and attempted ablations in the past, but they were unsuccessful. For the last 2 years I had been under control on this med. Within a week of starting the new generic, I was at my eye doctor because my left eye went from 20/20 to 20/60 and was so blurry that I felt like I had suntan lotion or something in it. The new symptoms just kept coming. Since Dec 07, I have been to a Neurologist, Neuro-Ophthalmologist, Endocrinologist, Gastrointerologist, Ear Nose and Throat Doctor, Cardiologist, and many more. The generic form caused my arrhythmias to come back with a vengeance, I got depression, I couldn't sleep, my chest hurt, my BP was like 85/45, I lost 16 pounds and couldn't eat. I was almost passing out, seeing stars, I had bigeminy/trigeminy day and night for days on end, I was crying for nothing, very moody, I was coughing and wheezing, I had tingling in my arms and hands, loud ringing in my ears, I couldn't concentrate let alone think. I had tons of blood work that the doctors said, "just didn't look right". Upper GI test discovered a hiatal hernia, MRI discovered brain lesions, I had a high red blood cell count (but not anemic), my ferritin was high, my blood sugar was high, I was tested for MS, Lupus, thyroid, everything under the sun and was borderline for these diseases! I thought I was going to die, I had never been depressed in my life and this was the worst. I was beginning to think I was a hypochondriac. But, it was all there on paper, all the tests showed something wrong, but they didn't know what.
I googled Toprol brand versus generic and found out that it wasn't just me, thousands of people have had these same reactions since they started making Generic Toprol. Please read up on it, everyone who writes their story can't be wrong (there is at least one from every state complaining of the same thing). I've been taking the old TOPROL XL BRAND for the last 9 days and my arrhythmias have completely stopped, I have an appetite again and the depression has lifted. I hope it didn't cause any permanent damage.
I know this is probably happening to people everywhere who don't have access to the internet or maybe don't get out much. If you ask the pharmacist, they will tell you that they are exactly the same and they are NOT. The generic may work perfectly for you, but it doesn't work for all. In trying to figure out why I was so symptomatic, the doctors in the hospital took me off the beta blocker completely....I could have had a stroke or heart attack. I started back up on the brand name when after I googled it and realized that you can't just "go off" Toprol. I just wish I would have discovered it about 3 months ago. They thought for sure I had either MS or Lupus and were trying to rule out all the mimics of these very serious diseases. I'm going back to my doctors and have them repeat all the blood tests, etc. to make sure everything is back to normal.
I'm trying to get the word out.
-- By afibber | Reply | (4) replies | Private Message me
March 24th
2008
6:09 PM
I was on toprol-xl for almost 8 years without many problems. i also take isosorbide mononitrate.A few months back I was switched to the generic version (metoprolol succinate er by sandoz) now i have many problems.First I have to say I am disabled with severe COPD. Although I do not feel depressed I have a lot of symptoms of depression. Remember I had no symptoms what so ever until switched by Walgreen's or HMO or Doctor to the generic version. Not sure what to do I have a doctor that does not truly listen,plus he did not want me on toprol xl to begin with. Even though it was good for me. Good luck people!
-- By tking1013 | Reply | (6) replies | Private Message me
March 23th
2008
5:16 PM
I am 57 years old, and never had HBP, I went to the cardiologist and told me I have 140/80 and prescribed Toprol XL 25mg. I bought the generic ones. Today is my second week and I did not know that my headaches (never had headaches before), electric chocks ringing ears , breathing problems, were a side effect of this pill until reading all these experiences of so many people. I am going to cut half the dosis and lower it, so I get out of this medicine. The doctor made an EKG and gave me Toprol because my left atrial was big due to untreated HBP. Is there any natural product, better than this killing medicine, please advice.
-- By marviech99 | Reply | (3) replies | Private Message me
March 15th
2008
6:10 PM
There is an important point that everyone here is missing. I had been on Toprol XL for years, brand name. Recently, a generic version by Sandoz has been issued. It is the GENERIC metoprolol that is causing the side effects, the racing heart, etc. If you can get the doctor to write "no substitutions" on the prescription, and get the original Toprol, you will notice the difference. the problem is, health insurance wants to push the generic, so you will pay more. but it's worth it to feel better!
-- By teresazu | Reply | (3) replies | Private Message me
March 9th
2008
6:25 PM
I was given Metoprolol, a generic for Toprol-XL several months ago, for high blood pressure. It was prescribed after I was determined to be allergic to Lisinopril. ( It caused a cough that lasted 3 months; I sounded like a TB patient.) Anyway, I have been taking Effexor for years, for anxiety attacks. Now that I take Metoprolol along with the Effexor, I am so tired and drained all the time, that I am contemplating quiting work. I go to the grocery, come home and lie down. I can't seem to have energy to breath correctly. My Dr. won't believe that this has anything to do with meds. I have now developed blood and mucous in my stools, diarrhea, and very urgent BMs. This all started after taking these two meds in combination for about 4 months.
-- By taterwood1 | Reply | (4) replies | Private Message me
February 26th
2008
3:01 PM
I have been on Toprol for over 5 years. I have finally (after numerous attempts) - been able to wean off of it. I am on my 10th day (7 day step down and now 3 days with NO Toprol). Can anyone that has successfully gotten off of Toprol please tell me how long it took to start feeling better?
It has caused be severe GERD/Acid reflux, SEVERE breathing problems, and has stopped controlling my HBP - in fact my B/P is HIGHER on Toprol than it ever used to be. It also caused my heart to race from time to time.
I want to get excited about feeling better - just waiting for that to happen. Anyone know what I can expect? Thank you so much.
-- By vanessa74 | Reply | (1) replies | Private Message me
February 13th
2008
9:14 PM
I started taking Toprol XL after being diagnosed with SVT back in May of 2003. I was only in my late 20's & was very trusting, at the time. I was recently sent to a cardiologist because I was having horrible chest pain & the Toprol XL 50 MG wasn't working at keeping the heart rate down. The GP put me on a double dose as well as Cardizem to help with the chest pain & rapid heart rate. I was already on Lanoxin 0.5MG, the highest dose allowed. The cardiologist took me off of the Cardizem right away because he said that is was too stressful for the heart to be on that much heart medicine. I went though several tests & was told by the cardiologist that I didn't have SVT & that this was actually Postural Tachycardia (POTS) & Neurocardiogenic Syncope. I was taken off of Lanoxin, but kept on Toprol XL 100 MG. He put me on lots of salt & water to increase my blood volume which would help my blood pressure when standing. That was in June of 2007. All went pretty good, I thought, until January 18, 2008 when I was working. My heart rate went up to 136 just standing or walking across a room. I called the doctor & talked to a nurse who suggested that I take another 1/2 of a Toprol. I did that & felt better for awhile, but it was short lived. I had been having chest pain, rapid heart rate, fatigue, muscle pain, joint pain, headaches, nausea, vomiting, short term memory problems, rapid weight gain, hair loss, cold extremities, & other things I can't think of right now for what seemed like forever. My gynecologist & my cardiologist first thought that I had thyroid problems, but all tests have come back negative. They then thought that maybe it was from the birth control pills that I had been on for the ovarian cysts. I was changed from one medicine to another & at first I thought that was what was wrong. I am now certain that all of the problems that I have been having were & are a result of the Toprol XL. I was even told that all the problems were "psychiatric in nature". I know that that isn't it at all! I have never had anxiety problems & the GP now thinks that's all that is wrong with me & wants me to go on Zoloft. I tried it, but became so ill that after one pill, I quit. I now plan on weaning myself off of the Toprol XL without the GP's knowledge or consent. The cardiologist was planning on weaning me off at some time in the future, but I am starting without him knowing it at the time. I'll just tell him when I see him next month. Thanks everyone for alerting me to the facts about this medicine. If I had known then what I do now, I'd have never consented to starting it in the first place. My only question is, are some of the "side effects" going to be a permanent thing for me or will they eventually go away? Any advice would be welcome! Thanks again!
-- By micheledelp | Reply | (7) replies | Private Message me
January 10th
2008
9:43 PM
I am a 41 yo woman in good health. I started Toprol xl about 3 years ago for a heart palp that would happen maybe once a day, and occasional racing heart beat. I did great for a long time on 25mg once a day. Then about 6 months back I was switched to generic due to insurance issues - they only want to pay for generic.
It took me a while to figure out what was happening, but several problems started happening over the last few months that I am sure were from this generic drug. Suddenly I was having vivid dreams - fish swimming on the ceiling, cats with heads 5x too big! Worse yet, over about 3 months I gained 20 pounds with no difference in diet. And I was getting more and more tired. I started looking into what could be causing these crazy effects - I was only on Toprol and birth control pills.... well, it was not the birth control!
So, I decided to wean myself from the Toprol. I decided I prefer a heart palp and occasional racing heart to this!! I gave myself a couple of weeks of lesser doses, then 5 days ago I stopped it altogether. I am having some horrid "rebound" or withdrawal effects! Numb/tingling hands and feet, headache and - surprise! High blood pressure! I never, ever took this med for HBP, and I have never had HBP! I always had a nice, low blood pressure, even when 9 months pregnant! Now it's running around 135/93 - I work in a medical office, so I got one of the nurses to check it on Tuesday...she sort of freaked! She said she has seen much higher, but mine is not normal. So we have been checking daily, and it's staying up there. I am so mad to think Toprol could have damaged my body in some way so that my blood pressure may not stay messed up for life. I have read online that the rebound effects can last up to a month, even with a fairly low dose like I was taking. Does anyone know if a month is about right? If my blood pressure keeps this high, I suppose I will have to seek treatment at some point. Ugh!
On the plus side, I don't feel so tired. No vivid dreams since I stopped the Toprol, and much better sleep! I feel "clearer" mentally. I just wish the tingling hands and feet would stop - and the high blood pressure!
-- By ree | Reply | (10) replies | Private Message me
December 28th
2007
3:22 PM
I am 49 years old and have been in great health until about 6 months ago due to some stressful situations with one of my nephews. My blood pressure was 140/80 at the highest. At this time...I began to have some mild heart palpitations and was put on Toprol XL (50 mg.) suddenly my palpitations became more intense and occurred more often. Then I began to have panic attacks and vision and memory problems. My doctor then prescribed Xanax .25mg. for the panic attacks. I weaned myself off of the 50 and began to take .25 mg. I really wanted off of it so I tried to cut that in half for several weeks. After about a month...I went off of the medicine for several days and began to have some strange symptoms. My arms were tingling and numb, I woke up sweating, my head felt strange...so I went back on the Toprol (25 mg.). I really would like to get off of all of this medicine. I have never been one to take anything and I am far worse than I ever was. I just wonder if doctors read this information and if the drug company takes note of any of this. I think this is a very strong drug that is over prescribed. I worry that I have damaged my heart with this drug. I am just not sure what to do. Please help...
-- By kellie1 | Reply | (1) replies | Private Message me
December 20th
2007
4:46 PM
Hello,
Male 50, retired Federal Law Enforcement Agent on 50MG of Toprol XL for hypertension. Bad side effects, dizzy, light-headed, frequent blood pressure drops, pressure in head, lethargic and some tingling in extremities. Symptoms especially worsen after my 45 in walk/jog. The other day I made the mistake of taking this on an empty stomach in the morning prior to the exercise routine. gave me a heck of a wallop afterwards. Stress test, EKG, Holter recorder and blood work all OK. Dr. told me to drop dosage to .25. I'm thinking about dropping the whole damn bottle in the trash. Blood pressure is under under control now so between the retirement and better diet/exercise I think I can stay OK without Toprol. I think Doctors need to pay better attention to the adverse side effects from this stuff as I am reading in here.
Happy Holidays to all!!
-- By defcon | Reply | Private Message me
December 15th
2007
2:09 PM
One month ago I went into CHF, I have cardiomyopathy and A-fib. They put in an ICD that paces. I was sent home on Toprol 50 2x/day .Lisinopril 5 1x/day, Digoxin 125 1x/day & Coumadin. I weigh 86 lbs. These heart meds zapped all the life I had remaining out of me. Even at half doses I was in a fog with severe anxiety. I felt so bad I was readmitted 2x/ in a month. I have tried to take them at night, I have tried spacing them and nothing works other than being drug free. (Coumadin is not a problem) The Dr said there are some folks who just can't tolerate them, and that my real protection comes from my ICD. I worry about not taking the meds, but I have no quality of life with them so what can I do?
-- By denise1953 | Reply | (3) replies | Private Message me
November 17th
2007
3:20 PM
I started taking Toprol XL on Wednesday 11-14. I had been admitted to the cardiac unit after having to be given 2 nitro pills and also a nitro patch to get my chest pain to go away and my blood pressure to come down.
That evening my cardiologist put me on 50mg of Toporol XL. I have had a headache pretty much since that night, that just won't go away. I had an anxiety attack last night that left he crying for no reason pretty much all night long, I have not slept well since the night they put me on it, I have been sick at my stomach since that night, I have been dizzy and not feeling like myself since that night, and I also continue to have a feeling of something being wrong, even though all the bllod work and the stress test came back good.
They told me that my problem was stress related and for the next 2 weeks am to try and remain stress free. But everytime I take the medicine I continue to feel worse with these same symptoms.
-- By wvmom75 | Reply | (1) replies | Private Message me
March 14th
2007
10:07 AM
I have been taking Toprol for about a year for elevated heart rate. It slowed down my heart allright, and my metabolism slowed down with it! I've gained 20 lbs in a year! I joined Weight Watchers 9 weeks ago expecting to lose about 10 lbs by now. I keep a food journal, eat per the program and exercise 5 times a week. I have lost NOTHING. It is very depressing when you do everything that you're supposed to to lose weight and nothing happens. I am going to discuss other alternatives with my physician.
-- By seafan56 | Reply | (2) replies | Private Message me
May 15th
2006
9:12 PM
I am 26 years old and have been on toprol xl for 7 years. I started on 50 mg and now my doctor has increased the dosage to 200mg. I am exhausted 24-7, I have joint pain so bad I can hardly function. i can't even hardly keep up on my housework and I can't work. My hair is falling out and has for 2 years now. I have no sex drive which is ruining my marriage. I just had bloodwork done and my tryglyceride level is 915 which it is suppose to be below 150. I just saw an article that said beta blockers will raise tryglycerides(which is fat in your blood). Also I still have high blood pressure, rapid heart rate, chest pains, palpatations, and "episodes" where i become really hot, pale, nauseated, have severe chest pains, cant move, and weird heart beats and my doctor doesnt know whats wrong. My doctor puts me on a special diet and tells me to exercise. I eat better than most people and still weigh 200 lbs. and I am 5 feet tall. I try to exercise but I am so tired and hurt so much, it is just about impossible for me to do. I felt this way for many years and my doctor doesnt seem to care. she blows me off when i keep telling her how I feel. I didnt even really know toprol could cause such harsh side effects. and now that i know that is why i feel so bad I cant do anything about it because i tried one time to get off the toprol for one day and almost ended up in the hospital because of how bad i felt(my heart)
-- By davmis | Reply | (1) replies | Private Message me
November 28th
2008
4:22 PM
I have been on Toprol XL for 8 years. I began taking it when I was 19 after a "attack" where my heart rate was close to 200 bpm for a couple of hours. I was put on Toprol 50 mg for my SVT. This appeared to help but in the beginning I definitely had a slight difficulty with breathing which was exacerbated by stress. It took me a couple of months to get use to the drug especially since my heart rate didn't necessary adapt to the drug right away. I have been trying for a while to get off the medication without the ablation surgery. My cardiologist(s) never thought I should have the procedure since I was so young. It has been a challenge to get off the medication because my heart rate is so high. I was told that my body is so use to the medication that I need to ween myself off. I went down to 25mg for the last year and just in the last week went off of it completely. While I can feel my heart rate (very rarely) every once and a while, it's not enough to get me to go back on the meds. The one side effect that I have had that my doctors have told me about is stomach trouble. Toprol can weaken the muscles in the esophagus (the flap) and cause pain/burning/nausea. My doctors are not 100% certain that this is what is causing my stomach issues but they feel that my prolonged use of the drug has lead to a weakening of my muscle.
-- By mmmccabe | Reply | Private Message me